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I know all too well how overwhelming this diagnosis can be to anyone. All of the emotions that can follow are hard to deal with for sure. If any new member doesn't feel comfortable posting anything here initially, please feel free to send me a message via 'chat'. We have all been exactly where you
I know all too well how overwhelming this diagnosis can be to anyone. All of the emotions that can follow are hard to deal with for sure. If any new member doesn't feel comfortable posting anything here initially, please feel free to send me a message via 'chat'. We have all been exactly where you
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
supplements to help DA withdrawal
I am wondering if anyone has used natural supplements like amino acids to increase dopamine while tapering off Pramaprexole? I have wondered if it would help with the decrease in dopamine while tapering. Also has anyone used Modafinil with any luck in helping energy and mood?
I am wondering if anyone has used natural supplements like amino acids to increase dopamine while tapering off Pramaprexole? I have wondered if it would help with the decrease in dopamine while tapering. Also has anyone used Modafinil with any luck in helping energy and mood?
loloball2
in
Restless Legs Syndrome
5 months ago
GCA. LVV
Hi Everyone,This is my first post,apologies if it’s a little long.I am a 74 year old male in UK.My journey started in March 2020 when my GP diagnosed GGA with PMR.I was started on 40mg prednisolone immediately and put on fast track to see a rheumatologist at the local hospital.I was seen the following
Hi Everyone,This is my first post,apologies if it’s a little long.I am a 74 year old male in UK.My journey started in March 2020 when my GP diagnosed GGA with PMR.I was started on 40mg prednisolone immediately and put on fast track to see a rheumatologist at the local hospital.I was seen the following
Oxfordboy2
in
PMRGCAuk
9 months ago
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Osteoporosis
I tried once weekly 70 mg Alendronate. Was on it 2 weeks and suffered severe migraines to the point I had presssure in my eyeballs. Anyone had similar experience ?
I tried once weekly 70 mg Alendronate. Was on it 2 weeks and suffered severe migraines to the point I had presssure in my eyeballs. Anyone had similar experience ?
Coffeelover57
in
Osteoporosis Support
9 months ago
Feel good post/Psychological first aid kit
What makes you feel better? Funny videos? Music? Videogames? Quotes? Thank you guys, you're helping me with my so complicated case
What makes you feel better? Funny videos? Music? Videogames? Quotes? Thank you guys, you're helping me with my so complicated case
Against_the_current
in
Anxiety and Depression Support
2 months ago
Update 7.7
It has been a while since my last update. Overall, things are going well. I feel better than ever, other than my knees. Time for another hyaluronic acid injection to lubricate the knees. I am going to try Durolane this time. It is a single injection instead of a series of three. In other news
It has been a while since my last update. Overall, things are going well. I feel better than ever, other than my knees. Time for another hyaluronic acid injection to lubricate the knees. I am going to try Durolane this time. It is a single injection instead of a series of three. In other news
hunter5582
in
MPN Voice
9 months ago
Gastric side effect of PMR medications
Hello, I am relatively newly diagnosed with PMR, in July 2023, and just starting my tapering journey. I started on 20mg Prednisolone (now just reached 10mg), plus I take 15mg Lansoprazole and once a week 70mg Alendronic Acid. I started well, feeling great with the loss of my joint pain, but after
Hello, I am relatively newly diagnosed with PMR, in July 2023, and just starting my tapering journey. I started on 20mg Prednisolone (now just reached 10mg), plus I take 15mg Lansoprazole and once a week 70mg Alendronic Acid. I started well, feeling great with the loss of my joint pain, but after
Suobe
in
PMRGCAuk
9 months ago
Four legged Cutie
Hello everyoneJust thought I'd pop in to show you this special cutie foal born at Whipsnade Zoo. He's a breed that is classed as extinct in the wild and Whipsnade is involved with re-introducing them to Mongolia. What wonderful work!. Hope your all as well as possible. Aren't we having a chilly spring
Hello everyoneJust thought I'd pop in to show you this special cutie foal born at Whipsnade Zoo. He's a breed that is classed as extinct in the wild and Whipsnade is involved with re-introducing them to Mongolia. What wonderful work!. Hope your all as well as possible. Aren't we having a chilly spring
misty14
in
LUPUS UK
4 months ago
Information
Hi all. I have had some bad attacks over the last several months when I’m in a crowded place and it’s noisy, so much so that I’ve had to leave the building. I think I know what causes it having completed a first aid course in 1976 but just wondering if this has happened to anyone else. It’s like a panic
Hi all. I have had some bad attacks over the last several months when I’m in a crowded place and it’s noisy, so much so that I’ve had to leave the building. I think I know what causes it having completed a first aid course in 1976 but just wondering if this has happened to anyone else. It’s like a panic
paul456
in
Ataxia UK
2 months ago
strontium
I’ve recently finished 2 year course of Teriparatide and have a hospital appointment shortly to decide next treatment. I have discussed possibility of Stontium with doctor. Does anyone have experience of taking this? Are some kinds of Strontium better than others and will I have a choice as to what
I’ve recently finished 2 year course of Teriparatide and have a hospital appointment shortly to decide next treatment. I have discussed possibility of Stontium with doctor. Does anyone have experience of taking this? Are some kinds of Strontium better than others and will I have a choice as to what
Snowybear
in
Bone Health and Osteoporosis UK
9 months ago
How big are AA tablets
I am considering trying weekly alendronic acid tablets but am worried they will be too big for me to swallow since I have dysphagia (difficulty swallowing). Please, what shape and how long/wide are the tablets people take? Note that there are good reasons why I should not have infusions. Meds involving
I am considering trying weekly alendronic acid tablets but am worried they will be too big for me to swallow since I have dysphagia (difficulty swallowing). Please, what shape and how long/wide are the tablets people take? Note that there are good reasons why I should not have infusions. Meds involving
Jubux
in
Bone Health and Osteoporosis UK
9 months ago
Anyone with alendronate side effects?
I was just diagnosed with osteoporosis in July of this year. My physician immediately started me on alendronate. Approximately two months into treatment I began having severe shoulder joint and muscle pain that is making it too painful to do most exercise I had begun. My physician thinks it is unrelated
I was just diagnosed with osteoporosis in July of this year. My physician immediately started me on alendronate. Approximately two months into treatment I began having severe shoulder joint and muscle pain that is making it too painful to do most exercise I had begun. My physician thinks it is unrelated
ohsuzyq
in
Osteoporosis Support
9 months ago
Anyone taking Anticoagulants for AF, together with Alendronic Acid for Osteoporosis?
I've got AF and taking Edoxaban. I'm also taking Atorvastatin, Ramipril, Bisoprolol and Levothyroxine.I've just been told that I have Osteoporosis, which is a side effect of taking Letrozole for 5 years for breast cancer. Alendronic Acid can help osteoporosis, together with taking calcium and vitamin
I've got AF and taking Edoxaban. I'm also taking Atorvastatin, Ramipril, Bisoprolol and Levothyroxine.I've just been told that I have Osteoporosis, which is a side effect of taking Letrozole for 5 years for breast cancer. Alendronic Acid can help osteoporosis, together with taking calcium and vitamin
MrsSuzuki
in
AF Association
9 months ago
*Long Read Warning* How do you know if you’re getting better mentally?
Just need to vent, if you read this and commented thankyou, it helps getting another perspective on the situation. Male, 20 Parents went through a divorce in 2022 and it was ugly to say the least. (Mom was an alcoholic, dad was a cop and emotionally distant due to his Mexican culture and upbringing
Just need to vent, if you read this and commented thankyou, it helps getting another perspective on the situation. Male, 20 Parents went through a divorce in 2022 and it was ugly to say the least. (Mom was an alcoholic, dad was a cop and emotionally distant due to his Mexican culture and upbringing
Bear2024
in
Above & Beyond
3 months ago
t12 and calcium supplement
I have got severe osteoporosis and I am wandering if I would be better off with a calcium supplement, I tried adcal-d3 after my zoledronic acid infusion but I had to stop because it gave me constipation, I don't want to be messing about measuring out calcium and I don't know if I am absorbing calcium
I have got severe osteoporosis and I am wandering if I would be better off with a calcium supplement, I tried adcal-d3 after my zoledronic acid infusion but I had to stop because it gave me constipation, I don't want to be messing about measuring out calcium and I don't know if I am absorbing calcium
Radars
in
Bone Health and Osteoporosis UK
9 months ago
clavicle/collar bone swelling - YouTube Vid
hi there, A few of us have been talking about swelling in the pits of the collar bone. Instagram must’ve been listening 👂🏼 as this expert popped up in my feed. apparently this area is called the terminus, left and right so different jobs. I’ve watched this YouTube and immediately had gunk running
hi there, A few of us have been talking about swelling in the pits of the collar bone. Instagram must’ve been listening 👂🏼 as this expert popped up in my feed. apparently this area is called the terminus, left and right so different jobs. I’ve watched this YouTube and immediately had gunk running
Regenallotment
in
Thyroid UK
5 months ago
pain?
Anybody else have pain on waking, from hips and legs up to arms & shoulders--not explained by exercise or lack thereof? Can barely hobble about the house to get my meds and feed the cat. Sometimes it helps to tighten all the muscles to form an upright posture--but as soon as I loosen them to move, it
Anybody else have pain on waking, from hips and legs up to arms & shoulders--not explained by exercise or lack thereof? Can barely hobble about the house to get my meds and feed the cat. Sometimes it helps to tighten all the muscles to form an upright posture--but as soon as I loosen them to move, it
ottercat
in
Cure Parkinson's
6 months ago
Different Treatment Advice from Endocrinologist and Rheumatologist
Hello, I'm in my thirties and have osteoporosis. Earlier this year I saw an endocrinologist who advised I start HRT (my hormone levels are fine) and I have just seen a rheumatologist who advised I take alendronate. Neither can advise on the other. I wondered whether people had experience with either
Hello, I'm in my thirties and have osteoporosis. Earlier this year I saw an endocrinologist who advised I start HRT (my hormone levels are fine) and I have just seen a rheumatologist who advised I take alendronate. Neither can advise on the other. I wondered whether people had experience with either
Houseelf
in
Bone Health and Osteoporosis UK
9 months ago
2nd Liver Biopsy result
My 2nd liver biopsy states I have advanced bridging fibrosis with a score of 4/6. Which I think means F3. My previous fibroscan was F2 (9.2kpa). I'm not seeing my consultant for 13 weeks. I know I'm not supposed to post test results but I would love to hear from anyone at F3 & how they are coping with
My 2nd liver biopsy states I have advanced bridging fibrosis with a score of 4/6. Which I think means F3. My previous fibroscan was F2 (9.2kpa). I'm not seeing my consultant for 13 weeks. I know I'm not supposed to post test results but I would love to hear from anyone at F3 & how they are coping with
Bigbluemonkey
in
British Liver Trust
5 months ago
Rib pain after breathing test
On 22nd I took respiratory test. Ribs in area of LUNG SURGERY in 2019 are very painful upon effort; front, side, and back. I'm taking tylenol and rubbing creams with little improvement. Any one experience this after test?
On 22nd I took respiratory test. Ribs in area of LUNG SURGERY in 2019 are very painful upon effort; front, side, and back. I'm taking tylenol and rubbing creams with little improvement. Any one experience this after test?
Lyubov
in
Lung Conditions Community Forum
5 months ago
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