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Stem cell transplant
Hi all I am at the moment awaiting a stem cell transplant for my systemic scleroderma as advised by professor Denton at royal free and was wondering wether anybody out there has had it and what was the result x
Hi all I am at the moment awaiting a stem cell transplant for my systemic scleroderma as advised by professor Denton at royal free and was wondering wether anybody out there has had it and what was the result x
Typicalmommy
in
Scleroderma & Raynaud's UK (SRUK)
9 years ago
update on daughter
Well daughter has been in hospital for a week, they found a nasty virus that they didnt want it to mature. It would do a lot of damage. The good news is there could be action on the bone marrow transplant in the middle of Dec. We all have our fingers crossed. I said to her there is a small light at the
Well daughter has been in hospital for a week, they found a nasty virus that they didnt want it to mature. It would do a lot of damage. The good news is there could be action on the bone marrow transplant in the middle of Dec. We all have our fingers crossed. I said to her there is a small light at the
fastball
in
NRAS
9 years ago
MDS World Awareness Day today 25th October 2015
Thought you may be interested. MDS is a rare bone marrow disease which is only curable by a cell stem or bone marrow transplant. I can't find any information or indeed references on this web site but anyone affected, see more here www.mdspatientsupport.org.uk. Best regards Glyn
Thought you may be interested. MDS is a rare bone marrow disease which is only curable by a cell stem or bone marrow transplant. I can't find any information or indeed references on this web site but anyone affected, see more here www.mdspatientsupport.org.uk. Best regards Glyn
Gforce1
in
CLL Support
9 years ago
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Dr. Shpall on Therapeutic Agents for the Treatment of CLL
Elizabeth J. Shpall, MD, professor, deputy department chair, Department of Stem Cell Transplantation, Division of Cancer Medicine, medical director, Cell Therapy Laboratory, director, Cord Blood Bank, the University of Texas MD Anderson Cancer Center, discusses idelalisib and ibrutinib for the treatment
Elizabeth J. Shpall, MD, professor, deputy department chair, Department of Stem Cell Transplantation, Division of Cancer Medicine, medical director, Cell Therapy Laboratory, director, Cord Blood Bank, the University of Texas MD Anderson Cancer Center, discusses idelalisib and ibrutinib for the treatment
Justasheet1
in
CLL Support
9 years ago
First adult cured of SCD . America.
Adults with sickle cell disease can be cured without chemotherapy – the main barrier that has stood in the way for them for so long,” Rondelli said. “Our data provide more support that this therapy is safe and effective and prevents patients from living shortened lives, condemned to pain and progressive
Adults with sickle cell disease can be cured without chemotherapy – the main barrier that has stood in the way for them for so long,” Rondelli said. “Our data provide more support that this therapy is safe and effective and prevents patients from living shortened lives, condemned to pain and progressive
Hidden
in
Sickle Cell Society
9 years ago
Imaging provides clearer picture of Hematopoietic Stem Cells (HSCs) and the B Cell surface
The billions of blood cells we produce every day come from just a few active Hematopoietic Stem Cells in our bone marrow. Understanding more about how these hard working cells function is critical, not only to improving the treatment of blood conditions and blood cancers, such as CLL, but many medical
The billions of blood cells we produce every day come from just a few active Hematopoietic Stem Cells in our bone marrow. Understanding more about how these hard working cells function is critical, not only to improving the treatment of blood conditions and blood cancers, such as CLL, but many medical
AussieNeil
Partner
in
CLL Support
9 years ago
V-Kit Hardy-Zuckerman 4 Feline Sarcoma Viral Oncogene Homolog
My Son had his Kit Gene test back which may answer the family health and leukaemia coincidence. It shows that he has the kit gene which make a bone marrow transplant more likely now so they are now looking to see if his brother is a match ( 25% chance ) What we do not know is who of us has the gene
My Son had his Kit Gene test back which may answer the family health and leukaemia coincidence. It shows that he has the kit gene which make a bone marrow transplant more likely now so they are now looking to see if his brother is a match ( 25% chance ) What we do not know is who of us has the gene
Offcut
in
Lung Conditions Community Forum
9 years ago
Bone marrow transplant
Hi I have son who's 10 years old He has had thalasemia major where his body don't make blood and he has to have regular blood transfusions . We have blood every 4 weeks and has a check 2 days before having blood of how much hemo globian level it is to give blood. Over the 10 years he has had other
Hi I have son who's 10 years old He has had thalasemia major where his body don't make blood and he has to have regular blood transfusions . We have blood every 4 weeks and has a check 2 days before having blood of how much hemo globian level it is to give blood. Over the 10 years he has had other
Umar7860
in
My Ovacome
9 years ago
Why we need to register and report the results of all clinical trials
schwit1 writes in Slashdot: [i]"The requirement that medical researchers register in detail the methods they intend to use in their clinical trials, both to record their data as well as document their outcomes, caused a significant drop in trials producing positive results. From Nature: http://www.nature.com
schwit1 writes in Slashdot: [i]"The requirement that medical researchers register in detail the methods they intend to use in their clinical trials, both to record their data as well as document their outcomes, caused a significant drop in trials producing positive results. From Nature: http://www.nature.com
AussieNeil
Partner
in
CLL Support
9 years ago
The Anti-Inflammatory Diet
Check out this new article from Alexandra Rothwell, a registered dietitian. Inflammation is a popular “buzz word” in the world of nutrition and cancer. Foods and nutrients are touted for their “anti-inflammatory” properties, and we happily associate this with good health - as we should. However,
Check out this new article from Alexandra Rothwell, a registered dietitian. Inflammation is a popular “buzz word” in the world of nutrition and cancer. Foods and nutrients are touted for their “anti-inflammatory” properties, and we happily associate this with good health - as we should. However,
tydonald
in
Cook For Your Life
9 years ago
update on daughter
As you all know my daughter has had an on going illness that turned out to be Aplastic Anemia. She had some treatment back in April which was a cocktail of anti_biotic straight into her blood ( i believe) through an Henrick Feed, This they used for everything, Steroids etc. They were hoping this would
As you all know my daughter has had an on going illness that turned out to be Aplastic Anemia. She had some treatment back in April which was a cocktail of anti_biotic straight into her blood ( i believe) through an Henrick Feed, This they used for everything, Steroids etc. They were hoping this would
fastball
in
NRAS
9 years ago
LIKE A PHOENIX. . . . .
Hello Peops I have an update on my MF. . . . I'm sorry to say that after a year or so my Ruxo Golden Ticket Has left me on a very sticky wicket, My oversize spleen remains the same It simply hasn't played the game, The fibrosis is present within my bones And to be honest I fear these 'undertones'.
Hello Peops I have an update on my MF. . . . I'm sorry to say that after a year or so my Ruxo Golden Ticket Has left me on a very sticky wicket, My oversize spleen remains the same It simply hasn't played the game, The fibrosis is present within my bones And to be honest I fear these 'undertones'.
JediReject
in
MPN Voice
9 years ago
Joining the anxiety of parents
It's good to read about people sharing useful info.I've been dealing with this problem for 7 years when.n my son who is 8 now was diagnosed with IT and has had 3 bone marrow tests so far.I ve been told the only cure is bone marrow transplant but I'm not sure how far that can be successful. I have to
It's good to read about people sharing useful info.I've been dealing with this problem for 7 years when.n my son who is 8 now was diagnosed with IT and has had 3 bone marrow tests so far.I ve been told the only cure is bone marrow transplant but I'm not sure how far that can be successful. I have to
S38abcd
in
ITP Support Association
9 years ago
In the beginning...
...There was smoking, and obesity and .... well you know the rest. A trip down AML lane led to a bone marrow transplant and all seemed well until COPD came along. So, if the one doesn't get you the other one will - only slower! I am late in years now. Started out as a journalist (sorry people) and then
...There was smoking, and obesity and .... well you know the rest. A trip down AML lane led to a bone marrow transplant and all seemed well until COPD came along. So, if the one doesn't get you the other one will - only slower! I am late in years now. Started out as a journalist (sorry people) and then
Timberman
in
Lung Conditions Community Forum
9 years ago
Second opinion..
X-ray of cervical spine shows wear and tear change.Right ankle showed a tiny
bone
spur
on the heal and the x-ray showed fixation device overlying the lower fibula and some arthritis in ankle joints.
X-ray of cervical spine shows wear and tear change.Right ankle showed a tiny
bone
spur
on the heal and the x-ray showed fixation device overlying the lower fibula and some arthritis in ankle joints.
sylvi
in
NRAS
9 years ago
Transplant coming soon!
I have been fighting cll/stage 4 for seven years with little success. Have had all standard chemo and have been in two clinical trials (ibrutnib and ABT199). The ibrutnib worked great for about a year and a half. When it failed it was fast! Then I tried ABT199 which helped save my life, but was short
I have been fighting cll/stage 4 for seven years with little success. Have had all standard chemo and have been in two clinical trials (ibrutnib and ABT199). The ibrutnib worked great for about a year and a half. When it failed it was fast! Then I tried ABT199 which helped save my life, but was short
Hidden
in
CLL Support
9 years ago
Stem cell transplants
This was on the ACOR list today. I found it fascinating. Jeff "Date: Thu, 11 Jun 2015 06:51:53 -0500 From: Dennis Pinkard <pinkardd@CHARTER.NET> Subject: Researchers identify patients at risk for stem cell transplant complications Phase 2 clinical trial. http://www.sciencedaily.com/releases
This was on the ACOR list today. I found it fascinating. Jeff "Date: Thu, 11 Jun 2015 06:51:53 -0500 From: Dennis Pinkard <pinkardd@CHARTER.NET> Subject: Researchers identify patients at risk for stem cell transplant complications Phase 2 clinical trial. http://www.sciencedaily.com/releases
Justasheet1
in
CLL Support
9 years ago
Going off Ibrutinib: should we be worried?
Hi everyone. My husband was due to go in for a stem cell transplant this week but it has been delayed as he wasn't well on the day. Due to a theatre being unavailable for the donor (for taking cells from bone marrow), it's been put back two weeks. This means my husband will now be off Ibrutinib for
Hi everyone. My husband was due to go in for a stem cell transplant this week but it has been delayed as he wasn't well on the day. Due to a theatre being unavailable for the donor (for taking cells from bone marrow), it's been put back two weeks. This means my husband will now be off Ibrutinib for
MJN44
in
CLL Support
9 years ago
I'm a little teapot!
Thought I'd give you all a giggle and show you my 'I'm a little teapot' cast which I was in for 4 months a couple of years ago. The funniest thing was that DLA application which included this photo was refused on the basis that I didn't need any help with personal care, I could make a meal and I didn't
Thought I'd give you all a giggle and show you my 'I'm a little teapot' cast which I was in for 4 months a couple of years ago. The funniest thing was that DLA application which included this photo was refused on the basis that I didn't need any help with personal care, I could make a meal and I didn't
Curlygirl54
in
Pain Concern
9 years ago
Mr
Multi myeloma patient diagnosed in 2013, had stem cell transplant April 2014 but told relapsed November 2014. Started Revlamid / dexamethazone January 2015, so far despite some side effects going in the right direction but so was transplant so fingers still crossed.
Multi myeloma patient diagnosed in 2013, had stem cell transplant April 2014 but told relapsed November 2014. Started Revlamid / dexamethazone January 2015, so far despite some side effects going in the right direction but so was transplant so fingers still crossed.
Keith18
in
Myeloma America Support
9 years ago
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