Taken off Ocaliva

[Gioielli]

After a year on Ocalvia my ALP level remains unchanged so I have been taken off. They seem stuck at 200. Now on Bezalip Mono to see if they will help. I feel fine, working 2 days a week, caring for granddaughters for another 2 and Secretary of my branch of the Labour Party as well as attending demos and conferences on a regular basis. I will be 65 in a couple of months time and still waiting for my state pension. I have had PBC for 13 years now, diagnosed for 9 years.

[4pjx__]

Don't lose hope. They are researching another medication called Seledapar and are having really good results. I don't know if they are testing it in the UK though. It would be good if you could get in on that study. I am in the U.S.

Pam

[butterflyEi]

Good to see you are keeping well.

Best wishes