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Antihemophilic factor
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B12
Just finished Loading dose of 6 injections over two weeks and told by GP that can have 1 injection every 3 months although i provided the BNF info which has clearly not been read which i posted for the GP to read in advance to my appointment as i have a few B12 symptoms GP talked about overdosing on
Just finished Loading dose of 6 injections over two weeks and told by GP that can have 1 injection every 3 months although i provided the BNF info which has clearly not been read which i posted for the GP to read in advance to my appointment as i have a few B12 symptoms GP talked about overdosing on
Advice1
in
Pernicious Anaemia Society
8 years ago
Celiac screening
Looking at celiac.org, they say NICE has advised that those with autoimmune thyroiditis should be offered celiac test on diagnosis ... is this happening? Didn't happen to me. Very sensible though, and I think we should even more be screened for autoimmune gastritis, with the gp asking if we Are taking
Looking at celiac.org, they say NICE has advised that those with autoimmune thyroiditis should be offered celiac test on diagnosis ... is this happening? Didn't happen to me. Very sensible though, and I think we should even more be screened for autoimmune gastritis, with the gp asking if we Are taking
Hidden
in
Thyroid UK
8 years ago
Do parietal antibodies come and go?
I know the intrinsic factor test only comes back positive half the time in AIG, is it the experience of members that the parietal antibody test result can come and go too? I tested myself some years ago and was negative, I didn't test intrinsic factor ... does that result rule AIG out for me?
I know the intrinsic factor test only comes back positive half the time in AIG, is it the experience of members that the parietal antibody test result can come and go too? I tested myself some years ago and was negative, I didn't test intrinsic factor ... does that result rule AIG out for me?
Hidden
in
Pernicious Anaemia Society
8 years ago
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I am so frustrated by NHS doctors that I may never go back. I have just been told that if I had pernicious amaemia the intrinsic factor anti body test would be positive. I pointed out that 50% of people with it dont have a positive test and I was told that the test is 100% effective and negative means
I am so frustrated by NHS doctors that I may never go back. I have just been told that if I had pernicious amaemia the intrinsic factor anti body test would be positive. I pointed out that 50% of people with it dont have a positive test and I was told that the test is 100% effective and negative means
Alison-Thomas
in
Pernicious Anaemia Society
8 years ago
Results for daughter, advice needed
My daughter is 21, exhausted, cold, thin, clearly sick, exercises, healthy lifestyle, no drink or drugs. I have Hashis, so I Blue Horizoned her. A few years ago her TSH was 2, now it is 3.02, so it is now failing, though there are not yet enough antibodies for Hashis they are rising. No inflammation
My daughter is 21, exhausted, cold, thin, clearly sick, exercises, healthy lifestyle, no drink or drugs. I have Hashis, so I Blue Horizoned her. A few years ago her TSH was 2, now it is 3.02, so it is now failing, though there are not yet enough antibodies for Hashis they are rising. No inflammation
Hidden
in
Pernicious Anaemia Society
8 years ago
New to RA
Hi, I'm absolutely new to this RA , it all started with swollen DIp joint in my finger, a few weeks later spread to a few more DIP joints on my other hand, orthopedic I went to see , sad it looks like RA, I took a test and Rheumatoid Factor came positive, I have An appointment with rheumatologist on
Hi, I'm absolutely new to this RA , it all started with swollen DIp joint in my finger, a few weeks later spread to a few more DIP joints on my other hand, orthopedic I went to see , sad it looks like RA, I took a test and Rheumatoid Factor came positive, I have An appointment with rheumatologist on
Iryna72
in
NRAS
8 years ago
Advice please :(
Just spoken to my dr regarding my intrinsic factor antibody test result to be told "it has come back as negative so that means I definitely don't have PA" I asked about the test being flawed she dismissed this and said "you definitely don't have PA because the test was negative and your not even aneamic
Just spoken to my dr regarding my intrinsic factor antibody test result to be told "it has come back as negative so that means I definitely don't have PA" I asked about the test being flawed she dismissed this and said "you definitely don't have PA because the test was negative and your not even aneamic
Icymind
in
Pernicious Anaemia Society
8 years ago
MTHFR
I'm fairly new here and this is my first post. Has anyone had genetic testing for MTHFR polymorphism? I am awaiting genetic test results but based on my family history, my not-yet-managed B vitamin deficiency seems to be due to polymorphism. The defect is very common but affects people differently.
I'm fairly new here and this is my first post. Has anyone had genetic testing for MTHFR polymorphism? I am awaiting genetic test results but based on my family history, my not-yet-managed B vitamin deficiency seems to be due to polymorphism. The defect is very common but affects people differently.
Statesideheather
in
Pernicious Anaemia Society
8 years ago
Help with Results Please?
Hi everyone, I've just got results back from the doctors and I'll give previous results as well. But I have literally all the symptoms and a family history for Graves and Hashimoto's and other autoimmune conditions. I also have (through all this testing) been diagnosed with celiacs. They want to look
Hi everyone, I've just got results back from the doctors and I'll give previous results as well. But I have literally all the symptoms and a family history for Graves and Hashimoto's and other autoimmune conditions. I also have (through all this testing) been diagnosed with celiacs. They want to look
thecanadianjen
in
Thyroid UK
8 years ago
This is not a good week, old diagnoses new to me! and new to forum
Hello Writing for some advice and support please. I live with hashi, sle lupus and raynaunds, I see endo and rhmy and Gp just for blood test results, there is no care from them. I take liothyroxine t3 only with much success, a battle in itself, I manage my life and work well (spoon theory) and just
Hello Writing for some advice and support please. I live with hashi, sle lupus and raynaunds, I see endo and rhmy and Gp just for blood test results, there is no care from them. I take liothyroxine t3 only with much success, a battle in itself, I manage my life and work well (spoon theory) and just
weg1
in
Pernicious Anaemia Society
8 years ago
Curious
I recent had what I thought was going to be an Intrinsic Factor Antibody blood test, it actually transpires that my bloods were sent on for further tests (IF not done I don't believe) but I have now had a Serum Methylmalonic Acid Level test done which gives a result of 0.33 (range 0 - .29 umol/L). The
I recent had what I thought was going to be an Intrinsic Factor Antibody blood test, it actually transpires that my bloods were sent on for further tests (IF not done I don't believe) but I have now had a Serum Methylmalonic Acid Level test done which gives a result of 0.33 (range 0 - .29 umol/L). The
Geordi
in
Pernicious Anaemia Society
8 years ago
New here and full of questions. Confused and worried.
Hi I'm new here and looking for some advice as a bit confused and worried. After a long time wondering what was wrong with me I was told I was b12 deficient in April this year, my level was 68. However I was told that the intrinsic factor test was negative so I don't have pernicious anaemia. I received
Hi I'm new here and looking for some advice as a bit confused and worried. After a long time wondering what was wrong with me I was told I was b12 deficient in April this year, my level was 68. However I was told that the intrinsic factor test was negative so I don't have pernicious anaemia. I received
Bodley
in
Pernicious Anaemia Society
8 years ago
Curious
I recent had what I thought was going to be an Intrinsic Factor Antibody blood test, it actually transpires that my bloods were sent on for further tests (IF not done I don't believe) but I have now had a Serum Methylmalonic Acid Level test done which gives a result of 0.33 (range 0 - .29 umol/L). The
I recent had what I thought was going to be an Intrinsic Factor Antibody blood test, it actually transpires that my bloods were sent on for further tests (IF not done I don't believe) but I have now had a Serum Methylmalonic Acid Level test done which gives a result of 0.33 (range 0 - .29 umol/L). The
Geordi
in
Thyroid UK
8 years ago
Macrocytosic should it improve on b12 ?
Hi all Just joined this forum, quick background. After much misdiagnosis it was confirmed I had auto immuno chronic ulcerative colitis over 20 years age. Medication didn't work and too many STERIODS taken over 10 years i'v been on azathioprine . About 4 years back the gastro team were concerned my
Hi all Just joined this forum, quick background. After much misdiagnosis it was confirmed I had auto immuno chronic ulcerative colitis over 20 years age. Medication didn't work and too many STERIODS taken over 10 years i'v been on azathioprine . About 4 years back the gastro team were concerned my
Bobonut
in
Pernicious Anaemia Society
8 years ago
Do I have RA
For the past 2 years I've had joint pain in both wrists and all my fingers, to start with it was more so just annoying and not that bad but the doctor took bloods and made a referral to the rheumatologist due to my gran having ra,fibro, spondylitis and my auntie having fibro but my blood tests came back
For the past 2 years I've had joint pain in both wrists and all my fingers, to start with it was more so just annoying and not that bad but the doctor took bloods and made a referral to the rheumatologist due to my gran having ra,fibro, spondylitis and my auntie having fibro but my blood tests came back
Amymac818
in
NRAS
8 years ago
Confused over b12/IFAb results - what to do next!
Hello nice people, I'm new here on PAS, I have posted on Thyroid UK before as I have hypothyroidism (Hashimoto's). I had some private tests done for thyroid levels which included vitamin checks too and they showed the following: 8/7/16 B12 serum 179.7pg/ml (191-663) Folate serum 9.61ug/L. (4.6-18.7
Hello nice people, I'm new here on PAS, I have posted on Thyroid UK before as I have hypothyroidism (Hashimoto's). I had some private tests done for thyroid levels which included vitamin checks too and they showed the following: 8/7/16 B12 serum 179.7pg/ml (191-663) Folate serum 9.61ug/L. (4.6-18.7
Rae1667
in
Pernicious Anaemia Society
8 years ago
Natural Treatment
Hello to all. I was recently diagnosed with endometrias on both ovaries, endometriosis. I am looking towards natural remedies before attempting prescribed meds. Has anyone tried using systemic enzymes and castor oil packs? Did it relieve pain and/or reduce endometrial tissue?
Hello to all. I was recently diagnosed with endometrias on both ovaries, endometriosis. I am looking towards natural remedies before attempting prescribed meds. Has anyone tried using systemic enzymes and castor oil packs? Did it relieve pain and/or reduce endometrial tissue?
KeepingTheFaith
in
Endometriosis UK
8 years ago
Gastroscopy and colonoscopy came back "normal". What now?
Some advice needed please... Almost 2 years ago I was very symptomatic (brain fogs, tiredness, mouth ulcers etc), and had a B12 reading of 127 (range 180-900). I fought hard to get B12 injections. Tests for Intrinsic Factor and Parietal Cells came back negative and the Dr and haematologist have both
Some advice needed please... Almost 2 years ago I was very symptomatic (brain fogs, tiredness, mouth ulcers etc), and had a B12 reading of 127 (range 180-900). I fought hard to get B12 injections. Tests for Intrinsic Factor and Parietal Cells came back negative and the Dr and haematologist have both
jw44
in
Pernicious Anaemia Society
8 years ago
Parietal cell test
Hi everyone, I'm new here and had a couple questions. A little history.. I had the parietal cell antibody test done (3 times) and each time my test has come back abnormal with a reading of 113.5 or higher. My intrinsic factor was negative about a year ago and hasn't been tested since. My B12 levels have
Hi everyone, I'm new here and had a couple questions. A little history.. I had the parietal cell antibody test done (3 times) and each time my test has come back abnormal with a reading of 113.5 or higher. My intrinsic factor was negative about a year ago and hasn't been tested since. My B12 levels have
yogamom1
in
Pernicious Anaemia Society
8 years ago
Intrinsic Factor and Omeprazole
Morning All. Newly prescribed vitamin B compound strong tablets. To be honest I didn't know very much about B12 deficiency. Having now looked on the net and on reading members posts I can see how easily I dismissed symptoms and thank goodness for a GP whom I don't normally see checking my haemoglobin
Morning All. Newly prescribed vitamin B compound strong tablets. To be honest I didn't know very much about B12 deficiency. Having now looked on the net and on reading members posts I can see how easily I dismissed symptoms and thank goodness for a GP whom I don't normally see checking my haemoglobin
marfannie1907
in
Pernicious Anaemia Society
8 years ago
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