Search
Search
About
Log in
Join
Experiences with
Blood Transfusion
Posts
Communities
56,112 public posts
Filter results
when to stop leflunomide
GCA/PMR since Dec 2018. No symptoms of GCA currently but PMR rumbles. On prednisolone and leflunomide. Have not had a flare since last May and have been reducing very slowly since then. Saw locum rheumatologist in September who in a follow up letter suggested I try methotrexate (which I had been
GCA/PMR since Dec 2018. No symptoms of GCA currently but PMR rumbles. On prednisolone and leflunomide. Have not had a flare since last May and have been reducing very slowly since then. Saw locum rheumatologist in September who in a follow up letter suggested I try methotrexate (which I had been
Talyfan
in
PMRGCAuk
3 months ago
Angular Cheilitis?
Just wondering if anyone suffers from Angular Cheilitis with their RA keep getting it and mentioning to the GP but he just ignored it. I've had my B12 checked and it was ok. I've read sulfasalazine can cause it. I'm also on Benepali jab once a week. Ive also read it could be folate levels but I think
Just wondering if anyone suffers from Angular Cheilitis with their RA keep getting it and mentioning to the GP but he just ignored it. I've had my B12 checked and it was ok. I've read sulfasalazine can cause it. I'm also on Benepali jab once a week. Ive also read it could be folate levels but I think
Haz58
in
NRAS
3 months ago
Advice on pain relief
Hi, my name is Bev & I'm a newbie. After what seems like a lifetime l have finally been referred to the rheumatology clinic for a diagnosis which may or may not be fibromyalgia. After several years of blood tests, scans, physiotherapy treatment, carpel tunnel operations and in constant pain l was
Hi, my name is Bev & I'm a newbie. After what seems like a lifetime l have finally been referred to the rheumatology clinic for a diagnosis which may or may not be fibromyalgia. After several years of blood tests, scans, physiotherapy treatment, carpel tunnel operations and in constant pain l was
Diy2
in
Fibromyalgia Action UK
3 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Ferritin and Iron
I found some information below about Ferritin and Iron - it is from the Dr Mercola website. I have just had my ferritin levels and iron levels checked - The Doctor said they were a bit on the low side so I am taking some gentle iron. My ferritin was 50.9 - I never heard of ferritin before having RLS
I found some information below about Ferritin and Iron - it is from the Dr Mercola website. I have just had my ferritin levels and iron levels checked - The Doctor said they were a bit on the low side so I am taking some gentle iron. My ferritin was 50.9 - I never heard of ferritin before having RLS
Summer194
in
Restless Legs Syndrome
3 months ago
folate dropping
I have been injecting since July 2023, thanks to you all, I knew to check my ferritin when I felt something else was off…since no doctor thought it necessary. It was 14. Now I am on iron supplements. My folate has always been >24. However, since starting the iron, my folate has dropped to 15 (still
I have been injecting since July 2023, thanks to you all, I knew to check my ferritin when I felt something else was off…since no doctor thought it necessary. It was 14. Now I am on iron supplements. My folate has always been >24. However, since starting the iron, my folate has dropped to 15 (still
MuppDog
in
Pernicious Anaemia Society
3 months ago
Continuing Story of CLL Journey
Greetings Everyone, I recently posted on here that I had Cll/AIHA nearly 4 years ago. It was pretty serious before I got treatment of Prednisone and Rituxan by infusion. Now my CL it appears has come out of remission. I visited my Oncologist (who is not a CLL Specialist—more a Generalist and at the
Greetings Everyone, I recently posted on here that I had Cll/AIHA nearly 4 years ago. It was pretty serious before I got treatment of Prednisone and Rituxan by infusion. Now my CL it appears has come out of remission. I visited my Oncologist (who is not a CLL Specialist—more a Generalist and at the
Dodger47
in
CLL Support
3 months ago
Is there a difference between Barrett’s tongue and barretts oesophagus ?
I have been trying to research this since my endoscopy showed “possible Barrett’s tongue” Biopsy has been taken to rule this out which I hope is a positive sign , but does anyone have experience of this term? I understand that it is associated with hiatal hernia although my reflux issues aren’t too
I have been trying to research this since my endoscopy showed “possible Barrett’s tongue” Biopsy has been taken to rule this out which I hope is a positive sign , but does anyone have experience of this term? I understand that it is associated with hiatal hernia although my reflux issues aren’t too
gillsky8
in
Oesophageal & Gastric Cancer
3 months ago
Desperate for some advice
Hi, im hoping someine can relate.I was diagnosed with Endometriosis about 11 years ago and have had my left tube and ovary removed on my 3rd laparoscopy. I've got an appointment this week to hopefully get a date for a hysterectomy. Over the past 4 weeks, I've had chronic diarrhoea, heavy bloating across
Hi, im hoping someine can relate.I was diagnosed with Endometriosis about 11 years ago and have had my left tube and ovary removed on my 3rd laparoscopy. I've got an appointment this week to hopefully get a date for a hysterectomy. Over the past 4 weeks, I've had chronic diarrhoea, heavy bloating across
Marvel-
in
Endometriosis UK
3 months ago
Questions about TSH and advice on results over the past year much appreciated
Hi everybody, I've posted several times lately and I just wanted to ask for advice on thyroid related issues. I had COVID 3 times from June 22 - Jan 23 and was symptomatic each time. I did have a diagnosis of Fibromyalgia in 2018 but had been feeling a lot better in 2020 until I got COVID. Above
Hi everybody, I've posted several times lately and I just wanted to ask for advice on thyroid related issues. I had COVID 3 times from June 22 - Jan 23 and was symptomatic each time. I did have a diagnosis of Fibromyalgia in 2018 but had been feeling a lot better in 2020 until I got COVID. Above
Heybella
in
Thyroid UK
3 months ago
When is 5.6 not 5.6
For as long as I can remember my FT3 has been 5.6 with a consistent dose of 2 grains of Thyroid S and a consistent range of (3.4 - 6.8). 18 months ago I moved to another part of the country where the FT3 range is (2.5 - 5.5). Technically my FT3 is now over range although no one seems to be too worried
For as long as I can remember my FT3 has been 5.6 with a consistent dose of 2 grains of Thyroid S and a consistent range of (3.4 - 6.8). 18 months ago I moved to another part of the country where the FT3 range is (2.5 - 5.5). Technically my FT3 is now over range although no one seems to be too worried
Hidden
in
Thyroid UK
3 months ago
Blood test interpretation help
Hi everyone. I’m so glad I’ve found this site! I hope someone can help me with interpreting my blood tests. I was living abroad until recently and went to see the Dr as was struggling to lose weight. He did bloods which all came back as normal except for my TSH which was reported as < 0.0083 (normal
Hi everyone. I’m so glad I’ve found this site! I hope someone can help me with interpreting my blood tests. I was living abroad until recently and went to see the Dr as was struggling to lose weight. He did bloods which all came back as normal except for my TSH which was reported as < 0.0083 (normal
Jessica7878
in
Thyroid UK
3 months ago
hashimotos/Thyroid help
Good morning everyone in 2022 I had x2 thyroid test done 3 months apart saying I was borderline, I then in 2023 went to see the doctor and I explained how unwell I felt and I do have anxiety and depression disorder so I put it down to that, in august 2023 I had full blood test done and my antibodies
Good morning everyone in 2022 I had x2 thyroid test done 3 months apart saying I was borderline, I then in 2023 went to see the doctor and I explained how unwell I felt and I do have anxiety and depression disorder so I put it down to that, in august 2023 I had full blood test done and my antibodies
Adhd88
in
Thyroid UK
3 months ago
Help me understand
I’m 32 next and since I was 25 I have had terrible joint pain and flare ups with terrible painful stiffness and swelling. Always in both my knees sometimes both my elbows all at the same time, I feel and ache all over with fatigue! I’ve been to the drs numerous times over the years with no help when
I’m 32 next and since I was 25 I have had terrible joint pain and flare ups with terrible painful stiffness and swelling. Always in both my knees sometimes both my elbows all at the same time, I feel and ache all over with fatigue! I’ve been to the drs numerous times over the years with no help when
Crazycatlady_101
in
NRAS
3 months ago
Further Update & Upcoming Rheumatology Appt Advice
Hello all! Back again with my periodic update on my ongoing PMR diagnosis! So.....after struggling when tapering from 12.5mg to 10mg of Prednisolone I finally heeded the advice of the vetrans of this thing and bit the bullet on upping my dose back to 15mg......I had been doing well on 12.5mg but the
Hello all! Back again with my periodic update on my ongoing PMR diagnosis! So.....after struggling when tapering from 12.5mg to 10mg of Prednisolone I finally heeded the advice of the vetrans of this thing and bit the bullet on upping my dose back to 15mg......I had been doing well on 12.5mg but the
Paulx222
in
PMRGCAuk
3 months ago
Diagnosis?
How do you get rheumatologists to take you seriously? I am almost convinced I have Sjogrens, but after seeing threee rheumys, they say no, because all my blood tests have come up negative. But I still have the dry mouth, which is progressively getting worse, I have salivary issues, dry eyes and body
How do you get rheumatologists to take you seriously? I am almost convinced I have Sjogrens, but after seeing threee rheumys, they say no, because all my blood tests have come up negative. But I still have the dry mouth, which is progressively getting worse, I have salivary issues, dry eyes and body
peachtreepiggy
in
The Australian Sjögren's Syndrome Association
3 months ago
Cycle #5 tested negative 8dp5dt. Is it over for me?
Tomorrow is mother's day in the UK so I wanted to test today. I'm cooking Sunday lunch for my extended family tomorrow and I just thought either wait until Monday or test today. It ended up being today and it was negative with the second pee of the day. I'm absolutely gutted and trying to hold it together
Tomorrow is mother's day in the UK so I wanted to test today. I'm cooking Sunday lunch for my extended family tomorrow and I just thought either wait until Monday or test today. It ended up being today and it was negative with the second pee of the day. I'm absolutely gutted and trying to hold it together
Mikki100
in
Fertility Network UK
3 months ago
Listed wrong results previously
Sorry I got results wrong in my 1st post (I listed medicheck ones taken a week before) This is Endo blood test 14/02/24 T4 15.5 (12-22) T3 4.71 (3.1-6.8) TSH 0.68 In readiment for T3 trial mid November, I reduced T4 by 25mg Then after a week added 5mg T3 then did same till I was on 100mg T4
Sorry I got results wrong in my 1st post (I listed medicheck ones taken a week before) This is Endo blood test 14/02/24 T4 15.5 (12-22) T3 4.71 (3.1-6.8) TSH 0.68 In readiment for T3 trial mid November, I reduced T4 by 25mg Then after a week added 5mg T3 then did same till I was on 100mg T4
Klawd
in
Thyroid UK
3 months ago
Id really appreciate your thoughts on my latest blood test results on Erfa 2 grains -still not feeling great- Im thinking bloods now? Help!
Hi thyroid forum people I’ve just had my latest bloods back TSH. O.005 (0.27-4.2) …. disappearing! T3 6.1 (3.1-6.8) 81% thru range T4 19.1 (12-22) 71% thru range Three months ago they were showing 0.092. 3.8 and 13.7 - same parameters. That was on 1.5 grains. The private doctor had
Hi thyroid forum people I’ve just had my latest bloods back TSH. O.005 (0.27-4.2) …. disappearing! T3 6.1 (3.1-6.8) 81% thru range T4 19.1 (12-22) 71% thru range Three months ago they were showing 0.092. 3.8 and 13.7 - same parameters. That was on 1.5 grains. The private doctor had
Starseed56
in
Thyroid UK
3 months ago
Pituitary? Advice please!
Hello everyone! I've just joined this group and been reading some of the really helpful advice on here. My daughter, myself and my friend all have thyroid issues. So I'll be asking a few questions... but first... I'm looking for help for my friend who is really suffering from poor health (fatigue
Hello everyone! I've just joined this group and been reading some of the really helpful advice on here. My daughter, myself and my friend all have thyroid issues. So I'll be asking a few questions... but first... I'm looking for help for my friend who is really suffering from poor health (fatigue
LoveAndPeas
in
Thyroid UK
3 months ago
pre diabetes
Had an NStemi and stent fitted in Oct last year. Obviously a shock and have been following all advice, did cardiac rehab and going on daily walks and gym twice a week. I asked GP surgery for cholesterol blood test to see if it had gone down further and particularly if bad cholesterol had gone down. However
Had an NStemi and stent fitted in Oct last year. Obviously a shock and have been following all advice, did cardiac rehab and going on daily walks and gym twice a week. I asked GP surgery for cholesterol blood test to see if it had gone down further and particularly if bad cholesterol had gone down. However
Lovesunflower
in
British Heart Foundation
3 months ago
1
...
57
58
59
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
23403 results
Pernicious Anaemia Society
3255 results
PMRGCAuk
2462 results
View top 10 communities
Sort by
Most Relevant
Newest