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13 public communities
Bowel Disease Support
1,367 members
We are a peer support community for people living with bowel disease. Here we share our experiences, ask questions and support each other!
IBS Network
47,601 members
The IBS Network is the national charity that helps people with Irritable Bowel Syndrome (IBS) and has provided support to those with the condition and to healthcare professionals for over 25 years. Funding for the charity is received from a number of sources, including: annual memberships, an online shop for purchasing the ‘Can’t Wait’ card, Radar keys and other useful aids, in addition to income from legacies.
Lynch Syndrome UK
115 members
Lynch syndrome (LS) is a genetic disorder that causes an increase in certain cancers at an earlier age than usual. There about 12 cancers that can be affected, the commonest are large bowel cancer and rectal cancer. After that, the next most common is womb cancer. LS tends to run in families so it is usual to find than people in different generations have one of these cancers. Find out more on our website lynch-syndrome-uk.org
Living with a Stoma
1,018 members
We are a peer support community for people who experienced stoma or are affected by stoma surgery on their bowel or bladder. Join us to discuss your condition, ask questions and get quick advice from others like you!
ERIC
8,834 members
We are a community that supports families with children or teenagers who have bowel and/or bladder problems (including potty training, bedwetting, daytime wetting and constipation/soiling). Please feel free to ask our members any questions you might have about these conditions or to share your own experience of managing a continence problem in childhood or adolescence. Most of our members are parents but we do also have some young people who contribute. Whatever your situation, we hope you feel welcome here. If you would like to speak to an expertly trained continence advisor, please call the helpline run by ERIC, The Children's Bowel & Bladder Charity on 0808 169 9949. The telephone helpline is open Monday to Thursday 10am - 2pm and calls are free from landline and mobiles.
Colon Cancer Connected
13,742 members
Welcome to the Global Colon Cancer Association's HealthUnlocked Community! HealthUnlocked is a social network for health. By finding others with similar health backgrounds, you can take on day to day health concerns together. The Global Colon Cancer Association is the voice for the millions of colon/bowel (CRC) cancer patients worldwide. We advocate for patient centered policy around the globe to ensure increased awareness and screening, access to quality medical treatments and help our member organizations collaborate, innovate and leverage the full potential of effectuating change. The GCCA also supports the creation of new patient advocacy groups in developing areas which have no CRC organizations. The GCCA unites all stakeholders in the battle against this disease with one unified voice.
Pelvic Pain Support Network
19,424 members
This community is run by the Pelvic Pain Support Network, a registered charity. The community forum exists to support those who wish to share and learn from others who have abdominal and/or pelvic pain and to provide peer support in managing the pain. It is moderated by trustees and members of the charity who are volunteers with personal experience of pelvic pain. Pelvic pain can be caused by many conditions affecting the pelvis such as adenomyosis, adhesions, endometriosis, painful periods, bladder pain, pelvic nerve damage, pudendal neuralgia, irritable bowel syndrome. One or more of these may be present or the person may not have a diagnosis. Pain that exists for 6 months or more, either intermittently or constant, is a condition in its own right. This community forum exists to support those who have had pain in the abdomen/pelvis for 6 months or longer with or without a diagnosis.
Cervical Myelopathy
608 members
Cervical Myelopathy is caused by deterioration in the spine in the neck leading to compression of the spinal cord and symptoms such as “numb” and “clumsy” hands, loss of coordination, imbalance, bladder and bowel problems, and weakness that can progress to severe paralysis. The Cervical Myelopathy community is part of the myelopathy.org network founded in 2015 to raise worldwide awareness of cervical myelopathy to support patients, carers and professionals who live and deal with it. We understand that being diagnosed with Myelopathy is life changing. We also understand that talking about it will help. If you, or someone in your family, has been diagnosed with Myelopathy, We welcome you and We want to support you in your journey
The Simon Foundation for Continence
634 members
Welcome to The Simon Foundation for Continence online support community. The Foundation is dedicated to providing educational information, resources, and support to people with incontinence and their caregivers, both professional and family/friends. We provide educational support to both urinary and/or bowel incontinence issues. Established in 1982 in the US, we have been continually dedicated to: Bringing the topic of incontinence out into the open, removing the stigma surrounding incontinence, and providing help and hope for people with incontinence, their families, and the health professionals who provide their care. While we are based in the US, we work internationally. And you can learn more about us and our history on our main website: https://www.simonfoundation.org/
Pelvic Radiation Disease Association
619 members
The PRDA community is a peer support group where people can ask questions and share their experiences as well as supporting each other in living with Pelvic Radiation Disease (PRD). The group is run by the Pelvic Radiation Disease Association which is a UK based, patient-led charity set up to provide information and support to people who experience PRD following cancer treatment. PRD is a long-term side-effect (‘late effect’) affecting an estimated 100,000 people in the UK. We understand that people living with PRD can often have a complex set of symptoms which may affect their bowel, bladder, sexual and/or other functions for many years after radiotherapy. These symptoms sometimes only appearing several years or even decades after their radiotherapy treatment. PRD is defined as one or more ongoing symptoms of variable complexity that may affect people who have previously had radiotherapy to the pelvic region to treat their cancer. This includes pelvic radiotherapy for cancers of the colon, rectum, anus, prostate, testes, bladder, cervix and womb, but also total body radiotherapy and radiotherapy in the pelvic area for other primary and secondary cancers. Other words that are sometimes used to describe symptoms of PRD include: Radiation enteritis, Radiation proctitis, Radiation colitis, Radiation enteropathy, Radiation cystitis, Radiation cystopathy, Radiation-induced lumbar plexopathy and Pelvic insufficiency fractures.
LDN Research Trust
1,382 members
The primary aim of the Trust is to initiate Clinical Trials of Low Dose Naltrexone. Whilst working to raise funds for trials, we have helped over 16,000 people to obtain LDN from a General Practitioner or Neurologist, either through the National Health Service or by private prescription. We have also been able to help people, not just in the UK but in countries throughout Europe, as well as USA, Canada, West Indies, Australia, New Zealand, and others. By using this website and from our downloadable newsletters, you will be able to read the stories of some of these people. We have helped many people with MS, Crohn's, IBS, ME and Cancer to name a few. The use of LDN is spreading. Our ultimate goal is for everyone to be prescribed LDN globally for all conditions where LDN could be of benefit
Crohn's and Colitis Support
5,292 members
We are a peer support community for people living with Crohn's disease and Ulcerative colitis. Here we share our experiences, ask questions and support each other!
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