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Flare? But 'normal' CRP? Sick of feeling so sick!
Me again...... bit of an essay... 13 years RA on hydroxychloroquine, and approx 12 weeks on methotrexate/folic acid. In the last few months I've had steroid injection twice on advice from rheumatoid advice line at hospital as been feeling so rough, but gp yesterday said my crp is normal as is esr, although
Me again...... bit of an essay... 13 years RA on hydroxychloroquine, and approx 12 weeks on methotrexate/folic acid. In the last few months I've had steroid injection twice on advice from rheumatoid advice line at hospital as been feeling so rough, but gp yesterday said my crp is normal as is esr, although
girli1111
in
NRAS
7 years ago
So annoyed
Got my bloods done last week and just rang for my results I was to get b12 iron and thyroid check . I also sneakily asked for intrinsic factor to be done so iv just found out I only had iron done . I'm so annoyed as I was at my lowest last week and wanted to see what blood results were prior to getting
Got my bloods done last week and just rang for my results I was to get b12 iron and thyroid check . I also sneakily asked for intrinsic factor to be done so iv just found out I only had iron done . I'm so annoyed as I was at my lowest last week and wanted to see what blood results were prior to getting
Andypandy30
in
Pernicious Anaemia Society
7 years ago
Joints pain, stiffness and pain in fingers and toes mostly during night
Hi, I am new here but eager to find the cause of my symptoms which are making my life undesirable since I got into menopause period. Since 2012 when it first started I had first rashes and bad sleeping issues, fatigue, later joints pain. I was diagnosed with Hashimoto disease in Romania, my home country
Hi, I am new here but eager to find the cause of my symptoms which are making my life undesirable since I got into menopause period. Since 2012 when it first started I had first rashes and bad sleeping issues, fatigue, later joints pain. I was diagnosed with Hashimoto disease in Romania, my home country
Anca-Mihaela
in
Thyroid UK
7 years ago
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Thinking of stopping my chemo
Hi, I've had TERRIBLE bone pain in my shoulder for over a month now. Even doing the simplest thing has me crying out in pain, it even wakes me from a sleep. Paracetamol does nothing. I never had pain like this till i started H.U 😣😣 any onr else ? Doc checked my uric acid and it's not gout. Rheumatoid
Hi, I've had TERRIBLE bone pain in my shoulder for over a month now. Even doing the simplest thing has me crying out in pain, it even wakes me from a sleep. Paracetamol does nothing. I never had pain like this till i started H.U 😣😣 any onr else ? Doc checked my uric acid and it's not gout. Rheumatoid
Lainy1
in
MPN Voice
7 years ago
GP appointment
Hi I had my GP appointment on Friday which went well (I think) I am now taking 150mcg levothyroxine from 125mcg levothyroxine with a repeat test in 6-8 weeks. I have also had it confirmed I have Hashimoto's thyroiditis and I need to avoid gluten and possibly dairy since I am lactose intolerant. TSH
Hi I had my GP appointment on Friday which went well (I think) I am now taking 150mcg levothyroxine from 125mcg levothyroxine with a repeat test in 6-8 weeks. I have also had it confirmed I have Hashimoto's thyroiditis and I need to avoid gluten and possibly dairy since I am lactose intolerant. TSH
Zoeyv
in
Thyroid UK
7 years ago
Neurology letter and advice on plan of action please to get some B12 treatment or a diagnosis
Hi Everyone, Hope you are all well today. I've just recently had a neurology appointment that the GP referred me to about my B12 deficiency diagnosis. The letter says I have cognitive decline of uncertain cause. The physical exam says I have brisk but symmetrical reflexes but also some upper limb
Hi Everyone, Hope you are all well today. I've just recently had a neurology appointment that the GP referred me to about my B12 deficiency diagnosis. The letter says I have cognitive decline of uncertain cause. The physical exam says I have brisk but symmetrical reflexes but also some upper limb
Cn13
in
Pernicious Anaemia Society
7 years ago
Auto-Immune Disease
Hi, I am trying to find the root autoimmune disease causing so many symptoms. TSH (3.38), T4 110 in range (59.00-154.00), with TPO Negative and [u]Thyroglobulin Antibody *329 (0-115). Low vitamin D 25 OH (37)[/u] which I am now supplementing. [u]Smooth muscle antibody positive and Gastric Perietal
Hi, I am trying to find the root autoimmune disease causing so many symptoms. TSH (3.38), T4 110 in range (59.00-154.00), with TPO Negative and [u]Thyroglobulin Antibody *329 (0-115). Low vitamin D 25 OH (37)[/u] which I am now supplementing. [u]Smooth muscle antibody positive and Gastric Perietal
whatis
in
Thyroid UK
7 years ago
Self Injecting B12
Hi My B12 is always low unless I supplement. I am so sick of taking so many pills every day to assist in my health upkeep. I have Hashimoto’s which had advanced enough to cause Primary Hypothyroidism. I also have Coeliac Disease but this is well controlled with a strict Gluten Free Diet. Does anyone
Hi My B12 is always low unless I supplement. I am so sick of taking so many pills every day to assist in my health upkeep. I have Hashimoto’s which had advanced enough to cause Primary Hypothyroidism. I also have Coeliac Disease but this is well controlled with a strict Gluten Free Diet. Does anyone
Pamela0106
in
Pernicious Anaemia Society
7 years ago
Contemplating Self Administering B12 Injections
My B12 is always low unless I supplement. I am so sick of taking so many pills every day to assist in my health upkeep. I have Hashimoto’s which had advanced enough to cause Primary Hypothyroidism. I also have Coeliac Disease but this is well controlled with a strict Gluten Free Diet. Does anyone
My B12 is always low unless I supplement. I am so sick of taking so many pills every day to assist in my health upkeep. I have Hashimoto’s which had advanced enough to cause Primary Hypothyroidism. I also have Coeliac Disease but this is well controlled with a strict Gluten Free Diet. Does anyone
Pamela0106
in
Thyroid UK
7 years ago
intrinsic factor antibody test
Hi, just had another round of blood tests my anti body test was 1,11 U/ml which registered as negative because normal is 1,2 but does that still mean I have a significant amount of antibodies in the blood? I've also read the test could be altered if you are supplementing b12 (I've had 6 loading doses
Hi, just had another round of blood tests my anti body test was 1,11 U/ml which registered as negative because normal is 1,2 but does that still mean I have a significant amount of antibodies in the blood? I've also read the test could be altered if you are supplementing b12 (I've had 6 loading doses
lunez22
in
Pernicious Anaemia Society
7 years ago
Other results
Thyroid peroxidase 395 (<34) and thyroglobulin 276.1 (<115) were done privately because previous GP wasn't listening to symptoms. Also have results for Ferritin 53 (30 - 400) haematologist wants this above 50 B12 286 (180 - 900) Vitamin D 60.3 (50 - 75 vitamin D may be suboptimal and long term may lead
Thyroid peroxidase 395 (<34) and thyroglobulin 276.1 (<115) were done privately because previous GP wasn't listening to symptoms. Also have results for Ferritin 53 (30 - 400) haematologist wants this above 50 B12 286 (180 - 900) Vitamin D 60.3 (50 - 75 vitamin D may be suboptimal and long term may lead
J1228
in
Thyroid UK
7 years ago
Feedback please
Been started on 50mcg levothyroxine, also prescribed ferrous fumarate to take 3 times a day, loading doses of B12 and vit D, prescribed folic acid and being tested for intrinsic factor antibodies and coeliac disease, also addisons. TGAB >2000 (<115) TPOAB 89.5 (<34) TSH 48.7 (0.2 - 4.2) FREE T4 11.3
Been started on 50mcg levothyroxine, also prescribed ferrous fumarate to take 3 times a day, loading doses of B12 and vit D, prescribed folic acid and being tested for intrinsic factor antibodies and coeliac disease, also addisons. TGAB >2000 (<115) TPOAB 89.5 (<34) TSH 48.7 (0.2 - 4.2) FREE T4 11.3
Ems5
in
Thyroid UK
7 years ago
Started levothyroxine
Started 50mcg levothyroxine by GP today and getting retested 6 - 8 weeks later is this right? Also gotten tested for intrinsic factor antibodies, given loading dose of B12 and vit D and told not to start folic acid until intrinsic factor. Also complete blood count shows below range MCV and above range
Started 50mcg levothyroxine by GP today and getting retested 6 - 8 weeks later is this right? Also gotten tested for intrinsic factor antibodies, given loading dose of B12 and vit D and told not to start folic acid until intrinsic factor. Also complete blood count shows below range MCV and above range
Aimee1314
in
Thyroid UK
7 years ago
Stuck and don't know where to turn
Please can someone tell me simply . 1)what is the best b12 supplement to take while waiting for 3 monthly injections as I am not well after a week until next one . 2) can someone tell me why my doctor won't do the test for intrinsic factor ? To find out if I have pernicious anaemia ? 3) if
Please can someone tell me simply . 1)what is the best b12 supplement to take while waiting for 3 monthly injections as I am not well after a week until next one . 2) can someone tell me why my doctor won't do the test for intrinsic factor ? To find out if I have pernicious anaemia ? 3) if
Andypandy30
in
Pernicious Anaemia Society
7 years ago
Dose increase
GP has raised my dose of levo from 25mcg to 50mcg tonight due to below results and a retest in 6-8 weeks. I was diagnosed 2012. Thyroid peroxidase 395 (<34) and thyroglobulin 276.1 (<115) they were done privately because previous GP wasn't listening to symptoms. Also being tested for Ferritin B12 Vitamin
GP has raised my dose of levo from 25mcg to 50mcg tonight due to below results and a retest in 6-8 weeks. I was diagnosed 2012. Thyroid peroxidase 395 (<34) and thyroglobulin 276.1 (<115) they were done privately because previous GP wasn't listening to symptoms. Also being tested for Ferritin B12 Vitamin
J1228
in
Thyroid UK
7 years ago
TPO Antibody Reduction 🙌🏼😍
Finally managed to make a dent in my TPO Antibodies. They were initially tested to be >1000 and now down to 551. Apart from Levothyroxine and most recently T3 treatment included I have only changed 2 other things: - I went Gluten Free (because I was also diagnosed Coeliac) - I cut out Fluoride Toothpaste
Finally managed to make a dent in my TPO Antibodies. They were initially tested to be >1000 and now down to 551. Apart from Levothyroxine and most recently T3 treatment included I have only changed 2 other things: - I went Gluten Free (because I was also diagnosed Coeliac) - I cut out Fluoride Toothpaste
Pamela0106
in
Thyroid UK
7 years ago
Recently diagnosed
My RA symptoms came on quite suddenly about 6 weeks ago and have persisted ever since. I have hand pain and swelling every night and I feel like I have extra pads on the balls of my feet all the time. I've been on Vimovo (naproxen) twice a day for about three weeks and my symptoms have improved although
My RA symptoms came on quite suddenly about 6 weeks ago and have persisted ever since. I have hand pain and swelling every night and I feel like I have extra pads on the balls of my feet all the time. I've been on Vimovo (naproxen) twice a day for about three weeks and my symptoms have improved although
5halifax
in
NRAS
7 years ago
Test results
I have previously posted about other results and symptoms. I have paid for a medicheck Thyroid check ultra and have an appointment with my GP on the 11th October. He has been very thorough and I have been referred to a gastro, am awaiting endoscopy and MRI of intestine, and have seen a urologist for
I have previously posted about other results and symptoms. I have paid for a medicheck Thyroid check ultra and have an appointment with my GP on the 11th October. He has been very thorough and I have been referred to a gastro, am awaiting endoscopy and MRI of intestine, and have seen a urologist for
Ty-phoon
in
Pernicious Anaemia Society
7 years ago
Test results
I have previously posted about other results and symptoms. I have paid for a medicheck Thyroid check ultra and have an appointment with my GP on the 11th October. He has been very thorough and I have been referred to a gastro, am awaiting endoscopy and MRI of intestine, and have seen a urologist for
I have previously posted about other results and symptoms. I have paid for a medicheck Thyroid check ultra and have an appointment with my GP on the 11th October. He has been very thorough and I have been referred to a gastro, am awaiting endoscopy and MRI of intestine, and have seen a urologist for
Ty-phoon
in
Thyroid UK
7 years ago
I am sleepy every second of my life
Hello. I haven't been diagnosed with fibro, I'm just posting here because maybe someone can relate or help me. What could cause me to be sleepy every single second? I've got a positive rheumatoid factor of 450 and IgM of 3.1 and calprotectin of 90. I am going back and forth to the hospital for evaluation
Hello. I haven't been diagnosed with fibro, I'm just posting here because maybe someone can relate or help me. What could cause me to be sleepy every single second? I've got a positive rheumatoid factor of 450 and IgM of 3.1 and calprotectin of 90. I am going back and forth to the hospital for evaluation
WK1010
in
Fibromyalgia Action UK
7 years ago
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