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Government Survey
Was sent this link from Versus Arthritis, bit long winded to complete the survey but could be worth the effort https://www.gov.uk/government/consultations/major-conditions-strategy-call-for-evidence-easy-read
Was sent this link from Versus Arthritis, bit long winded to complete the survey but could be worth the effort https://www.gov.uk/government/consultations/major-conditions-strategy-call-for-evidence-easy-read
Baner
in
PMRGCAuk
1 year ago
Joint pain
Hi everyone I've been suffering with really bad joint pain I fill stiff and she all over is this normall with pbc if so wot pain killers can I take kind regards
Hi everyone I've been suffering with really bad joint pain I fill stiff and she all over is this normall with pbc if so wot pain killers can I take kind regards
Purdy2017
in
PBC Foundation
10 months ago
Painkiller advice for Anagrelide headaches.
Started Anagralide 7 days ago, & took horrendous headache today. Took Solpadeine Max, & this helped, but only to be used for 3 days, & are expensive. Can my GP give me strong painkillers, or should I jut stick with Solpadeine? Would Paracetamol maybe help? Again thank you for any response.
Started Anagralide 7 days ago, & took horrendous headache today. Took Solpadeine Max, & this helped, but only to be used for 3 days, & are expensive. Can my GP give me strong painkillers, or should I jut stick with Solpadeine? Would Paracetamol maybe help? Again thank you for any response.
Didgeridoo2
in
MPN Voice
10 months ago
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Waiting for an appointment
Hi everyone, Just a little rant at the useless NHS again, I have been waiting for 3 years to be seen at the pain management clinic at my local hospital. I have contacted my doctor umpteen times and finally he got me an appointment, YIPPEE! I thought, it was short lived though. It turns out that the
Hi everyone, Just a little rant at the useless NHS again, I have been waiting for 3 years to be seen at the pain management clinic at my local hospital. I have contacted my doctor umpteen times and finally he got me an appointment, YIPPEE! I thought, it was short lived though. It turns out that the
Imagine1
in
Pain Concern
10 months ago
Ateritis, arthritis... how to make friends and family recognise the difference!
I have just been trying to explain GCA to some former work colleagues and been stumped trying to convincingly make the distinction between arteritis and arthritis (similar pronunciation, even in French š) to those not familiar with our condition. Very frustrating when they come back with "Oh, yes, my
I have just been trying to explain GCA to some former work colleagues and been stumped trying to convincingly make the distinction between arteritis and arthritis (similar pronunciation, even in French š) to those not familiar with our condition. Very frustrating when they come back with "Oh, yes, my
Dochaz
in
PMRGCAuk
1 year ago
Anti inflammatory pain killer
I am looking for recommendations for tolerable pain relief for hip bursitis please? So far I have only tried buprenorohine patches that did not help and turned me into a zombie overnight ā¦couldn't stay awake and severe nausea ! Any experiences to share please I have atrophic gastritis ? thanks
I am looking for recommendations for tolerable pain relief for hip bursitis please? So far I have only tried buprenorohine patches that did not help and turned me into a zombie overnight ā¦couldn't stay awake and severe nausea ! Any experiences to share please I have atrophic gastritis ? thanks
davina70
in
Pernicious Anaemia Society
10 months ago
excrutiating pain in finger
this sounds trivial im sure but woke this morning with extreme pain in middle finger in left hand, both hands hurt bad every morning ,
pain
decreases a little through day, so has to be
arthritis
, but this mirning
pain
in middle finger on moving or trying to staighten sends me through the roof, tried
this sounds trivial im sure but woke this morning with extreme pain in middle finger in left hand, both hands hurt bad every morning ,
pain
decreases a little through day, so has to be
arthritis
, but this mirning
pain
in middle finger on moving or trying to staighten sends me through the roof, tried
arvine
in
Pain Concern
1 month ago
pain relief for rotator cuff injury
I am seeking honest answers regarding treatment for severe pain. My PBC is āevolving ā. My liver biopsy was inconclusive but I was started on urso due to symptoms and progression of labs. I recently had an MRI that shows mild liver inflammation but nothing particularly concerning based on my interpretation
I am seeking honest answers regarding treatment for severe pain. My PBC is āevolving ā. My liver biopsy was inconclusive but I was started on urso due to symptoms and progression of labs. I recently had an MRI that shows mild liver inflammation but nothing particularly concerning based on my interpretation
Donti
in
PBC Foundation
10 months ago
To Give Hope
n 2018 I could hardly walk, or get out of the bath without help, I did try a few drugs until finding the right one that worked, that being hydroxychloroquine don;t get me wrong I do have bad days but I have learnt to give in to it and rest,take pain killers,and that the flare will pass, I thought back
n 2018 I could hardly walk, or get out of the bath without help, I did try a few drugs until finding the right one that worked, that being hydroxychloroquine don;t get me wrong I do have bad days but I have learnt to give in to it and rest,take pain killers,and that the flare will pass, I thought back
VeronicaF
in
NRAS
10 months ago
Minor Calf Strains (Pulled Calf)
As many know by now, I've been firmly placed onto the injury couch again, so my next posts will not be about running, or walking, rowing, dancing, stretching, weightlifting š© but ā¦. yes ā¦ recovery and rehabilitation. Iāll share my journey to hold myself to account, but also in case it helps anyone
As many know by now, I've been firmly placed onto the injury couch again, so my next posts will not be about running, or walking, rowing, dancing, stretching, weightlifting š© but ā¦. yes ā¦ recovery and rehabilitation. Iāll share my journey to hold myself to account, but also in case it helps anyone
CBDB
Administrator
in
Strength & Flex
10 months ago
First Period after lap
Hello everyone. I had my laparoscopy for stage 4 endo 2 weeks ago and unexpectedly now have my period which is alot more painful than I ever imagined it would be. Has anyone experienced a more painful period after surgery? Itās worse than when I had endo! Has anyone also been on Ryeqo? If so, how
Hello everyone. I had my laparoscopy for stage 4 endo 2 weeks ago and unexpectedly now have my period which is alot more painful than I ever imagined it would be. Has anyone experienced a more painful period after surgery? Itās worse than when I had endo! Has anyone also been on Ryeqo? If so, how
lizh87
in
Endometriosis UK
10 months ago
Broken Shoulder
Hi, everyone. My 73 year old husband had a nasty fall playing walking football on Monday morning. It turned out that he broke his shoulder badly and most of his arm came out in a massive bruise. I took him straight to casualty hoping to get seen straight away because his shoulder didn't look right and
Hi, everyone. My 73 year old husband had a nasty fall playing walking football on Monday morning. It turned out that he broke his shoulder badly and most of his arm came out in a massive bruise. I took him straight to casualty hoping to get seen straight away because his shoulder didn't look right and
Imagine1
in
Pain Concern
10 months ago
Check your Thyroid
For about a year Iāve been struggling. Fatigue getting worse, frozen shoulder, dry mouth and eyes, aching, brain fog, palpitations. It really got worse after last years autumn Covid booster when I thought I was having a heart attack. Heart all checked out fine. So I talked to my consultant at my clinic
For about a year Iāve been struggling. Fatigue getting worse, frozen shoulder, dry mouth and eyes, aching, brain fog, palpitations. It really got worse after last years autumn Covid booster when I thought I was having a heart attack. Heart all checked out fine. So I talked to my consultant at my clinic
Readlots
in
British Liver Trust
10 months ago
Arm pains and Tingling
Defo not
arthritis
pain
, completely different ?
Defo not
arthritis
pain
, completely different ?
Beta70
in
British Heart Foundation
1 year ago
Weight Loss
Hi, I wonder if anyone can help me, sorry in advance for the long post! I suffer from a muscle weakening condition which makes it very tricky for me to exercise like I used to - it is a very hard condition to manage because there are so many triggers. I also have fibromyalgia and osteoarthritis and
Hi, I wonder if anyone can help me, sorry in advance for the long post! I suffer from a muscle weakening condition which makes it very tricky for me to exercise like I used to - it is a very hard condition to manage because there are so many triggers. I also have fibromyalgia and osteoarthritis and
blackphoenix
in
Weight Loss Support
1 year ago
Weaning off Topiramate and starting Rizatriptan
I saw my consultant today (it has been 3 months since I last saw him). I do not think I am seeing much benefit from the Topiramate, and after a long discussion he came to the conclusion that he thinks the Topiramate could be contributing to my severe insomnia and depression. Therefore he has decided
I saw my consultant today (it has been 3 months since I last saw him). I do not think I am seeing much benefit from the Topiramate, and after a long discussion he came to the conclusion that he thinks the Topiramate could be contributing to my severe insomnia and depression. Therefore he has decided
AMG26
in
Migraine Support
10 months ago
NovoThor
Has anyone tried or have any knowledge of NovoThor PBM Therapy light beds? A friend saw a leaflet in a waiting room recently, so Iāve done a bit of research and it looks very interesting and if the stats are true good be very helpful for fibromyalgia sufferers, no mention of cost though! My fibromyalgia
Has anyone tried or have any knowledge of NovoThor PBM Therapy light beds? A friend saw a leaflet in a waiting room recently, so Iāve done a bit of research and it looks very interesting and if the stats are true good be very helpful for fibromyalgia sufferers, no mention of cost though! My fibromyalgia
Onlymeandyou
in
Fibromyalgia Action UK
11 months ago
Deep infiltrated Bowel Endo
Hey warriors! I have deep infiltrated bowel endo, mild adenomysis and a growth in my pouch of Douglas :( My main issues are having extreme pain the moment I need the loo! The pain subsides about 30 minutes after I go but I also get sharp pains in my abdomen so Iām looking at the best diet/ foods to
Hey warriors! I have deep infiltrated bowel endo, mild adenomysis and a growth in my pouch of Douglas :( My main issues are having extreme pain the moment I need the loo! The pain subsides about 30 minutes after I go but I also get sharp pains in my abdomen so Iām looking at the best diet/ foods to
Karen_92
in
Endometriosis UK
10 months ago
Advice on pain killers
Please can i have some suggestions on what pain killers to take which will not cause a reaction to my T. The noise of the T gives me such a bad headache. My heads feels like it will explode . Any advice on how to manage this flare up over the last two weeks been a huge struggle. In a dark place
Please can i have some suggestions on what pain killers to take which will not cause a reaction to my T. The noise of the T gives me such a bad headache. My heads feels like it will explode . Any advice on how to manage this flare up over the last two weeks been a huge struggle. In a dark place
Parrcj
in
Tinnitus UK
10 months ago
Hand cramp
I'm on prednisone since mid April and so far have been able go from 30 mg to 22.5mg a day Body feels fine but getting cramps only on my right hand which I use alot. Is this a pmr or prednisone side affect or could I have some sort of arthritis also
I'm on prednisone since mid April and so far have been able go from 30 mg to 22.5mg a day Body feels fine but getting cramps only on my right hand which I use alot. Is this a pmr or prednisone side affect or could I have some sort of arthritis also
Seal49
in
PMRGCAuk
1 year ago
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