Search
Search
About
Log in
Join
Experiences with
Artificial saliva
Posts
Communities
859 public posts
Filter results
is my pain Endo + did it cause my miscarriages?
finally a community that I can ask! Please help as I’ve seen so many docs and none can give me an answer. I’ve had 3 miscarriages in 12 months. From ovulation from the 1st pregnancy and ever since I now have lower abdominal pain - maybe 3 out of 4 weeks of the month. I never had this pain before
finally a community that I can ask! Please help as I’ve seen so many docs and none can give me an answer. I’ve had 3 miscarriages in 12 months. From ovulation from the 1st pregnancy and ever since I now have lower abdominal pain - maybe 3 out of 4 weeks of the month. I never had this pain before
Maybeendo
in
Endometriosis UK
5 months ago
Ocaliva
Hi everybody, I’ve just been told that I should now start ocaliva aswell as urso I’m so worried about side effects after reading up on it, wondering how many of youse are getting on with it did you have lots of side effects ect!!
Hi everybody, I’ve just been told that I should now start ocaliva aswell as urso I’m so worried about side effects after reading up on it, wondering how many of youse are getting on with it did you have lots of side effects ect!!
Lena2011
in
PBC Foundation
5 months ago
Wednesday's Word
[u]
PP
[/u][u][i]
AR drugs
[/i][/u] - This is a class of drugs used as second line treatment in Urso non responders. These drugs have long been used as a lipid lowering drugs - although now statins are more widely used for this purpose of lowering cholesterol. They are not yet approved by
[u]
PP
[/u][u][i]
AR drugs
[/i][/u] - This is a class of drugs used as second line treatment in Urso non responders. These drugs have long been used as a lipid lowering drugs - although now statins are more widely used for this purpose of lowering cholesterol. They are not yet approved by
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
another pharma update
This is in regards to the pharma Ipsen... They are trialing a drug called Elafibranor. It is being used for treatment in PBC, biliary atresia (in children) , PSC, Alagille Syndrome, and Primary Familial Cholestasis. With patients taking Urso, often up to 40% do not see improvement. 3-5% of patients
This is in regards to the pharma Ipsen... They are trialing a drug called Elafibranor. It is being used for treatment in PBC, biliary atresia (in children) , PSC, Alagille Syndrome, and Primary Familial Cholestasis. With patients taking Urso, often up to 40% do not see improvement. 3-5% of patients
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Question on steam/vapour breathing
I have a question for those who use steam/vapour breathing to ease off their symptoms. Do you use distilled water, reagular tap water, or a saline solution? My specialist seemed puzzled when I asked her this, and said that, in principle, a saline solution is optimal. I currently use distilled water.
I have a question for those who use steam/vapour breathing to ease off their symptoms. Do you use distilled water, reagular tap water, or a saline solution? My specialist seemed puzzled when I asked her this, and said that, in principle, a saline solution is optimal. I currently use distilled water.
runcyclexcski
in
Asthma Community Forum
5 months ago
Seladelpar update
About a month or more ago, I wrote about this upcoming drug's potentially to be the next drug for second line treatment. By that I mean that for some reason someone was not responding to or not able to take Urso. 40% of patients are failed by Urso. Cymabay, the pharma who manufacturers Seladelpar,
About a month or more ago, I wrote about this upcoming drug's potentially to be the next drug for second line treatment. By that I mean that for some reason someone was not responding to or not able to take Urso. 40% of patients are failed by Urso. Cymabay, the pharma who manufacturers Seladelpar,
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Asthma
I'm on a high level of medication for my asthma I've been with lung specialist for 5 years, I was diagnosed with asthma in the 90s but it was mild enough for me to continue work, however as the years increased my asthma was starting to become a problem, well anyway now my asthma has become a real problem
I'm on a high level of medication for my asthma I've been with lung specialist for 5 years, I was diagnosed with asthma in the 90s but it was mild enough for me to continue work, however as the years increased my asthma was starting to become a problem, well anyway now my asthma has become a real problem
Happy103
in
Lung Conditions Community Forum
5 months ago
Rheumatologist advices no reduction of prednisolone while adrenal glands not working and has issued emergency hydrocortisone kit
I've had PMR since October 2020 and managed to get down to 2.5mg of prednisolone in February 2023. But after a flare, I had to raise it to 5mg and have been pain-free since then. I started on methotrexate weekly injections (15mg) in December 2023, with the hope of being able to reduce the prednisolone
I've had PMR since October 2020 and managed to get down to 2.5mg of prednisolone in February 2023. But after a flare, I had to raise it to 5mg and have been pain-free since then. I started on methotrexate weekly injections (15mg) in December 2023, with the hope of being able to reduce the prednisolone
harpsichor
in
PMRGCAuk
5 months ago
What if?
I mentioned to you that one of the main premises of the Summit was to think about "what ifs" that we could change about how PBC is perceived and/or treated. One of these suggestions was "
what if
" we could totally eliminate the use of placebos in all clinical trials. Some of you may have participated
I mentioned to you that one of the main premises of the Summit was to think about "what ifs" that we could change about how PBC is perceived and/or treated. One of these suggestions was "
what if
" we could totally eliminate the use of placebos in all clinical trials. Some of you may have participated
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Experiences with urso, ocaliva and bezafibrate
Hi everyone!I was just curious about your experiences taking a combination of udca, ocaliva 10 mg and bezafibrates. Does it improve the itching? Did you notice any unwanted side effect from bezafibrate, e.g. in kidneys? Thanks for sharing and stay healthy and motivated!
Hi everyone!I was just curious about your experiences taking a combination of udca, ocaliva 10 mg and bezafibrates. Does it improve the itching? Did you notice any unwanted side effect from bezafibrate, e.g. in kidneys? Thanks for sharing and stay healthy and motivated!
nickey8
in
PBC Foundation
6 months ago
Better Understanding
I knew and expressed here that I was fearful of crashing this winter as I have since 1995 to varying degrees. I had set a marker of April 01 as a measure. I was successful although I will wait until April 01 to see it in my rear view mirror, and have a celebration although I am already celebrating. Some
I knew and expressed here that I was fearful of crashing this winter as I have since 1995 to varying degrees. I had set a marker of April 01 as a measure. I was successful although I will wait until April 01 to see it in my rear view mirror, and have a celebration although I am already celebrating. Some
WIZARD6787
in
Pernicious Anaemia Society
7 months ago
antihistamines
hi 👋🏻 think I need some antihistamines to help my ETD. I’ve been using Sudafed last 2 days because the steroid nasal sprays seem to make my ears sore. I know you can only use them for a few days though. I can literally feel the swelling reducing and then swelling up again. So maybe I need an antihistamine
hi 👋🏻 think I need some antihistamines to help my ETD. I’ve been using Sudafed last 2 days because the steroid nasal sprays seem to make my ears sore. I know you can only use them for a few days though. I can literally feel the swelling reducing and then swelling up again. So maybe I need an antihistamine
Lakeshiker
in
Tinnitus UK
7 months ago
steroid nasal sprays
hi everyone, I’ve been using a steroid nasal spray for ETD and I think it’s making my ears sore and my T louder 🤔 Just wondering if anyone has had similar experiences. My ears get sore and all down the side of my face near my jaw line from my ear to my neck. My right ear registered negative pressure
hi everyone, I’ve been using a steroid nasal spray for ETD and I think it’s making my ears sore and my T louder 🤔 Just wondering if anyone has had similar experiences. My ears get sore and all down the side of my face near my jaw line from my ear to my neck. My right ear registered negative pressure
Lakeshiker
in
Tinnitus UK
7 months ago
0.9 saline 1 liter IV infusion.
Last year I asked on the forum if anyone knew where I could get a saline infusion. Come to find out that was heretical and not done in the UK. 🙂 In the USA there are clinics owned and run by nurses where one can get infusions with or without vitamins of your choice. There are also mobile clinics.
Last year I asked on the forum if anyone knew where I could get a saline infusion. Come to find out that was heretical and not done in the UK. 🙂 In the USA there are clinics owned and run by nurses where one can get infusions with or without vitamins of your choice. There are also mobile clinics.
WIZARD6787
in
Pernicious Anaemia Society
7 months ago
Body Temperature Regulation.
How body temperature regulation made it in the symptoms list of the neurological effects of B12 deficiency I have not yet come across. I have experienced body temperature regulation issues my whole life. It results in mild hypothermia. I am well versed in the physicians and nurses understanding of
How body temperature regulation made it in the symptoms list of the neurological effects of B12 deficiency I have not yet come across. I have experienced body temperature regulation issues my whole life. It results in mild hypothermia. I am well versed in the physicians and nurses understanding of
WIZARD6787
in
Pernicious Anaemia Society
7 months ago
9 month old constant runny nose one side
Hi, our baby is nearly 9 months old and since Christmas he’s had a constant runny nose - clear snot - on just one side, he’s had various coughs and colds due to weather and winter I guess but it’s always dripping that side. He’s had antibiotics after Xmas for a cough and ‘in case’ it was a sinus infection
Hi, our baby is nearly 9 months old and since Christmas he’s had a constant runny nose - clear snot - on just one side, he’s had various coughs and colds due to weather and winter I guess but it’s always dripping that side. He’s had antibiotics after Xmas for a cough and ‘in case’ it was a sinus infection
PrincessGurn1984
in
Pregnancy and Parenting Support
7 months ago
Another Nebuliser question
Hi - I've been watching tthe discussions about nebulisers. For some time I have thought one might be helpful (COPD severe). My COPD team were fairly unhelpful but the respiritory nurse at my GP surgery as just prescribed some Salbutamol nebules. She is now away on holiday. I have bought myself a portable
Hi - I've been watching tthe discussions about nebulisers. For some time I have thought one might be helpful (COPD severe). My COPD team were fairly unhelpful but the respiritory nurse at my GP surgery as just prescribed some Salbutamol nebules. She is now away on holiday. I have bought myself a portable
Kismet23
in
Lung Conditions Community Forum
7 months ago
Experienced powdered Methylcobalamin users; can you help me please?
I don’t understand the premise of this. I purchased a 40ml vial of powdered Methylcobalamin. It tells me to add 10ml saline. Is this correct? If there’s only 10ml of fluid- surely this is only 10 days supply for daily injecting? I assumed that in a 20ml vial I’d reconstitute to 20ml and 40ml I’d be
I don’t understand the premise of this. I purchased a 40ml vial of powdered Methylcobalamin. It tells me to add 10ml saline. Is this correct? If there’s only 10ml of fluid- surely this is only 10 days supply for daily injecting? I assumed that in a 20ml vial I’d reconstitute to 20ml and 40ml I’d be
dedicatedwife
in
Pernicious Anaemia Society
8 months ago
Sterile injectable Saline
Could anyone advise me where I can purchase sterile injectable saline that will ship to the UK please? I’m struggling. Thank you.
Could anyone advise me where I can purchase sterile injectable saline that will ship to the UK please? I’m struggling. Thank you.
dedicatedwife
in
Pernicious Anaemia Society
8 months ago
Saline scan
Has anyone had a saline scan to check the uterus for scarring? If so, was it painful and what kind of pain relief were you given?
Has anyone had a saline scan to check the uterus for scarring? If so, was it painful and what kind of pain relief were you given?
_Everglow_
in
Fertility Network UK
8 months ago
1
2
3
4
...
43
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
Lung Conditions Community Forum
210 results
PBC Foundation
126 results
Asthma Community Forum
90 results
View top 10 communities
Sort by
Most Relevant
Newest