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Stem Cell Transplant
I'm celebrating three years of partial remission after two years of treatment with little or no change. I feel like I've been given the gift of three additional years of life. If the opportunity is given...take it and run. Still feeling well and back to being my very busy involved self.
I'm celebrating three years of partial remission after two years of treatment with little or no change. I feel like I've been given the gift of three additional years of life. If the opportunity is given...take it and run. Still feeling well and back to being my very busy involved self.
jc--rb--2--0
in
Myeloma America Support
10 years ago
Blood Stem Cell Transplant
Hi I m a 46 year old woman diagnosed with Cll in April 2014 with 17p deletion. I have been in watchful Waiting but now doctors have suggested I take Imbrivica and prepare to have a stem cell blood transplant because I am young and not showing symptoms. Has anyone had a stem cell blood transplant? What
Hi I m a 46 year old woman diagnosed with Cll in April 2014 with 17p deletion. I have been in watchful Waiting but now doctors have suggested I take Imbrivica and prepare to have a stem cell blood transplant because I am young and not showing symptoms. Has anyone had a stem cell blood transplant? What
Jameelah
in
CLL Support
10 years ago
Introducing Myself
Hi, My name is Kim Marrelli. I was diagnosed with Myeloma 4 years ago. I am considered high risk with t(4:14) (MMSET/FGFR/IGH). To be honest, I only partially understand what all that means. In the past, I have been teated with Revlimid, Velcade, Kyprolis, Pomalyst and the ever popular, Dexamethasone
Hi, My name is Kim Marrelli. I was diagnosed with Myeloma 4 years ago. I am considered high risk with t(4:14) (MMSET/FGFR/IGH). To be honest, I only partially understand what all that means. In the past, I have been teated with Revlimid, Velcade, Kyprolis, Pomalyst and the ever popular, Dexamethasone
KimMarr
in
Myeloma America Support
10 years ago
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My husband had a letter from the DWP today to say that his DLA is being stopped as he currently doesn't score a high enough mark on their points system for PIP. Along with losing DLA, he also has to send back his Blue Badge. FYI: My husband was diagnosed with Multiple Myeloma (blood cancer) in August
My husband had a letter from the DWP today to say that his DLA is being stopped as he currently doesn't score a high enough mark on their points system for PIP. Along with losing DLA, he also has to send back his Blue Badge. FYI: My husband was diagnosed with Multiple Myeloma (blood cancer) in August
Amanda1234
in
PMRGCAuk
10 years ago
The misery compounds.
I now have skin cancers all over skin that was exposed, for the years I lived in South Africa!!!! Most of them requiring skin grafts. Having Raynauds makes healing so slow, they're going septic, and taking months!!!!!!....
I now have skin cancers all over skin that was exposed, for the years I lived in South Africa!!!! Most of them requiring skin grafts. Having Raynauds makes healing so slow, they're going septic, and taking months!!!!!!....
Lynnie
in
Scleroderma & Raynaud's UK (SRUK)
10 years ago
Lupus & The Skin
Hi everyone, I'm new to the forum but after reading a few posts I feel at home already, everyone appears so friendly, supportive and clued up on the disease. I was diagnosed a few months ago after being referred to a Rheumatologist with suspected Rheumatoid Arthritis, I already suffer with Osteoarthritis
Hi everyone, I'm new to the forum but after reading a few posts I feel at home already, everyone appears so friendly, supportive and clued up on the disease. I was diagnosed a few months ago after being referred to a Rheumatologist with suspected Rheumatoid Arthritis, I already suffer with Osteoarthritis
Debbiemay
in
LUPUS UK
10 years ago
Skin cancer
I was diagnosed with skin cancer approx. 4 years ago and subsequently had 2 minor operations to remove growth's from lip and ear, in the last month I have developed small patches which are very embarrassing, is this to be expected with this complaint, were these to be removed I think a skin graft would
I was diagnosed with skin cancer approx. 4 years ago and subsequently had 2 minor operations to remove growth's from lip and ear, in the last month I have developed small patches which are very embarrassing, is this to be expected with this complaint, were these to be removed I think a skin graft would
Scorpius
in
NRAS
10 years ago
Rapid Generation of Virus-Specific T Cells Helps Fight Off Infection in Immunocompromised Patients
The lengthy, complex, and costly process required to produce target specific T-Cells to fight cancers and viruses is a huge barrier that needs to be overcome if this technique is ever going to be more than a laboratory curiosity that benefits only a select few patients. Despite this, researchers continue
The lengthy, complex, and costly process required to produce target specific T-Cells to fight cancers and viruses is a huge barrier that needs to be overcome if this technique is ever going to be more than a laboratory curiosity that benefits only a select few patients. Despite this, researchers continue
AussieNeil
Partner
in
CLL Support
10 years ago
Bone marrow transplant with MF
I have been recently diagnosed with MF and am in the initial phase (being treated with PEGASYS). In your recent MF leaflet the article appears to indicated that a bone marrow transplant is a 'last resort' ('not commonly recommended'.... advanced disease). My hermatologist here in France appears to want
I have been recently diagnosed with MF and am in the initial phase (being treated with PEGASYS). In your recent MF leaflet the article appears to indicated that a bone marrow transplant is a 'last resort' ('not commonly recommended'.... advanced disease). My hermatologist here in France appears to want
crapaud
in
MPN Voice
10 years ago
GvHD of the lungs
Hi all I am new to this site. I am not posting about myself but about my 32 year old brother. 9 years ago he had a stem cell transplant to treat leukaemia (I was his donor), which has been in remission ever since. We have been lucky enough to have 9 good years during which time he has worked full time
Hi all I am new to this site. I am not posting about myself but about my 32 year old brother. 9 years ago he had a stem cell transplant to treat leukaemia (I was his donor), which has been in remission ever since. We have been lucky enough to have 9 good years during which time he has worked full time
elliemh
in
Lung Conditions Community Forum
10 years ago
Another Front Against Leukemia: Using Stem Cells to Make Bone Marrow Transplants Low-Risk
Another Israeli biotech firm (well, I guess that Karyopharm Therapeutics--the developer of KPT-330 being tested against Richter's--is only half-Israeli) is working on using stem cells to make bone marrow transplants extremely tolerable. It is an interesting technology. An article is here: http://israel21c.org
Another Israeli biotech firm (well, I guess that Karyopharm Therapeutics--the developer of KPT-330 being tested against Richter's--is only half-Israeli) is working on using stem cells to make bone marrow transplants extremely tolerable. It is an interesting technology. An article is here: http://israel21c.org
zevkalman
in
CLL Support
10 years ago
Has any one been told to prepare themselves for the possibility of a bone marrow transplant. I've had ET for 14years taking Hydrox in variou
Doses over the years. Told I had changed to MF only in November last year that was such a shock.Taken of Hydrox completely 4 weeks ago only take asprin at the moment. Due to anaemia sweats &fatigue & an enlarged spleen..its all happened so quickly. I feel they sew the seed to make you think talk to your
Doses over the years. Told I had changed to MF only in November last year that was such a shock.Taken of Hydrox completely 4 weeks ago only take asprin at the moment. Due to anaemia sweats &fatigue & an enlarged spleen..its all happened so quickly. I feel they sew the seed to make you think talk to your
softail
in
MPN Voice
10 years ago
Misleading headlines - "Breakthrough cure" for MS
New results from stem cell transplantation research in mice have been published today, leading to misleading articles in a number of newspapers about what this could mean for people with MS. "Could stem cells help people paralysed by MS? Scientists reveal they are 'astonished' by landmark study" -
New results from stem cell transplantation research in mice have been published today, leading to misleading articles in a number of newspapers about what this could mean for people with MS. "Could stem cells help people paralysed by MS? Scientists reveal they are 'astonished' by landmark study" -
Sorrel_MS_Society
MS Society
in
Healthy Evidence
10 years ago
Bone marrow transplant
Hi. So I saw Dr Lachmann this week and he announces that my MRI shows a growing lesion on my brain, and that this means I may start getting ALD on top of my AMN. The only way to stop this is to do a bone marrow transplant, which is very very scary. Anyone has experience of this situation? And has anyone
Hi. So I saw Dr Lachmann this week and he announces that my MRI shows a growing lesion on my brain, and that this means I may start getting ALD on top of my AMN. The only way to stop this is to do a bone marrow transplant, which is very very scary. Anyone has experience of this situation? And has anyone
Nicolas
in
AMN EASIER
10 years ago
My experience with LCHF diet.
I am a diebetic since 1986 type 2. On insulin since 88-89. Undergone CABG in 2007.I am also hypertensive.Since last six months my bs is out of control, going much higher than 200mg pp and near 200 fasting.I tried to control bs by cutting carb ie I reduced chapaties from 4-5 to two m/e.For breakfast I
I am a diebetic since 1986 type 2. On insulin since 88-89. Undergone CABG in 2007.I am also hypertensive.Since last six months my bs is out of control, going much higher than 200mg pp and near 200 fasting.I tried to control bs by cutting carb ie I reduced chapaties from 4-5 to two m/e.For breakfast I
patliputra
in
Diabetes India
10 years ago
I am feeling worried about the possibility of having a bone marrow transplant with my sister as donor.
I have read all the hospital pamphlets and a transplant seems like a very difficult process with many long term side effects. One pamphlet said 'you will feel ill for a year after the bone marrow transplant and may never fully regain your health'. Another said it may cause cataracts a couple of years
I have read all the hospital pamphlets and a transplant seems like a very difficult process with many long term side effects. One pamphlet said 'you will feel ill for a year after the bone marrow transplant and may never fully regain your health'. Another said it may cause cataracts a couple of years
splashsplash
in
CLL Support
10 years ago
I scalded my baby granddaughter
I can't live with myself for what I've done. I've probably scarred for life my tiny 6 month old baby granddaughter's leg. I can't get her scream out of my head. I so wish it had been me that the water spilled on, even if it had been all down my face I would rather that than have what happened. I moved
I can't live with myself for what I've done. I've probably scarred for life my tiny 6 month old baby granddaughter's leg. I can't get her scream out of my head. I so wish it had been me that the water spilled on, even if it had been all down my face I would rather that than have what happened. I moved
Hidden
in
Above & Beyond
10 years ago
Hi all, I have just been diagnosed with having basal cell cancer on the skin on the skin of inner eye, it will be removed and a skin graft
Done, I have literally been sobbing all night as I'm petrified of how I will look afterwards. Has anyone else been through this?
Done, I have literally been sobbing all night as I'm petrified of how I will look afterwards. Has anyone else been through this?
SKessex78
in
MY SKIN
10 years ago
Bone marrow transplant
Hi All I know its a long shot but have any of you ever heard of someone having a bone marrow transplant for severe vasculitis. I know there has been for WG and Bechets but it is minimal. I would ideally like to get a personal perspective. Thank you Sarah
Hi All I know its a long shot but have any of you ever heard of someone having a bone marrow transplant for severe vasculitis. I know there has been for WG and Bechets but it is minimal. I would ideally like to get a personal perspective. Thank you Sarah
Sarahjh2004
in
Vasculitis UK
10 years ago
Ednama
Has anyone had a successful stem cell transplant for myleodisplasia. Husband going for his initial consultation tomorrow and all we can read is negatives. Thanks
Has anyone had a successful stem cell transplant for myleodisplasia. Husband going for his initial consultation tomorrow and all we can read is negatives. Thanks
Ednama
in
MPN Voice
10 years ago
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