Pain relief advice

[November22]

Hi, I had a laprocospy in November 2022. Since then I have had a miscarriage and been really struggling with ongoing severe pain and swelling. Awaiting a further laprocospy but this could be 12-18 months before I get a date. I have been contemplating going privately or trying GnRh injections until I get a date. I can't have the contraceptive pill, ibuprofen or the coil. Has anyone got any advice on pain relief going forward until I can have this laprocospy again? Currently taking mefenamic acid. Thank you 🙂

[DarkStar85]

So sorry you've been left in pain. I would get on to the GP ASAP and tell them you need better pain medication. Tramadol is good if you can't take NSAIDs, that's what I'll be asking for at my next appointment. Really hope you get relief soon.

[November22 in reply to DarkStar85]

Thank you for your reply, was admitted into hospital on Wednesday, had an ultrasound and I have a blockage and fluid in my left fallopian tube and cyst on my right ovary which I found out I had in September 23 and that's when I was put on the surgery list so still approx a year left to wait. The hospital sent me home Thursday night with tramadol but only gave me 7 days worth as they are highly addictive 🥴 my endo nurse is lovely but don't feel like enough is been done for patients that genuinely need the help and support. Hope you get sorted too xx

[Hooplove00 in reply to DarkStar85]

I agree! Try and ask your GP for tramadol. I take it 2x daily since my op in May. Maybe they will be willing to prescribe and monitor you to make sure you’re taking it as prescribed.

[Hooplove00 in reply to DarkStar85]

do you take it daily? I have been, but have been feeling insecure about it. At the same time, I know my GP wouldn’t prescribe unless I needed it.

[November22 in reply to Hooplove00]

I have been taking it 4 times a day since Thursday which is what hospital prescribed me as they tried me on codiene for 2 days which weren't doing anything. I am on day 16 of been in agony, doctors at the hospital are saying it's JUST an endo flare and it will pass but doesn't feel like it at the moment 😭 xx

[Hooplove00 in reply to November22]

I hate that! Some pains can be daily as it’s chronic! Especially if you are in need of another surgery. I’m so sorry that you’re going through this . It’s so discouraging when the pain doesn’t subside from after the op. I had a few months of relief, but it has started to go backwards. I also have IC and chronic pelvic pain.

Was your original op by a specialist?

Hang in there

Xx

[November22 in reply to Hooplove00]

I had relief for all of 5 months but then had a miscarriage so symptoms have been far worse than before I even had my op in the November. No it wasn't done by a specialist because I had ultrasounds and MRI scans so they where adamant it wasn't endo and just before going into theatre the surgeon said to me I highly doubt it's endo your scans are clear. I woke up to them telling me I had it on my womb, both ovaries and fallopian tubes, pelvic wall and bowel, he said he tried to remove as much as he could. The team I'm under now are specialised with endometriosis so he's said it can't have been done to a high standard last time to be struggling like this already. I have really got to the point where I genuinely can't cope anymore. Work have been understanding but I feel guilty having to ring in sick so much and then having to locum dental nurses in it's a nightmare. Plus my children have missed out on so much it's just not fair is it 😢 xx

[Hooplove00 in reply to November22]

That is just so awful and my heart is heavy for you😢 I’m from the states. Are you a dental assistant? I think I remember someone saying that dental nurses are what we call assistants. If so, I am one too. That job is very hard on the body in general. I had to quit dental for a while because when I called out, the dentist would get angry because the schedule would go to shit. I actually called out last week (went back part-time after a year) and now they are worried that I’m “always going to be sick”. I say this because I know the feeling of anxiety and defeat that comes with having to call out. It’s mentally taxing, but it’s not our fault! And it most certainly not fair.I can’t imagine having kiddos and struggling with all of this . Not sure of their age, but at one point, they will see that it’s your body and not you. That you have done what you can and that you love them so much!! I really hope things get better for you and I’m here to talk whenever you need🫶🏾

[November22 in reply to Hooplove00]

Yes I'm assuming it's the same, basically we are the one that keeps the dentist sane and run around after them 24/7 🤣 yes it's an extremely hard job, I work with a dentist who does dental implants too so can be very stressful aswell as tiring. I work 30 hours so it's long enough. Yes they have made comments to me before about always being off which is not true I am in work more than I am off but when I am off it's always because I genuinely need to be, there has been plenty of times iv gone into work in agony. My youngest has really struggled with me being in and out of hospital especially when I had sepsis after the miscarriage because she thought I was going to die so everytime I go to doctors or hospital now she has a breakdown it's awful, we try not to tell her anything at all now but abit hard to hide when I don't come home for the night. Do you mind me asking how old you are and how old where you when you started struggling with endo? Thank you, same to you too xx

[Hooplove00 in reply to November22]

Oh jeez! I used to work in pediatrics and now am in endodontics. I thought it would be a lot more laid back, but I guess the doctor has already made comments about me being slow. One of the assistants keeps asking if I’m always going to call out. It’s frustrating because they don’t even know what it’s like, and how them thinking like that adds more weight on our shoulders. That has to be so scary for your youngest, my goodness! Poor thing! I’ve always struggled with bad periods and random flares where I’d throw up, since I was in middle school. It didn’t get super debilitating until I was about 18. By 19-20 I started getting really sick and had my first lap at 26. I am 29, now. How about you?

Xx

[November22 in reply to Hooplove00]

The doctor isn't very understanding by the sounds of it then 😢 I would love for them to be in our shoes for one day just to see how hard it is they would probably understand then. It's worse when they are men cause they really don't understand. Yes very scary, last thing she saw was me on the sofa not being able to speak and grey in the face and next thing being rushed to hospital and didn't see her for 5 days 😢 Aww really that's really young isn't it, must of been so hard for you in school.

I was 26 when I first started with symptoms after having my 2nd child, before then I'd never ever had issues. My auntie, nana and great grandma all have endo and we thought we'd all avoided it but unfortunately not. I'm 31 now and feel like an old woman xx

[Hooplove00 in reply to November22]

Right! Or when people try to compare their pain and say the just push through it. It makes us second guess ourselves and wonder if we’re being extra about our pain! We’re not. That’s so interesting as many doctors say having a child helps. I knew that it wasn’t the case, but hearing your story shows for sure that having kids isn’t a “cure”. I was adopted and don’t know much health things about my family. However, my mom and my sisters say that they don’t have it? So I don’t know how I suffer, but they don’t. I feel like an old women too and often get frustrated. I tell people I should be in an assisted living home 😭 I really don’t have much of a life. I’m single, and most people my age want to get out and do things. Past relationship failed and partners got tired of putting up with my medical stuff.

Xx

[November22 in reply to Hooplove00]

Some of the time I just push through it but that is not possible all the time. To be honest when I mean push through it I mean mentally 😢 I have had it from doctors in the past tell me 'its just a bad period' and that sentence has caused so many arguments and I have left the doctors practice.

While I was pregnant with the baby I lost in April my symptoms had gone and I was pain free but soon as I'd had the miscarriage my symptoms came flooding back with a vengeance. Like I said though before my 2 children I had nothing and I think that's why my consultant was so adamant I didn't have it. My nana and great grandma where the same though they had 2 children and started with it after them and my they both ending up having a hysterectomy My nana being as young as 31. My auntie on the other hand suffered like you are, she's managed to avoid a hysterectomy and struggled so much, she's started to go through the menopause now though so her symptoms are reducing ever so slightly. We will get there one day we just need to fight for it unfortunately. It's nice to talk to someone who understands. Thank you xx

[Hooplove00 in reply to November22]

I’m so sorry 😞 it’s such a friggin awful disease. Good for you for leaving those offices! I’m starting to realize how important it is to advocate for yourself , whether it’s in the workplace or even relationships (friendships). I want to give it a bit more time, but a hysterectomy has been on the back of my mind. I would be devastated because I haven’t had kids yet. Yes! Keep fighting!!! It’s exhausting and can be discouraging, but we have to keep going . It is very nice being able to talk to someone who understand and that I don’t have to keep repeating the ‘why’s’ and ‘what’s’. Sometimes I feel like people just get tired of hearing it. Thank you as well🫶🏾

[JOSANDY40]

Hi, From my own experience l found the Gnrh Inhibitor very good to give the body some rest, healing time. Having a miscarriage happens to so many people for many reasons.

[November22 in reply to JOSANDY40]

Thank you, it's on my list of things to consider going forward x

[E-ZEE]

Take herbal teas like macca and ginger.Use magnesium and vitamin D supplements.Also you can try hot water bottle and tense machine for pain

[November22 in reply to E-ZEE]

Hot water bottle is my best friend at the moment. I have been looking into a tens machine aswell called my oovie and have seen good reviews but don't know anyone that's ever used one so abit on the fence about them xx

[E-ZEE]

I used tens machine but it personally not for me,but everyone is different.I read the reviews ppl got lot of relief with it.I do not know about this medication .But pls consider meganisum n vitamin D supplements

[November22 in reply to E-ZEE]

My oovie is a discrete tense machine. I will have a look thank you xx