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QoL to the World
Day 2 in Hawaii Got half moons, Pork Hash, baked Char siu Baos, and Chow mein from Royal Kitchen. Goodwill shopping Poke run at Foodland Chillin at Ala Moana Beach Bulgogi dinner for Mom from Mama Woo's BBQ https://photos.app.goo.gl/cwKvJTpPvCkTzRv98
Day 2 in Hawaii Got half moons, Pork Hash, baked Char siu Baos, and Chow mein from Royal Kitchen. Goodwill shopping Poke run at Foodland Chillin at Ala Moana Beach Bulgogi dinner for Mom from Mama Woo's BBQ https://photos.app.goo.gl/cwKvJTpPvCkTzRv98
dockam
in
Advanced Prostate Cancer
6 months ago
Dexa Scan Results
Hi, can anyone translate these test results for me please? My GP has put me on Alendronic Acid one per week, 70mg and l am taking Vitamin K2, Vitamin D but unfortunately l cannot seem to tolerate the calcium supplements that we have tried, they give me terrible stomach problems even in small doses.
Hi, can anyone translate these test results for me please? My GP has put me on Alendronic Acid one per week, 70mg and l am taking Vitamin K2, Vitamin D but unfortunately l cannot seem to tolerate the calcium supplements that we have tried, they give me terrible stomach problems even in small doses.
Legsandmore
in
PMRGCAuk
6 months ago
Ursodeoxycholic Acid (UDCA)
Anyone on here involved with the trial of Urso, a liver drug that showed so promise to treatment of PD Drug: ursodeoxycholic acid Subjects will be provided ~50mg/kg/day (based on the use of 250 and 500mg capsules) of UDCA to be divided into 3 equal daily doses and titrated up over ~2 weeks to a stable
Anyone on here involved with the trial of Urso, a liver drug that showed so promise to treatment of PD Drug: ursodeoxycholic acid Subjects will be provided ~50mg/kg/day (based on the use of 250 and 500mg capsules) of UDCA to be divided into 3 equal daily doses and titrated up over ~2 weeks to a stable
Furch
in
Cure Parkinson's
6 months ago
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side effects Alendronic acid
I have had really bad neck pain for about 3 months, it is a lot worse in the night. My rheum consultant thinks it is osteoarthritis, but I haven’t had an X-ray or anything to confirm this. I was diagnosed with osteoporosis in August and started Alendronic acid in September. I was wondering if the neck
I have had really bad neck pain for about 3 months, it is a lot worse in the night. My rheum consultant thinks it is osteoarthritis, but I haven’t had an X-ray or anything to confirm this. I was diagnosed with osteoporosis in August and started Alendronic acid in September. I was wondering if the neck
Olliechops
in
NRAS
6 months ago
I think I have endometriosis
Hi,I am a 25 year-old teacher and I think I may have endometriosis. I thought I would post my story on here in the hope that somebody may have had something similar and maybe let me know how the rest of their journey to diagnosis went. I started my periods at the age of 10, they were always heavy
Hi,I am a 25 year-old teacher and I think I may have endometriosis. I thought I would post my story on here in the hope that somebody may have had something similar and maybe let me know how the rest of their journey to diagnosis went. I started my periods at the age of 10, they were always heavy
PinkButterfly25
in
Endometriosis UK
6 months ago
PMR/Prednisolone and dental implants
Hi, I’m enquiring as to whether anyone else has experienced issues with their dental implants since being diagnosed with PMR and taking Prednisolone. I’ve been having trouble with one of my dental implants for a couple of weeks and on seeing the dentist today have been told that the implant has loosened
Hi, I’m enquiring as to whether anyone else has experienced issues with their dental implants since being diagnosed with PMR and taking Prednisolone. I’ve been having trouble with one of my dental implants for a couple of weeks and on seeing the dentist today have been told that the implant has loosened
Tiggy70
in
PMRGCAuk
6 months ago
was it the wrong time to take myself off ibandronic acid?
Hello folks, feeling a bit out of my depths at the moment. I am now 5 years on prednisolone and, after discovering this wonderful forum was on a very slow tapering, got to 6.5 mgs but a bad cold followed by stressful events and I’m back to 7.5 mgs. My husband has recently been diagnosed with non-hodgkins
Hello folks, feeling a bit out of my depths at the moment. I am now 5 years on prednisolone and, after discovering this wonderful forum was on a very slow tapering, got to 6.5 mgs but a bad cold followed by stressful events and I’m back to 7.5 mgs. My husband has recently been diagnosed with non-hodgkins
allofaquandry
in
PMRGCAuk
6 months ago
Zolendroic acid after discovering compression fractures. Osteoporosis.
This is an update and a thank you really, as well as info for others. Last time I posted I was puzzled about back pain. Later after a scan revealed compression fractures I realised that the digging in the garden in July resulting in back pain which I thought was an old war wound slipped disc, was probably
This is an update and a thank you really, as well as info for others. Last time I posted I was puzzled about back pain. Later after a scan revealed compression fractures I realised that the digging in the garden in July resulting in back pain which I thought was an old war wound slipped disc, was probably
Ebiker
in
PMRGCAuk
6 months ago
Waiting for laperoscopy
Hi everyone :) I am just wondering if anyone has had similar experiences. I had heavy bleeding and pain during my periods, pain and bleeding during and after sex, painful bowel movements during my period. At one time I went travelling and asked if I could take my pill packets together and was told
Hi everyone :) I am just wondering if anyone has had similar experiences. I had heavy bleeding and pain during my periods, pain and bleeding during and after sex, painful bowel movements during my period. At one time I went travelling and asked if I could take my pill packets together and was told
LUCY001
in
Endometriosis UK
6 months ago
Severe RLS Where do I go now?
Hi! I've been lurking reading your posts for a couple of years. I live in Sweden and am a 58 yo female and have severe burning RLS without PLMD. Here's a condensed version of my story: July 2011 Laminectomy C4-C5. no real slide effects except nerve pain in right index finger which I've learned to block
Hi! I've been lurking reading your posts for a couple of years. I live in Sweden and am a 58 yo female and have severe burning RLS without PLMD. Here's a condensed version of my story: July 2011 Laminectomy C4-C5. no real slide effects except nerve pain in right index finger which I've learned to block
e365
in
Restless Legs Syndrome
6 months ago
PMR Update
Good morning everyone - sunny chilly day here in Devon - uplifting after all the grey and rain! So it’s now 7 weeks since I started Pred at 15mg and after return from golf holiday in Spain which went very well and was in no pain at all - so after 3 weeks cut to 12.5 which also settled well and body
Good morning everyone - sunny chilly day here in Devon - uplifting after all the grey and rain! So it’s now 7 weeks since I started Pred at 15mg and after return from golf holiday in Spain which went very well and was in no pain at all - so after 3 weeks cut to 12.5 which also settled well and body
Sungolfer
in
PMRGCAuk
6 months ago
Xtandi (enzalutimide) SEs Part 2
Since I've increased my Xtandi from 80 mg to 160 mg, I am now experiencing a bad case of the jimmy legs (restless legs) at night. I take my Xtandi around 8 pm. I still work full time and I've read that taking it at night helps avoid the fatigue during the day. So far that seems to be the case with
Since I've increased my Xtandi from 80 mg to 160 mg, I am now experiencing a bad case of the jimmy legs (restless legs) at night. I take my Xtandi around 8 pm. I still work full time and I've read that taking it at night helps avoid the fatigue during the day. So far that seems to be the case with
MoonRocket
in
Advanced Prostate Cancer
4 months ago
Taking hours to fall asleep
Gabapentin has controlled my RLS for last year or so. I only take 600 mg at bedtime for last 3/4 months now. I have recently started having difficulty falling asleep (no RLS, just wide awake for 3/4 hours). I thought about asking for a sleep aid from GP but didn't want to take anything that would aggrevate
Gabapentin has controlled my RLS for last year or so. I only take 600 mg at bedtime for last 3/4 months now. I have recently started having difficulty falling asleep (no RLS, just wide awake for 3/4 hours). I thought about asking for a sleep aid from GP but didn't want to take anything that would aggrevate
Opie__
in
Restless Legs Syndrome
4 months ago
first lap - nothing found. Please help.
Hi, I’m new here (or I’ve been acting like a shadow for months, reading your stories & experiences and feeling a sense of support from you all without reaching out, so firstly thank you) I have had ongoing pelvic pain since 2021. Continuously. It started as a niggle in my right ovary. I noticed it
Hi, I’m new here (or I’ve been acting like a shadow for months, reading your stories & experiences and feeling a sense of support from you all without reaching out, so firstly thank you) I have had ongoing pelvic pain since 2021. Continuously. It started as a niggle in my right ovary. I noticed it
GraceElli
in
Endometriosis UK
7 months ago
diagnosed with PMR
quick introduction , am early 50’s contacted GP after 9months or so of increasing all over pain and stiffness especially in the morning , extreme fatigue, I asked if I could consider HRT as thought maybe it could be menopause symptoms , had been taking naproxen for menstrual pain and migraines for about
quick introduction , am early 50’s contacted GP after 9months or so of increasing all over pain and stiffness especially in the morning , extreme fatigue, I asked if I could consider HRT as thought maybe it could be menopause symptoms , had been taking naproxen for menstrual pain and migraines for about
Emilydarby
in
PMRGCAuk
7 months ago
GCA. LVV
Hi Everyone,This is my first post,apologies if it’s a little long.I am a 74 year old male in UK.My journey started in March 2020 when my GP diagnosed GGA with PMR.I was started on 40mg prednisolone immediately and put on fast track to see a rheumatologist at the local hospital.I was seen the following
Hi Everyone,This is my first post,apologies if it’s a little long.I am a 74 year old male in UK.My journey started in March 2020 when my GP diagnosed GGA with PMR.I was started on 40mg prednisolone immediately and put on fast track to see a rheumatologist at the local hospital.I was seen the following
Oxfordboy2
in
PMRGCAuk
7 months ago
Osteoporosis
I tried once weekly 70 mg Alendronate. Was on it 2 weeks and suffered severe migraines to the point I had presssure in my eyeballs. Anyone had similar experience ?
I tried once weekly 70 mg Alendronate. Was on it 2 weeks and suffered severe migraines to the point I had presssure in my eyeballs. Anyone had similar experience ?
Coffeelover57
in
Osteoporosis Support
7 months ago
Update 7.7
It has been a while since my last update. Overall, things are going well. I feel better than ever, other than my knees. Time for another hyaluronic acid injection to lubricate the knees. I am going to try Durolane this time. It is a single injection instead of a series of three. In other news
It has been a while since my last update. Overall, things are going well. I feel better than ever, other than my knees. Time for another hyaluronic acid injection to lubricate the knees. I am going to try Durolane this time. It is a single injection instead of a series of three. In other news
hunter5582
in
MPN Voice
7 months ago
Gastric side effect of PMR medications
Hello, I am relatively newly diagnosed with PMR, in July 2023, and just starting my tapering journey. I started on 20mg Prednisolone (now just reached 10mg), plus I take 15mg Lansoprazole and once a week 70mg Alendronic Acid. I started well, feeling great with the loss of my joint pain, but after
Hello, I am relatively newly diagnosed with PMR, in July 2023, and just starting my tapering journey. I started on 20mg Prednisolone (now just reached 10mg), plus I take 15mg Lansoprazole and once a week 70mg Alendronic Acid. I started well, feeling great with the loss of my joint pain, but after
Suobe
in
PMRGCAuk
7 months ago
strontium
I’ve recently finished 2 year course of Teriparatide and have a hospital appointment shortly to decide next treatment. I have discussed possibility of Stontium with doctor. Does anyone have experience of taking this? Are some kinds of Strontium better than others and will I have a choice as to what
I’ve recently finished 2 year course of Teriparatide and have a hospital appointment shortly to decide next treatment. I have discussed possibility of Stontium with doctor. Does anyone have experience of taking this? Are some kinds of Strontium better than others and will I have a choice as to what
Snowybear
in
Bone Health and Osteoporosis UK
7 months ago
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