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IBS Flare up
Good afternoon to everyone. I've had IBS-D for many years and I've been able to cope and manage it so far. But since October 2023, I had a major flare up, it was getting to the point where I was struggling to work and general daily activities. Was constantly on the toliet. It was that bad that I went
Good afternoon to everyone. I've had IBS-D for many years and I've been able to cope and manage it so far. But since October 2023, I had a major flare up, it was getting to the point where I was struggling to work and general daily activities. Was constantly on the toliet. It was that bad that I went
Julie182
in
IBS Network
6 months ago
Fenbendazole
My uncle, a very fit 88-year old, was diagnosed with prostate cancer 3 1/2 years ago and while the hormonal treatment kept it in check for a couple of years, his PSA has now risen to 1600 and the scans show has spread to his bones. He has been tinkering with different hormonal regimes, abiraterone
My uncle, a very fit 88-year old, was diagnosed with prostate cancer 3 1/2 years ago and while the hormonal treatment kept it in check for a couple of years, his PSA has now risen to 1600 and the scans show has spread to his bones. He has been tinkering with different hormonal regimes, abiraterone
Granolaloaf
in
Advanced Prostate Cancer
6 months ago
Pessary Moved
Very new to this having been diagnosed with vaginal and bladder prolapse last year. Following Bladder cancer I have suffered for years with UTI’s and have been ‘uncomfortable’ down below for several decades with recurring thrush and other infections and as allways asked , I have not been sexually active
Very new to this having been diagnosed with vaginal and bladder prolapse last year. Following Bladder cancer I have suffered for years with UTI’s and have been ‘uncomfortable’ down below for several decades with recurring thrush and other infections and as allways asked , I have not been sexually active
Nonameme
in
Pelvic Pain Support Network
6 months ago
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Humorous/informative videos on prostate cancer
…at least I hope so. I’ve been documenting “My Journey With Prostate Cancer” in hopes of amusing myself and others. Please don’t watch if you think humor is verboten in regards to cancer. https://youtube.com/playlist?list=PLnTvlPIMC_V3Otqe-SUGyufm4STqY3wYa&si=bLnPUuDrOrWXPkAN
…at least I hope so. I’ve been documenting “My Journey With Prostate Cancer” in hopes of amusing myself and others. Please don’t watch if you think humor is verboten in regards to cancer. https://youtube.com/playlist?list=PLnTvlPIMC_V3Otqe-SUGyufm4STqY3wYa&si=bLnPUuDrOrWXPkAN
Caldonia
in
Advanced Prostate Cancer
6 months ago
Rising PSA on ADT
Prostatectomy 2015, Gleason 4 + 3. 31 external radiation tx, ADT (Zoladex) 2015-17, post nadir Oct 2017 rising PSA until Jan 2022. Degarelix for 8 months. Two months after end of Degarelix PSA rising rapidly (doubling time 5 weeks). Started ADT (Zoladex) Feb 2023. By Oct PSA 0.40 ug/L, Dec 0.43 ug
Prostatectomy 2015, Gleason 4 + 3. 31 external radiation tx, ADT (Zoladex) 2015-17, post nadir Oct 2017 rising PSA until Jan 2022. Degarelix for 8 months. Two months after end of Degarelix PSA rising rapidly (doubling time 5 weeks). Started ADT (Zoladex) Feb 2023. By Oct PSA 0.40 ug/L, Dec 0.43 ug
MGBman
in
Advanced Prostate Cancer
6 months ago
cranberry powder?
Has anyone used cranberry powder rather than tablets for uti prevention? I’ve had the all clear for mum to take it but she will struggle with the big tabs so looking for a powder equivalent. I may also go down the D mannose route but as that can cause diarrhoea am holding off…….diarrhoea led to a nasty
Has anyone used cranberry powder rather than tablets for uti prevention? I’ve had the all clear for mum to take it but she will struggle with the big tabs so looking for a powder equivalent. I may also go down the D mannose route but as that can cause diarrhoea am holding off…….diarrhoea led to a nasty
RT18
in
PMRGCAuk
6 months ago
suspected epidural tumour
Hi all! Hope you are all doing well. My dad just got his scans back, and to go along with his rising PSA (over 260 now), the said they suspect he has an epidural tumour. Our MO typically glazes past his scan results as she doesn’t seem them significant, I want to make sure I am right to be worried here
Hi all! Hope you are all doing well. My dad just got his scans back, and to go along with his rising PSA (over 260 now), the said they suspect he has an epidural tumour. Our MO typically glazes past his scan results as she doesn’t seem them significant, I want to make sure I am right to be worried here
StayingSTRNG
in
Advanced Prostate Cancer
6 months ago
Possible lung metastasis
hi everyone I am 10 years just gone since the start of my journey, usual operation and chemo in 2014. then recurrence in the bowel in 2018 with resection and further chemo. I now have a single lung lesion noticed in March last year. Its now grown from 6mm in October to 9mm now. I have been told that
hi everyone I am 10 years just gone since the start of my journey, usual operation and chemo in 2014. then recurrence in the bowel in 2018 with resection and further chemo. I now have a single lung lesion noticed in March last year. Its now grown from 6mm in October to 9mm now. I have been told that
Bettyxxx
in
My Ovacome
6 months ago
Stopping apixaban before a bladder tumour removal
Hi all, I have afib but this question is for my brother who is really anxious about an upcoming procedure to remove a bladder tumour (Friday 9th Feb).He has had an awful 12 months with 4 mini strokes (caused by undiagnosed afib), early stage Parkinson's and now a bladder tumour. He has severe health
Hi all, I have afib but this question is for my brother who is really anxious about an upcoming procedure to remove a bladder tumour (Friday 9th Feb).He has had an awful 12 months with 4 mini strokes (caused by undiagnosed afib), early stage Parkinson's and now a bladder tumour. He has severe health
Karendeena
in
AF Association
6 months ago
Persistent pelvic pain & next to no support. Does anyone know of any support groups or services, please?
Hi - I was diagnosed with interstitial cystitis last April, and have experienced ongoing pelvic pain since I caught covid in September 2022. Next two paragraphs are just venting, request for resources is in the last paragraph if you want to skip it. I have vaginal pain, bladder pain, and stabbing pain
Hi - I was diagnosed with interstitial cystitis last April, and have experienced ongoing pelvic pain since I caught covid in September 2022. Next two paragraphs are just venting, request for resources is in the last paragraph if you want to skip it. I have vaginal pain, bladder pain, and stabbing pain
purpleheresy
in
Pelvic Pain Support Network
7 months ago
Gastroperesis + IBS C- thoughts
Hello ! My name is Jess and I have been dealing with Gastroperesis for over 25 years. I am SOOOO tired of it! I constantly get a distended bloated stomach, some from gas and some from the slow digestion and not be able to go. I also have IBS-C ( constipation) so this makes matters worse. I take
Hello ! My name is Jess and I have been dealing with Gastroperesis for over 25 years. I am SOOOO tired of it! I constantly get a distended bloated stomach, some from gas and some from the slow digestion and not be able to go. I also have IBS-C ( constipation) so this makes matters worse. I take
jr188
in
IBS Network
7 months ago
Is Cold Water Therapy (cold plunge) for metastasis to bones or lymph nodes beneficial or harmful?? Slow progression?
Any insight would be greatly appreciated. TA??
Any insight would be greatly appreciated. TA??
Longterm101
in
Advanced Prostate Cancer
7 months ago
Scared and Feeling Helpless
Let me start by saying that it was my intention to wait for an official diagnosis for my dad before I started posting here. I found this group recommended on the Prostate Cancer Reddit Forum. I’ve been really struggling lately with absolute utter fear and lack of control (more on that later). My dad
Let me start by saying that it was my intention to wait for an official diagnosis for my dad before I started posting here. I found this group recommended on the Prostate Cancer Reddit Forum. I’ve been really struggling lately with absolute utter fear and lack of control (more on that later). My dad
Cafu6
in
Advanced Prostate Cancer
7 months ago
How do you take a double dose of desogestrel?
Hello, my gynaecologist has recommended I double the dose of my mini pill to try and reduce pain and stop my constant bleeding. I've struggled to find information on the best way of doing this - am I best taking one every 12 hours (eg. One at 9am and one at 9pm) or am I better off taking 2 at the same
Hello, my gynaecologist has recommended I double the dose of my mini pill to try and reduce pain and stop my constant bleeding. I've struggled to find information on the best way of doing this - am I best taking one every 12 hours (eg. One at 9am and one at 9pm) or am I better off taking 2 at the same
hangod
in
Endometriosis UK
7 months ago
PSA to have stabilized after skyrocketing. What does this mean?
With PSA rising very rapidly four months ago after finishing Eclipse Trial, I had SBRT done immediately followed by Provenge. PSA on the day of SBRT was 2.0. It’s my understanding that Provenge will not affect PSA testing so it’s hard to determine progress. Obviously, there is still cancer still there
With PSA rising very rapidly four months ago after finishing Eclipse Trial, I had SBRT done immediately followed by Provenge. PSA on the day of SBRT was 2.0. It’s my understanding that Provenge will not affect PSA testing so it’s hard to determine progress. Obviously, there is still cancer still there
SViking
in
Advanced Prostate Cancer
7 months ago
deranged LFT and Gallbladder perforation
hi, hoping someone may have experience like mine. I had a perforated gallbladder whilst in hospital with Sepsis back in November. Because of my weight and existing issue the team didn’t want to operate as keyhole wasn’t an option so would have involved open surgery. So I was put on antibiotics for 6
hi, hoping someone may have experience like mine. I had a perforated gallbladder whilst in hospital with Sepsis back in November. Because of my weight and existing issue the team didn’t want to operate as keyhole wasn’t an option so would have involved open surgery. So I was put on antibiotics for 6
Stonyd
in
British Liver Trust
7 months ago
Radiation?
just got my psa results after my first round of 4 months leuprolide and 3 months Zytiga and prednisone…..initially 18 now 0.04. Nurse told me that my MO would like to see me early to discuss more radiation( recent psma found areas of avidity only in prostate bed……initial tx was 48 grey imrt back in
just got my psa results after my first round of 4 months leuprolide and 3 months Zytiga and prednisone…..initially 18 now 0.04. Nurse told me that my MO would like to see me early to discuss more radiation( recent psma found areas of avidity only in prostate bed……initial tx was 48 grey imrt back in
Tommyj2
in
Advanced Prostate Cancer
7 months ago
Add Nubeqa to Orgovyx?
Age 81. I had prostate radiation in 2021, and pelvic node radiation in 2023. PSA was 3.78 in Dec 2023. PSMA PET then showed cancer growing in prostate, shrinking in pelvic node, but spread to an abdominal node. I have started ADT with Orgovyx (relugolix) and want to add an ARI. The urologist wants
Age 81. I had prostate radiation in 2021, and pelvic node radiation in 2023. PSA was 3.78 in Dec 2023. PSMA PET then showed cancer growing in prostate, shrinking in pelvic node, but spread to an abdominal node. I have started ADT with Orgovyx (relugolix) and want to add an ARI. The urologist wants
vintage42
in
Advanced Prostate Cancer
7 months ago
asking for advice
brief synopsis Cervical cancer 1985 with surgery and radiation treatment Urostomy 1991 Artificial sphincter 2003 Urostomy revised and most of small bowel cut out because of adhesions leaving only 1.2m 2006 Colostomy formed 2007 Constant mucus from rectum In 2023 developed high inflammatory markers
brief synopsis Cervical cancer 1985 with surgery and radiation treatment Urostomy 1991 Artificial sphincter 2003 Urostomy revised and most of small bowel cut out because of adhesions leaving only 1.2m 2006 Colostomy formed 2007 Constant mucus from rectum In 2023 developed high inflammatory markers
Imakelace
in
Pelvic Pain Support Network
7 months ago
Unsure of best option in early prostate cancer diagnosis.
I have had PSA tests annually for 10 years and in Oct 2023 had an elevated 6.42 result. Was referred to a urologist, whom performed a DRE. There was prostate enlargement but no tumor discovered through DRE. After discussing several options, I decided to have a biopsy on Nov 21, 2023. Dec 5, 2023,
I have had PSA tests annually for 10 years and in Oct 2023 had an elevated 6.42 result. Was referred to a urologist, whom performed a DRE. There was prostate enlargement but no tumor discovered through DRE. After discussing several options, I decided to have a biopsy on Nov 21, 2023. Dec 5, 2023,
cobrasc429
in
Advanced Prostate Cancer
7 months ago
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