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GvHD of the lungs
Hi all I am new to this site. I am not posting about myself but about my 32 year old brother. 9 years ago he had a stem cell transplant to treat leukaemia (I was his donor), which has been in remission ever since. We have been lucky enough to have 9 good years during which time he has worked full time
Hi all I am new to this site. I am not posting about myself but about my 32 year old brother. 9 years ago he had a stem cell transplant to treat leukaemia (I was his donor), which has been in remission ever since. We have been lucky enough to have 9 good years during which time he has worked full time
elliemh
in
Lung Conditions Community Forum
10 years ago
Another Front Against Leukemia: Using Stem Cells to Make Bone Marrow Transplants Low-Risk
Another Israeli biotech firm (well, I guess that Karyopharm Therapeutics--the developer of KPT-330 being tested against Richter's--is only half-Israeli) is working on using stem cells to make bone marrow transplants extremely tolerable. It is an interesting technology. An article is here: http://israel21c.org
Another Israeli biotech firm (well, I guess that Karyopharm Therapeutics--the developer of KPT-330 being tested against Richter's--is only half-Israeli) is working on using stem cells to make bone marrow transplants extremely tolerable. It is an interesting technology. An article is here: http://israel21c.org
zevkalman
in
CLL Support
10 years ago
Has any one been told to prepare themselves for the possibility of a bone marrow transplant. I've had ET for 14years taking Hydrox in variou
Doses over the years. Told I had changed to MF only in November last year that was such a shock.Taken of Hydrox completely 4 weeks ago only take asprin at the moment. Due to anaemia sweats &fatigue & an enlarged spleen..its all happened so quickly. I feel they sew the seed to make you think talk to your
Doses over the years. Told I had changed to MF only in November last year that was such a shock.Taken of Hydrox completely 4 weeks ago only take asprin at the moment. Due to anaemia sweats &fatigue & an enlarged spleen..its all happened so quickly. I feel they sew the seed to make you think talk to your
softail
in
MPN Voice
10 years ago
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Misleading headlines - "Breakthrough cure" for MS
New results from stem cell transplantation research in mice have been published today, leading to misleading articles in a number of newspapers about what this could mean for people with MS. "Could stem cells help people paralysed by MS? Scientists reveal they are 'astonished' by landmark study" -
New results from stem cell transplantation research in mice have been published today, leading to misleading articles in a number of newspapers about what this could mean for people with MS. "Could stem cells help people paralysed by MS? Scientists reveal they are 'astonished' by landmark study" -
Sorrel_MS_Society
MS Society
in
Healthy Evidence
10 years ago
Bone marrow transplant
Hi. So I saw Dr Lachmann this week and he announces that my MRI shows a growing lesion on my brain, and that this means I may start getting ALD on top of my AMN. The only way to stop this is to do a bone marrow transplant, which is very very scary. Anyone has experience of this situation? And has anyone
Hi. So I saw Dr Lachmann this week and he announces that my MRI shows a growing lesion on my brain, and that this means I may start getting ALD on top of my AMN. The only way to stop this is to do a bone marrow transplant, which is very very scary. Anyone has experience of this situation? And has anyone
Nicolas
in
AMN EASIER
10 years ago
I am feeling worried about the possibility of having a bone marrow transplant with my sister as donor.
I have read all the hospital pamphlets and a transplant seems like a very difficult process with many long term side effects. One pamphlet said 'you will feel ill for a year after the bone marrow transplant and may never fully regain your health'. Another said it may cause cataracts a couple of years
I have read all the hospital pamphlets and a transplant seems like a very difficult process with many long term side effects. One pamphlet said 'you will feel ill for a year after the bone marrow transplant and may never fully regain your health'. Another said it may cause cataracts a couple of years
splashsplash
in
CLL Support
10 years ago
Bone marrow transplant
Hi All I know its a long shot but have any of you ever heard of someone having a bone marrow transplant for severe vasculitis. I know there has been for WG and Bechets but it is minimal. I would ideally like to get a personal perspective. Thank you Sarah
Hi All I know its a long shot but have any of you ever heard of someone having a bone marrow transplant for severe vasculitis. I know there has been for WG and Bechets but it is minimal. I would ideally like to get a personal perspective. Thank you Sarah
Sarahjh2004
in
Vasculitis UK
10 years ago
Ednama
Has anyone had a successful stem cell transplant for myleodisplasia. Husband going for his initial consultation tomorrow and all we can read is negatives. Thanks
Has anyone had a successful stem cell transplant for myleodisplasia. Husband going for his initial consultation tomorrow and all we can read is negatives. Thanks
Ednama
in
MPN Voice
10 years ago
i underwent second-line chemotherapy and bone marrow transplant last month. what can i do to improve my skin? it's become very dry and dull.
sumegha
in
Cancer Patients Aid Association India
10 years ago
What is Immune System
What is Immune System The immune system is a network of cells, tissues, and organs that work together to defend the body against attacks by “foreign” invaders. These are primarily microbes—tiny organisms such as bacteria, parasites, and fungi that can cause infections. Viruses also cause infections,
What is Immune System The immune system is a network of cells, tissues, and organs that work together to defend the body against attacks by “foreign” invaders. These are primarily microbes—tiny organisms such as bacteria, parasites, and fungi that can cause infections. Viruses also cause infections,
Hidden
in
Diabetes India
11 years ago
Adrenomyeloneuropathy - does anyone have any info of specialists in the north west of the uk??
my brother-inlaw has Adrenomyeloneuropathy and the doctors around here are not really treating him very well with this as we know his cousin who lives along way from us has this condition and he gets better treatment. we have read up on him being able to have bone marrow transplant and when my husband
my brother-inlaw has Adrenomyeloneuropathy and the doctors around here are not really treating him very well with this as we know his cousin who lives along way from us has this condition and he gets better treatment. we have read up on him being able to have bone marrow transplant and when my husband
vicarl
in
AMN EASIER
11 years ago
Inspiration x
Hi all, Just thought Id check in to say hi and ask how we all are? Im having a few days off from sailing ( imaginary ship of progress) to do my cbt homework. Not a lot to report, still having my niggles to do with health x but i need to feel these things to make progress, if that makes sense
Hi all, Just thought Id check in to say hi and ask how we all are? Im having a few days off from sailing ( imaginary ship of progress) to do my cbt homework. Not a lot to report, still having my niggles to do with health x but i need to feel these things to make progress, if that makes sense
Hidden
in
Anxiety Support
11 years ago
Research: Gathering ethnicity statistics
To help us support research into ALD and AMN better, we've started to compile statistics on the different ethnicities and demographics of patients and families affected by the ALD gene. Ethnicity and demographic statistics are also fundamental in supporting families requiring a Bone Marrow Transplant
To help us support research into ALD and AMN better, we've started to compile statistics on the different ethnicities and demographics of patients and families affected by the ALD gene. Ethnicity and demographic statistics are also fundamental in supporting families requiring a Bone Marrow Transplant
Hidden
Partner
in
Leukodystrophy Support
11 years ago
Participation in clinical trials.
On July 3rd I attended a meeting jointly organised by a number of PD support organisations which was a truly memorable experience! It focussed on clinical trials from the perspectives of PwP (especially those with experience of trials), carers/ their families & medical professionals. The event was
On July 3rd I attended a meeting jointly organised by a number of PD support organisations which was a truly memorable experience! It focussed on clinical trials from the perspectives of PwP (especially those with experience of trials), carers/ their families & medical professionals. The event was
honeycombe3
in
Cure Parkinson's
11 years ago
Complications After Kidney Transplant
After kidney transplant, the patient is very prone to infection. Three contributive factors are as following. First, the major surgery on blood vessel and urinary system temporarily decrease patient immune ability. Secondly, for kidney failure patients, their absolute immunity is low then normal person
After kidney transplant, the patient is very prone to infection. Three contributive factors are as following. First, the major surgery on blood vessel and urinary system temporarily decrease patient immune ability. Secondly, for kidney failure patients, their absolute immunity is low then normal person
Hidden
in
Early CKD Support
11 years ago
Esa Tribunal Advice
Hi guys, I am due to attend an ESA tribunal on the 5th August and am looking to get some advice as to how best approach this. My background history is as follows; (please excuse the fact that is so long!) I am 39 years old this month, and was diagnosed with Hodgins Disease in May of 1999. The cancer
Hi guys, I am due to attend an ESA tribunal on the 5th August and am looking to get some advice as to how best approach this. My background history is as follows; (please excuse the fact that is so long!) I am 39 years old this month, and was diagnosed with Hodgins Disease in May of 1999. The cancer
kjaye767
in
Lung Conditions Community Forum
11 years ago
BoneMarrow
Anyone know about a Bone Marrow Transplant? As a last resort for ITP?
Anyone know about a Bone Marrow Transplant? As a last resort for ITP?
lmc167
in
ITP Support Association
11 years ago
REMEDY IN HERBAL FOR SICKLE CELL
If the truth will not be ignored, There are herbal remedies/cure to this genetic disease. Apart from the bone marrow transplant declared by the specialist as the only cure, though its 50/50 chance as also said, i have witnessed several cure with herbal medication used with 3-6months. It high time
If the truth will not be ignored, There are herbal remedies/cure to this genetic disease. Apart from the bone marrow transplant declared by the specialist as the only cure, though its 50/50 chance as also said, i have witnessed several cure with herbal medication used with 3-6months. It high time
Hidden
in
Sickle Cell Society
11 years ago
rain stopped play :/
Hi all, im feeling pretty good at the mo helped no doubt by philip on bgt i laughed so much at his louis spencer i thought i was going to wee :) hehe. It felt good to laugh i really should try to do it more, Im always to serious and looking around for the dangers even when they arent present that at
Hi all, im feeling pretty good at the mo helped no doubt by philip on bgt i laughed so much at his louis spencer i thought i was going to wee :) hehe. It felt good to laugh i really should try to do it more, Im always to serious and looking around for the dangers even when they arent present that at
Hidden
in
Anxiety Support
11 years ago
Its coming back :/
Well what can I say im still housebound but was beginning to be happy in my surroundings as I had,nt really suffered a panic attack in a few weeks and then wham last night a big one, but it was very different to any ive had before I felt as if my body was falling and that I was slippin away and I had
Well what can I say im still housebound but was beginning to be happy in my surroundings as I had,nt really suffered a panic attack in a few weeks and then wham last night a big one, but it was very different to any ive had before I felt as if my body was falling and that I was slippin away and I had
Hidden
in
Anxiety Support
11 years ago
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