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Aplastic anaemia
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Full blown PV now
I was diagnosed with Jak2+ PV back in January 2020. At that time, I didn't have high RBC, Hemaglobin, or hematocrit. I had high platelets, high WBC, basophilia, and eosinophilia. My hematologist said she was calling it PV rather than ET due to the high counts other than my platelets. She was completely
I was diagnosed with Jak2+ PV back in January 2020. At that time, I didn't have high RBC, Hemaglobin, or hematocrit. I had high platelets, high WBC, basophilia, and eosinophilia. My hematologist said she was calling it PV rather than ET due to the high counts other than my platelets. She was completely
Lena70
in
MPN Voice
1 year ago
Transcobalamin
I have read often that B12 in the blood stream is not important and all that is important is the B12 available at the cellular level. I have not read as of yet that it is possible to experience both PA and an inborn transcobalamin error. It seems to be a one or the other method. With an inborn transcobalamin
I have read often that B12 in the blood stream is not important and all that is important is the B12 available at the cellular level. I have not read as of yet that it is possible to experience both PA and an inborn transcobalamin error. It seems to be a one or the other method. With an inborn transcobalamin
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
Blood test questions
Hi everyone, I got back my third major blood panel. The only things that have been (slightly) high each time since starting the pred were my WBC and hemoglobin. Is this the normal for 25mg pred? Or something I should worry more about? Also, I haven't gotten a blood test for IL-6 yet. If I do, and if
Hi everyone, I got back my third major blood panel. The only things that have been (slightly) high each time since starting the pred were my WBC and hemoglobin. Is this the normal for 25mg pred? Or something I should worry more about? Also, I haven't gotten a blood test for IL-6 yet. If I do, and if
sferios
in
PMRGCAuk
1 year ago
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Vitamin levels
Hi, it's me again.Just got my vitamin levels back from Docs. Serum total 25-OH vit D level-(RAB)-Normal. 79. Vitamin B12 . 384ng/L Serum Folate 6.6 ug/l Serum Ferritin 73 ug/L. I am currently taking 1000iu of Vitamin D. 500ug of Vitamin B12. I am not taking any supplements for Folate or Ferritin.
Hi, it's me again.Just got my vitamin levels back from Docs. Serum total 25-OH vit D level-(RAB)-Normal. 79. Vitamin B12 . 384ng/L Serum Folate 6.6 ug/l Serum Ferritin 73 ug/L. I am currently taking 1000iu of Vitamin D. 500ug of Vitamin B12. I am not taking any supplements for Folate or Ferritin.
sylus_911
in
Thyroid UK
1 year ago
Pregnancy loss and more results
Hello, I posted a couple of days ago re 3 miscarriages and suboptimal thyroid results (the screenshot). Today I've had some results back from the gp - serum B12, serum folate and serum ferritin. I am waiting for these same results (and vitD) from monitor my health. Also waiting for the full thyroid screen
Hello, I posted a couple of days ago re 3 miscarriages and suboptimal thyroid results (the screenshot). Today I've had some results back from the gp - serum B12, serum folate and serum ferritin. I am waiting for these same results (and vitD) from monitor my health. Also waiting for the full thyroid screen
staceedin
in
Thyroid UK
1 year ago
Subacute thyroiditis and sub clinical hypothyroidism
Hello, just asking for your opinion on whether I should start treatment or not for sub clinical hypothyroidism after subacute thyroiditis. I'm now it seems in the hypothyroid phase of this horrible illness ( subacute thyroiditis is like the gift that keeps on giving!) after becoming ill in October with
Hello, just asking for your opinion on whether I should start treatment or not for sub clinical hypothyroidism after subacute thyroiditis. I'm now it seems in the hypothyroid phase of this horrible illness ( subacute thyroiditis is like the gift that keeps on giving!) after becoming ill in October with
Julietilly22
in
Thyroid UK
1 year ago
augmentation pregabilin
Hi I have been taking pregabilin 150 mg early evening which has been very effective up until recently, for my RLS. I have complex medical issues and have recently had an iron infusion. I have a 12 hour abdominal surgery due on 26 th September. I would just like clarification that augmentation is
Hi I have been taking pregabilin 150 mg early evening which has been very effective up until recently, for my RLS. I have complex medical issues and have recently had an iron infusion. I have a 12 hour abdominal surgery due on 26 th September. I would just like clarification that augmentation is
Esme2007
in
Restless Legs Syndrome
1 year ago
Please help with blood results for iron status
Hi everyone, I hope someone can tell me what's going on with my iron status and whether I need iron supplements ( hair loss, fatigue).My GP isn't that attentive and I was told all was OK with now explaining about markers. Serum Tibc 45 umol/l (range 53-85) Serum iron level 27 unol/l ( range 12-36) Serum
Hi everyone, I hope someone can tell me what's going on with my iron status and whether I need iron supplements ( hair loss, fatigue).My GP isn't that attentive and I was told all was OK with now explaining about markers. Serum Tibc 45 umol/l (range 53-85) Serum iron level 27 unol/l ( range 12-36) Serum
sasha_nico
in
Thyroid UK
1 year ago
paradoxical B12 deficiency. Might this be my problem? Anybody know how to treat?
Hello, I’m wondering if this might be the answer to some of my lingering symptoms some of which are neurological. I’ve always had high levels of B12 in all my Medichecks blood tests. I’ve been hypo for decades and have now settled on 40mcg of T3 split over 2 doses daily and test twice a year. I have
Hello, I’m wondering if this might be the answer to some of my lingering symptoms some of which are neurological. I’ve always had high levels of B12 in all my Medichecks blood tests. I’ve been hypo for decades and have now settled on 40mcg of T3 split over 2 doses daily and test twice a year. I have
Bertwills
in
Thyroid UK
1 year ago
Preservatives in B12 injections - does frequency matter?
Hi all, I'm hoping for some insight about what effect the preservatives in different B12 injections have (or don't have) on us. I know I've heard some members of the PAS from the U.S. talk about the hydroxocobalamin administered in the States as having a lot of parabens, with the insinuation that they
Hi all, I'm hoping for some insight about what effect the preservatives in different B12 injections have (or don't have) on us. I know I've heard some members of the PAS from the U.S. talk about the hydroxocobalamin administered in the States as having a lot of parabens, with the insinuation that they
Cobalt1312
in
Pernicious Anaemia Society
1 year ago
Exhaustion
Is exhaustion just something we have to put up with if you have PA? I’m SI Hydroxocobalamin twice a week with folate supplements , in between getting it from my GP every 2 months. I’m taking a B complex with 5 mg of B6. Potassium is fine, ferritin on the up 65 but I’m still taking gentle iron supplements
Is exhaustion just something we have to put up with if you have PA? I’m SI Hydroxocobalamin twice a week with folate supplements , in between getting it from my GP every 2 months. I’m taking a B complex with 5 mg of B6. Potassium is fine, ferritin on the up 65 but I’m still taking gentle iron supplements
Sea-blue
in
Pernicious Anaemia Society
1 year ago
Blood test follow up
Thank you all for your help. Results of discussion with doc - Parathyroid hormone: 10.93 (range 1.5-7.2), higher than range but lower than a year ago apparently (14+). This was a few months before my GCA diagnosis. Still waiting on results for B12, iron, folate. A year ago vit D levels and calcium
Thank you all for your help. Results of discussion with doc - Parathyroid hormone: 10.93 (range 1.5-7.2), higher than range but lower than a year ago apparently (14+). This was a few months before my GCA diagnosis. Still waiting on results for B12, iron, folate. A year ago vit D levels and calcium
Bluey-1
in
PMRGCAuk
1 year ago
low Ferritin
recently had blood tests at GP’s and would be grateful for comments from other hypothyroid patients. FBC TWCc 5.1 (4.0-11) Hb 132g/L (115-165) Platelet count 228 (150-400) RBC 4.18 (3.80-5.50) Haematocrit (0.37-0.47) MCV 94fL (80-100) MCH 31.7 pg (27.0-33.0) Red blood cell distribution width
recently had blood tests at GP’s and would be grateful for comments from other hypothyroid patients. FBC TWCc 5.1 (4.0-11) Hb 132g/L (115-165) Platelet count 228 (150-400) RBC 4.18 (3.80-5.50) Haematocrit (0.37-0.47) MCV 94fL (80-100) MCH 31.7 pg (27.0-33.0) Red blood cell distribution width
Beardies2
in
Thyroid UK
1 year ago
A case study post bariatric surgery
For anyone who has access to twitter, this case study posted yesterday might be of some interest. Probably as much for the discussion as the original case. (Don't get too excited! It is just another case where the origination of the problem doesn't get blamed. As I see it, the cause was iatrogenic and
For anyone who has access to twitter, this case study posted yesterday might be of some interest. Probably as much for the discussion as the original case. (Don't get too excited! It is just another case where the origination of the problem doesn't get blamed. As I see it, the cause was iatrogenic and
helvella
in
Pernicious Anaemia Society
1 year ago
Why do I have a high pulse?
I hope someone can help me. I was diagnosed with pernicious anaemia after asking to be tested. It turned out my Vitamin B12 level was 117 pmol/l. I was given cyancobalamine injections every 3 months. No loading doses. Later SI weekly with methylcobalamine I order from Germany. Lately, I have the
I hope someone can help me. I was diagnosed with pernicious anaemia after asking to be tested. It turned out my Vitamin B12 level was 117 pmol/l. I was given cyancobalamine injections every 3 months. No loading doses. Later SI weekly with methylcobalamine I order from Germany. Lately, I have the
Bluemuffin
in
Pernicious Anaemia Society
1 year ago
Thyroid and Folate deficiency
I've been on Levothyroxine for many years (100mg). After contracting Covid last year and being unable to match previous physical performances, I was diagnosed with a folate deficiency. I was told this was common post Covid, was prescribed folic acid tablets and saw an immediate improvement. I was told
I've been on Levothyroxine for many years (100mg). After contracting Covid last year and being unable to match previous physical performances, I was diagnosed with a folate deficiency. I was told this was common post Covid, was prescribed folic acid tablets and saw an immediate improvement. I was told
rob1958
in
Thyroid UK
1 year ago
8 week bloodtest
After my last bloodtest I reduced my levothyroxine dose to 137.5mcg, i am still supplementing with B Complex, 1 ferrous fumarate iron tablet a day with vit c capsule, 5000iu vitamin D and a magnesium capsule. These are my latest test results after 8 weeks, i stopped the B complex and iron tablets a
After my last bloodtest I reduced my levothyroxine dose to 137.5mcg, i am still supplementing with B Complex, 1 ferrous fumarate iron tablet a day with vit c capsule, 5000iu vitamin D and a magnesium capsule. These are my latest test results after 8 weeks, i stopped the B complex and iron tablets a
catpurple7
in
Thyroid UK
1 year ago
Ferratin level
Hi. Probably in t he wrong section but all thoughts welcome. My ferratin is in the 'normal' range but low and dropping, even though I have been taking oral iron spray daily, liquid iron supplement given by my doctor, high iron foods in my diet. I get days of complete fatigue, other days I can cope but
Hi. Probably in t he wrong section but all thoughts welcome. My ferratin is in the 'normal' range but low and dropping, even though I have been taking oral iron spray daily, liquid iron supplement given by my doctor, high iron foods in my diet. I get days of complete fatigue, other days I can cope but
fiftyone
in
Thyroid UK
1 year ago
Will NHS GP accept results of Medichecks IFAB test if positive?
Thinking of testing privately for PA as have not managed to persuade my GP that declining B12 levels are a possible cause of increased fatigue, nerve pain and other symptoms. Latest test showed B12 at 212 range (211 - 911). I have Hashimotos and have corrected folate deficiency on prescription for
Thinking of testing privately for PA as have not managed to persuade my GP that declining B12 levels are a possible cause of increased fatigue, nerve pain and other symptoms. Latest test showed B12 at 212 range (211 - 911). I have Hashimotos and have corrected folate deficiency on prescription for
Realtiger
in
Pernicious Anaemia Society
1 year ago
New pernicious anaemia diagnosis
Hi, I am a 20 year old female who has recently been diagnosed with pernicious anaemia (around the start of April). I was experiencing extreme tingling in my hands and feet which promoted the doctors to check my B-12 levels. Since having my initial loading doses, some of my symptoms have improved whilst
Hi, I am a 20 year old female who has recently been diagnosed with pernicious anaemia (around the start of April). I was experiencing extreme tingling in my hands and feet which promoted the doctors to check my B-12 levels. Since having my initial loading doses, some of my symptoms have improved whilst
Ellamae2
in
Pernicious Anaemia Society
1 year ago
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