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Taken off Ocaliva
After a year on Ocalvia my ALP level remains unchanged so I have been taken off. They seem stuck at 200. Now on Bezalip Mono to see if they will help. I feel fine, working 2 days a week, caring for granddaughters for another 2 and Secretary of my branch of the Labour Party as well as attending demos
After a year on Ocalvia my ALP level remains unchanged so I have been taken off. They seem stuck at 200. Now on Bezalip Mono to see if they will help. I feel fine, working 2 days a week, caring for granddaughters for another 2 and Secretary of my branch of the Labour Party as well as attending demos
Gioielli
in
PBC Foundation
5 years ago
Just diagnosed - vasculitis GPA
Hi, I am so glad I've found this site as I am just at the start of my vasculitis journey and from what I read, seen and heard I will need all the help I can get. I suspect my immune system got triggered when I donated blood in August 2018 - I got really sick during the process. Nothing unusual, it happens
Hi, I am so glad I've found this site as I am just at the start of my vasculitis journey and from what I read, seen and heard I will need all the help I can get. I suspect my immune system got triggered when I donated blood in August 2018 - I got really sick during the process. Nothing unusual, it happens
NacMacFeegle
in
Vasculitis UK
5 years ago
Purchasing B12 for injection. Oxford Biosciences.
Does anyone know if Oxford Biosciences B12 is regulated for purity and sterility in the U.K.? They sell methylcobalamin in a glass vial for reconstitution with normal saline and then injection. Are they "flying under the radar" when it comes to pharmaceutical regulation? Listed as "pharmaceutical grade
Does anyone know if Oxford Biosciences B12 is regulated for purity and sterility in the U.K.? They sell methylcobalamin in a glass vial for reconstitution with normal saline and then injection. Are they "flying under the radar" when it comes to pharmaceutical regulation? Listed as "pharmaceutical grade
garretttimson
in
Pernicious Anaemia Society
5 years ago
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Injectafer iron infusion - side effects / complications?
I was just wondering for those of you who have had an Injectafer iron infusion, did you have any complications or side effects? I finally managed to get one (1000 mg in a saline solution) in Sydney on Thursday (five days ago). I've had flu like symptoms, elevated temperature, aches and pains, a rash
I was just wondering for those of you who have had an Injectafer iron infusion, did you have any complications or side effects? I finally managed to get one (1000 mg in a saline solution) in Sydney on Thursday (five days ago). I've had flu like symptoms, elevated temperature, aches and pains, a rash
Ureshi17
in
Restless Legs Syndrome
5 years ago
Ocaliva
So im writing this, in hopes of finding a solution. My mother is currently battling a liver condition and she is taking Ocaliva. but inside the US, its a pretty Pricey, and her Insurance no longer accepts it. i will try a different insurance, but i just thought i would ask around and see what other people
So im writing this, in hopes of finding a solution. My mother is currently battling a liver condition and she is taking Ocaliva. but inside the US, its a pretty Pricey, and her Insurance no longer accepts it. i will try a different insurance, but i just thought i would ask around and see what other people
RobertCJ
in
PBC Foundation
5 years ago
Well....... Now what?
Pre\OCA. ON OCA FEB. 8. MAR 11 Ast...18. Ast.... 14 Alt.... 28. Alt..... 21 Bili.... 0.35. Bili.... 0.39 AlkP... 159. AlkP... 169 Albu... 3.5. Albu... 3.5 After 30 days on 5mg Ocaliva & URSO My numbers aren't bad but
Pre\OCA. ON OCA FEB. 8. MAR 11 Ast...18. Ast.... 14 Alt.... 28. Alt..... 21 Bili.... 0.35. Bili.... 0.39 AlkP... 159. AlkP... 169 Albu... 3.5. Albu... 3.5 After 30 days on 5mg Ocaliva & URSO My numbers aren't bad but
Ktltel
in
PBC Foundation
5 years ago
Reverse T3 interacts with αvβ3 integrin receptor and restores enzyme activities in the hippocampus of hypothyroid developing rats
Possibly time finally to stop regarding reverse T3 (rT3) as an inactive substance?
[u]evidence that rT3 is an active TH metabolite [/u]
Of course, every paper is subject to review, criticism of methods and logic, and the results being replicated. [i]Mol Cell Endocrinol. 2018 Jul 15;470:281
Possibly time finally to stop regarding reverse T3 (rT3) as an inactive substance?
[u]evidence that rT3 is an active TH metabolite [/u]
Of course, every paper is subject to review, criticism of methods and logic, and the results being replicated. [i]Mol Cell Endocrinol. 2018 Jul 15;470:281
helvella
Thyroid UK
in
Thyroid UK
5 years ago
Primary Ciliary Dyskinesia?
It seems like I’m always chasing An Answer haha I have recently been in hospital with sputum showing P. aeruginosa and S. aureus. Sputum sample #2 went missing, and I couldn’t produce a 3rd sample but my inflammatory markers — which I assume were raised when I was admitted — came down. I have only been
It seems like I’m always chasing An Answer haha I have recently been in hospital with sputum showing P. aeruginosa and S. aureus. Sputum sample #2 went missing, and I couldn’t produce a 3rd sample but my inflammatory markers — which I assume were raised when I was admitted — came down. I have only been
Hidden
in
Lung Conditions Community Forum
5 years ago
My Nasal Polyp story
Hi, I'd like to tell you my experience with nasal polyp's. I stupidly suffered with them for 5 years. Should have had them removed straight away but I didn't. Anyway after the 1st year with them, they came out by themselves over a period of 2 or 3 days. I was so relieved and happy and thought....that's
Hi, I'd like to tell you my experience with nasal polyp's. I stupidly suffered with them for 5 years. Should have had them removed straight away but I didn't. Anyway after the 1st year with them, they came out by themselves over a period of 2 or 3 days. I was so relieved and happy and thought....that's
Michael-B
in
Asthma Community Forum
5 years ago
Kicking those lung buddies in the butt
Those who frequent this forum will probably have seen my posts but cliff notes: I’ve been treated for severe asthma for a while but doc thinks there’s something else adding to it as I’m atypical; things got worse again before Christmas and have been shaky since; had amoxicillin, co-amoxiclav, and doxycycline
Those who frequent this forum will probably have seen my posts but cliff notes: I’ve been treated for severe asthma for a while but doc thinks there’s something else adding to it as I’m atypical; things got worse again before Christmas and have been shaky since; had amoxicillin, co-amoxiclav, and doxycycline
Hidden
in
Lung Conditions Community Forum
5 years ago
Question: Saline On It’s Own via Nebuliser
If part of your self-treatment at home includes ‘saline-ony’ via a Nebuliser, please could you answer a few questions, below. Note: It’s Nebulised Saline - without any drugs / other stuff added - that I’m keen to learn about. 1. How many weeks, years you’ve been doing it? 2. What form / strength of Saline
If part of your self-treatment at home includes ‘saline-ony’ via a Nebuliser, please could you answer a few questions, below. Note: It’s Nebulised Saline - without any drugs / other stuff added - that I’m keen to learn about. 1. How many weeks, years you’ve been doing it? 2. What form / strength of Saline
Matman
in
Asthma Community Forum
5 years ago
Anyone Tried the Omron Nebuliser?
My local Boots are flogging an Omron Nebuliser at a decent discount sale price. Been thinking for a while that I ought to have a Nebuliser at home (just in case I hit a bad patch that takes more to cope with than inhalers and Oral Steroids which are all I currently keep at hand). Wondered if anyone
My local Boots are flogging an Omron Nebuliser at a decent discount sale price. Been thinking for a while that I ought to have a Nebuliser at home (just in case I hit a bad patch that takes more to cope with than inhalers and Oral Steroids which are all I currently keep at hand). Wondered if anyone
Matman
in
Asthma Community Forum
5 years ago
Combined ascorbic acid and T3 produce better healing compared to bone marrow mesenchymal stem cells in an Achilles tendon injury rat model
I don't think I can add much to this fascinating paper - except to encourage you to click on the link and read the Conclusion. [i]Combined ascorbic acid and T3 produce better healing compared to bone marrow mesenchymal stem cells in an Achilles tendon injury rat model: a proof of concept study
I don't think I can add much to this fascinating paper - except to encourage you to click on the link and read the Conclusion. [i]Combined ascorbic acid and T3 produce better healing compared to bone marrow mesenchymal stem cells in an Achilles tendon injury rat model: a proof of concept study
helvella
Thyroid UK
in
Thyroid UK
5 years ago
Active Cycle of Breathing alongside Nebulisers
Not sure if everyone with bronchiectasis has to do this, but my mum does physiotherapy and other techniques alongside the nebuliser ( saline, plus salbutamol when needed) e.g. one method is called The Active Cycle of Breathing which helps her a lot to get the phlegm up and her oxygen saturation levels
Not sure if everyone with bronchiectasis has to do this, but my mum does physiotherapy and other techniques alongside the nebuliser ( saline, plus salbutamol when needed) e.g. one method is called The Active Cycle of Breathing which helps her a lot to get the phlegm up and her oxygen saturation levels
Response
in
Lung Conditions Community Forum
5 years ago
Carbocisteine not working?
So I saw my new Respiratory Physiotherapist a few days ago and found out a great deal I didn’t know. My chemical sensitivity is far worse than I realised and combined with heat it is awful. There was something in her room that set me off and it was also very warm in there. My breathing got steadily worse
So I saw my new Respiratory Physiotherapist a few days ago and found out a great deal I didn’t know. My chemical sensitivity is far worse than I realised and combined with heat it is awful. There was something in her room that set me off and it was also very warm in there. My breathing got steadily worse
ladytelita
in
Lung Conditions Community Forum
5 years ago
can issues with the nose like sinus trouble effect asthma
as the title says can things with the nose like sinus trouble effect your asthma? i have had a stuffy tender nose for months now and the doctor has given me a nasal spray to try and help and he also said about a salt saline solution to flush out my nose aswell Anyone had anything like this
as the title says can things with the nose like sinus trouble effect your asthma? i have had a stuffy tender nose for months now and the doctor has given me a nasal spray to try and help and he also said about a salt saline solution to flush out my nose aswell Anyone had anything like this
ash160808
in
Asthma Community Forum
5 years ago
Chest is being a little *ahem* snitch
I have severe asthma-although-possibly-not (long story but I’m happy to divulge if anyone is interested) and although my lung function was in the normal range at my last clinic appointment, it was reduced for me. This was my first appointment at the new clinic in a different county so all that really
I have severe asthma-although-possibly-not (long story but I’m happy to divulge if anyone is interested) and although my lung function was in the normal range at my last clinic appointment, it was reduced for me. This was my first appointment at the new clinic in a different county so all that really
Hidden
in
Lung Conditions Community Forum
5 years ago
Bronchoscopy pain.
I have COPD and had a bronchoscopy and felt fine after but woke in the night gasping for breath and it was bad most of the night . Only a microwave bag helped enough for me to eventually sleep. I expected the sore lungs and throat after probably having a saline flush and a biopsy or two but the pain
I have COPD and had a bronchoscopy and felt fine after but woke in the night gasping for breath and it was bad most of the night . Only a microwave bag helped enough for me to eventually sleep. I expected the sore lungs and throat after probably having a saline flush and a biopsy or two but the pain
Rabbit52
in
Lung Conditions Community Forum
5 years ago
Are these ok for PBCers?
Hello 🙋, I'm totally struggling with my diet (as always 😔) I'm wanting to exchange a couple of meals a day with Atkins protein shakes. I'm "not" going on the Atkins diet or anything, I plan to incorporate fruit and complex carbohydrates in one meal a day and for a snack etc. But, I was just wondering
Hello 🙋, I'm totally struggling with my diet (as always 😔) I'm wanting to exchange a couple of meals a day with Atkins protein shakes. I'm "not" going on the Atkins diet or anything, I plan to incorporate fruit and complex carbohydrates in one meal a day and for a snack etc. But, I was just wondering
Ktltel
in
PBC Foundation
5 years ago
Caffeine
I am aged 79. On 31 July my wife took me to Kingston Hospital with chest pains-I felt as if I had been kicked in the chest by a horse! It was 4 pm and A & E was empty. Within minutes I was in the Resuscitation Unit and over the next 5 hours had blood pressure and temperature taken, oximeter reading
I am aged 79. On 31 July my wife took me to Kingston Hospital with chest pains-I felt as if I had been kicked in the chest by a horse! It was 4 pm and A & E was empty. Within minutes I was in the Resuscitation Unit and over the next 5 hours had blood pressure and temperature taken, oximeter reading
Dickyticker26
in
British Heart Foundation
5 years ago
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