Experiences with

Antihemophilic factor

Hello, I hope you are all doing well! Quick question, does daily aspirin lower FACTOR VIII RISTOCETIN COFACT  and FACTOR VIII ACTIVITY ASSAY  or is this a result of ET? My 16 yo daughters results have dropped from date: 12/21 - 44L to date: 06/22 - 37L everything else is normal, with the

Does anybody have any experience of PA in children? My almost 6 year old daughter has been suffering with mouth ulcers for the past 6 months and I’m just wondering if she might have PA? I was diagnosed at 23 (now 40). My sister, brother and nephew (14) have recently tested positive for intrinsic factor

ok, so wrote letter to practice manager quoting and linking the NICE protocol for B12…get a call from a dr saying “Your B12 is in range and take supplements not retesting you til october” I tried to explain my intrinsic factor was 2.2Au/l The reference for positive PA is 1.53 Au/l but not according

I had PMR and on Predisone for 1 1/2 years, and off of it for 5 months. I have bad pain in all joints/muscles and much stiffness. Inflammatory blood tests are OK - CRP and ESr fairly low, and all autoimmune blood tests OK including Rheumatoid Factor, etc. and temporal Ultrasound OK for GCA. Had

Can I ask for your advice please? I have Hashmito’s. Since learning that this can influence the absorption of nutrients, I have been to the doctor’s to request tests. Last B12 test: 229 ng/l (190-910) I used B12 symptoms checklist which suggests severe deficiency. Neither of this seemed to worry

Hello all, Thank you for having me on your forum and for sharing information. I appreciate that it's possible nobody will have the time to read or reply to this, but it will help me to share it anyhow. I hope that's OK. My name is Holly and I am 35. I am on somewhat of a journey in terms of seeking

Hi, looking for some help and advice from others... Male - Age 39 - slim - mostly fit and well - non smoker I have this year began to experience episodes of Raynauds that appear to be triggered by the cold (but not that cold) weather and also stress/anxiety - so fairly classic stuff. The GP initially

Hi all, My case seems to be a little murky. In 2018 I found out that I had very low B12. I was a vegetarian at that time and for the last 2 years have been vegan. Back in 2018, I began injections which brought my level very high very quickly. At that time I also took my first intrinsic factor test. It

I felt awful last oct and blood test showed B12 was at 21.6pmol/l so was given 6 loading doses. I went back at their request and was told my B12 levels were in range (obviously) and that was that, no other appointments needed. My intrinsic factor they tested a few weeks later was 2Au which I believe

Hi, Im pretty new to this all. I was feeling extremely weak lethargic, pins and needles etc and my b12 came back pretty low (167) started injections but now the doctor tells me that the test for my antibodies came back negative which means I do not have PA and that they will not do an Intrinsic factor

Hi all, I've only just seen the result of an Intrinsic Factor Antibody test that was done in December before I started SI which I don't know how to interpret. I got a result of 2 u/ml (reference range is 0-24 u/ml). Is that a positive or a negative result? Does that confirm PA or not?  Can someone explain

I have been on B12 injections for 4 years. (I had exhaustion, nausea, headaches etc and B12 was confirmed as being 40.)Had.loading dose and been having 3 monthly injections ever since. Intrinsic Factor was negative, but I do not have a restrictive diet. Anyway, GP decided to check my B12 when I asked

After another wasted trip to the doctors last month. She showed some concern over my long list of symptoms but thought it best to wait another 5 weeks before we discussed B12 injections again (She is convinced it is due to diet), and in the meantime sent me for more of the same repeated blood tests but

Hi I was diagnosed with PA in October 22 .I had a private blood test after feeling unwell for a while. I used Superdrug and IFA came back as 36.4 U/ml Range 0-6 Recently I had another test done at Medichecks and IFA came back as 57.82 Au/ml Range Less than 1.2. I can see these are different references

Hi all sorry if your fed up reading people's symptoms etc.... I'm feeling a little lost and looking I suppose to find out more of other peoples journeys and thoughts. I have psoriasis but for a while have niggles in my fingers and thumbs. Not bothered me really and a lump on my finger(knuckle). But around

Hello, My tests are booked in, I wanted to know if there is any medication I am on that I should come off before I have these tests done and how long before the tests are done. The tests I am having are the following= HbA1c, Bone Profile, Serum Vitamin B12, ESR, Full Blood Count, Serum Ferritin,

I was diagnosed with hypothyroidism in February and prescribed Levothyroxine 50mg per day. My February blood tests resulted in a diagnosis of Hashimoto's Disease and an increase to 100mg per day. My GP told me that my latest test results (18.04.23) show that my thyroid is normal and I'm negative for

And I believe in you. I heard you when you wrote you suffered less when taking more B12 than some said was effective. I heard you when you wrote you suffered less when you 'topped' off'. Even though that is contrary to the concept of loading then maintenance. I heard you when you wrote it feels

Hey everyone. In November 2022 I tested positive for parietal cell antibodies with a B12 deficiency. I started loading doses of B12 with weekly injections (of 1000 mcg/mL cyanocobalomine) over 1 month, then monthly injections since then. A friend had a similar situation. After she started injections

I've been reading on the forum for a while and I am wondering if you could help me as I am struggling to get a diagnosis and some of your stories are similar to mine.Symptoms Tinnitus Internal tremors Burning/Tingling sensations in arms and legs Headaches over the brows Stomach and bowel issues Tiredness