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Immune suppression caused by Urso
Hi all, I only recently learned that Urso has suppressive effects on the immune system. One research paper I read, and there are others, lists the effects - apologies for scientific jargon! Urso suppresses the production of immunoglobulins IgA, IgG and IgM (although IgM is generally chronically raised
Hi all, I only recently learned that Urso has suppressive effects on the immune system. One research paper I read, and there are others, lists the effects - apologies for scientific jargon! Urso suppresses the production of immunoglobulins IgA, IgG and IgM (although IgM is generally chronically raised
Skypony
in
PBC Foundation
5 months ago
Daridexorant / quvuviq and RLS
Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets and ….. I am sleeping normally!!!! It is a new drug to the UK but tried and tested in USA I believe? Apparently minimal side effects. I have
Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets and ….. I am sleeping normally!!!! It is a new drug to the UK but tried and tested in USA I believe? Apparently minimal side effects. I have
Lacey_
in
Restless Legs Syndrome
2 months ago
Please does anyone know a private Rheumatologist in Cornwall or Devon who I would be able to go and discuss my osteoporosis with? Thank you.
Please does anyone know a private Rheumatologist in Cornwall or Devon who I would be able to go and discus my osteoporosis with? Thank you. I have severe osteoporosis for 7+ years and despite being on alendronic acid 70mg once weekly for 7 years , my osteoporosis has worsened such that my advice a few
Please does anyone know a private Rheumatologist in Cornwall or Devon who I would be able to go and discus my osteoporosis with? Thank you. I have severe osteoporosis for 7+ years and despite being on alendronic acid 70mg once weekly for 7 years , my osteoporosis has worsened such that my advice a few
Kakally
in
PMRGCAuk
5 months ago
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I am now able to tolerate antibiotics again after my nerves healed
Hello! I just want to give this update about my situation. I hope people on here find this because my situation was a nightmare and I think this can help people who are confused and not sure what to do or if they'll ever be able to tolerate antibiotics again (TL;DR: you will be able to if you can heal
Hello! I just want to give this update about my situation. I hope people on here find this because my situation was a nightmare and I think this can help people who are confused and not sure what to do or if they'll ever be able to tolerate antibiotics again (TL;DR: you will be able to if you can heal
Whoa182
in
Pernicious Anaemia Society
5 months ago
Ibandronic Acid
With aggravated osteoporosis my partner has been offered the choice of monthly doses of Bonviva or a six monthly injection. Which would be most effective to mitigate the osteoporosis while remaining compatible with an AF/pacemaker regime that includes Amias, Sotalol, Furosemide, and Apixaban?.
With aggravated osteoporosis my partner has been offered the choice of monthly doses of Bonviva or a six monthly injection. Which would be most effective to mitigate the osteoporosis while remaining compatible with an AF/pacemaker regime that includes Amias, Sotalol, Furosemide, and Apixaban?.
rathlee
in
AF Association
5 months ago
marked facet arthropathy lower lumbar spine
I have also been diagnosed with spinal arthropathy anyone else got this this, I wander if zoledronic acid infusion will be any help with this.
I have also been diagnosed with spinal arthropathy anyone else got this this, I wander if zoledronic acid infusion will be any help with this.
Radars
in
Bone Health and Osteoporosis UK
5 months ago
Teriparatide - what to do next?
I’ve recently finished 2 years of Teriparatide injections. Endocrinologist wants me to take Alendronic acid tablets but I’m not keen. Teriparatide is the first treatment I’ve had and osteoporosis classed as severe. One fracture of L2 few years back. I wondered what protocol other people have tried after
I’ve recently finished 2 years of Teriparatide injections. Endocrinologist wants me to take Alendronic acid tablets but I’m not keen. Teriparatide is the first treatment I’ve had and osteoporosis classed as severe. One fracture of L2 few years back. I wondered what protocol other people have tried after
Snowybear
in
Bone Health and Osteoporosis UK
5 months ago
Osteoporosis - treatment or not ??
Hello all - I have learnt so much reading the daily posts, knowledgeable responses and exchange of experiences - if only the medical professionals were as expert? I was diagnosed with PMR December '22 and have reduced to 10mg Pred (from 20mg) this month. I am mid a lifestyle changing move to the Isle
Hello all - I have learnt so much reading the daily posts, knowledgeable responses and exchange of experiences - if only the medical professionals were as expert? I was diagnosed with PMR December '22 and have reduced to 10mg Pred (from 20mg) this month. I am mid a lifestyle changing move to the Isle
mullochs
in
PMRGCAuk
6 months ago
IV Zoledronic acid.
unfortunately time to move to Zoledronic acic fractures happening. Tried calcium and Vit D weight bearing exercises. Has anybody got any advice before I travel down the road of no return!!! thank you in advance.
unfortunately time to move to Zoledronic acic fractures happening. Tried calcium and Vit D weight bearing exercises. Has anybody got any advice before I travel down the road of no return!!! thank you in advance.
Lion321
in
Advanced Prostate Cancer
6 months ago
sleep aid
just sharing a link that is a new product helpful for sleep. It was recommended by a very well know integrative doctor in California. I am not recommending it for restless legs, but my sister and her husband say it helps with sleep. https://lifewave.com
just sharing a link that is a new product helpful for sleep. It was recommended by a very well know integrative doctor in California. I am not recommending it for restless legs, but my sister and her husband say it helps with sleep. https://lifewave.com
RCHD
in
Restless Legs Syndrome
3 months ago
Pain relief advice
Hi, I had a laprocospy in November 2022. Since then I have had a miscarriage and been really struggling with ongoing severe pain and swelling. Awaiting a further laprocospy but this could be 12-18 months before I get a date. I have been contemplating going privately or trying GnRh injections until I
Hi, I had a laprocospy in November 2022. Since then I have had a miscarriage and been really struggling with ongoing severe pain and swelling. Awaiting a further laprocospy but this could be 12-18 months before I get a date. I have been contemplating going privately or trying GnRh injections until I
November22
in
Endometriosis UK
6 months ago
Has anyone taken a non-medication route and seen an improvement in their osteoporosis through only supplements/diet/exercise?
Hello, I have osteoporosis and been advised to take medication - either HRT or Alendronate. However, I as an alternative wondered whether anyone who is not on medication has seen an improvement in their osteoporosis through only supplements/diet/exercise?
Hello, I have osteoporosis and been advised to take medication - either HRT or Alendronate. However, I as an alternative wondered whether anyone who is not on medication has seen an improvement in their osteoporosis through only supplements/diet/exercise?
Houseelf
in
Bone Health and Osteoporosis UK
6 months ago
Zoledronic Acid - rare side effects?
I had an infusion on 1 March 2023 in the UK....and immediately had awful muscle pain and stomach issues - including vomiting, nausea, feeling of grit rubbing my stomach wall, severe stomach distension and pain on eating, loss of appetite, change in taste, alternating constipation and diarrhoea. I am
I had an infusion on 1 March 2023 in the UK....and immediately had awful muscle pain and stomach issues - including vomiting, nausea, feeling of grit rubbing my stomach wall, severe stomach distension and pain on eating, loss of appetite, change in taste, alternating constipation and diarrhoea. I am
Green_girl
in
Bone Health and Osteoporosis UK
6 months ago
Is all the extra medication needed?
Hello everyone. I was diagnosed with PMR just over 2 years ago and have posted on this invaluable site a few times. After high doses of Pred at the beginning with a possible threat of GCA,, which did not occur, I have yo-yoed a bit with stresses in life. However I am currently on 7 and a half mg and
Hello everyone. I was diagnosed with PMR just over 2 years ago and have posted on this invaluable site a few times. After high doses of Pred at the beginning with a possible threat of GCA,, which did not occur, I have yo-yoed a bit with stresses in life. However I am currently on 7 and a half mg and
Stargiver
in
PMRGCAuk
6 months ago
Help needed
Hi I’ve recently been diagnosed with Osteoporosis. Started on Alendronic Acid 70mg and Calcium tablets. In a lot of pain and not coping very well with medication. I need some help and advice from people with this condition. My new dr is not great. Regular gp has retired and temporary doctor at the moment
Hi I’ve recently been diagnosed with Osteoporosis. Started on Alendronic Acid 70mg and Calcium tablets. In a lot of pain and not coping very well with medication. I need some help and advice from people with this condition. My new dr is not great. Regular gp has retired and temporary doctor at the moment
Tedsgran
in
Bone Health and Osteoporosis UK
6 months ago
Itching for answers.... thankyou!
(Me = 80/JAK2 /ET/Hydroxycarbamide for 13years) I am very grateful to everyone that has replied to my list of queries about itching/pruritis. I have been aware for some years that it is a subject that has been repeatedly raised but felt that there did not seem to be a firm definition of cause or solution
(Me = 80/JAK2 /ET/Hydroxycarbamide for 13years) I am very grateful to everyone that has replied to my list of queries about itching/pruritis. I have been aware for some years that it is a subject that has been repeatedly raised but felt that there did not seem to be a firm definition of cause or solution
quanglewangle
in
MPN Voice
6 months ago
Cortisol saliva test results
I’ve just had my third cortisol saliva test done and am interested to get advice from the experts on here eg the very knowledgeable humanbean! It basically tells the story of how I feel. Unable to get out of bed without a cup of tea. Able to do some light jobs/activities in the morning. Tired after
I’ve just had my third cortisol saliva test done and am interested to get advice from the experts on here eg the very knowledgeable humanbean! It basically tells the story of how I feel. Unable to get out of bed without a cup of tea. Able to do some light jobs/activities in the morning. Tired after
CornishChick
in
Thyroid UK
3 months ago
Is there a chat network for people with osteoporosis in England?
I have just been diagnosed with osteoporosis and my Dr prescribed Alendronic Acid 70 mg once a week, but after reading the side affects of taking it am unsure whether to take them. So far I have only broken my wrist bone about ten years ago when I had a fall, I have small aches and pains and have neuropathy
I have just been diagnosed with osteoporosis and my Dr prescribed Alendronic Acid 70 mg once a week, but after reading the side affects of taking it am unsure whether to take them. So far I have only broken my wrist bone about ten years ago when I had a fall, I have small aches and pains and have neuropathy
Mylovelys
in
Bone Health and Osteoporosis UK
6 months ago
alendronic acid
I have lichen planus in my mouth. Will alendronic acid make it worse
I have lichen planus in my mouth. Will alendronic acid make it worse
Ambiwalker
in
Bone Health and Osteoporosis UK
6 months ago
Alendronic acid tablets 😠
I’ve been taking these for a few months and understand that they have to be swallowed properly, and whilst upright, as they can cause problems in the oesophagus. Does anyone one else struggle with these blooming things, even with loads of water etc. Why oh why do they have to be the size of a horse
I’ve been taking these for a few months and understand that they have to be swallowed properly, and whilst upright, as they can cause problems in the oesophagus. Does anyone one else struggle with these blooming things, even with loads of water etc. Why oh why do they have to be the size of a horse
Cfmad298601
in
PMRGCAuk
6 months ago
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