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Need Shoulder Replacement Surgery
My shoulder is destroyed from osteo arthritis and is painful 24/7. My surgeon won’t operate until I am “low enough” on prednisone. How low is low enough? I have been on prednisone for 17 months for PMR now down to 12.5 mg and tapering. I flared at 10.5 last taper. Advice?
My shoulder is destroyed from osteo arthritis and is painful 24/7. My surgeon won’t operate until I am “low enough” on prednisone. How low is low enough? I have been on prednisone for 17 months for PMR now down to 12.5 mg and tapering. I flared at 10.5 last taper. Advice?
Darkchocolate1
in
PMRGCAuk
2 years ago
Fibro and stabbing foot pain?
I've been recently diagnosed with fibro and also have inflammatory arthritis. Once in a while and out of the blue, I get these terrible stabbing pains on the outer side of my foot - it's excruciating, like being electrocuted or someone actually stabbing my foot with a knife. Sometimes it comes in two
I've been recently diagnosed with fibro and also have inflammatory arthritis. Once in a while and out of the blue, I get these terrible stabbing pains on the outer side of my foot - it's excruciating, like being electrocuted or someone actually stabbing my foot with a knife. Sometimes it comes in two
mjrminor
in
Fibromyalgia Action UK
2 years ago
Disassociated feeling
I'm currently on Tocilizumab for GCA under the direction of a specialist physician. I was on 20mg Pred when I started the Tocilizumab which I have injected every 2 weeks. I'm on my third week right now. I was instructed to reduce Pred 5mg every 2 weeks and reduce again 5mg 3 weeks , which is
I'm currently on Tocilizumab for GCA under the direction of a specialist physician. I was on 20mg Pred when I started the Tocilizumab which I have injected every 2 weeks. I'm on my third week right now. I was instructed to reduce Pred 5mg every 2 weeks and reduce again 5mg 3 weeks , which is
redhouts
in
PMRGCAuk
2 years ago
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arthritis appearing at low dose pred
For about a month or more I have been sore and stiff in a number of places, and I haven't been sure if it was because of gardening too hard, PMR flare or, could it be arthritis appearing? There are specific spots that are sore when pressed, e.g., a specific spot at the front of the shoulder, wrists,
For about a month or more I have been sore and stiff in a number of places, and I haven't been sure if it was because of gardening too hard, PMR flare or, could it be arthritis appearing? There are specific spots that are sore when pressed, e.g., a specific spot at the front of the shoulder, wrists,
Tiredcat
in
PMRGCAuk
2 years ago
Diet and arthritis
Anyone have an recommendations for best books on diet and arthritis please.
Anyone have an recommendations for best books on diet and arthritis please.
hoping2021
in
NRAS
2 years ago
What happens if you fail Xeljanz
I tried Xeljanz 4 years ago and did not have good results. My rheumatologist took me off leflunomide and Humira then started me on Xeljanz. I wonder if I would of taken Xeljanz with leflunomide if it would of been more effective? What I really wonder is if Xeljanz did not work is it possible for another
I tried Xeljanz 4 years ago and did not have good results. My rheumatologist took me off leflunomide and Humira then started me on Xeljanz. I wonder if I would of taken Xeljanz with leflunomide if it would of been more effective? What I really wonder is if Xeljanz did not work is it possible for another
ragurl
in
NRAS
2 years ago
Lower Abdominal pain and Tocilizumab
Tocilizumab side effects: The main thing I have noticed is a proneness to infection, like UTIs, sinus, nasal and Blepharitis. This will be because my immunity is so firmly suppressed what with Prednisalone and Tocilizumab. I was able to quickly get down from 40 mgs of Pred to 10 mgs without the usual
Tocilizumab side effects: The main thing I have noticed is a proneness to infection, like UTIs, sinus, nasal and Blepharitis. This will be because my immunity is so firmly suppressed what with Prednisalone and Tocilizumab. I was able to quickly get down from 40 mgs of Pred to 10 mgs without the usual
SheffieldJane
in
PMRGCAuk
2 years ago
Covid Booster?
I’m currently on prednisone 10mg daily while I wait to see the rheumatologist for a probable diagnosis of Rheumatoid Arthritis. I’m eligible for the 4th Covid booster at this time. I’ve never been on prednisone so uncertain if it’s all ok with vaccines. I will ask my doctor but was curious what the opinions
I’m currently on prednisone 10mg daily while I wait to see the rheumatologist for a probable diagnosis of Rheumatoid Arthritis. I’m eligible for the 4th Covid booster at this time. I’ve never been on prednisone so uncertain if it’s all ok with vaccines. I will ask my doctor but was curious what the opinions
SLCR
in
PMRGCAuk
2 years ago
Pain in feet rheumatoid arthritis
Any suggestions for pain relief until.i start biologics my feet are swollen.and hurt to walk.tried tramadol cocodaol naproxen nothing really works and I'm fed up with it all suggestions welcome thank you
Any suggestions for pain relief until.i start biologics my feet are swollen.and hurt to walk.tried tramadol cocodaol naproxen nothing really works and I'm fed up with it all suggestions welcome thank you
Murphysmummy
in
Arthritis Action
2 years ago
Levo and arthritis
Hi all. I am on100mcg of levo from doctor and self medicate another 50mcg and never felt better apart from ive had arthritis appear in my thumbs and wrists! Could it mean i am over medicated?frightened to lower dose as dont want to feel ill again. Any thoughts appreciated.
Hi all. I am on100mcg of levo from doctor and self medicate another 50mcg and never felt better apart from ive had arthritis appear in my thumbs and wrists! Could it mean i am over medicated?frightened to lower dose as dont want to feel ill again. Any thoughts appreciated.
giggy63
in
Thyroid UK
2 years ago
Bronchiectasis and joint pain
Hi everyone, just wondered if many of you suffered with joint pain that coincides with an exacerbation. I seem to get pain in my ankles fingers along with extreme fatigue. I was tested for Rheumatoid Arthritis before I was diagnosed with Bronchiectasis because my inflammation levels, were high but was
Hi everyone, just wondered if many of you suffered with joint pain that coincides with an exacerbation. I seem to get pain in my ankles fingers along with extreme fatigue. I was tested for Rheumatoid Arthritis before I was diagnosed with Bronchiectasis because my inflammation levels, were high but was
Heaven20
in
Lung Conditions Community Forum
2 years ago
Has anyone heard of or tried Eurotherapy?
I’m at the ideal home exhibition and have just had a demo of something called Eurotherapy which is supposedly a very good natural relief for all aches and pains, particularly linked to arthritis and RA. It involves small vibrations and when trying it it did seem to lessen stiffness. I wondered if anyone
I’m at the ideal home exhibition and have just had a demo of something called Eurotherapy which is supposedly a very good natural relief for all aches and pains, particularly linked to arthritis and RA. It involves small vibrations and when trying it it did seem to lessen stiffness. I wondered if anyone
hedgehog45
in
NRAS
2 years ago
Painful Feet
When I was diagnosed with inflammatory arthritis 10 years ago, it affected my feet as well as other places; they also said I had mild osteoarthritis in my feet too. I gave up my heels and replaced them with low footwear. My feet have gradually worsened, which I have discussed many times with my rheumy
When I was diagnosed with inflammatory arthritis 10 years ago, it affected my feet as well as other places; they also said I had mild osteoarthritis in my feet too. I gave up my heels and replaced them with low footwear. My feet have gradually worsened, which I have discussed many times with my rheumy
NannyNooNoo
in
NRAS
2 years ago
I am having headaches not at the temple but over the eyes and top which is unusual. I’m on 10mg of Predisolone. Poor sleep and shoulder pain
Polymyalgia since August.2021 Thank you so much for mentioning Kate Gilbert’s book—Polymyalgia Rheumatica and Giant Cell
Arteritis
: a survival guide. 2nd edition. I wish I had it at the beginning!
Polymyalgia since August.2021 Thank you so much for mentioning Kate Gilbert’s book—Polymyalgia Rheumatica and Giant Cell
Arteritis
: a survival guide. 2nd edition. I wish I had it at the beginning!
Jazz77
in
PMRGCAuk
3 years ago
Auto immune and gallbladder
Hi everyone Has anyone gotten gallbladder and bile duct disease after auto immune diagnosis, e.g. RA inflammatory arthritis etc. Wondering if the two are related. Many thanks for any feedback
Hi everyone Has anyone gotten gallbladder and bile duct disease after auto immune diagnosis, e.g. RA inflammatory arthritis etc. Wondering if the two are related. Many thanks for any feedback
daisychains58
in
PBC Foundation
2 years ago
Gallbladder and bile duct disease
Hi everyone Has anyone gotten gallbladder and bile duct disease after auto immune diagnosis, e.g. RA inflammatory arthritis etc. Wondering if the two are related. Many thanks for any feedback.
Hi everyone Has anyone gotten gallbladder and bile duct disease after auto immune diagnosis, e.g. RA inflammatory arthritis etc. Wondering if the two are related. Many thanks for any feedback.
daisychains58
in
NRAS
2 years ago
Here for You
Sometimes it can be helpful to talk to someone else who understands what it is like to live with rheumatoid arthritis (RA). Sign yourself up to receive a phone call from a trained NRAS volunteer who has RA. For more information, click here: https://nras.org.uk/resource/here-for-you/
Sometimes it can be helpful to talk to someone else who understands what it is like to live with rheumatoid arthritis (RA). Sign yourself up to receive a phone call from a trained NRAS volunteer who has RA. For more information, click here: https://nras.org.uk/resource/here-for-you/
Aribah-NRAS
NRAS
in
NRAS
2 years ago
Hip and groin pain .
I started with left groin pain about 3 weeks ago . This sometimes goes around the outside of the hip . I saw a doctor ( not mine) and he thinks it is osteoarthritis. I have RA and OA and have had a knee replacement, same side , and a right elbow replacement. The doctor said he thought it was osteoarthritis
I started with left groin pain about 3 weeks ago . This sometimes goes around the outside of the hip . I saw a doctor ( not mine) and he thinks it is osteoarthritis. I have RA and OA and have had a knee replacement, same side , and a right elbow replacement. The doctor said he thought it was osteoarthritis
Briefencounter
in
NRAS
2 years ago
How to make a good post or question?
We know that using phones or tablets is more common and autocorrect etc can lead to some interesting results. Looking for support means you are asking questions and wanting answers. With any communication it is best to make it as easy for the other person to understand you and not make it harder than
We know that using phones or tablets is more common and autocorrect etc can lead to some interesting results. Looking for support means you are asking questions and wanting answers. With any communication it is best to make it as easy for the other person to understand you and not make it harder than
desquinn
FMAUK Trustee
in
Fibromyalgia Action UK
2 years ago
Applying for PIP
Please can anyone give me any advice on filling in my PIP form? I have fibromyalgia & have recently been diagnosed with Osteoarthritis in my Spine. Does anyone know if it's helpful to get (if you can) a letter from your GP? Is this really necessary? As it would cost to get this letter & not beneficial
Please can anyone give me any advice on filling in my PIP form? I have fibromyalgia & have recently been diagnosed with Osteoarthritis in my Spine. Does anyone know if it's helpful to get (if you can) a letter from your GP? Is this really necessary? As it would cost to get this letter & not beneficial
FibroAnnie57
in
Fibromyalgia Action UK
2 years ago
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