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Antihemophilic factor
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Still fighting for injections
Hi all My intrinsic factor result came back fine so told in range again no further action , so went to see dr today , she said no to injections and to try supplements , so I've ordered Jarrows. Should I change surgeries or self inject or I don't know!? I'm at a loss as my b12 is 168 I've asked 3 Drs
Hi all My intrinsic factor result came back fine so told in range again no further action , so went to see dr today , she said no to injections and to try supplements , so I've ordered Jarrows. Should I change surgeries or self inject or I don't know!? I'm at a loss as my b12 is 168 I've asked 3 Drs
Ndobins
in
Pernicious Anaemia Society
8 years ago
So much for my confidence !
Well a little while back I posted a rep!y to a query about people being forced onto tablets instead of injections......the nurse practitioner at my surgery had asked me to change but when I told her I have no Intrinsic Factor she agreed I would need to stay on injections. How wrong can you be..at a gp
Well a little while back I posted a rep!y to a query about people being forced onto tablets instead of injections......the nurse practitioner at my surgery had asked me to change but when I told her I have no Intrinsic Factor she agreed I would need to stay on injections. How wrong can you be..at a gp
ellj
in
Pernicious Anaemia Society
8 years ago
I'm new here, would say hello to everyone
Hello everyone, I am new here but I have been reading the posts here for weeks and found that people here are very kind. I'd like to write about my condition and seek for help. My feet have been in pain for two months now and are getting worse, I can rarely walk in the morning, struggling to get to work
Hello everyone, I am new here but I have been reading the posts here for weeks and found that people here are very kind. I'd like to write about my condition and seek for help. My feet have been in pain for two months now and are getting worse, I can rarely walk in the morning, struggling to get to work
dahongbudong
in
NRAS
8 years ago
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Why is it so difficult to Interact with G.P.s ?
Hello. This is my first post, although I have been a lurker for some time. I am 65, female, with many symptoms which brought me to this forum. I thought I was B12 deficient about a year ago after finding information by accident which appeared to sum me up completely. So, I started taking B12, but nothing
Hello. This is my first post, although I have been a lurker for some time. I am 65, female, with many symptoms which brought me to this forum. I thought I was B12 deficient about a year ago after finding information by accident which appeared to sum me up completely. So, I started taking B12, but nothing
SweetorDry
in
Pernicious Anaemia Society
8 years ago
REST OF THE STORY
Continuing the result of my letter to the doc.Although I did have a win I am still battering the door down. His answer to the question of the 3 doses a week etc he said because I had not actually been diagnosed at this point with Pernicious aneamia Although the original result showed B12 of 132 and MCHC
Continuing the result of my letter to the doc.Although I did have a win I am still battering the door down. His answer to the question of the 3 doses a week etc he said because I had not actually been diagnosed at this point with Pernicious aneamia Although the original result showed B12 of 132 and MCHC
may61
in
Pernicious Anaemia Society
8 years ago
At last I have copies of my test results!!
I finally got copies of my test results! If anyone has got time over the next few days would you mind taking a look 👀 I would be extremely greatful. I have a doctors appointment next week for my last plea for injections failing that I have an order on the way from Germany 🇩🇪! Serum B12 108 ng/L (
I finally got copies of my test results! If anyone has got time over the next few days would you mind taking a look 👀 I would be extremely greatful. I have a doctors appointment next week for my last plea for injections failing that I have an order on the way from Germany 🇩🇪! Serum B12 108 ng/L (
Icymind
in
Pernicious Anaemia Society
8 years ago
What's the Source of My Problem? Frustrated With Doctor's Response.
Hi all, Back in August I found out my B12 level was 267 and I was fortunate to be started on loading doses shortly thereafter. I am finally starting to feel better and have two weekly loading doses left (I live in the U.S., so it works a little differently here). I've been pushing my doctor to discover
Hi all, Back in August I found out my B12 level was 267 and I was fortunate to be started on loading doses shortly thereafter. I am finally starting to feel better and have two weekly loading doses left (I live in the U.S., so it works a little differently here). I've been pushing my doctor to discover
srmika
in
Pernicious Anaemia Society
8 years ago
No positive test for APS
HI All I am still wondering if I do have APS or not. I am just so sick and in pain all the time, so want a diagnosis so I can get effective treatment. My doctor originally diagnosed me on my symptoms and blood test results. He did not test for APS but the results showed I did have an auto-immune condition
HI All I am still wondering if I do have APS or not. I am just so sick and in pain all the time, so want a diagnosis so I can get effective treatment. My doctor originally diagnosed me on my symptoms and blood test results. He did not test for APS but the results showed I did have an auto-immune condition
suntap
in
Hughes Syndrome APS Forum
8 years ago
Dead-end at haematologist appointment-what next?
I'm feeling slightly cornered and not sure what to do. I'm became very unwell in March with an array of symptoms including extreme weakness, lightheadedness, joint pain, motor weakness, stomach problems. I'm so weak I can hardly walk. An FBC showed macrocytosis (I also learnt today that I've had a
I'm feeling slightly cornered and not sure what to do. I'm became very unwell in March with an array of symptoms including extreme weakness, lightheadedness, joint pain, motor weakness, stomach problems. I'm so weak I can hardly walk. An FBC showed macrocytosis (I also learnt today that I've had a
Booksellercate
in
Pernicious Anaemia Society
8 years ago
Losing Hope
Been to see different doc this morn cos of hump at top of spine Apparently it a fat deposit and the stiff neck I have had for four weeks and back problems is just tension So tackled her about loading dose quoting BNF she says they usually give 5 over two weeks then every 3 months !!Asked why my intrinsic
Been to see different doc this morn cos of hump at top of spine Apparently it a fat deposit and the stiff neck I have had for four weeks and back problems is just tension So tackled her about loading dose quoting BNF she says they usually give 5 over two weeks then every 3 months !!Asked why my intrinsic
may61
in
Pernicious Anaemia Society
8 years ago
Advice please
Hi everyone I have come over from the Pas/b12 def forum I was diagnosed b12 and folate def with neuropathy in July, negative intrinsic factor for Pernicious anaemia, I had the loading jabs and then the gp stopped them due to high serum b12, its the usual problem with the gps, I have submitted a letter
Hi everyone I have come over from the Pas/b12 def forum I was diagnosed b12 and folate def with neuropathy in July, negative intrinsic factor for Pernicious anaemia, I had the loading jabs and then the gp stopped them due to high serum b12, its the usual problem with the gps, I have submitted a letter
Kenbowns
in
Thyroid UK
8 years ago
Disappointing rheumy appt
Hi all, finally seen in rheumatology clinic yesterday but no further forward.. The consultant there is well known for expertise in lupus so I was holding out hope for some answers or a greater understanding on my part, of what the future looks like. However was seen by registrar instead who ordered further
Hi all, finally seen in rheumatology clinic yesterday but no further forward.. The consultant there is well known for expertise in lupus so I was holding out hope for some answers or a greater understanding on my part, of what the future looks like. However was seen by registrar instead who ordered further
Westgirl
in
LUPUS UK
8 years ago
Do I need B12 injections or are sublingual lozenges enough?
Hi, I'm new here. I saw a news report recently about PA patients supplementing their NHS injections with stuff bought off the internet. When the interviewee listed her symptoms, it was like someone listing everything I had been to see my doctor about in the last few years. Looking at the PAS website
Hi, I'm new here. I saw a news report recently about PA patients supplementing their NHS injections with stuff bought off the internet. When the interviewee listed her symptoms, it was like someone listing everything I had been to see my doctor about in the last few years. Looking at the PAS website
SNEWEY
in
Pernicious Anaemia Society
8 years ago
Help with blood results
Hello So I went for my full blood count including folate b12 and intrinsic factor ( I can't see that on there)?? Same as before " no further action " The folate range was different in the private test I did , is 9.1 good?? Obviously the b12 is low and my thyroid values have changed for the worse too,
Hello So I went for my full blood count including folate b12 and intrinsic factor ( I can't see that on there)?? Same as before " no further action " The folate range was different in the private test I did , is 9.1 good?? Obviously the b12 is low and my thyroid values have changed for the worse too,
Ndobins
in
Pernicious Anaemia Society
8 years ago
Which container for a blood test?
Hey guys, so I'm trying to order a private blood test from blue horizon for the intrinsic factor and I'm a little confused. It may sound like the silliest question but seeing as I'm about to fork out £129 I think i will take the risk and look stupid 🙄 There are 4 options and I'm not sure which 1 to
Hey guys, so I'm trying to order a private blood test from blue horizon for the intrinsic factor and I'm a little confused. It may sound like the silliest question but seeing as I'm about to fork out £129 I think i will take the risk and look stupid 🙄 There are 4 options and I'm not sure which 1 to
Raven321
in
Pernicious Anaemia Society
8 years ago
Some help needed please.
I have been posting on the thyroid thread but it has been suggested that I post here. I paid for a private blood test from Blue Horizon and it showed the following:- This is a hyperthyroid result (overactive thyroid gland). The high free thyroxine level suggests that there is some issue with your thyroid
I have been posting on the thyroid thread but it has been suggested that I post here. I paid for a private blood test from Blue Horizon and it showed the following:- This is a hyperthyroid result (overactive thyroid gland). The high free thyroxine level suggests that there is some issue with your thyroid
Redrow
in
Pernicious Anaemia Society
8 years ago
The pains back ☹️
Hi all, So I took the b12 injection last sat and have felt so much better all week. I was waiting for it to clear from my blood so I can book the private blood test this week for the intrinsic factor. Trouble is the pains back today :( Exactly 7.5 days later and my neck and shoulders are in agony. I'm
Hi all, So I took the b12 injection last sat and have felt so much better all week. I was waiting for it to clear from my blood so I can book the private blood test this week for the intrinsic factor. Trouble is the pains back today :( Exactly 7.5 days later and my neck and shoulders are in agony. I'm
Raven321
in
Pernicious Anaemia Society
8 years ago
B12 low for a year doctors dithering about treatment - please help before I go mad
Hi I'm new here and don't normally join or post to websites but so fed up of being strung along by doctors who constantly tell me everything's normal when I feel the opposite so any advice welcomed. I went to Dr last December after trying to cope on my own for about a year feeling far more tired and
Hi I'm new here and don't normally join or post to websites but so fed up of being strung along by doctors who constantly tell me everything's normal when I feel the opposite so any advice welcomed. I went to Dr last December after trying to cope on my own for about a year feeling far more tired and
Clare184
in
Pernicious Anaemia Society
8 years ago
Sorry to bother you...
Hello I wonder if anyone could give me some advice. Since March my CRP has been raised. It was 20 (the range goes up to 5) and last week it has come down to 16. My ESR was raised and now its back to normal. I have been feeling progressively worse, I feel like Ive been run over when I wake up - body
Hello I wonder if anyone could give me some advice. Since March my CRP has been raised. It was 20 (the range goes up to 5) and last week it has come down to 16. My ESR was raised and now its back to normal. I have been feeling progressively worse, I feel like Ive been run over when I wake up - body
Hidden
in
LUPUS UK
8 years ago
An update.. Kinda scared.
Well I saw my GI doctor today and I'm pretty nervous. I got my lab results back today and some things seem worse. About 2 weeks ago I posted about my high serum gastrin results, which were pretty high at 1847. I did research after the fact and found out it was supposed to be a fasting test (thank god
Well I saw my GI doctor today and I'm pretty nervous. I got my lab results back today and some things seem worse. About 2 weeks ago I posted about my high serum gastrin results, which were pretty high at 1847. I did research after the fact and found out it was supposed to be a fasting test (thank god
yogamom1
in
Pernicious Anaemia Society
8 years ago
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