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Post CABG Exercise
Hello all. I'm now 19 days post triple bypass, and, touch wood, all is going well. Since walking is the only exercise I can sensibly do at this stage, I'm out most days (fortunately the weather is good at the moment so its a real pleasure to be out and about). My question is 'how much exercise should
Hello all. I'm now 19 days post triple bypass, and, touch wood, all is going well. Since walking is the only exercise I can sensibly do at this stage, I'm out most days (fortunately the weather is good at the moment so its a real pleasure to be out and about). My question is 'how much exercise should
stevejb1810
in
British Heart Foundation
7 years ago
Real stories: life after a stem cell transplant
Read other people's stories of life after a stem cell or bone marrow transplant here: https://www.anthonynolan.org/patients-and-families/real-stories
Read other people's stories of life after a stem cell or bone marrow transplant here: https://www.anthonynolan.org/patients-and-families/real-stories
LCNurse2
in
Leukaemia Support
7 years ago
Epo. London mpn day
I'll be going to the london mpn day on18 th. I'm feeling tired and fed up. I've had 4 weekly epo injections and not much response. The energy I had at first was due to the blood transfusion I had at the same time, I think, because that's now worn off. I feel as tho I can't handle life at all. Which
I'll be going to the london mpn day on18 th. I'm feeling tired and fed up. I've had 4 weekly epo injections and not much response. The energy I had at first was due to the blood transfusion I had at the same time, I think, because that's now worn off. I feel as tho I can't handle life at all. Which
Rachelthepotter
in
MPN Voice
7 years ago
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GDP - Change of Chemo - Advice
Diffuse Large B Cell - Abdomen Was booked in for 6no R Chop, had a mid term scan, saw specialist, who has said i will now after 4 no R Chop, have 2no GDP, same 21 day cycle, then have another scan, then a bone marrow transplant, then 3 week intense Chemo blast (3week Hospital Stay) On a positive note
Diffuse Large B Cell - Abdomen Was booked in for 6no R Chop, had a mid term scan, saw specialist, who has said i will now after 4 no R Chop, have 2no GDP, same 21 day cycle, then have another scan, then a bone marrow transplant, then 3 week intense Chemo blast (3week Hospital Stay) On a positive note
Blueb
in
Non Hodgkin's Lymphoma Friends
7 years ago
Bone marrow transplant
Hi all I have just started on blood transfusion and likely to have to have them every four/five weeks. It has also been suggested that I may be eligible for a bone marrow transplant. Does anyone have any thoughts on bone marrow transplants that they could share with me. TIA
Hi all I have just started on blood transfusion and likely to have to have them every four/five weeks. It has also been suggested that I may be eligible for a bone marrow transplant. Does anyone have any thoughts on bone marrow transplants that they could share with me. TIA
dave117
in
MPN Voice
7 years ago
CABG and Temperature Control
Hi all. I had my triple bypass 10 days ago. Recovery is going well but I do have occasional instances of feeling very cold (which I put down to the beta blockers) and more frequently, instances of being very hot to the point where I go into melt down (sweating through my hair). I'm not stressed by
Hi all. I had my triple bypass 10 days ago. Recovery is going well but I do have occasional instances of feeling very cold (which I put down to the beta blockers) and more frequently, instances of being very hot to the point where I go into melt down (sweating through my hair). I'm not stressed by
stevejb1810
in
British Heart Foundation
7 years ago
CABG and caffeine
Hi. I'm new here. I'm 60, male and as I write I am 9 days post op, having had a triple bypass on 19th October - the day after my 60th birthday. I'm still very much on the 'breathless' stage of my recovery, but for the first time since the op I am feeling the urge to turn my espresso maker on and have
Hi. I'm new here. I'm 60, male and as I write I am 9 days post op, having had a triple bypass on 19th October - the day after my 60th birthday. I'm still very much on the 'breathless' stage of my recovery, but for the first time since the op I am feeling the urge to turn my espresso maker on and have
stevejb1810
in
British Heart Foundation
7 years ago
multiple myeloma on pancreatic and pelvic as extramedullary plasmacytoma
Our Mayo Clinic psychiatrist mentioned most cancer patients have the treatment of maintenance chemotherapy in remission after five years, then these patients are able to finish the treatment in full recovery. Is it true to multiple myeloma on pancreatic and pelvic (extramedullary plasmacytoma)?
Our Mayo Clinic psychiatrist mentioned most cancer patients have the treatment of maintenance chemotherapy in remission after five years, then these patients are able to finish the treatment in full recovery. Is it true to multiple myeloma on pancreatic and pelvic (extramedullary plasmacytoma)?
chen5631867
in
Myeloma America Support
7 years ago
Bone marrow transplant for Behcet's
I'd have to be much further along than I am to consider this, but this is amazing: "Complete resolution... complete remission." https://academic.oup.com/rheumatology/article/53/6/1136/1826109/Bone-marrow-transplantation-for-Behcet-s-disease-a
I'd have to be much further along than I am to consider this, but this is amazing: "Complete resolution... complete remission." https://academic.oup.com/rheumatology/article/53/6/1136/1826109/Bone-marrow-transplantation-for-Behcet-s-disease-a
julietoo
in
Behçet's UK
7 years ago
9 days since CABG
It is now nine days since my CABG at St Thomas’s. I’m 69 and now do manage to sleep through the nights waking up 2 or 3 times and have an afternoon nap that helps. I still feel like I’ve been in a car crash but feeling a little better most days with the odd bad day. Yesterday I had a call from the
It is now nine days since my CABG at St Thomas’s. I’m 69 and now do manage to sleep through the nights waking up 2 or 3 times and have an afternoon nap that helps. I still feel like I’ve been in a car crash but feeling a little better most days with the odd bad day. Yesterday I had a call from the
PhilipH
in
British Heart Foundation
7 years ago
Spinal Fusion
I'm having a
bone
graft
from my left hip and am worried it may weaken it as its the first of three. 😟
I'm having a
bone
graft
from my left hip and am worried it may weaken it as its the first of three. 😟
PickledGinger
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
Bone Marrow Transplant, Sickle Cell in Bermuda
The October-December edition of African Sickle Cell News & World Report deals principally with Bone Marrow Transplant for SCD. 3 families on the African continent share stories of their road to a successful transplant. With so few having SCD in Bermuda (just 88), exactly what does the Bermuda SC Association
The October-December edition of African Sickle Cell News & World Report deals principally with Bone Marrow Transplant for SCD. 3 families on the African continent share stories of their road to a successful transplant. With so few having SCD in Bermuda (just 88), exactly what does the Bermuda SC Association
sicklecellnews
in
Sickle Cell Society
7 years ago
Newbie to the community. Had a aortic root, hemiarch and coronary artery bypass grafting, with mechanical aortic valve replacement.
Had my operation in Liverpool in March 17 after an aortic aneurysm was detected. Operation went very well heart wise, however I did have a minor stroke and slight epilepsy during and after the operation. Big operation and I was aware of the risks. To me the mechanical valve is quite noisy and wondered
Had my operation in Liverpool in March 17 after an aortic aneurysm was detected. Operation went very well heart wise, however I did have a minor stroke and slight epilepsy during and after the operation. Big operation and I was aware of the risks. To me the mechanical valve is quite noisy and wondered
arethusa_12
in
British Heart Foundation
7 years ago
12 week post op
I feel I have come a long way after my 3x CABG. after 8 week I was flying and feeling good. But 12 week in and I have anxiety and I feel quite tired and lightheaded at certain times of the day is this a common thing? I can also feel quite nauseas with the lightheadedness
I feel I have come a long way after my 3x CABG. after 8 week I was flying and feeling good. But 12 week in and I have anxiety and I feel quite tired and lightheaded at certain times of the day is this a common thing? I can also feel quite nauseas with the lightheadedness
Barrie62
in
British Heart Foundation
7 years ago
Long term treatment for 11q
As some may know, I am 25 years old diagnosed with CLL 11q deletion. One of my recent consultants has been Dr. Aman at the James Center who works under Dr. Byrd. We had a phone call and he told me, as I've come to expect, that he would treat me with the next 50 years in mind vs. A traditional CLL patient
As some may know, I am 25 years old diagnosed with CLL 11q deletion. One of my recent consultants has been Dr. Aman at the James Center who works under Dr. Byrd. We had a phone call and he told me, as I've come to expect, that he would treat me with the next 50 years in mind vs. A traditional CLL patient
Cpt_N
in
CLL Support
7 years ago
GVHD after a stem cell transplant
I had a stem cell transplant from a non-related donor almost four months ago and got graft versus host disease a couple of weeks or so later. It isn't getting any better despite several months of steroids and being on a trial of rixulitimab (spelling alert). It's in my liver and causing a spotty rash
I had a stem cell transplant from a non-related donor almost four months ago and got graft versus host disease a couple of weeks or so later. It isn't getting any better despite several months of steroids and being on a trial of rixulitimab (spelling alert). It's in my liver and causing a spotty rash
Christian057
in
CLL Support
7 years ago
Ibrutinib & neuropathy?
My husband has been on ibrutinib for 7 months & it has been working well for him with minor side effects (small rash, some joint pain) until the last month. His white blood count is coming down very slowly - still at about 60. (He is waiting to get a stem cell transplant in January & has had FCR but
My husband has been on ibrutinib for 7 months & it has been working well for him with minor side effects (small rash, some joint pain) until the last month. His white blood count is coming down very slowly - still at about 60. (He is waiting to get a stem cell transplant in January & has had FCR but
Glees
in
CLL Support
7 years ago
Back to work
10 week post 3x CABG I feel good apart from discomfort in chest area and a little in leg when is a good time to return to work anybody's experience on this I am a Maint engineer
10 week post 3x CABG I feel good apart from discomfort in chest area and a little in leg when is a good time to return to work anybody's experience on this I am a Maint engineer
Barrie62
in
British Heart Foundation
7 years ago
Stem Cell Transplant research
Graft-versus-host disease successfully prevented : https://www.sciencedaily.com/releases/2017/04/170418094535.htm
Graft-versus-host disease successfully prevented : https://www.sciencedaily.com/releases/2017/04/170418094535.htm
Shar0n
Volunteer
in
Non Hodgkin's Lymphoma Friends
7 years ago
To many emails !!
graft
with two plates and screws each side of where my ankle was.
graft
with two plates and screws each side of where my ankle was.
Jeni-M
in
Thyroid UK
7 years ago
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