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D-dimer & Dangerous Blood Clots

I have posted quite a lot about the importance of D-dimer in the past 5+ years, but the recent post from 5_plus_4, "I almost died Tuesday" had me thinking that perhaps some basic information on coagulation issues needs to be reposted periodically, particularly for new members. No-one should die
I have posted quite a lot about the importance of D-dimer in the past 5+ years, but the recent post from 5_plus_4, "I almost died Tuesday" had me thinking that perhaps some basic information on coagulation issues needs to be reposted periodically, particularly for new members. No-one should die
pjoshea13 profile image
pjoshea13
in Advanced Prostate Cancer

Advice please on blood results RE: changing Levo to NDT

Hi guys, Further to my last post on struggling with Levo to NDT I have been asked to post my blood results…done in January! No thyroid Just realised they didn’t test Vit D but was taking better for you Vit d spray with K2 at the time… just trying their Vit d without K2 as had bad experience when trying
Hi guys, Further to my last post on struggling with Levo to NDT I have been asked to post my blood results…done in January! No thyroid Just realised they didn’t test Vit D but was taking better for you Vit d spray with K2 at the time… just trying their Vit d without K2 as had bad experience when trying
Blanche1960 profile image
Blanche1960
in Thyroid UK

News that worried us and studies that gave us hope (04/2022).

This is the information that gave us hope while my father was alive and has given hope to many since then (March 2012). 1. News that worried us. In the coming decades the number of Parkinson's disease patients is feared to increase very worryingly, to double by 2030 (Dorsey 2007) and even to triple
This is the information that gave us hope while my father was alive and has given hope to many since then (March 2012). 1. News that worried us. In the coming decades the number of Parkinson's disease patients is feared to increase very worryingly, to double by 2030 (Dorsey 2007) and even to triple
parkinsonshereandnow profile image
parkinsonshereandnow
in Cure Parkinson's
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Dear Gambit62, Sleepybunny, Rexz, Wedgewood, and Nackapan

Thank you! Your responses to my query regarding specific tests that assist in determining pernicious anemia will be incredibly helpful. I looked on MyChart - my medical clinic's website that provides patients direct access to their test results. Here is what I found along with responses to some of
Thank you! Your responses to my query regarding specific tests that assist in determining pernicious anemia will be incredibly helpful. I looked on MyChart - my medical clinic's website that provides patients direct access to their test results. Here is what I found along with responses to some of
Justme20212954 profile image
Justme20212954
in Pernicious Anaemia Society

IFA & PCA blood tests

Hi, I’ve been booked for bloods for intrinsic factor and parietal cells antibodies, the GP said they are antibodies so no need to stop B12 before hand. I’m reading both 48 hours and/or 2 weeks clear of injections, I don’t want to mess these tests up but at the same time am desperate to get the B12.
Hi, I’ve been booked for bloods for intrinsic factor and parietal cells antibodies, the GP said they are antibodies so no need to stop B12 before hand. I’m reading both 48 hours and/or 2 weeks clear of injections, I don’t want to mess these tests up but at the same time am desperate to get the B12.
ATS1304 profile image
ATS1304
in Pernicious Anaemia Society

Changing result for intrinsic factor antibody blood test

Why does Intrinsic factor test result change? Does anybody know what makes the abs come and go? I had negative then + result then negative again the day after B12 injection. I was expecting a + result after reading forum posts about high B12 causing false positive IFAB. I'm so confused, I have anti
Why does Intrinsic factor test result change? Does anybody know what makes the abs come and go? I had negative then + result then negative again the day after B12 injection. I was expecting a + result after reading forum posts about high B12 causing false positive IFAB. I'm so confused, I have anti
Aumshantii profile image
Aumshantii
in Pernicious Anaemia Society

Active VitaminB12 test ( £38.99) Active B12 test plus folate and Intrinsic Factor Antibodies £69.99

Just noticed above tests available through www.onlinedoctor.superdrug.com.
Just noticed above tests available through www.onlinedoctor.superdrug.com.
wedgewood profile image
wedgewood
in Pernicious Anaemia Society

News letter

It seems The Pernicious Anaemua Society are doing a survey. Great I was keen to help. Only if you've got a diagnosis it seems I read on. I rang the helpline for the first tine in over 3 years of being a member to clarify this. I had an answerphone and was called back a few hours later. I explained
It seems The Pernicious Anaemua Society are doing a survey. Great I was keen to help. Only if you've got a diagnosis it seems I read on. I rang the helpline for the first tine in over 3 years of being a member to clarify this. I had an answerphone and was called back a few hours later. I explained
Nackapan profile image
Nackapan
in Pernicious Anaemia Society

Are my symptoms consistent with B12 deficiency especially burning sensation.

Hi Hoping people can tell me if some weird symptoms I'm having are consistent with B12 deficiency. I'm in the UK London. I have started getting burning skin sensations - feels like someone applied deep heat when I wasn't looking. I get these on my forearms, shoulders, patches on my upper back. They
Hi Hoping people can tell me if some weird symptoms I'm having are consistent with B12 deficiency. I'm in the UK London. I have started getting burning skin sensations - feels like someone applied deep heat when I wasn't looking. I get these on my forearms, shoulders, patches on my upper back. They
AlwaysTiredxxx profile image
AlwaysTiredxxx
in Pernicious Anaemia Society

Mornings

Good morning everyone, Since I’ve reduced prednisolone down to 5mg I have noticed wrist and hand stiffness in the mornings. Sometimes my fingers feel as if they are tingling when I wake. I also still have puffiness on the outside of each ankle below the bone despite reducing steroids. I thought this
Good morning everyone, Since I’ve reduced prednisolone down to 5mg I have noticed wrist and hand stiffness in the mornings. Sometimes my fingers feel as if they are tingling when I wake. I also still have puffiness on the outside of each ankle below the bone despite reducing steroids. I thought this
Pangolin43 profile image
Pangolin43
in PMRGCAuk

Normal blood levels mean anything?

I generally have normal b12 levels in the 500-600 range but have symptoms that mimic b12 deficiency. Sometimes my folate levels are low and I supplement there but was wondering if b12 injections are the next step. My doctor did a parietal cell antibody test and that was high at 30 but mma was below
I generally have normal b12 levels in the 500-600 range but have symptoms that mimic b12 deficiency. Sometimes my folate levels are low and I supplement there but was wondering if b12 injections are the next step. My doctor did a parietal cell antibody test and that was high at 30 but mma was below
Jjg42 profile image
Jjg42
in Pernicious Anaemia Society

B12 deficiency, IFab negative, oral cyanocobalamine not working... what's the cause of deficiency?

Hi, I'm new here, just looking for any insight on my situation to try and figure out the cause of my b12 deficiency... For a little background: I'm 32, female. I first became aware of low b12 levels in mid 2020. I'd had 3 highly stressful years and was left feeling awful with anxiety, ear fullness
Hi, I'm new here, just looking for any insight on my situation to try and figure out the cause of my b12 deficiency... For a little background: I'm 32, female. I first became aware of low b12 levels in mid 2020. I'd had 3 highly stressful years and was left feeling awful with anxiety, ear fullness
Purpleturtle21 profile image
Purpleturtle21
in Pernicious Anaemia Society

Anemia -- of some form??

B12 Levels very high -- Self Inflicted Supplements -- 1269 Red Blood Cells - Low MCH -- High Intrinsic Factor Negative Do I have some sort of Anemia???
B12 Levels very high -- Self Inflicted Supplements -- 1269 Red Blood Cells - Low MCH -- High Intrinsic Factor Negative Do I have some sort of Anemia???
DW0172 profile image
DW0172
in Pernicious Anaemia Society

I got my results I have a 1 on 0-1.1 scale for intrinsic factor. Over 1.1 is a positive result. Since 1 is borderline and the test is 50% fa

I got my results I have a 1 on 0-1.1 scale for intrinsic factor. Over 1.1 is a positive result. Since 1 is borderline and the test is 50% false negative should I assume I have pernicious? I have all symptoms.
I got my results I have a 1 on 0-1.1 scale for intrinsic factor. Over 1.1 is a positive result. Since 1 is borderline and the test is 50% false negative should I assume I have pernicious? I have all symptoms.
Ecf123 profile image
Ecf123
in Pernicious Anaemia Society

Should I have been tested for PA before starting loading doses?

Hi everyone, I'm currently on my loading doses and have a sneaking worry that my treatment/investigatons into PA aren't as efficient as I'd previously thought - I'd appreciate some advice as I sometimes find the clinical information online very complicated/contradicting. Firstly they will only give me
Hi everyone, I'm currently on my loading doses and have a sneaking worry that my treatment/investigatons into PA aren't as efficient as I'd previously thought - I'd appreciate some advice as I sometimes find the clinical information online very complicated/contradicting. Firstly they will only give me
franrose profile image
franrose
in Pernicious Anaemia Society

The difference between intrinsic factor antibody test and MMA

Hi all and thanks in advance for any help. I have long suspected I have a B12 problem even though my active B12 blood tests are showing ok. I understand that there are conditions that mask the deficiency and stop the B12 actually being absorbed (if I understand rightly). I have the autoimmune condition
Hi all and thanks in advance for any help. I have long suspected I have a B12 problem even though my active B12 blood tests are showing ok. I understand that there are conditions that mask the deficiency and stop the B12 actually being absorbed (if I understand rightly). I have the autoimmune condition
PurpleNel profile image
PurpleNel
in Pernicious Anaemia Society

Testing please

Hi, I’m still waiting on the intrinsic factor and pareital tests. I have a feeling they will be normal since 50% false negative. What tests does one then do if that happens? I know b12 is causing psychosis because it happened right when went vegan as well as other symptoms like headaches, hair loss,
Hi, I’m still waiting on the intrinsic factor and pareital tests. I have a feeling they will be normal since 50% false negative. What tests does one then do if that happens? I know b12 is causing psychosis because it happened right when went vegan as well as other symptoms like headaches, hair loss,
Ecf123 profile image
Ecf123
in Pernicious Anaemia Society

Plasma viscosity?

Dear forum members After a month of suffering unpleasant flare up symptoms my GP eventually ordered blood tests for C Reactive protein, plasma viscosity, ANA, ANCA and rheumatoid factor. I looked up the results on my patient record and saw that plasma viscosity was normal and no further action required
Dear forum members After a month of suffering unpleasant flare up symptoms my GP eventually ordered blood tests for C Reactive protein, plasma viscosity, ANA, ANCA and rheumatoid factor. I looked up the results on my patient record and saw that plasma viscosity was normal and no further action required
AnniesRyder5 profile image
AnniesRyder5
in PMRGCAuk

Testing

I need help please. I have heart palpitations, headaches, hair loss and psychosis at same time. Doctor found severe anemia and thinks it is pernicious. She wants to do labcorp test for pernicious but they rule out if b12 normal. But you can still have pernicious with normal b12. Please what test is helpful
I need help please. I have heart palpitations, headaches, hair loss and psychosis at same time. Doctor found severe anemia and thinks it is pernicious. She wants to do labcorp test for pernicious but they rule out if b12 normal. But you can still have pernicious with normal b12. Please what test is helpful
Ecf123 profile image
Ecf123
in Pernicious Anaemia Society

Anyone know about Globulin levels

Anyone had experience of “low globulin” count when having a blood test? Had my monthly Methotrexate blood test last Tuesday, the GP rang me Wednesday afternoon to say my globulin count was a bit low & with my “Rheumatoid factor”. Of course he didn’t explain what it was & when I asked what needed to be
Anyone had experience of “low globulin” count when having a blood test? Had my monthly Methotrexate blood test last Tuesday, the GP rang me Wednesday afternoon to say my globulin count was a bit low & with my “Rheumatoid factor”. Of course he didn’t explain what it was & when I asked what needed to be
Shamrockgirl profile image
Shamrockgirl
in NRAS
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