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PMR without steroids?
Hubby (55) was just diagnosed with PMR that we suspect he's had for about two years. He'd like to try and work through it without taking prednisone since every post we read is about people trying to get off of it. Do you think it's possible to manage the pain with other means and methods long enough
Hubby (55) was just diagnosed with PMR that we suspect he's had for about two years. He'd like to try and work through it without taking prednisone since every post we read is about people trying to get off of it. Do you think it's possible to manage the pain with other means and methods long enough
Hidden
in
PMRGCAuk
1 year ago
vastly different perspective of different rheumatologist: so am I terribly controlled after all?
hello all. I don’t know what to make of my face to face appointment yesterday and I feel rather emotional. It’s been well over two years since I saw a rheumatologist face to face - or indeed any kind of hospital medic. All that time my lovely learned consultant told me that although the arthritis was
hello all. I don’t know what to make of my face to face appointment yesterday and I feel rather emotional. It’s been well over two years since I saw a rheumatologist face to face - or indeed any kind of hospital medic. All that time my lovely learned consultant told me that although the arthritis was
Bon1
in
NRAS
1 year ago
Headaches
Hello, I'm really fed up today. I've been getting headaches, the last 3 weeks, each time lasting around 3 days...the last 2 weeks I ploughed on through on pain killers, but this week I came home from work and took to my bed. I am hypothyroid, on 150 Levo and have booked a blood test with GP for next
Hello, I'm really fed up today. I've been getting headaches, the last 3 weeks, each time lasting around 3 days...the last 2 weeks I ploughed on through on pain killers, but this week I came home from work and took to my bed. I am hypothyroid, on 150 Levo and have booked a blood test with GP for next
GrowingVeg
in
Thyroid UK
1 year ago
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New to Rheumatoid Arthritis
zombie)I started with neck shoulders,arm,wrists ,fingers ,this was put down to the way I'd held myself during the pain from siatica, trapped nerves in the neck was said,my gp looked back at my hospital record as I'd had blood tests while there for inflamation, he said it was he didnt think my neck ect
pain
zombie)I started with neck shoulders,arm,wrists ,fingers ,this was put down to the way I'd held myself during the pain from siatica, trapped nerves in the neck was said,my gp looked back at my hospital record as I'd had blood tests while there for inflamation, he said it was he didnt think my neck ect
pain
Alice70
in
Arthritis Action
2 years ago
Stopping Cerazette
First time poster, but I’ve taken many tips from this board so thank you all in advance. 2 years ago I doubled over in agony, eventually got sent to A&E via my GP with suspected appendicitis. Wasn’t appendicitis, it was a haemorrhaging ovarian cyst. Sent home with painkillers, had a couple of scans and
First time poster, but I’ve taken many tips from this board so thank you all in advance. 2 years ago I doubled over in agony, eventually got sent to A&E via my GP with suspected appendicitis. Wasn’t appendicitis, it was a haemorrhaging ovarian cyst. Sent home with painkillers, had a couple of scans and
Bookworm3371
in
Endometriosis UK
1 year ago
what to take for inflammation when we have afib.
Hello to everyone, I am reaching out to you again. I have inflammation in my leg. I have arthritis in my knee and hip but it doesnt bother me, but the inflammation I have could be from this. I used to take an advil a couple of times a year. I know you cant take anti inflammatory medication when
Hello to everyone, I am reaching out to you again. I have inflammation in my leg. I have arthritis in my knee and hip but it doesnt bother me, but the inflammation I have could be from this. I used to take an advil a couple of times a year. I know you cant take anti inflammatory medication when
kitttycat
in
AF Association
1 year ago
Toothache and af
Am sitting here with painful toothache and I think I have an abbsess. Can anyone tell me if the numbing injections they give at rhe dentist trigger AF ? or anything else to watch for at rhe dentist. I have a huge fear of dentists and knowing the visit may cause af also is tipping me over the edge.
Am sitting here with painful toothache and I think I have an abbsess. Can anyone tell me if the numbing injections they give at rhe dentist trigger AF ? or anything else to watch for at rhe dentist. I have a huge fear of dentists and knowing the visit may cause af also is tipping me over the edge.
Sunnyann
in
AF Association
1 year ago
No Prednisone, is it dangerous?
I have been doing very well without too much
pain
from PMR, just
arthritis
, I think. I'm taking
pain
pills regularly.
I have been doing very well without too much
pain
from PMR, just
arthritis
, I think. I'm taking
pain
pills regularly.
Trevgrrl
in
PMRGCAuk
2 years ago
Postherpetic Neuralgia and B12
Not directly related to PA, but nonetheless of potential interest to those with PA as well as anyone with Postherpetic Neuralgia. (I currently have PHN and am taking methylcobalamin every day. Alongside capsaicin cream. Difficult to know if it is helping, but I think it is.) [i]
Patterns and Trends
Not directly related to PA, but nonetheless of potential interest to those with PA as well as anyone with Postherpetic Neuralgia. (I currently have PHN and am taking methylcobalamin every day. Alongside capsaicin cream. Difficult to know if it is helping, but I think it is.) [i]
Patterns and Trends
helvella
in
Pernicious Anaemia Society
1 year ago
Topical Treatment for RA Joint Pain
My RA has been fairly well-managed with fortnightly 40ml adalimumab injections and weekly 20mg methotrexate injections for a few months. Since starting these meds together I still get some stiffness in a few joints, but not the pain I used to suffer and so I now consider my symptoms to be manageable.
My RA has been fairly well-managed with fortnightly 40ml adalimumab injections and weekly 20mg methotrexate injections for a few months. Since starting these meds together I still get some stiffness in a few joints, but not the pain I used to suffer and so I now consider my symptoms to be manageable.
Aporiac
in
NRAS
1 year ago
Gabapentin and fibromyalgia
Hi sorry am a bit behind on posting, I am in UK also, was diagnosed with fibro in 2008, although it took about 13years of rheumatology visits and tests for that to happen, I had a severe infection in my left leg and was told I had rheumatoid arthritis after that I was put on methotrexate and cyclosporin
Hi sorry am a bit behind on posting, I am in UK also, was diagnosed with fibro in 2008, although it took about 13years of rheumatology visits and tests for that to happen, I had a severe infection in my left leg and was told I had rheumatoid arthritis after that I was put on methotrexate and cyclosporin
lynn_lunn
in
Fibromyalgia Action UK
1 year ago
Arthritis, PMR or both.
I’ve been on this journey for nearly 3 years and am down to 1.5mg pred. I still get shoulder pain but it manifests in a different way to when I first got PMR. I had shoulder problems for some years before I got PMR. I found it difficult to tie up my blood parameters, which were fine, with the shoulder
I’ve been on this journey for nearly 3 years and am down to 1.5mg pred. I still get shoulder pain but it manifests in a different way to when I first got PMR. I had shoulder problems for some years before I got PMR. I found it difficult to tie up my blood parameters, which were fine, with the shoulder
Hughie1951
in
PMRGCAuk
1 year ago
MRI Scan result
Well I guess this could have been better and I have to admit it's probably worse than I anticipated. I'll sort out a chat with the doc to see where/if we go from here. Hopefully my DEXA scan in a couple of weeks will be more cheerful. [i]The scan shows he has sciatica with neuropathic pain and if the
Well I guess this could have been better and I have to admit it's probably worse than I anticipated. I'll sort out a chat with the doc to see where/if we go from here. Hopefully my DEXA scan in a couple of weeks will be more cheerful. [i]The scan shows he has sciatica with neuropathic pain and if the
Bcol
in
PMRGCAuk
2 years ago
possible endometriosis
Other doctors have suspected
arthritis
but after being on
pain
meds and treatment for several years and still no difference I decided to go back to the doctors and see what could be done.
Other doctors have suspected
arthritis
but after being on
pain
meds and treatment for several years and still no difference I decided to go back to the doctors and see what could be done.
heatherthornton578
in
Endometriosis UK
10 months ago
Migraines!
Anyone else suffer from these? Yesterday was horrendous. Honestly felt like someone was smashing me in the occipital region with a cricket bat. Of course I'd run out of pain killers. I felt so sick and wobbly, getting to the shop was out of the question. Fortunately a neighbour had some migraleve. I'm
Anyone else suffer from these? Yesterday was horrendous. Honestly felt like someone was smashing me in the occipital region with a cricket bat. Of course I'd run out of pain killers. I felt so sick and wobbly, getting to the shop was out of the question. Fortunately a neighbour had some migraleve. I'm
Blackberrywine
in
NRAS
1 year ago
PMR shoulder pain?
I’m wondering if anyone else’s shoulder pain is worse in the evening. When first diagnosed I had the classic morning symptoms. As I also have inflammatory arthritis, scoliosis and spinal stenosis I am finding it difficult (as are the doctors) to match the symptoms to the conditions.
I’m wondering if anyone else’s shoulder pain is worse in the evening. When first diagnosed I had the classic morning symptoms. As I also have inflammatory arthritis, scoliosis and spinal stenosis I am finding it difficult (as are the doctors) to match the symptoms to the conditions.
Rachmaninov2
in
PMRGCAuk
2 years ago
pain deep in vagina after peeing
MY STORY hi everyone, So I have stage four endometriosis. Basically all of the organs within my pelvic area ugly together. I’ve had severe period pain since I started having periods at 11… I’m now 31. Had my first laparoscopy at 21, another at 24, which seem to really help my symptoms a lot. I was
MY STORY hi everyone, So I have stage four endometriosis. Basically all of the organs within my pelvic area ugly together. I’ve had severe period pain since I started having periods at 11… I’m now 31. Had my first laparoscopy at 21, another at 24, which seem to really help my symptoms a lot. I was
Cavapoochon7
in
Endometriosis UK
1 year ago
oh no ! Bilateral hip arthritis
for years I believed my
pain
was due to a back problem (facet joint
arthritis
) But I have just been diagnosed with bilateral moderate hip arthritis. I have literally visited the GP 15-20 times over the last 8 years and not once was my hips believed to be the problem.
for years I believed my
pain
was due to a back problem (facet joint
arthritis
) But I have just been diagnosed with bilateral moderate hip arthritis. I have literally visited the GP 15-20 times over the last 8 years and not once was my hips believed to be the problem.
Snowleopard_1970
in
Arthritis Action
2 years ago
Hashimotos - inflammatory arthritis - hydroxychloroquine
Hi I have Hashimotos and a multitude of other ‘little conditions’ as you’ll all know. My main pain atm is my swollen finger joints. Due partly to covid I just had useless phone consultations with a rheumatologist and his locums. All saying you have osteoarthritis take an aspirin. Then a couple of months
Hi I have Hashimotos and a multitude of other ‘little conditions’ as you’ll all know. My main pain atm is my swollen finger joints. Due partly to covid I just had useless phone consultations with a rheumatologist and his locums. All saying you have osteoarthritis take an aspirin. Then a couple of months
Ziburu
in
Thyroid UK
1 year ago
Hi everyone
I've been in pain everyday for over a year, the pain doesn't go away it can just get worse then go back down. And the pain I have when on my period is even worse, I get cramps about a week before my period starts, and my periods are usually heavy and last about 7 days. I'm bed bound by pain for a lot
I've been in pain everyday for over a year, the pain doesn't go away it can just get worse then go back down. And the pain I have when on my period is even worse, I get cramps about a week before my period starts, and my periods are usually heavy and last about 7 days. I'm bed bound by pain for a lot
Clay90
in
Endometriosis UK
1 year ago
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