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Imbruvica Good News
Diagnosed with B-PLL (CLL) around Feb 2020...just before Co-Vid. Was on W+W until Dec 2020. WBC went from initial 99K to 357 K and hematologist said it's time to start medication. On Imbruvica 420mg @ 1X day for 2 months now. WBC went from 339K in Jan 2021 to 220K in Feb 2021. No side effects other
Diagnosed with B-PLL (CLL) around Feb 2020...just before Co-Vid. Was on W+W until Dec 2020. WBC went from initial 99K to 357 K and hematologist said it's time to start medication. On Imbruvica 420mg @ 1X day for 2 months now. WBC went from 339K in Jan 2021 to 220K in Feb 2021. No side effects other
Phyllis731
in
CLL Support
4 years ago
Anybody on Incruse Ellipta getting urinary infections?
Hi, I have been on Incruse Ellipta since early November last year, as an "add on" treatment prescribed by my Respiratory consultant. Have had the occasional issue with painful urination, but now started with full on UTI which needs antibiotics. Has anybody else had similar issues, and how have you managed
Hi, I have been on Incruse Ellipta since early November last year, as an "add on" treatment prescribed by my Respiratory consultant. Have had the occasional issue with painful urination, but now started with full on UTI which needs antibiotics. Has anybody else had similar issues, and how have you managed
Hidden
in
Asthma Community Forum
4 years ago
MedPage Today: Decipher Test May Guide Post-Surgical Tx in Prostate Cancer - — Another step toward personalized therapy? February 11, 2021
From the article: [i]"Scores with the 22-gene Decipher genomic classifier (GC) were independently associated with risk for metastasis, prostate cancer-specific mortality, and overall survival among men with recurrent prostate cancer treated with salvage radiotherapy with or without bicalutamide." "These
From the article: [i]"Scores with the 22-gene Decipher genomic classifier (GC) were independently associated with risk for metastasis, prostate cancer-specific mortality, and overall survival among men with recurrent prostate cancer treated with salvage radiotherapy with or without bicalutamide." "These
cujoe
in
Fight Prostate Cancer
4 years ago
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Who here is on Keytruda or other checkpoint inhibitor or some kind of immunotherapy?
Hello everyone. I have been on Keytruda for about 43 infusions now first done every three weeks but every six weeks as of late last year. I am MSI-High with a partial MHL-1 defect. It has definitely helped me but am on a bunch of other stuff including dendritic cell vaccine immunotherapy. My onco doesn
Hello everyone. I have been on Keytruda for about 43 infusions now first done every three weeks but every six weeks as of late last year. I am MSI-High with a partial MHL-1 defect. It has definitely helped me but am on a bunch of other stuff including dendritic cell vaccine immunotherapy. My onco doesn
Fuzzman77
in
Advanced Prostate Cancer
4 years ago
Bilateral Salpingo-Oophorectomy
Hi, just wondering if any of you lovely ladies have had a Bilateral Salpingo-Oophorectomy? I’ve got endo, had cysts removed laparoscopically in 2012, all fine after that until recently when I’ve started to experience quite bad pain. An ultrasound has revealed a large cyst on one of my ovaries. Consultant
Hi, just wondering if any of you lovely ladies have had a Bilateral Salpingo-Oophorectomy? I’ve got endo, had cysts removed laparoscopically in 2012, all fine after that until recently when I’ve started to experience quite bad pain. An ultrasound has revealed a large cyst on one of my ovaries. Consultant
Sassy123455
in
Endometriosis UK
4 years ago
radiotherapy
I was born in 1967.The PSA in August 2020 is 10.75 I was diagnosed with cancer in September 2020. Prostatectomy and extended lymphadenectomy performed on December 8, 2020. in OLV Aalst Belgium, prof. ALEXANDER MOTTRIER. Gleason score 7 (4 + 3). pT3b pN1 pMX. January 14, 2021 PSA 1.18 January 25, 2021
I was born in 1967.The PSA in August 2020 is 10.75 I was diagnosed with cancer in September 2020. Prostatectomy and extended lymphadenectomy performed on December 8, 2020. in OLV Aalst Belgium, prof. ALEXANDER MOTTRIER. Gleason score 7 (4 + 3). pT3b pN1 pMX. January 14, 2021 PSA 1.18 January 25, 2021
adam1967adam
in
Advanced Prostate Cancer
4 years ago
Started Taxotere question
I started taxotere 2 weeks ago. I was wondering if anyone can answer a couple of questions. When I had SBRT the oncologist told me that the treatment may make the cancer angry and cause pain in those spots being treated. I was wondering if the same would hold true for the taxotere causing pain in the
I started taxotere 2 weeks ago. I was wondering if anyone can answer a couple of questions. When I had SBRT the oncologist told me that the treatment may make the cancer angry and cause pain in those spots being treated. I was wondering if the same would hold true for the taxotere causing pain in the
Scootman
in
Advanced Prostate Cancer
4 years ago
PSA and having a prostate
If you have no cancer will you still have some PSA while still having a prostate ?
If you have no cancer will you still have some PSA while still having a prostate ?
lewicki
in
Advanced Prostate Cancer
4 years ago
Out of the Loop
Hi All, thank you for your lovely messages and PMs. Yesterday was a very, very difficult day for me since I had my first Covid jab. An opportunity my husband didn't get by a matter of days / weeks. Had my son not been with me I would have driven away. The advantage of my hysteria meant I jumped the
Hi All, thank you for your lovely messages and PMs. Yesterday was a very, very difficult day for me since I had my first Covid jab. An opportunity my husband didn't get by a matter of days / weeks. Had my son not been with me I would have driven away. The advantage of my hysteria meant I jumped the
Marilyn1959
in
PMRGCAuk
4 years ago
Adult bed wetting
Please can any one help my daughter has always wet the bed she had some months clear however it is a frequent thing now at 19 . She has seen urologist and basically he says he feels for her but there is nothing they can do 😫 she takes desmopressin which may be helping as it isn’t every night but she
Please can any one help my daughter has always wet the bed she had some months clear however it is a frequent thing now at 19 . She has seen urologist and basically he says he feels for her but there is nothing they can do 😫 she takes desmopressin which may be helping as it isn’t every night but she
slp1963
in
ERIC
4 years ago
Abiraterone stopped working new Psma pet scan shows cancer progression
My father age 71 have been on abiraterone and triptorelin injections every three months last 3 years and few months since diagnosed last few months psa was rising slowly 0.03 to 3 in few months doctor suggested for the Psma pet scan and 5-6 bone mets including new meta developed on 8th and 10th Ribs
My father age 71 have been on abiraterone and triptorelin injections every three months last 3 years and few months since diagnosed last few months psa was rising slowly 0.03 to 3 in few months doctor suggested for the Psma pet scan and 5-6 bone mets including new meta developed on 8th and 10th Ribs
Nirman
in
Advanced Prostate Cancer
4 years ago
has anyone else experienced upper back pain with endo?
since urinating blood they found endo in my bladder but now i have a near constant pain in my upper/mid back, i had to leave work 2 and a half hours earlier yesterday giving in after staying for 8 hours, i did phone the gp but the lady who has been dealing with me is not there and wont be next week either
since urinating blood they found endo in my bladder but now i have a near constant pain in my upper/mid back, i had to leave work 2 and a half hours earlier yesterday giving in after staying for 8 hours, i did phone the gp but the lady who has been dealing with me is not there and wont be next week either
siren1
in
Endometriosis UK
4 years ago
Another Vaccine Question
I’m taking Prednisolone for PMR diagnosed 12 months ago, currently transitioning from 10 to 9mg using the DSNS plan. Three weeks ago I had a fairly minor chest infection (minor, that is, for individuals not taking steroids) and was prescribed antibiotics. With the infection came a cytokine storm and
I’m taking Prednisolone for PMR diagnosed 12 months ago, currently transitioning from 10 to 9mg using the DSNS plan. Three weeks ago I had a fairly minor chest infection (minor, that is, for individuals not taking steroids) and was prescribed antibiotics. With the infection came a cytokine storm and
Exflex
in
PMRGCAuk
4 years ago
Refused Chemo after surgery
Hi all, CA125 starting to went up a couple of months ago, after CAT scan and CT scan surgeon indicating another surgery but I refused chemo afterwards, anyone knows about any kind of immunotherapy that can work instead?? Take care xx
Hi all, CA125 starting to went up a couple of months ago, after CAT scan and CT scan surgeon indicating another surgery but I refused chemo afterwards, anyone knows about any kind of immunotherapy that can work instead?? Take care xx
Hope2010
in
My Ovacome
4 years ago
Thread to help those suffering with birth trauma
Hi there I thought I'd create this thread for people to vent about their birth experiences I've noticed since the birth of my daughter 10 days ago there's not much support there are health visitors and midwives but I'm finding the support inadequate for example this morning I get a call from the midwife
Hi there I thought I'd create this thread for people to vent about their birth experiences I've noticed since the birth of my daughter 10 days ago there's not much support there are health visitors and midwives but I'm finding the support inadequate for example this morning I get a call from the midwife
Afrohair
in
Pregnancy and Parenting Support
4 years ago
Could work be causing my flare up?!
Hi all So since the end of November all of a sudden my IBS flared up. I’d be constantly bloated day and night which isn’t normal as with my bloating it comes and goes . I usually wake up with a flat tummy and towards the end of the day I’d be bloated. This time the bloating does not go no matter what
Hi all So since the end of November all of a sudden my IBS flared up. I’d be constantly bloated day and night which isn’t normal as with my bloating it comes and goes . I usually wake up with a flat tummy and towards the end of the day I’d be bloated. This time the bloating does not go no matter what
PM097
in
IBS Network
4 years ago
Cardiac Catheterisation. Terrified.
Letter about Cardiac Catheterisation now. What's that? 😞. Appt on 30th December.
Letter about Cardiac Catheterisation now. What's that? 😞. Appt on 30th December.
ITSINTHEBAG9
in
British Heart Foundation
4 years ago
Provera tablets while waiting for laprascopy
I started provera tablets a couple weeks ago, hot sweats and some other side effects seem to have settled last two days but mood is dipping. Pain hasn’t changed. I wonder how long it took for others to have any impact? Considering private laparoscopic surgery as on NHS waiting list but it’s understandably
I started provera tablets a couple weeks ago, hot sweats and some other side effects seem to have settled last two days but mood is dipping. Pain hasn’t changed. I wonder how long it took for others to have any impact? Considering private laparoscopic surgery as on NHS waiting list but it’s understandably
Claire_Alexandra
in
Endometriosis UK
4 years ago
Has anyone had a Temporomandibular joint infection.
Have had jaw joint problems since my car crash (PCS). Occasionally 3-4 times a year it gets infected. Usually it sorts itself out. Have been telling my GP for years and a year ago I finally got a referral for ENT. An infection started last weekend, by Wednesday it had spread down my neck to the collar
Have had jaw joint problems since my car crash (PCS). Occasionally 3-4 times a year it gets infected. Usually it sorts itself out. Have been telling my GP for years and a year ago I finally got a referral for ENT. An infection started last weekend, by Wednesday it had spread down my neck to the collar
pinkvision
in
Headway
4 years ago
Bed wetting what should I do next?
Hi I’m after some advice. My son is 5 (6 I’m a few days). He has been in nappies a night. We have tried in the passed to take him out of night time nappies at his request but after a few weeks we have given up. He is desperate to be dry so we are trying again. If he is in nappies they are full in the
Hi I’m after some advice. My son is 5 (6 I’m a few days). He has been in nappies a night. We have tried in the passed to take him out of night time nappies at his request but after a few weeks we have given up. He is desperate to be dry so we are trying again. If he is in nappies they are full in the
Bristolmum85
in
ERIC
4 years ago
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