Search
Search
About
Log in
Join
Experiences with
Artificial saliva
Posts
Communities
842 public posts
Filter results
Freekama10
Can i be in the sun when taking ocaliva and ursodiol
Can i be in the sun when taking ocaliva and ursodiol
Freekama10
in
PBC Foundation
5 years ago
Miss diagnosis
Dear all could I please ask for some advice/help I have posted on here before on thyroid problems but now I’m at my wits end and desperately need help So I have been suffering really bad with acid reflux mostly due to a large hiatal hernia I went to my local nhs hospital last Wednesday for a endoscopy
Dear all could I please ask for some advice/help I have posted on here before on thyroid problems but now I’m at my wits end and desperately need help So I have been suffering really bad with acid reflux mostly due to a large hiatal hernia I went to my local nhs hospital last Wednesday for a endoscopy
plumber53
in
Thyroid UK
5 years ago
Ocaliva financial assistance
Had blood work yesterday and my ALP continues to be over 500 (original diagnosis 2 years ago). At my Nov. Dr's appointment I was told if ALP didn't improve Dr. would add another med, probably Ocaliva. Can anyone please share their experience getting financial assistance (United States) to pay for this
Had blood work yesterday and my ALP continues to be over 500 (original diagnosis 2 years ago). At my Nov. Dr's appointment I was told if ALP didn't improve Dr. would add another med, probably Ocaliva. Can anyone please share their experience getting financial assistance (United States) to pay for this
kp1234
in
PBC Foundation
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
CLL and worsening allergy but poor immunity
Came across a great article on the relationship between inflammation, allergies and a poor immunity in CLL. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3844117/ Every now and then I hear about people with CLL on the forums saying that they never really get properly sick. So for example a cold comes
Came across a great article on the relationship between inflammation, allergies and a poor immunity in CLL. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3844117/ Every now and then I hear about people with CLL on the forums saying that they never really get properly sick. So for example a cold comes
AdrianUK
in
CLL Support
5 years ago
OCREVUS INFUSION
Hi all I got my Ocrevus infusion today. Well let me tell you I Hate Traffic and I don’t drive any more thank The The Lord above. One good thing they were not doing any road work on the Tobin Bridge We made it a little late to the appointment but they took me anyway. So I started off pretty good, had
Hi all I got my Ocrevus infusion today. Well let me tell you I Hate Traffic and I don’t drive any more thank The The Lord above. One good thing they were not doing any road work on the Tobin Bridge We made it a little late to the appointment but they took me anyway. So I started off pretty good, had
Hidden
in
My MSAA Community
5 years ago
OCREVUS INFUSION
Hi all I got my Ocrevus infusion today. Well let me tell you I Hate Traffic and I don’t drive any more thank The The Lord above. One good thing they were not doing any road work on the Tobin Bridge We made it a little late to the appointment but they took me anyway. So I started off pretty good, had
Hi all I got my Ocrevus infusion today. Well let me tell you I Hate Traffic and I don’t drive any more thank The The Lord above. One good thing they were not doing any road work on the Tobin Bridge We made it a little late to the appointment but they took me anyway. So I started off pretty good, had
Hidden
in
My MSAA Community
5 years ago
Breast implant associated small cell lymphoma!
I am wondering if anyone is confronted with this. I had a saline implant post mastectomy in 2012. I received a letter from my plastic surgeon stating that the FDA has put out new data stating that the texture of the implant, saline and silicone can lead to this new cancer which is not related to breast
I am wondering if anyone is confronted with this. I had a saline implant post mastectomy in 2012. I received a letter from my plastic surgeon stating that the FDA has put out new data stating that the texture of the implant, saline and silicone can lead to this new cancer which is not related to breast
Epinto
in
SHARE Metastatic Breast Cancer
5 years ago
6yr Old Baffling Doctors
Hello. One of my 6yr old twins has always been more susceptible to illness, RSV at 5 weeks, a couple bouts of bronchitis and pneumonia, recurring ear infections and grommets at 7mo of age, then recurring sinus infections and asthma diagnosis after being hospitalized in respiratory distress from enterovirus
Hello. One of my 6yr old twins has always been more susceptible to illness, RSV at 5 weeks, a couple bouts of bronchitis and pneumonia, recurring ear infections and grommets at 7mo of age, then recurring sinus infections and asthma diagnosis after being hospitalized in respiratory distress from enterovirus
Twinnything
in
PCD Family Support Group (UK)
5 years ago
Saline for nebulizer
My hubby uses a nebulizer for ventolin but i have been reading.of people using saline.in it,how does.it work is it just like.steam to clear nasal passages .
My hubby uses a nebulizer for ventolin but i have been reading.of people using saline.in it,how does.it work is it just like.steam to clear nasal passages .
Me1953
in
Lung Conditions Community Forum
5 years ago
Update #2 to “ Treatment Begins”
Wow, Saturday 4/20 Day 2 of infusion. Of Obinutuzumab started with labs 5:15 am. Imbrutinib places on hold til Monday restart Labs came back ok on potassium level. 7:00 am Had a nurse assigned just for me. Had to wait till he got to hospital 8:45 am ( hey one of us has to have some sleep) Premeds
Wow, Saturday 4/20 Day 2 of infusion. Of Obinutuzumab started with labs 5:15 am. Imbrutinib places on hold til Monday restart Labs came back ok on potassium level. 7:00 am Had a nurse assigned just for me. Had to wait till he got to hospital 8:45 am ( hey one of us has to have some sleep) Premeds
Coolerjoe
in
CLL Support
5 years ago
Phew!
Just a little update. My thyroid biopsy came back negative for any type of cancer and were just going to watch the nodules to make sure they don’t get any bigger and cause problems. Next is the lacrimal gland biopsy and I’m still waiting for the biopsy results from the two spots on my scalp. The doctor
Just a little update. My thyroid biopsy came back negative for any type of cancer and were just going to watch the nodules to make sure they don’t get any bigger and cause problems. Next is the lacrimal gland biopsy and I’m still waiting for the biopsy results from the two spots on my scalp. The doctor
ynkefan08753
in
Lung Cancer Support
5 years ago
Himalayan salt inhaler
After Hacienda wrote of her salt inhaler, I took the plunge and bought one. You breathe in through the salt and out through your nose- takes a bit of getting used to. It’s a small pot (glazed) with a mouthpiece on top and the pot is filled with the salt,with little holes underneath to enable the air
After Hacienda wrote of her salt inhaler, I took the plunge and bought one. You breathe in through the salt and out through your nose- takes a bit of getting used to. It’s a small pot (glazed) with a mouthpiece on top and the pot is filled with the salt,with little holes underneath to enable the air
Jomo46
in
Lung Conditions Community Forum
5 years ago
2 MONTHS On Ocaliva
(FEB. 8). (MAR 11) (April 15) Ast...18. Ast.... 14. Ast... 13 Alt.... 28. Alt..... 21. Alt... 15 Bili.... 0.35. Bili.... 0.39. Bili.. 0.3 AlkP... 159. AlkP... 169. AlkP.. 174 Albu... 3.5. Albu... 3.5. Albu... 3..7 Above is my baseline
(FEB. 8). (MAR 11) (April 15) Ast...18. Ast.... 14. Ast... 13 Alt.... 28. Alt..... 21. Alt... 15 Bili.... 0.35. Bili.... 0.39. Bili.. 0.3 AlkP... 159. AlkP... 169. AlkP.. 174 Albu... 3.5. Albu... 3.5. Albu... 3..7 Above is my baseline
Ktltel
in
PBC Foundation
5 years ago
Difficulty Swallowing and Frothy Spit After Eating
I am an 19 year old male. In the past year I have been having problems with my swallowing. After eating or mid way through a meal, my throat feels full and I have constant frothy, bubbly saliva that I keep having to spit out. I went to the GI twice. The first one was in September of 2018. He did an upper
I am an 19 year old male. In the past year I have been having problems with my swallowing. After eating or mid way through a meal, my throat feels full and I have constant frothy, bubbly saliva that I keep having to spit out. I went to the GI twice. The first one was in September of 2018. He did an upper
Tom1510
in
Oesophageal & Gastric Cancer
5 years ago
Has anyone had a low white blood cell count as a result of being on Ocaliva?
My partner has been on Ocaliva for a while now - around 12 months - and has seen good results from it. However, its recently been flagged up from blood tests that her white blood cell count is becoming low. It looks like her white blood cell count started fluctuating around 8 weeks after starting Ocaliva
My partner has been on Ocaliva for a while now - around 12 months - and has seen good results from it. However, its recently been flagged up from blood tests that her white blood cell count is becoming low. It looks like her white blood cell count started fluctuating around 8 weeks after starting Ocaliva
djws
in
PBC Foundation
5 years ago
Nebuliser
Hi, Trialing a nebuliser at the moment with salbutamol nebules for 2 weeks then saline for 2 weeks.Ive only been on nebuliser 2 days and breathing is poorer than ever.I have just been on Ciprofloxacin and I am on prednisolone at moment but wondering if anyone has had negative effects from nebuliser or
Hi, Trialing a nebuliser at the moment with salbutamol nebules for 2 weeks then saline for 2 weeks.Ive only been on nebuliser 2 days and breathing is poorer than ever.I have just been on Ciprofloxacin and I am on prednisolone at moment but wondering if anyone has had negative effects from nebuliser or
Aitchic1
in
Lung Conditions Community Forum
5 years ago
Shocked again
Good morning everyone 😊 I wanted to give a little update to what’s been happening. A while back I posted a long post explaining all of the crazy symptoms I have been having over the last 18 or so months and that all of the specialists I’ve seen have said it’s likely long term side effects from the immunotherapy
Good morning everyone 😊 I wanted to give a little update to what’s been happening. A while back I posted a long post explaining all of the crazy symptoms I have been having over the last 18 or so months and that all of the specialists I’ve seen have said it’s likely long term side effects from the immunotherapy
ynkefan08753
in
Lung Cancer Support
5 years ago
Planning a day/night out tomorrow
Evening all. Hope you are all feeling well. I’ve got my latest COPD review tomorrow morning. Currently using saline through my nebuliser as I’m feeling tight chested. My pulse is down at 81 and my BP is 138/88. We check my obs and write them in a little book most days, and it’s made me realise that
Evening all. Hope you are all feeling well. I’ve got my latest COPD review tomorrow morning. Currently using saline through my nebuliser as I’m feeling tight chested. My pulse is down at 81 and my BP is 138/88. We check my obs and write them in a little book most days, and it’s made me realise that
BrianTaylor
in
Lung Conditions Community Forum
5 years ago
Taken off Ocaliva
After a year on Ocalvia my ALP level remains unchanged so I have been taken off. They seem stuck at 200. Now on Bezalip Mono to see if they will help. I feel fine, working 2 days a week, caring for granddaughters for another 2 and Secretary of my branch of the Labour Party as well as attending demos
After a year on Ocalvia my ALP level remains unchanged so I have been taken off. They seem stuck at 200. Now on Bezalip Mono to see if they will help. I feel fine, working 2 days a week, caring for granddaughters for another 2 and Secretary of my branch of the Labour Party as well as attending demos
Gioielli
in
PBC Foundation
5 years ago
Just diagnosed - vasculitis GPA
Hi, I am so glad I've found this site as I am just at the start of my vasculitis journey and from what I read, seen and heard I will need all the help I can get. I suspect my immune system got triggered when I donated blood in August 2018 - I got really sick during the process. Nothing unusual, it happens
Hi, I am so glad I've found this site as I am just at the start of my vasculitis journey and from what I read, seen and heard I will need all the help I can get. I suspect my immune system got triggered when I donated blood in August 2018 - I got really sick during the process. Nothing unusual, it happens
NacMacFeegle
in
Vasculitis UK
5 years ago
1
...
18
19
20
...
43
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
Lung Conditions Community Forum
207 results
PBC Foundation
124 results
Asthma Community Forum
88 results
View top 10 communities
Sort by
Most Relevant
Newest