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Brain death
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Spinal Cord Stimulation for PD Pain
I was wondering if anyone here has any experience with electrical spinal cord stimulation for the treatment of pain related to PD. Meds have become ineffective and the pain disabling many days. I already have had dbs surgery so I figure at least I could keep some appliances running during a power outage
I was wondering if anyone here has any experience with electrical spinal cord stimulation for the treatment of pain related to PD. Meds have become ineffective and the pain disabling many days. I already have had dbs surgery so I figure at least I could keep some appliances running during a power outage
Pauldmd
in
Cure Parkinson's
8 years ago
What is the recovery time?
Last August, August 2016, I was in a rollover car accident that resulted in a permanent disability for me. I had a stroke and the right side of my body is unusable. I had a traumatic brain injury. My cranioplasty to replace the skull piece was on December 5. It is now March 2017 and I am still experiencing
Last August, August 2016, I was in a rollover car accident that resulted in a permanent disability for me. I had a stroke and the right side of my body is unusable. I had a traumatic brain injury. My cranioplasty to replace the skull piece was on December 5. It is now March 2017 and I am still experiencing
Ecojackie
in
Headway
8 years ago
Disabled with Parkinson's disease!
Hi, I am new ! My name is Don De Baene ! I live in Chatham ,Ontario, Canada ! I am licensed carpenter that was diagnosed with Parkinson's Disease 32 years ago when I was 29 years old ! I had the DBS surgery in 2013 ! Thanks Don
Hi, I am new ! My name is Don De Baene ! I live in Chatham ,Ontario, Canada ! I am licensed carpenter that was diagnosed with Parkinson's Disease 32 years ago when I was 29 years old ! I had the DBS surgery in 2013 ! Thanks Don
donjuan61
in
Cure Parkinson's
8 years ago
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DBS
Those who have DBS - what are your thoughts on having rechargeable or not rechargeable? Am scheduled for DBS 4-4-17
Those who have DBS - what are your thoughts on having rechargeable or not rechargeable? Am scheduled for DBS 4-4-17
Dottie2
in
Cure Parkinson's
8 years ago
Deep Brain Stimulation
After much testing I was not diagnosed with Parkinson, but rather Essential Tremors. Months ago, I underwent DBS surgery, Deep Brain Stimulation at Barrows Neurological Institute, Dr. Francisco Ponce. DBS delivers minute electrical stimulation to specific areas of the brain via a surgical implant similar
After much testing I was not diagnosed with Parkinson, but rather Essential Tremors. Months ago, I underwent DBS surgery, Deep Brain Stimulation at Barrows Neurological Institute, Dr. Francisco Ponce. DBS delivers minute electrical stimulation to specific areas of the brain via a surgical implant similar
In2Az
in
Cure Parkinson's
8 years ago
Lyme disease
Has anyone had any tests for this? Apparently, it's difficult finding a positive reading. Be interesting with the similar symptoms?
Has anyone had any tests for this? Apparently, it's difficult finding a positive reading. Be interesting with the similar symptoms?
spider555
in
Fibromyalgia Action UK
8 years ago
Anxiety at night!
My anxiety started 2 and half years ago. I had my little girl and 6 month later my mother inlaw died suddenly and my dad got cancer! My thoughts are ,I'm going to get a brain tumour, I'm going to have a stroke, just generally I'm going to die. My symtoms are Head aches, tingerling face, and just worring
My anxiety started 2 and half years ago. I had my little girl and 6 month later my mother inlaw died suddenly and my dad got cancer! My thoughts are ,I'm going to get a brain tumour, I'm going to have a stroke, just generally I'm going to die. My symtoms are Head aches, tingerling face, and just worring
hollylauracoleman
in
Anxiety Support
8 years ago
Polyarthralgia?
I had a letter of my rhumy today, my Lyme disease blood tests still are not back after having them done over 2 weeks... but the rest of my test are back... he has put at the top where it says diagnosis: polyarthralgia? I have no idea what this is i have been trying to Google but not a lot seems to be
I had a letter of my rhumy today, my Lyme disease blood tests still are not back after having them done over 2 weeks... but the rest of my test are back... he has put at the top where it says diagnosis: polyarthralgia? I have no idea what this is i have been trying to Google but not a lot seems to be
Hidden
in
LUPUS UK
8 years ago
Supporting someone with Meningitis
One of my friends is currently suffering from Tuberculous Meningitis (TBM). He is currently getting the treatment but I would like to know what I can do to support him during this time. His treatment is ongoing but it seems that he worries about not being able to make it at times and is thus under a
One of my friends is currently suffering from Tuberculous Meningitis (TBM). He is currently getting the treatment but I would like to know what I can do to support him during this time. His treatment is ongoing but it seems that he worries about not being able to make it at times and is thus under a
manan01
in
Meningitis Now
8 years ago
Shingles again?
My mother had shingles once few years(~5) ago. She is 82 yo and was diagnosed with CLL there are 6 years. Was on Rituxan and chlorambucil combination treatment already twice (each treatment with few cycles , treatments 3 years apart) and now was prescribed and started taking ibrutinib 6 weeks ago. Her
My mother had shingles once few years(~5) ago. She is 82 yo and was diagnosed with CLL there are 6 years. Was on Rituxan and chlorambucil combination treatment already twice (each treatment with few cycles , treatments 3 years apart) and now was prescribed and started taking ibrutinib 6 weeks ago. Her
J-123
in
CLL Support
8 years ago
Brain donation for DLB research
In most cases, you must make arrangements for the
brain
harvest upon
death
yourself. It seems that it is the rare mortician, coroner, etc... that is qualified to remove the brain in accordance with the requirements for donation.
In most cases, you must make arrangements for the
brain
harvest upon
death
yourself. It seems that it is the rare mortician, coroner, etc... that is qualified to remove the brain in accordance with the requirements for donation.
Poppygail
Ambassador
in
Memory Health: Alzheimer's Support Group
7 years ago
What You Need to Discuss With Your Doctor
• What is
brain
death
? • How can the doctors say my loved one is
brain
dead when I see them breathing and their heart is still beating? • Is there any treatment to reverse
brain
death
? Who makes a decision to stop such treatments?
• What is
brain
death
? • How can the doctors say my loved one is
brain
dead when I see them breathing and their heart is still beating? • Is there any treatment to reverse
brain
death
? Who makes a decision to stop such treatments?
joncarrbrown
Administrator
in
MyDirectives: Make your medical wishes known!
8 years ago
DBS
Keen to hear if anyone has had DBS implants if so what are the pros and cons. Trying to weigh up benefits as been offered the operation Any unexpected results good or less good? Thanks Al
Keen to hear if anyone has had DBS implants if so what are the pros and cons. Trying to weigh up benefits as been offered the operation Any unexpected results good or less good? Thanks Al
Aleagles
in
Cure Parkinson's
8 years ago
Post CT Scan of Brain and MRI Scan of whole body
You may remember that the result of the CT scan to the head showed, what I was told is brain tumour. The MRI body scan was clear but my GP has phoned and told me that what had been called a tumour is in fact CAVERNOMA (hope I have spelt that right.) and not so serious. I am to see the Neurosurgeon/doctor
You may remember that the result of the CT scan to the head showed, what I was told is brain tumour. The MRI body scan was clear but my GP has phoned and told me that what had been called a tumour is in fact CAVERNOMA (hope I have spelt that right.) and not so serious. I am to see the Neurosurgeon/doctor
dennisleigh
in
Headway
8 years ago
TB - Meningitis - state of coma
Hello , My mother is 56 yrs old and just 12 days ago she had severe headache , and after 2 days of severe headache her condition got more worsen and admitted to hospital , she was diagnosed to be suffering from TBM and medication and treatment for TBM was started , after admission her condition got
Hello , My mother is 56 yrs old and just 12 days ago she had severe headache , and after 2 days of severe headache her condition got more worsen and admitted to hospital , she was diagnosed to be suffering from TBM and medication and treatment for TBM was started , after admission her condition got
Kunalshamija
in
Meningitis Now
8 years ago
Staying positive after bacterial meningitis
Hi everyone. Nearly all the stories I've read on here have been very upsetting and I really feel for the people involved. It is life changing but I'm writing this to try and give people some hope and to let you know that if you're lucky and with support you can recover from this horrendous illness.
Hi everyone. Nearly all the stories I've read on here have been very upsetting and I really feel for the people involved. It is life changing but I'm writing this to try and give people some hope and to let you know that if you're lucky and with support you can recover from this horrendous illness.
Garfy123
in
Meningitis Now
8 years ago
Headache help 🙏🙏🙏
I have headache from last 3 day it's not going away I'm worry about brain tumor because I have healthy anxiety some one can help me please please please.🤕🤕🤕🤕
I have headache from last 3 day it's not going away I'm worry about brain tumor because I have healthy anxiety some one can help me please please please.🤕🤕🤕🤕
srehman
in
Anxiety Support
8 years ago
DBS Off vs DBS On - Deep Brain Stimulation
Hi all This video shows the effect that Deep Brain Stimulation (DBS) has upon my Parkinson's Disease symptoms. I perform a number of tasks with DBS switched off, and then repeat them with DBS switched on - the difference is amazing! https://www.youtube.com/watch?v=D0Hlo_5nDX4 Cheers, Ian
Hi all This video shows the effect that Deep Brain Stimulation (DBS) has upon my Parkinson's Disease symptoms. I perform a number of tasks with DBS switched off, and then repeat them with DBS switched on - the difference is amazing! https://www.youtube.com/watch?v=D0Hlo_5nDX4 Cheers, Ian
Ianfrizell
in
Cure Parkinson's
8 years ago
No treatment options available to me
I was diagnosed recently with Hughes/Lupus & Sjogrens and they tried me on Plaquanil and the side effects and reaction was too profound, I had a letter today saying that mepacrine could be an option but it is much less likely to work and I could suffer similar adverse effects. And due to the fact that
I was diagnosed recently with Hughes/Lupus & Sjogrens and they tried me on Plaquanil and the side effects and reaction was too profound, I had a letter today saying that mepacrine could be an option but it is much less likely to work and I could suffer similar adverse effects. And due to the fact that
riannabri
in
LUPUS UK
8 years ago
Methylphenidate (Ritalin) and the diagnosis game
Hello everyone :) I'm about to try and get methylphenidate (Ritalin in the US, Concerta in the UK) on the NHS. I'm in a weird position, because they refuse to believe my brain injury is real. The official diagnosis is "medically unexplained symptoms", which in treatment terms gets you zilch. I'm going
Hello everyone :) I'm about to try and get methylphenidate (Ritalin in the US, Concerta in the UK) on the NHS. I'm in a weird position, because they refuse to believe my brain injury is real. The official diagnosis is "medically unexplained symptoms", which in treatment terms gets you zilch. I'm going
NightBird
in
Headway
8 years ago
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