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travel
I’m travelling to Tenerife on the 12th March for a holiday. This is the first time fling since bronchiectasis diagnosis in 2020 I have a large amount of meds to take and want to take them in hand luggage on the risk of my suitcase going missing The meds include Colomycin bd with saline to dilute and
I’m travelling to Tenerife on the 12th March for a holiday. This is the first time fling since bronchiectasis diagnosis in 2020 I have a large amount of meds to take and want to take them in hand luggage on the risk of my suitcase going missing The meds include Colomycin bd with saline to dilute and
BEaChbe4cH
in
Lung Conditions Community Forum
1 year ago
I have begun Doxycycline rescue pack. Is it ok to continue with Azithromycin?
I have begun the rescue pack. Should I continue taking my three times a week Azithromycin? Or not take it whilst taking the Doxycycline? Advice please, especially from those with experience of taking Azithromycin etc. BIG thank you for all who replied to my previous question concerning the saline
I have begun the rescue pack. Should I continue taking my three times a week Azithromycin? Or not take it whilst taking the Doxycycline? Advice please, especially from those with experience of taking Azithromycin etc. BIG thank you for all who replied to my previous question concerning the saline
Frustrated12
in
Lung Conditions Community Forum
1 year ago
High AST/SGOT
My husband has been very nauseous and struggling to eat or drink. We are currently at his oncologist’s office where my husband is getting saline because he is so dehydrated. They ran blood tests and is AST/SGOT is 64. A few weeks ago it was 34. Would this mean the cancer is now possibly in his liver
My husband has been very nauseous and struggling to eat or drink. We are currently at his oncologist’s office where my husband is getting saline because he is so dehydrated. They ran blood tests and is AST/SGOT is 64. A few weeks ago it was 34. Would this mean the cancer is now possibly in his liver
Wyldhare22
in
Advanced Prostate Cancer
1 year ago
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Advice, if possible please, on Sodium Chloride 0.9% nebuliser Liquid.
Hello again. I feel such an idiot. With the cold weather, I have been nebulising with Sodium Chloride 0.9% Nebuliser liquid 2.5ml unit doses. They are in box stating Saline Steri-Neb. Sterile until opened.I had several boxes over from last year. I feel such an idiot. It never occurred to me to check
Hello again. I feel such an idiot. With the cold weather, I have been nebulising with Sodium Chloride 0.9% Nebuliser liquid 2.5ml unit doses. They are in box stating Saline Steri-Neb. Sterile until opened.I had several boxes over from last year. I feel such an idiot. It never occurred to me to check
Frustrated12
in
Lung Conditions Community Forum
1 year ago
What next?
You know it's bad if a doctor comes to find you on a ward. Hubby's kidneys now working at about 15%, liver in bad way, hospital have started regular albumin and saline as he's badly dehydrated. They're telling him he shouldn't come home as treatment can only be given IV in hospital, will monitor things
You know it's bad if a doctor comes to find you on a ward. Hubby's kidneys now working at about 15%, liver in bad way, hospital have started regular albumin and saline as he's badly dehydrated. They're telling him he shouldn't come home as treatment can only be given IV in hospital, will monitor things
MrsWorried
in
British Liver Trust
1 year ago
Switching nebulisers
Which nebulisers do you all have? I’ve had Pari Velox (handheld vibrating mesh) and Pari Mini (portable jet) for a while but I’ve been having issues with my Velox which appear to be not uncommon and may mean I have to give that one up. But I can’t use my Mini when I’m at sea because it’s too noisy to
Which nebulisers do you all have? I’ve had Pari Velox (handheld vibrating mesh) and Pari Mini (portable jet) for a while but I’ve been having issues with my Velox which appear to be not uncommon and may mean I have to give that one up. But I can’t use my Mini when I’m at sea because it’s too noisy to
saltyskies
in
Lung Conditions Community Forum
1 year ago
ocaliva
I was prescribed it for a short time and my consultant had to seek permission as cost about £10,000 for a year’s supply in the UK. It didn’t work so tried betafibrates and they did - a fraction of the cost!
I was prescribed it for a short time and my consultant had to seek permission as cost about £10,000 for a year’s supply in the UK. It didn’t work so tried betafibrates and they did - a fraction of the cost!
Gioielli5
in
PBC Foundation
1 year ago
The joy of the unclear diagnosis 😂
This is a verrrry long post!! If anyone actually reads to the end you have my full respect I’m a returning member to the forum. I used to be active when I was being treated for severe asthma. I used to routinely end up in hospital for basic chest infections, and struggled with chest aching and tightness
This is a verrrry long post!! If anyone actually reads to the end you have my full respect I’m a returning member to the forum. I used to be active when I was being treated for severe asthma. I used to routinely end up in hospital for basic chest infections, and struggled with chest aching and tightness
saltyskies
in
Lung Conditions Community Forum
1 year ago
Cost of Ocaliva
Anyone knows what is the real cost of Ocaliva? I looked at GoodRX, in the US, and it is $9000 for 30 pills (5mg). Wow. Thanks.
Anyone knows what is the real cost of Ocaliva? I looked at GoodRX, in the US, and it is $9000 for 30 pills (5mg). Wow. Thanks.
iagra
in
PBC Foundation
1 year ago
Cost of Ocaliva
Anyone knows what's the cost of Ocaliva in the US? I heard that it is extremely expensive. Thank you.
Anyone knows what's the cost of Ocaliva in the US? I heard that it is extremely expensive. Thank you.
iagra
in
PBCers Organization
1 year ago
PBC and also suffering with Pancreatitis
I was recently diagnosed with PBC (November 2022) and also have stage 2 liver fibrosis. The dr had prescribed Ursodiol and I had a bad reaction and can no longer take it. Since then, I have been prescribed Ocaliva(Obetecholic acid), has anyone had great results with Ocaliva? Also, I have been suffering
I was recently diagnosed with PBC (November 2022) and also have stage 2 liver fibrosis. The dr had prescribed Ursodiol and I had a bad reaction and can no longer take it. Since then, I have been prescribed Ocaliva(Obetecholic acid), has anyone had great results with Ocaliva? Also, I have been suffering
Michcook54
in
PBC Foundation
2 years ago
update
still not feeling good nurses are now starting me on saline as I'm having problems getting up the phlegm. My worry is that i work full time & cant be taking weeks of which i know i will probably need. Im due back to work on Thursday & no where near well enough. The wheeziness & crackles are keeping me
still not feeling good nurses are now starting me on saline as I'm having problems getting up the phlegm. My worry is that i work full time & cant be taking weeks of which i know i will probably need. Im due back to work on Thursday & no where near well enough. The wheeziness & crackles are keeping me
Julie14
in
Lung Conditions Community Forum
2 years ago
best products
Finally, pharmacy gave me xerostom gel(
artificial
saliva
) the product has helped.but it's in a tube that rub on with your finger , which is OK for home but not so easy when I need to use it when I'm out. Anyone used a spray? thank you in advance
Finally, pharmacy gave me xerostom gel(
artificial
saliva
) the product has helped.but it's in a tube that rub on with your finger , which is OK for home but not so easy when I need to use it when I'm out. Anyone used a spray? thank you in advance
BonnyB
in
LUPUS UK
2 years ago
PHLEGM
the last week i have so much phlegm its causing breathing problems, i take 4 carbosistine a day but they have never seemed to help, i take 2/3 salbutomol nebuliser per day, i did try saline nebulizer but it seemed to make me more breathless,i have done the huff cough ing with a little success,is there
the last week i have so much phlegm its causing breathing problems, i take 4 carbosistine a day but they have never seemed to help, i take 2/3 salbutomol nebuliser per day, i did try saline nebulizer but it seemed to make me more breathless,i have done the huff cough ing with a little success,is there
whit
in
Lung Conditions Community Forum
2 years ago
Anyone have experience with a Rituxan IV Infiltration?
Hello Everyone, Question: What are effects of Rituxan IV infiltration? Infiltration: IV medication leaks out of vein into the surrounding tissue. This infiltration was for more than 1.5 hour of a 7 hour infusion. December - Rituxan infusion - IV required 8, yes 8, attempts to start the IV. This
Hello Everyone, Question: What are effects of Rituxan IV infiltration? Infiltration: IV medication leaks out of vein into the surrounding tissue. This infiltration was for more than 1.5 hour of a 7 hour infusion. December - Rituxan infusion - IV required 8, yes 8, attempts to start the IV. This
irishponies
in
Vasculitis UK
2 years ago
Confusion
One of the things most interesting about using this site is the variety of different experiences people have with the same problem, in my case bronchiectasis. I have been diagnosed for 12 years and see my consultant regularly. She is a bit unforthcoming and big on science. In that time I have had one
One of the things most interesting about using this site is the variety of different experiences people have with the same problem, in my case bronchiectasis. I have been diagnosed for 12 years and see my consultant regularly. She is a bit unforthcoming and big on science. In that time I have had one
Shonkie
in
Lung Conditions Community Forum
2 years ago
New drug for treating hot flashes under FDA review
This article appeared in Natl Geographic's online daily. Because it is behind a paywall, I have copied it below. While the drug is primarily intended for menopausal women, the article notes that future beneficiaries could include men taking drugs for prostate cancer. Is it possible to cure hot
This article appeared in Natl Geographic's online daily. Because it is behind a paywall, I have copied it below. While the drug is primarily intended for menopausal women, the article notes that future beneficiaries could include men taking drugs for prostate cancer. Is it possible to cure hot
garyjp9
in
Advanced Prostate Cancer
2 years ago
Progression
Have others experienced sudden worsening of symptoms without an apparent cause? My husband's decline has been slow but this morning all symptoms were much worse (blood pressure over 200 even when he was sitting up in bed, difficulty walking to the toilet, couldn't get urine to flow, shaky, confused
Have others experienced sudden worsening of symptoms without an apparent cause? My husband's decline has been slow but this morning all symptoms were much worse (blood pressure over 200 even when he was sitting up in bed, difficulty walking to the toilet, couldn't get urine to flow, shaky, confused
Ruffner
in
Multiple System Atrophy Trust
2 years ago
PEG pain
All My Sue has had a PEG for near 5 years and it has been a life saver I am sure as I've maintained good food intake and therefore better health. She does get infections around the site and antibiotics and a saline wash cure this. However recently after an infection she started to complain about pain
All My Sue has had a PEG for near 5 years and it has been a life saver I am sure as I've maintained good food intake and therefore better health. She does get infections around the site and antibiotics and a saline wash cure this. However recently after an infection she started to complain about pain
Paul_and_Sue_Wood
in
Multiple System Atrophy Trust
2 years ago
Lowering eGFR and creatine
My husband was recently diagnosed with stage 2 CKD with creatine around 2.1 and eGFR around 42. Between the time his bloodwork showed that and when he saw the nephrologist for the first time, he went in for a heart catherization. The cardiologist discovered two major blockages and was able to put in
My husband was recently diagnosed with stage 2 CKD with creatine around 2.1 and eGFR around 42. Between the time his bloodwork showed that and when he saw the nephrologist for the first time, he went in for a heart catherization. The cardiologist discovered two major blockages and was able to put in
TopazForests
in
Kidney Disease
2 years ago
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