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Provenge (only) - impact on overall survival
I just got insurance approval for Provenge...out of pocket is really high so now I'm doing a cost benefit analysis in my mind. I've seen many different articles showing that Provenge ALONE only extends overall survival by 4-15 months. Does that sound correct? Tall_Allen mentioned adding xofigio for
I just got insurance approval for Provenge...out of pocket is really high so now I'm doing a cost benefit analysis in my mind. I've seen many different articles showing that Provenge ALONE only extends overall survival by 4-15 months. Does that sound correct? Tall_Allen mentioned adding xofigio for
Gl448
in
Advanced Prostate Cancer
7 months ago
Dosage for gabapentin enacarbil ( also known as horizant).
I have been on gabapentin neurontin for several months but I read that on the Mayo website that the time release version (horizant) is better suited for treating RLS. I currently take 1200 mg of gabapentin neurontin in two doses at 7 and bedtime. I have now convinced my doctor to prescribe the horizant
I have been on gabapentin neurontin for several months but I read that on the Mayo website that the time release version (horizant) is better suited for treating RLS. I currently take 1200 mg of gabapentin neurontin in two doses at 7 and bedtime. I have now convinced my doctor to prescribe the horizant
jinolke
in
Restless Legs Syndrome
7 months ago
Lutetium - PSMA Earlier
For those members of this forum interested in the use of lutetium and where it 'fits' in the treatment of prostate cancer, this webinar from the [i]Prostate Theranostics Imaging Centre of Excellence[/i] and the [i]International Cancer Imagining Society[/i] is sure to be of interest. The discussion
For those members of this forum interested in the use of lutetium and where it 'fits' in the treatment of prostate cancer, this webinar from the [i]Prostate Theranostics Imaging Centre of Excellence[/i] and the [i]International Cancer Imagining Society[/i] is sure to be of interest. The discussion
marnieg46
in
Fight Prostate Cancer
7 months ago
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Update on NOT a UTI
Hi, just to update. I had the cystoscopy this morning, not a pleasant experience, but no cancer, no inflammation and no gritty substance, so that at least is good. She did say some people's kidneys do just excrete microscopic blood particles as their normal, but that I possibly have overactive bladder
Hi, just to update. I had the cystoscopy this morning, not a pleasant experience, but no cancer, no inflammation and no gritty substance, so that at least is good. She did say some people's kidneys do just excrete microscopic blood particles as their normal, but that I possibly have overactive bladder
Pusph
in
PMRGCAuk
7 months ago
Nerves taken
I need some understanding. A friend just shared that he had a G8 and a psa of 10.2. He had a RALP and the doc said the cancer was contained to the prostate. Then he said that the doc took both nerve bundles (R & L). How is the cancer contained but required both nerve bundles to be taken?
I need some understanding. A friend just shared that he had a G8 and a psa of 10.2. He had a RALP and the doc said the cancer was contained to the prostate. Then he said that the doc took both nerve bundles (R & L). How is the cancer contained but required both nerve bundles to be taken?
Cyclingrealtor
in
Advanced Prostate Cancer
7 months ago
Not a UTI
Thinking I had picked up a UTI (strange feeling in bladder area and frequent feeling of needing to urinate) I requested a urine test, which was done. The triage nurse at my surgery informed me that although it showed no infection there were in fact microscopic traces of blood in there, (which would be
Thinking I had picked up a UTI (strange feeling in bladder area and frequent feeling of needing to urinate) I requested a urine test, which was done. The triage nurse at my surgery informed me that although it showed no infection there were in fact microscopic traces of blood in there, (which would be
Pusph
in
PMRGCAuk
7 months ago
And more ASCO GU 2024 phase 3 trial
Data will be presented at ASCO GU 2024 but looks promising "In combination with immunotherapy, Cabometyx is delivering long-term survival benefits today for people living with renal cell carcinoma worldwide, while also showcasing future potential in metastatic castration-resistant prostate cancer, an
Data will be presented at ASCO GU 2024 but looks promising "In combination with immunotherapy, Cabometyx is delivering long-term survival benefits today for people living with renal cell carcinoma worldwide, while also showcasing future potential in metastatic castration-resistant prostate cancer, an
Maxone73
in
Advanced Prostate Cancer
7 months ago
peppermint oil and IBS
Has anyone had a positive experience with peppermint oil for bloating and gas in a setting of IBS
Has anyone had a positive experience with peppermint oil for bloating and gas in a setting of IBS
Samyyy
in
IBS Network
7 months ago
Orchidectomy vs ADT
For anyone who had the bilateral orchidectomy, I would like some advice for my husband. When was it done? Before or after BCR occurred? What are the side effects? Do you take any other ADT meds after? How is your QOL and is there anything you'd do differently. He had RP in Dec 2021. No other treatment
For anyone who had the bilateral orchidectomy, I would like some advice for my husband. When was it done? Before or after BCR occurred? What are the side effects? Do you take any other ADT meds after? How is your QOL and is there anything you'd do differently. He had RP in Dec 2021. No other treatment
tn12
in
Advanced Prostate Cancer
7 months ago
My Oligometastatic PCa Journey Continues...coming up on year 9!
It's been a while since I've posted. But wanted to offer a note of
encouragement
for those here that have
oligometastatic prostate cancer
. I was diagnosed in 2015 (227 PSA, Gleason 8, 1 MET in the spine) and still going strong. After years of
hormone therapy
, 6 rounds of
chemo
It's been a while since I've posted. But wanted to offer a note of
encouragement
for those here that have
oligometastatic prostate cancer
. I was diagnosed in 2015 (227 PSA, Gleason 8, 1 MET in the spine) and still going strong. After years of
hormone therapy
, 6 rounds of
chemo
JamesAtlanta
in
Advanced Prostate Cancer
7 months ago
Approved additives and E-numbers (UK)
As food additives are often discussed, I thought it might be useful to post the current list of approved additives in the UK. Note that the use of substances in foods is largely separate to their use in medicines. One example being Titanium dioxide which is now banned in foods in the EU and Northern
As food additives are often discussed, I thought it might be useful to post the current list of approved additives in the UK. Note that the use of substances in foods is largely separate to their use in medicines. One example being Titanium dioxide which is now banned in foods in the EU and Northern
helvella
Thyroid UK
in
Thyroid UK
7 months ago
Has anyone knowledge if...
I have been considering trying 'Theraworx' for nocturnal leg cramps; it has many ingredients including vita. E though the E should be a small amount. Does anyone have any real knowledge if this product would effect PSA levels, or have any effect on the PCa...thank you
I have been considering trying 'Theraworx' for nocturnal leg cramps; it has many ingredients including vita. E though the E should be a small amount. Does anyone have any real knowledge if this product would effect PSA levels, or have any effect on the PCa...thank you
900312611
in
Advanced Prostate Cancer
7 months ago
Bladder Cancer, biopsy and operation.
I all happened so quickly,next week pre-op discussion and operation on Friday. I would like to receive response from people who have had urinary bladder biopsy operation. Thanka a lot in advance.
I all happened so quickly,next week pre-op discussion and operation on Friday. I would like to receive response from people who have had urinary bladder biopsy operation. Thanka a lot in advance.
sandybrown
in
Lung Conditions Community Forum
7 months ago
Soiling Issue
After 2 years of chronic constipation I disimpacted my 6 year old last October which resulted in less soiling. My son was even getting the sensation of needing to go again maybe 3-4 times per week. We managed to wean him off Senna (started to give him tummy cramps) and have stayed on a maintenance dose
After 2 years of chronic constipation I disimpacted my 6 year old last October which resulted in less soiling. My son was even getting the sensation of needing to go again maybe 3-4 times per week. We managed to wean him off Senna (started to give him tummy cramps) and have stayed on a maintenance dose
BabT
in
ERIC
7 months ago
Should I apply sick day rules following a foot operation?
I had an operation yesterday to remove osteophyte ring from around my big toe. I’m home now and it’s very painful despite taking the codeine 30mg they prescribed. My PMR is no different and I’m on 6mg prednisolone but am I supposed to apply sick day rules or do I only do that if PMR gets worse?
I had an operation yesterday to remove osteophyte ring from around my big toe. I’m home now and it’s very painful despite taking the codeine 30mg they prescribed. My PMR is no different and I’m on 6mg prednisolone but am I supposed to apply sick day rules or do I only do that if PMR gets worse?
Mfaepink1973
in
PMRGCAuk
7 months ago
weaning off Fentanyl patches
I am on 25mcg Fentanyl patches for pain caused by a compression fracture on my T10 vertebrae due to radiation treatment for metastatic prostate cancer. I have been on painkillers for about 12 months now, beginning with morphine etc which caused intense constipation. I began about 9 months ago on 12 mcg
I am on 25mcg Fentanyl patches for pain caused by a compression fracture on my T10 vertebrae due to radiation treatment for metastatic prostate cancer. I have been on painkillers for about 12 months now, beginning with morphine etc which caused intense constipation. I began about 9 months ago on 12 mcg
Brightman
in
Pain Concern
7 months ago
Urodynamics test or not?
Hi. Just a brief background. I am on the waiting list for pelvic organ prolapse. I have incontinence issues and I was prescribed Solifenacin by the hospital consultant which worked for about a month then stopped. Because of this the doctor has delayed me signing the consent forms for my surgery and
Hi. Just a brief background. I am on the waiting list for pelvic organ prolapse. I have incontinence issues and I was prescribed Solifenacin by the hospital consultant which worked for about a month then stopped. Because of this the doctor has delayed me signing the consent forms for my surgery and
Mummybear0213
in
Pelvic Pain Support Network
7 months ago
Right phrenic nerve paralysis
Path from RP showed extensive perineural involvement. No other risk factors for phrenic nerve paralysis. Haven't talked to MO yet, but sure concerned it's tumor invasion. PSA still <0.04.
Path from RP showed extensive perineural involvement. No other risk factors for phrenic nerve paralysis. Haven't talked to MO yet, but sure concerned it's tumor invasion. PSA still <0.04.
rfgh20
in
Advanced Prostate Cancer
7 months ago
antispasmodic medication for irritable bowel syndrome
Hi, lately I have been going through a very difficult time with my physical problems. I am suffering from irritable bowel syndrome and have frequent severe cramps after eating something disagreeable. The anticholinergic or antispasmodic med Hyoscyamine Sulf 0.125 mg worsens my restless legs big time
Hi, lately I have been going through a very difficult time with my physical problems. I am suffering from irritable bowel syndrome and have frequent severe cramps after eating something disagreeable. The anticholinergic or antispasmodic med Hyoscyamine Sulf 0.125 mg worsens my restless legs big time
halperinchen
in
Restless Legs Syndrome
7 months ago
Help! Prostate cancer spread to bladder.
Diagnosed with advanced prostate cancer in 2017, confined to bones and lymph nodes. After chemotherapy, have had a great run on drugs, but a bladder neck incision last June confirmed that it had spread to my bladder, about 1cm poorly differentiated adenocarcinoma on the left side. The urologist seemed
Diagnosed with advanced prostate cancer in 2017, confined to bones and lymph nodes. After chemotherapy, have had a great run on drugs, but a bladder neck incision last June confirmed that it had spread to my bladder, about 1cm poorly differentiated adenocarcinoma on the left side. The urologist seemed
Tonyliv
in
Bladder Health UK
7 months ago
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