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Advice please
Hi everyone, I am having trouble getting fibro flare ups under control , I am having 2 bearable days out of 14 , the pain is all over , and so tired. I had to stop taking pregabalin and Tramadol , now on cocodamol and lidocaine patches and cream. I have osteoarthritis in my neck and hands , and I’m not
Hi everyone, I am having trouble getting fibro flare ups under control , I am having 2 bearable days out of 14 , the pain is all over , and so tired. I had to stop taking pregabalin and Tramadol , now on cocodamol and lidocaine patches and cream. I have osteoarthritis in my neck and hands , and I’m not
Ran2
in
Fibromyalgia Action UK
3 years ago
Cimzia
Hi guys, I suffer with rheumatoid arthritis I'm on plaquil 6 years but gettin alot of flare up recently sick of steroids my docter is think of trying mé ón cimzia pen?I'm anxious about trying Anyone else on it.. Thanks
Hi guys, I suffer with rheumatoid arthritis I'm on plaquil 6 years but gettin alot of flare up recently sick of steroids my docter is think of trying mé ón cimzia pen?I'm anxious about trying Anyone else on it.. Thanks
Sim4414
in
NRAS
3 years ago
Nerve pain & Arthritis
Hi All, It’s been a while since I’ve been on here but I had a few questions relating to inflammatory arthritis. I have been on hydroxychloriquine for about 5 months now. It seems to be subsiding a majority of the pain over time as well as stiffness but in the last few weeks I’ve been suffering terribly
Hi All, It’s been a while since I’ve been on here but I had a few questions relating to inflammatory arthritis. I have been on hydroxychloriquine for about 5 months now. It seems to be subsiding a majority of the pain over time as well as stiffness but in the last few weeks I’ve been suffering terribly
BethRidout24
in
Arthritis Action
3 years ago
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Golf
I’m having difficulty gripping my golf clubs due to pain from what I believe to be arthritis. Any suggestions to reduce the pain?
I’m having difficulty gripping my golf clubs due to pain from what I believe to be arthritis. Any suggestions to reduce the pain?
Asay
in
Arthritis Action
3 years ago
Vaccination
Hello, I’m on Elelzi weekly and hydrochloric Quinn for Rheumatoid arthritis and Discoid Lupus. Are all vaccination safe and do I need to stop my biological injection before the vaccination? Thank you
Hello, I’m on Elelzi weekly and hydrochloric Quinn for Rheumatoid arthritis and Discoid Lupus. Are all vaccination safe and do I need to stop my biological injection before the vaccination? Thank you
bindiyakanani
in
NRAS
3 years ago
Nervous
Sorry I'm going a bit off piste but I feel very scared. My husband has had trouble with his mobility and memory for a couple of years and yesterday got a diagnosis of Normal postural Hydrocephalus. He has been advised to have a lumber puncture to drain some fluid to see if it temporarily improves with
Sorry I'm going a bit off piste but I feel very scared. My husband has had trouble with his mobility and memory for a couple of years and yesterday got a diagnosis of Normal postural Hydrocephalus. He has been advised to have a lumber puncture to drain some fluid to see if it temporarily improves with
Suet3942
in
PMRGCAuk
3 years ago
Getting an appointment
Hi I am wondering about appointments and waiting times, I have psoriatic arthritis, and my dad seems to have started with same symptoms as I had, (mines under control) he has been referred and GP has said they have put him as urgent case as he doesn’t have use of his hands as they are so swollen and
Hi I am wondering about appointments and waiting times, I have psoriatic arthritis, and my dad seems to have started with same symptoms as I had, (mines under control) he has been referred and GP has said they have put him as urgent case as he doesn’t have use of his hands as they are so swollen and
Belle76
in
NRAS
3 years ago
Joint inflammation
I have been experiencing inflammation in two of my finger joints for over a week now ..one has got a lot bigger but both now have a purpley blue tinge to them. Has anyone had a similar experience and has idea why it happens? I am new to this and trying to gain a better understanding (I have mctd btw
I have been experiencing inflammation in two of my finger joints for over a week now ..one has got a lot bigger but both now have a purpley blue tinge to them. Has anyone had a similar experience and has idea why it happens? I am new to this and trying to gain a better understanding (I have mctd btw
Bettina1865
in
NRAS
3 years ago
Joint inflammation
I have been experiencing inflammation in two of my finger joints for over a week now ..one has got a lot bigger but both now have a purpley blue tinge to them. Has anyone had a similar experience and why it happens? I am new to this and trying to gain a better understanding (I have mctd btw ...arthritis
I have been experiencing inflammation in two of my finger joints for over a week now ..one has got a lot bigger but both now have a purpley blue tinge to them. Has anyone had a similar experience and why it happens? I am new to this and trying to gain a better understanding (I have mctd btw ...arthritis
Bettina1865
in
Arthritis Action
3 years ago
TB and Biologics
Hi everyone i hope you are all keeping well. Had a phone call from my rheumy today and they have told me i have TB in my bloods. The TB is dormant/sleeping but it is still there and needs treating otherwise i cannot start my biologics. Rheumy says biologics can make TB active and wake it up if i dont
Hi everyone i hope you are all keeping well. Had a phone call from my rheumy today and they have told me i have TB in my bloods. The TB is dormant/sleeping but it is still there and needs treating otherwise i cannot start my biologics. Rheumy says biologics can make TB active and wake it up if i dont
oliviagodfreyxx
in
NRAS
3 years ago
Methotrexate & Vaccine
Hi Everyone I hope you're all keeping and feeling ok. I've seen a few posts regarding stopping treatment before having the vaccine and had my vaccine yesterday, I was a bit worried as no-one has said to me to stop taking the methotrexate I'm on (20mg). I've had a telephone consultation with a GP this
Hi Everyone I hope you're all keeping and feeling ok. I've seen a few posts regarding stopping treatment before having the vaccine and had my vaccine yesterday, I was a bit worried as no-one has said to me to stop taking the methotrexate I'm on (20mg). I've had a telephone consultation with a GP this
Garnacha
in
NRAS
3 years ago
Ribs hurt terribly during liver scan
Hi Everyone I’ve been in lots of pain in my joints since before Christmas Ive not been officially diagnosed but it’s definitely Gout and I believe rheumatoid arthritis. I have autoimmune hepatitis and in the past my liver flare ups have been with chronic joint pain I thought it was my liver again Liver
Hi Everyone I’ve been in lots of pain in my joints since before Christmas Ive not been officially diagnosed but it’s definitely Gout and I believe rheumatoid arthritis. I have autoimmune hepatitis and in the past my liver flare ups have been with chronic joint pain I thought it was my liver again Liver
Lilybug
in
Arthritis Action
3 years ago
In remission ?
Hi has anyone experienced being in remission with rheumatoid arthritis ? I've been on sulfsalazine and methotrexate on separate occasions, I've been advised to stop methotrexate due to heart palpitations since December and to await my appointment with cardiologist my inflammation levels are normal,
Hi has anyone experienced being in remission with rheumatoid arthritis ? I've been on sulfsalazine and methotrexate on separate occasions, I've been advised to stop methotrexate due to heart palpitations since December and to await my appointment with cardiologist my inflammation levels are normal,
Hidden
in
NRAS
3 years ago
Rheumatoid arthritis- diet
Hello, I've just joined today 🙂 I wanted to ask if anyone has has a positive impact by changing diet or cutting out food groups that has made a difference to the disease? I was diagnosed in summer 2019, have been on benepali for 10 months, caught an infection last month & its sent me into a flare
Hello, I've just joined today 🙂 I wanted to ask if anyone has has a positive impact by changing diet or cutting out food groups that has made a difference to the disease? I was diagnosed in summer 2019, have been on benepali for 10 months, caught an infection last month & its sent me into a flare
Mermaid11
in
NRAS
3 years ago
Covid immunisation
Hi All I had my covid immunisation last week. Gradually over the last week my rheumatoid arthritis has been getting worse. Has anyone else had this reaction please?
Hi All I had my covid immunisation last week. Gradually over the last week my rheumatoid arthritis has been getting worse. Has anyone else had this reaction please?
Legley
in
NRAS
3 years ago
Rheumatoid nodule?
Hi, They think I have early RA or an inflammatory arthritis. I’ve just noticed a round swelling next to my middle thumb joint. I’m positive for RF and have read that nodules are quite common if you have RF. Is this nodule a sign things may be progressing?
Hi, They think I have early RA or an inflammatory arthritis. I’ve just noticed a round swelling next to my middle thumb joint. I’m positive for RF and have read that nodules are quite common if you have RF. Is this nodule a sign things may be progressing?
Sunnyseas
in
NRAS
3 years ago
Rheumatoid arthritis, pregnancy and the covid vaccination
Hi, thanks everyone for responding to my earlier question about rheumatoid and the covid vaccination. I just wanted to know if there is anyone who is planning for pregnancy and are concerned about taking the covid vaccine. I'm concerned if the covid vaccination could affect pregnancy, as it hasn't been
Hi, thanks everyone for responding to my earlier question about rheumatoid and the covid vaccination. I just wanted to know if there is anyone who is planning for pregnancy and are concerned about taking the covid vaccine. I'm concerned if the covid vaccination could affect pregnancy, as it hasn't been
Flowers2020
in
NRAS
3 years ago
Seronegative, what does it mean
Hi All I love following this group which is invaluable for the information shared, I’ve seen quite a few posts with people who are seronegative, what does it mean please? From what I can gather it’s a marker on whether you could have arthritis but even having a seronegative result doesn’t mean you don
Hi All I love following this group which is invaluable for the information shared, I’ve seen quite a few posts with people who are seronegative, what does it mean please? From what I can gather it’s a marker on whether you could have arthritis but even having a seronegative result doesn’t mean you don
Garnacha
in
NRAS
3 years ago
Covid vaccination and rheumatoid arthritis
Hi everyone, I'm not sure if this has been already discussed on here as I haven't been on here much. I suffer from rheumatoid arthritis and currently taking cimzja injection pen and will also be starting on methotrexate very soon, mean while I will also be getting a steroid injection. Just wanted to
Hi everyone, I'm not sure if this has been already discussed on here as I haven't been on here much. I suffer from rheumatoid arthritis and currently taking cimzja injection pen and will also be starting on methotrexate very soon, mean while I will also be getting a steroid injection. Just wanted to
Flowers2020
in
NRAS
3 years ago
Stuck
I have been on 24 mgs deflazacort (and up to 40gs) for 3 months because of a flare. I am trying to reduce by 10 percent per fortnight but I don't seem to be making any headway: Lower back, groin, knee, shoulder pain and fatigue. I was diagnosed in August 2018 and from 15mgs I reduced with very few symptoms
I have been on 24 mgs deflazacort (and up to 40gs) for 3 months because of a flare. I am trying to reduce by 10 percent per fortnight but I don't seem to be making any headway: Lower back, groin, knee, shoulder pain and fatigue. I was diagnosed in August 2018 and from 15mgs I reduced with very few symptoms
bBarnabus
in
PMRGCAuk
3 years ago
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