My husband had a letter from the DWP today to say that his DLA is being stopped as he currently doesn't score a high enough mark on their points system for PIP. Along with losing DLA, he also has to send back his Blue Badge.
FYI: My husband was diagnosed with Multiple Myeloma (blood cancer) in August 2012* and was given a life expectancy of 5-7 years. He took early retirement in October 2012 and then had a stem cell transplant in February of 2013 and has been in remission since July 2013. Even though he is more mobile than 12 months ago, the side effects of the medication he's on and the damage from the cancer do still cause him problems. He is still terminal, it just a waiting game for the cancer to come back as there is no cure. *It was around this time that my PMR first flared up.
This decision now means that we only have my salary (due to my own illness I'm on a 3-day phased return to work for the remainder of the year) and his pension coming in.
I'm at the early stages of PMR management. I was on 8mg prednisolone, but had to increase to 10mg a couple weeks ago as I was finding it hard to go to work without aggravating my PMR and fatigue.
As a further piece of information, I lost both my parents in 2006 and from the inheritance we paid off our mortgage and now don't have any large outstanding debts. We also have a small pot of savings that we need to last for as long as possible (for when the 'time' comes).
Also, neither of us have family who can help. My husband is the last surviving member of his family (he lost his sister in 2000 and she wasn't married) and although I do have a sister in Cornwall, she is a widow (her husband died in 2011), is unemployed and has depression and so has her own difficulties to deal with.
Are either of us entitled to benefits or anything at all? What are the cut off points that state that "you're on your own kid"? Who do we go to in confidence to get a proper assessment of our current status and what we're entitled to?
I feel that the fact that we have both worked all our lives, paid all our bills, taxes and our own way, now counts for nothing at all. What was the point?