Search
Search
About
Log in
Join
Experiences with
Axid
Posts
Communities
2,815 public posts
Filter results
GCA relapse saga
Having been diagnosed with GCA in April 2021 I have followed the recommended reduction in prednisolone from 60mg to 4mg when I noticed the return of head and jaw pain. I contacted my GP who said if I thought it was a return of GCA I should contact urgent care. I called 111 who advised me to go to my
Having been diagnosed with GCA in April 2021 I have followed the recommended reduction in prednisolone from 60mg to 4mg when I noticed the return of head and jaw pain. I contacted my GP who said if I thought it was a return of GCA I should contact urgent care. I called 111 who advised me to go to my
Avon14
in
PMRGCAuk
2 years ago
Excessive sweating
With Parkinson’s, it’s common for the skin on your face to become very oily, especially on your forehead and on the sides of your nose (this is known as seborrhea). You may also notice that your eyebrows and scalp get oily too, resulting in flaky skin (dandruff). It’s also fairly common to experience
With Parkinson’s, it’s common for the skin on your face to become very oily, especially on your forehead and on the sides of your nose (this is known as seborrhea). You may also notice that your eyebrows and scalp get oily too, resulting in flaky skin (dandruff). It’s also fairly common to experience
Farooqji
in
Cure Parkinson's
2 years ago
Oily, flaky, or inflamed skin
With Parkinson’s, it’s common for the skin on your face to become very oily, especially on your forehead and on the sides of your nose (this is known as seborrhea). You may also notice that your eyebrows and scalp get oily too, resulting in flaky skin (dandruff). It’s also fairly common to experience
With Parkinson’s, it’s common for the skin on your face to become very oily, especially on your forehead and on the sides of your nose (this is known as seborrhea). You may also notice that your eyebrows and scalp get oily too, resulting in flaky skin (dandruff). It’s also fairly common to experience
Farooqji
in
Cure Parkinson's
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Low MPV
Hello to all, I have been diagnosted with PBC in 2019. I am a good responder to ursodiol. I have to take vitamine D supplements and B12 also. In the past year my MPV is getting lower and lower and I am wondering if this should be à worry ? I am currently at 7,8. Thanks for your comments, Ancolie
Hello to all, I have been diagnosted with PBC in 2019. I am a good responder to ursodiol. I have to take vitamine D supplements and B12 also. In the past year my MPV is getting lower and lower and I am wondering if this should be à worry ? I am currently at 7,8. Thanks for your comments, Ancolie
Ancolie
in
PBC Foundation
2 years ago
Alternatives to Alendronic Acid
I am new here and have recently been diagnosed with osteoporosis and was offered 'Alendronic Acid' but felt it was not right for me. My nutritionist recommended taking 'Bonebalance' which improves bone mineral density and I just wondered if anyone else had tried it and if it works? I would be grateful
I am new here and have recently been diagnosed with osteoporosis and was offered 'Alendronic Acid' but felt it was not right for me. My nutritionist recommended taking 'Bonebalance' which improves bone mineral density and I just wondered if anyone else had tried it and if it works? I would be grateful
laraline
in
Bone Health and Osteoporosis UK
2 years ago
Osteoporosis symptoms with zytiga and prednisone
Been on zytiga 500gm with 5gm prednisone daily for past 15 months together with 3monthly Hormone injections PSA reduced to 0.01 > for a year with monthly blood tests this being the situation I have not seen oncologist for a year just appointment call every 3 months from a pharmacist connected with
Been on zytiga 500gm with 5gm prednisone daily for past 15 months together with 3monthly Hormone injections PSA reduced to 0.01 > for a year with monthly blood tests this being the situation I have not seen oncologist for a year just appointment call every 3 months from a pharmacist connected with
Chrisbaird
in
Advanced Prostate Cancer
2 years ago
Just Diagnosed Osteoporosis - Saying Hello
Just established my profile and want to say hello to all. I will be reading through posts to learn more of what each of you have experienced. I am most interested in managing this condition without meds due to the side effects with the jaw. Update 6/26/2022 full story: I was told by prior Gyno’s stand
Just established my profile and want to say hello to all. I will be reading through posts to learn more of what each of you have experienced. I am most interested in managing this condition without meds due to the side effects with the jaw. Update 6/26/2022 full story: I was told by prior Gyno’s stand
Hidden
in
Osteoporosis Support
2 years ago
Kidney problems
I have recently started Anastrazole and Adcal and Alendronic Acid tablets for bone density. My cancer is progressing and I don't believe the Anastraxole is having any positive effect. I also have a morphine patch for pain relief. In the last week I find that I am not urinating as frequently as usual
I have recently started Anastrazole and Adcal and Alendronic Acid tablets for bone density. My cancer is progressing and I don't believe the Anastraxole is having any positive effect. I also have a morphine patch for pain relief. In the last week I find that I am not urinating as frequently as usual
27-359
in
My Ovacome
2 years ago
Worried about Osteoporosis diagnosis and weather to take Alendronic Acid
Hello, I’ve just been diagnosed with Osteoporosis in my spine. I have no figures of the Dexa scan. My GP spoke to me on the phone. Feel upset and cross about it. Should I find out more before going on the medication?
Hello, I’ve just been diagnosed with Osteoporosis in my spine. I have no figures of the Dexa scan. My GP spoke to me on the phone. Feel upset and cross about it. Should I find out more before going on the medication?
DeeDree
in
Bone Health and Osteoporosis UK
2 years ago
What does this mean?!
Hi there - my last scan (2020) showed I have osteoporosis in my L1,2,3 &4. The Tscore was -2.5, meaning a -3.5%change since the 2015 scan (at which point I just had osteopenia in my spine). I also have a 6.5% chance of a “major of a major fracture”. My calcium levels were deemed to be fine but Alendronate
Hi there - my last scan (2020) showed I have osteoporosis in my L1,2,3 &4. The Tscore was -2.5, meaning a -3.5%change since the 2015 scan (at which point I just had osteopenia in my spine). I also have a 6.5% chance of a “major of a major fracture”. My calcium levels were deemed to be fine but Alendronate
Scandi123
in
Bone Health and Osteoporosis UK
2 years ago
I have osteoporosis and have incurred several spinal fractures
I am now being asked to take alendronic acid and I’m a little scared. This seems to have so many severe side effects. Does anyone have any advice on this?
I am now being asked to take alendronic acid and I’m a little scared. This seems to have so many severe side effects. Does anyone have any advice on this?
Errp82
in
Bone Health and Osteoporosis UK
2 years ago
Biliary Atresia
My daughter had a Kasai procedure a little over a month ago. We noticed today her stool went from bright yellow to pale cream. No temperature, normal appetite and very active. GGT levels fluctuate from 252 to 180 to 352. Could GGT be a factor? Anybody else have experienced a similar case? Did you require
My daughter had a Kasai procedure a little over a month ago. We noticed today her stool went from bright yellow to pale cream. No temperature, normal appetite and very active. GGT levels fluctuate from 252 to 180 to 352. Could GGT be a factor? Anybody else have experienced a similar case? Did you require
Gotita0505
in
Children's Liver Disease Foundation
2 years ago
Hashimoto's, levothyroxine intolerance. Help please anyone?
I was diagnosed with Hashimoto's in February 2021, following a routine blood test, and put on 25mcg levothyroxine and was fine. In June 2021 my dose was increased to 50mcg. Again, I thought I was fine, although in hindsight, I think I may have been having side effects, but due to working etc missed
I was diagnosed with Hashimoto's in February 2021, following a routine blood test, and put on 25mcg levothyroxine and was fine. In June 2021 my dose was increased to 50mcg. Again, I thought I was fine, although in hindsight, I think I may have been having side effects, but due to working etc missed
DandyButch
in
Thyroid UK
2 years ago
Pain and stiffness - menopause or something else?
Hi. I was put on pred, mycophenolate and alendronic acid for 2 years in 2008 after several strokes and many tests which concluded in a diagnosis of primary (cerebral) vasculitis. I recovered exceptionally well and still take blood thinners now. In 2020 I developed numerous menopause symptoms including
Hi. I was put on pred, mycophenolate and alendronic acid for 2 years in 2008 after several strokes and many tests which concluded in a diagnosis of primary (cerebral) vasculitis. I recovered exceptionally well and still take blood thinners now. In 2020 I developed numerous menopause symptoms including
U06334
in
PMRGCAuk
2 years ago
Besremi Adverse Effect??
I have experienced what may be arthralgia as a Besremi adverse effect. here is the exchange with the MPN Specialist on this topic.
ME
Just a head up. I increased the dose of Besremi to 150mcg on 05/25. Prior, I had experienced some unexplained pain in the right achilles tendon that I thought
I have experienced what may be arthralgia as a Besremi adverse effect. here is the exchange with the MPN Specialist on this topic.
ME
Just a head up. I increased the dose of Besremi to 150mcg on 05/25. Prior, I had experienced some unexplained pain in the right achilles tendon that I thought
hunter5582
in
MPN Voice
2 years ago
Advice needed
Hi I am new to the group. I have seen a consultant who suspects temporal arteritis. I have taken my weekly alendronic acid tablet this teatime by mistake. Will this have any adverse effects?
Hi I am new to the group. I have seen a consultant who suspects temporal arteritis. I have taken my weekly alendronic acid tablet this teatime by mistake. Will this have any adverse effects?
Hidden
in
PMRGCAuk
2 years ago
Advice please
Hi, I have seen a consultant, and am taking Alendronic Acid tablets once a week., as she suspects have temporal arteritis. I have mistakenly taken my tablet at teatime? Will I have any adverse effects?
Hi, I have seen a consultant, and am taking Alendronic Acid tablets once a week., as she suspects have temporal arteritis. I have mistakenly taken my tablet at teatime? Will I have any adverse effects?
Hidden
in
PMRGCAuk
2 years ago
Recommendations regarding meds and exercise with osteoporosis.
Hi Everyone! A few questions I would like to comment on….It was suggested to me by a physical therapist who specific osteoporosis about a book written by Jen Guenther, an OBGYN in Canada, to read one of her books, The Menopause Manifesto, which debunks many of the myths regarding medications, exercise
Hi Everyone! A few questions I would like to comment on….It was suggested to me by a physical therapist who specific osteoporosis about a book written by Jen Guenther, an OBGYN in Canada, to read one of her books, The Menopause Manifesto, which debunks many of the myths regarding medications, exercise
KatVin
in
Osteoporosis Support
2 years ago
Dexa scan results worse than last scan
Hello, I suppose I am hoping to get reassurance in some way but feel devastated by my third Dexa bone scan results after two years. My total spine is T -3.2 and T hip -1.4. My previous scan results were Total Spine T -2..6 and T Hip -1.4. I am awaiting a copy of the actual scan report. Following my
Hello, I suppose I am hoping to get reassurance in some way but feel devastated by my third Dexa bone scan results after two years. My total spine is T -3.2 and T hip -1.4. My previous scan results were Total Spine T -2..6 and T Hip -1.4. I am awaiting a copy of the actual scan report. Following my
stillmovin
in
Bone Health and Osteoporosis UK
2 years ago
laparoscopy NHS waiting time
Hi, I had my appointment with a specialist last week, and it went better than I expected. She went through everything with me, all my symptoms and everything I've tried to do to relieve the pain. She said as the meds given to me for PCOS were ineffective, she thinks its endo and has booked me in for
Hi, I had my appointment with a specialist last week, and it went better than I expected. She went through everything with me, all my symptoms and everything I've tried to do to relieve the pain. She said as the meds given to me for PCOS were ineffective, she thinks its endo and has booked me in for
Iszabella
in
Endometriosis UK
2 years ago
1
...
27
28
29
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
PMRGCAuk
567 results
Endometriosis UK
480 results
Bone Health and Osteoporosis UK
262 results
View top 10 communities
Sort by
Most Relevant
Newest