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Ocaliva
Hi all, I’ve been taking Urso for years and my doctor has decided it’s time to add Ocaliva. Does anyone currently take Ocaliva in addition to Urso? Has it helped?
Hi all, I’ve been taking Urso for years and my doctor has decided it’s time to add Ocaliva. Does anyone currently take Ocaliva in addition to Urso? Has it helped?
LKLee
in
British Liver Trust
2 years ago
Where to buy B12
Hi guys You've been very helpful, compassionate and very kind to me in the past - so I just want to begin with saying a very big THANK YOU to you all for that 🙏❤️ My question is, I live in Australia (I'm in Brisbane atm though) and previously I purchased methylcobalamin powder to mix with saline (purchased
Hi guys You've been very helpful, compassionate and very kind to me in the past - so I just want to begin with saying a very big THANK YOU to you all for that 🙏❤️ My question is, I live in Australia (I'm in Brisbane atm though) and previously I purchased methylcobalamin powder to mix with saline (purchased
LouBee73
in
Pernicious Anaemia Society
2 years ago
bronchiectasis and mucous!
fellow Broncs - how many of you suffer from excess nasal/sinus mucous alongside the stuff clogging up the lungs ? I have been on steroid nasal sprays for years due to allergic rhinitis but since the diagnosis of bronch in May 2021( after 40 yrs of asthma) my post nasal clogging and sinus headaches are
fellow Broncs - how many of you suffer from excess nasal/sinus mucous alongside the stuff clogging up the lungs ? I have been on steroid nasal sprays for years due to allergic rhinitis but since the diagnosis of bronch in May 2021( after 40 yrs of asthma) my post nasal clogging and sinus headaches are
Hidden
in
Lung Conditions Community Forum
2 years ago
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Questions about Methyl mega dose v's daily cyano
Hello all you smart wonderful people, I can't tell you what a relief it is to have this place to come. One can feel very alone in this. So, jade_s thought I should start a thread. Some of you may remember, I accidentally took 27 days of methyl in 5 days. I did not feel too great for about 10 days.
Hello all you smart wonderful people, I can't tell you what a relief it is to have this place to come. One can feel very alone in this. So, jade_s thought I should start a thread. Some of you may remember, I accidentally took 27 days of methyl in 5 days. I did not feel too great for about 10 days.
EllaNore
in
Pernicious Anaemia Society
2 years ago
COLISTIN NOW FOR 11 DAYS AND STILL HAVE PSEUDOMONAS
I am nebulizing it twice a day after using saline and levbuteral but still have the Psedomonas non mucoid and mucoid. Wed I am getting a PORT, as I had so many issues with the Pic. Any suggestions as to why I still have the infection and when will the Colistin work or won't it?
I am nebulizing it twice a day after using saline and levbuteral but still have the Psedomonas non mucoid and mucoid. Wed I am getting a PORT, as I had so many issues with the Pic. Any suggestions as to why I still have the infection and when will the Colistin work or won't it?
Lapis5
in
Bronchiectasis Support
2 years ago
Ordered my nebuliser today😊
Recommended by GP to get a nebuliser so I can do saline nebs to help my lung clearance. To avoid the inevitable long waiting list to be dealt with by NHS for this, I took advice and have today ordered a Pari boy classic machine for myself, which will arrive ( postal strikes permitting) on Monday.
Recommended by GP to get a nebuliser so I can do saline nebs to help my lung clearance. To avoid the inevitable long waiting list to be dealt with by NHS for this, I took advice and have today ordered a Pari boy classic machine for myself, which will arrive ( postal strikes permitting) on Monday.
Hidden
in
Lung Conditions Community Forum
2 years ago
Little blue pills and linctus
The helpful palliative care consultant at Harefield has prescribed for me Oxycodone tablets and codeine linctus. These are to try and manage the worst of my symptoms, coughing and breathlessness. So far they are helping. Though I'm having to go to bed early I've been very busy. Last week I had yoga
The helpful palliative care consultant at Harefield has prescribed for me Oxycodone tablets and codeine linctus. These are to try and manage the worst of my symptoms, coughing and breathlessness. So far they are helping. Though I'm having to go to bed early I've been very busy. Last week I had yoga
Karenanne61
in
Lung Conditions Community Forum
2 years ago
Shaky, confused, clumsy generally feeling bad
Good morning everyone, I'm sure you guys can help me. You always do. I SI cyano daily. And I have been feeling better each week with little set backs for 5 months now. Nothing too bad. But my cyano B12 was lost in the mail, so I had to mixed up a vile of powdered Methyl, that I bought from the UK when
Good morning everyone, I'm sure you guys can help me. You always do. I SI cyano daily. And I have been feeling better each week with little set backs for 5 months now. Nothing too bad. But my cyano B12 was lost in the mail, so I had to mixed up a vile of powdered Methyl, that I bought from the UK when
EllaNore
in
Pernicious Anaemia Society
2 years ago
DOES ANYONE ELSE SHOWER TO CLEAR THEIR LUNGS AFTER USING SALINE AND VEST?
That is all i have found that works for me. Any advice appreciated as it is a lot of work w a Pikk line iv in my arm. I live alone. Thank you.
That is all i have found that works for me. Any advice appreciated as it is a lot of work w a Pikk line iv in my arm. I live alone. Thank you.
Lapis5
in
Lung Conditions Community Forum
2 years ago
Saline nebs
I was given saline nebs for the first time by consultant. i forgot to ask how and when to use them alongside salbutomol nebuliser, could any of you kind folks enlighten me? thanks now for any and all answers
I was given saline nebs for the first time by consultant. i forgot to ask how and when to use them alongside salbutomol nebuliser, could any of you kind folks enlighten me? thanks now for any and all answers
whit
in
Lung Conditions Community Forum
2 years ago
Pik line antibiotics for Pseudomonas
This is my 4th Pik. line in less than 10 mos. Three weeks this time w fanny pack and medicine ball pumping continuously for 22 hrs a day. Still non stop mucas 24/7. though had. medicine so far 5 days. Is this normal? My life is reduced to trying to wrap and rewrap my arm to take a shower w out getting
This is my 4th Pik. line in less than 10 mos. Three weeks this time w fanny pack and medicine ball pumping continuously for 22 hrs a day. Still non stop mucas 24/7. though had. medicine so far 5 days. Is this normal? My life is reduced to trying to wrap and rewrap my arm to take a shower w out getting
Lapis5
in
Bronchiectasis Support
2 years ago
nebuliser
I want to buy a nebuliser for home not to use with medication. Is it ok to just use saline and if so what saline do you recommend. Also what nebuliser would you recommend
I want to buy a nebuliser for home not to use with medication. Is it ok to just use saline and if so what saline do you recommend. Also what nebuliser would you recommend
Bennela
in
COPD Friends
2 years ago
Bezafibrate and weight gain
I was switched to Bezafibrate when I couldn’t tolerate Urso or Ocaliva. It’s absolutely fine. However I seem to be gaining weight. Has anyone else had this?
I was switched to Bezafibrate when I couldn’t tolerate Urso or Ocaliva. It’s absolutely fine. However I seem to be gaining weight. Has anyone else had this?
SuziS
in
PBC Foundation
2 years ago
Now a possible fungal infection
week 6 of covid and day 8 of hospital I have pnemonia and have been pumped full of the best antibiotics - The blood test arent showing a bacterial infection so they think it may be fungal They are going to do a Bronchial flush where they wash the lung with saline and then remove the water and
week 6 of covid and day 8 of hospital I have pnemonia and have been pumped full of the best antibiotics - The blood test arent showing a bacterial infection so they think it may be fungal They are going to do a Bronchial flush where they wash the lung with saline and then remove the water and
Brucex100
in
CLL Support
2 years ago
Guess it’s back!
Wanted to share my experience of my AF returning after 3 years. Was sitting at home after walking 24.000 steps the previous day when I started to feel hot, sweating and then suddenly throwing up and not feeling at all well. That’s when I realised my AF had returned with a heartbeat of over 160. I immediately
Wanted to share my experience of my AF returning after 3 years. Was sitting at home after walking 24.000 steps the previous day when I started to feel hot, sweating and then suddenly throwing up and not feeling at all well. That’s when I realised my AF had returned with a heartbeat of over 160. I immediately
Trotters70
in
AF Association
2 years ago
Tobramycin and Pseudomonas
Has anyone used this for Pseudomonas, nebulized and how did u do it? Did you nebulize saline first, then clear lungs and then nebulize Toby and did it cure you? Pls get back to me asap as my Dr. wants me to start this asap and i am already so tired from being sick w Pseudomonas for months and just
Has anyone used this for Pseudomonas, nebulized and how did u do it? Did you nebulize saline first, then clear lungs and then nebulize Toby and did it cure you? Pls get back to me asap as my Dr. wants me to start this asap and i am already so tired from being sick w Pseudomonas for months and just
Lapis5
in
Bronchiectasis Support
2 years ago
I need answers - but what questions should I ask
If you've read my previous post you'll have seen I've had a wild couple of months with a failed fet and surprise natural chemical. So after 6 years of zero implantation, 2 failed cycles with 3 embryos (2x3 day and 1x5 day blast) and now a chemical - it can't just be bad luck surely? I realise I'm
If you've read my previous post you'll have seen I've had a wild couple of months with a failed fet and surprise natural chemical. So after 6 years of zero implantation, 2 failed cycles with 3 embryos (2x3 day and 1x5 day blast) and now a chemical - it can't just be bad luck surely? I realise I'm
Joeysjourney
in
Fertility Network UK
2 years ago
AMD Injection Procedure
This is based on a response I gave to a regular poster that I think may be of more general interest, especially to those who have not yet had an injection or who are experiencing post injection discomfort. Note that the following applies to wet AMD only. I’ve been having injections for wet AMD for
This is based on a response I gave to a regular poster that I think may be of more general interest, especially to those who have not yet had an injection or who are experiencing post injection discomfort. Note that the following applies to wet AMD only. I’ve been having injections for wet AMD for
Engineer46
in
Macular Society
2 years ago
infection after 13 days of circumcision surgery
Its been 13 days since i had curcumcision, image shows how my penis looks after circumcision. I didn't wash it for 12 days. Last 2 days i have washed it with saline. It seems like frenulum part has developed some infection. PLEASE tell whether its infection, and what should i do further . My doctor
Its been 13 days since i had curcumcision, image shows how my penis looks after circumcision. I didn't wash it for 12 days. Last 2 days i have washed it with saline. It seems like frenulum part has developed some infection. PLEASE tell whether its infection, and what should i do further . My doctor
Pdd8
in
Men's Health Forum (Penis Health)
2 years ago
How are you sleeping?
Literally… how on earth are you sleeping, because I can’t sleep. I have PBC/PSC overlap and am in early cirrhosis. I take Urso, Ocaliva, Prednisone, Salagen and thyroid meds by prescription. I was taking Benadryl a couple days and it was perfect, out like a light. I read Benadryl may not be safe for
Literally… how on earth are you sleeping, because I can’t sleep. I have PBC/PSC overlap and am in early cirrhosis. I take Urso, Ocaliva, Prednisone, Salagen and thyroid meds by prescription. I was taking Benadryl a couple days and it was perfect, out like a light. I read Benadryl may not be safe for
IAmTheGlue
in
PBC Foundation
2 years ago
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