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Take part in the Bowel Cancer Endoscopy survey!
Bowel Cancer UK want to know about peoples experience of endoscopies. Do take part and confirm if you were diagnosed as a coeliac during yours to help improve the process and aid their research. Survey link here: https://www.surveymonkey.com/s/WJ8PLPT More handy facts/ info from Bowel Cancer
Bowel Cancer UK want to know about peoples experience of endoscopies. Do take part and confirm if you were diagnosed as a coeliac during yours to help improve the process and aid their research. Survey link here: https://www.surveymonkey.com/s/WJ8PLPT More handy facts/ info from Bowel Cancer
FionaGFG
Administrator
in
Gluten Free Guerrillas
12 years ago
From hospital bed to San Fransisco in 72 hours!
05 Oct 2012 The thing about recovering from a bowel transplant is the unpredictability; you are fine and then before you know it you are back in a hospital bed. I woke up feeling like I had the flu; you know that achy feeling, joints hurting and a bad headache. I never get headaches or at least I
05 Oct 2012 The thing about recovering from a bowel transplant is the unpredictability; you are fine and then before you know it you are back in a hospital bed. I woke up feeling like I had the flu; you know that achy feeling, joints hurting and a bad headache. I never get headaches or at least I
michaelseres
in
IBS Network
12 years ago
Hi everyone,
I really need some help as like all other members I have IBS but I cannot get it under control, its either D or C and its almost impossible to get a routine or rythm. I've had the condition since childhood but in the last year it has become unbearable and uncontrolable as I now cannot leave the house
I really need some help as like all other members I have IBS but I cannot get it under control, its either D or C and its almost impossible to get a routine or rythm. I've had the condition since childhood but in the last year it has become unbearable and uncontrolable as I now cannot leave the house
rockmusician380
in
IBS Network
12 years ago
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Does anyone have any experience of the after efects of cisplatin?
It is likely to be my next chemo.. after weekly taxol which was not really effective. I have not had a platinum based drug for 2 years and cisplatin is being suggested rather than carboplatin because I have reacted to the latter in the past though was still able to have it in the slow regime described
It is likely to be my next chemo.. after weekly taxol which was not really effective. I have not had a platinum based drug for 2 years and cisplatin is being suggested rather than carboplatin because I have reacted to the latter in the past though was still able to have it in the slow regime described
Becalm
in
My Ovacome
12 years ago
Worse IBS C after hysterectomy
I have had alternating IBS D/C for 20 years. Since having a hysterectomy 3 years ago I am really struggling with IBS -C. No amount of fruit, veg, licorice, prune juice, linseed or lactulose etc etc seems to work very well. Not severe but uncomfortable and unpredictable. I started using Symprove pro
I have had alternating IBS D/C for 20 years. Since having a hysterectomy 3 years ago I am really struggling with IBS -C. No amount of fruit, veg, licorice, prune juice, linseed or lactulose etc etc seems to work very well. Not severe but uncomfortable and unpredictable. I started using Symprove pro
binks
in
IBS Network
12 years ago
What to take before surgery??
Having full hysterectomy, omentum and appendix removed next week. Tumor touching my bowel so possible bowel resection too . Can I take anything to make my post op recovery easier? Any advice welcome please from anyone who has had same op. Thank you so much.x
Having full hysterectomy, omentum and appendix removed next week. Tumor touching my bowel so possible bowel resection too . Can I take anything to make my post op recovery easier? Any advice welcome please from anyone who has had same op. Thank you so much.x
HopeP
in
My Ovacome
12 years ago
AMA positive with symptoms, and normal liver function tests
Which scan is the best for helping to diagnose PBC?
Which scan is the best for helping to diagnose PBC?
skywalker
in
PBC Foundation
12 years ago
Oh dear here we go
A friend of 84 years of age has just been diagnosed with bowel cancer. It's set off my health anxiety good and proper. Instead of being concerned for him I'm worrying about me. A very selfish way to think, but I'm off on one now! I feel guilty that I care more about myself than I do a friend with
A friend of 84 years of age has just been diagnosed with bowel cancer. It's set off my health anxiety good and proper. Instead of being concerned for him I'm worrying about me. A very selfish way to think, but I'm off on one now! I feel guilty that I care more about myself than I do a friend with
Bramwell
in
Anxiety Support
12 years ago
I don't know what to do about work
So I just got back from the Doctors. I told him I was getting very anxious about going to work, because of my fibro pain. I work 10 hour night shift 2 nights a week. The doctor wants me to cut my hours down, but I have only just done that, I used to work 5 to 6 days a week. He gave me a higher dose of
So I just got back from the Doctors. I told him I was getting very anxious about going to work, because of my fibro pain. I work 10 hour night shift 2 nights a week. The doctor wants me to cut my hours down, but I have only just done that, I used to work 5 to 6 days a week. He gave me a higher dose of
sassyada
in
Fibromyalgia Action UK
12 years ago
Tummy ach ???
Hi I had my 1st chemo session on Wednesday and it seemed fine. I was ok thursday and friday but by saturday I had bad tummy pains. Has anyone had this, also I have been constipated since. I have taken Lactulose to see if this helps. I dont want to bother the doctor if this is normal. Thanks Babs x
Hi I had my 1st chemo session on Wednesday and it seemed fine. I was ok thursday and friday but by saturday I had bad tummy pains. Has anyone had this, also I have been constipated since. I have taken Lactulose to see if this helps. I dont want to bother the doctor if this is normal. Thanks Babs x
doreenharwood
in
My Ovacome
12 years ago
Is anyone else out there AMA negative. I keep getting little bits of info from my specialist and evidently I am consistently this.
I thought that PBC was usually AMA positive. Evidently I have persistently raised alkaline phosphatase. Is anybody else out there like me??
I thought that PBC was usually AMA positive. Evidently I have persistently raised alkaline phosphatase. Is anybody else out there like me??
SamT
in
PBC Foundation
12 years ago
fibromyalgia book
there are various books on fibro out there but i think the most informative book i have bought is a large detailed book called "FIBROMYALGIA &CHRONIC MYOFASCIAL PAIN" a survival manual ,second addition by american ladies devin starlanyl and mary ellen copeland,what is not in that book isn't worth knowing
there are various books on fibro out there but i think the most informative book i have bought is a large detailed book called "FIBROMYALGIA &CHRONIC MYOFASCIAL PAIN" a survival manual ,second addition by american ladies devin starlanyl and mary ellen copeland,what is not in that book isn't worth knowing
electricjaws
in
Fibromyalgia Action UK
12 years ago
Other foods that many coeliac have prob's with that are gf?
This is something that comes up time and time again. And these foods cause concern for many coeliac as it confuses the issue. Genius bread comes in for a lot of flak and that seems to be because of its high fat content, also some coeliac have problems with xanthan gum and physilium husk. These are
This is something that comes up time and time again. And these foods cause concern for many coeliac as it confuses the issue. Genius bread comes in for a lot of flak and that seems to be because of its high fat content, also some coeliac have problems with xanthan gum and physilium husk. These are
Hidden
in
Gluten Free Guerrillas
13 years ago
Could dairy-intolerance have caused thyroid cancer and periodic paralysis?
My husband wants to know,if anyone knows if there is a link between dairy-intolerance,thyroid cancer and thyrotoxic periodic paralysis? At 49 years of age has discovered he is dairy-intolerant and after removal of dairy from his diet,all symptoms of periodic paralysis have gone. Could the intolerance
My husband wants to know,if anyone knows if there is a link between dairy-intolerance,thyroid cancer and thyrotoxic periodic paralysis? At 49 years of age has discovered he is dairy-intolerant and after removal of dairy from his diet,all symptoms of periodic paralysis have gone. Could the intolerance
PaulaG
in
Thyroid UK
14 years ago
drug treatment
i read an article where it said to stop ovarian cancer coming back they have been using chemo consisting of cisplatin and etoposide. Really sorry cant remember where i read it think it was daily mail but not sure . Anyone else heard of this. xx
i read an article where it said to stop ovarian cancer coming back they have been using chemo consisting of cisplatin and etoposide. Really sorry cant remember where i read it think it was daily mail but not sure . Anyone else heard of this. xx
nikki9
in
My Ovacome
13 years ago
What a busy week for Volunteer Network it’s been
I am writing this on Thursday 16th September and reflecting on my week and thought I would share with you what I’ve been up to since last Thursday. It was a pleasant enough day for my drive to Swansea from Maidenhead where I met the lovely Gillian Knight, Member and Volunteer, who with her husband
I am writing this on Thursday 16th September and reflecting on my week and thought I would share with you what I’ve been up to since last Thursday. It was a pleasant enough day for my drive to Swansea from Maidenhead where I met the lovely Gillian Knight, Member and Volunteer, who with her husband
Hidden
in
NRAS
14 years ago
Is it likely that taking aspirin may help families with BRCA2 gene mutation?
Hi All, I have been watching the news and see that taking aspirin is likely to help people with a history of bowel cancer. I had breast cancer at the age of 32 and ovarian cancer at the age of 52. It is Stage 3C. I responded well to taxol and carboplatin but had a relapse in March and thankfully
Hi All, I have been watching the news and see that taking aspirin is likely to help people with a history of bowel cancer. I had breast cancer at the age of 32 and ovarian cancer at the age of 52. It is Stage 3C. I responded well to taxol and carboplatin but had a relapse in March and thankfully
Chez
in
My Ovacome
13 years ago
Santa found me some Caeylx
Hi All, Quick update for those interested in my journey. As you may recall my CA125 went down to 90 after treatment 3 in first line chemo but then started rising. Last chemo was 28th October and as of 19th December my CA125 was around 480, doubling about every 4 weeks. PET scan shows it is in my Peritoneum
Hi All, Quick update for those interested in my journey. As you may recall my CA125 went down to 90 after treatment 3 in first line chemo but then started rising. Last chemo was 28th October and as of 19th December my CA125 was around 480, doubling about every 4 weeks. PET scan shows it is in my Peritoneum
BusyLizzie
in
My Ovacome
13 years ago
tummy and bowel pain
does anyone suffer with tummy and bowel problems. i never did up untill i decome ill. i now have alot of acid and burning in my tummy, also very sensitive to food and medication. i can hardly tolorate any meds. my bowels seem to join in with my tummy with cramps,spasms, bloating and wind. any of this
does anyone suffer with tummy and bowel problems. i never did up untill i decome ill. i now have alot of acid and burning in my tummy, also very sensitive to food and medication. i can hardly tolorate any meds. my bowels seem to join in with my tummy with cramps,spasms, bloating and wind. any of this
nerri
in
LUPUS UK
12 years ago
Looking for advice
Hi, my mum has recently been admitted to hospital with blood clots in both legs and both lungs; fluid in her abdomen & lungs which has cancer cells and a 14 cm "mass" which they have now advised is a polyp. Although they have not found her primary cancer it is likely to be ovarian or in her uterus &
Hi, my mum has recently been admitted to hospital with blood clots in both legs and both lungs; fluid in her abdomen & lungs which has cancer cells and a 14 cm "mass" which they have now advised is a polyp. Although they have not found her primary cancer it is likely to be ovarian or in her uterus &
RoseyH
in
My Ovacome
13 years ago
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