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Antihemophilic factor
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New on here and seeking advice
Hi everyone. Until last week, I knew nothing about PBC and I have found out a lot from this forum and from the pbc foundation website. So thank you. I am going to see my GP this week, and I am looking for some advice. First a brief background. Until 4 months ago I was well ... then I started getting
Hi everyone. Until last week, I knew nothing about PBC and I have found out a lot from this forum and from the pbc foundation website. So thank you. I am going to see my GP this week, and I am looking for some advice. First a brief background. Until 4 months ago I was well ... then I started getting
Pootleflump
in
PBC Foundation
5 years ago
Diet during treatment
I'm in the middle of my b12 injection treatment, having completed 7 daily injections and two injections once a week. I'm positive for intrinsic factor blocking antibody, and we're confirming whether I have PA with an endoscopy in the next weeks. My question: What should my diet be at this point? Balanced
I'm in the middle of my b12 injection treatment, having completed 7 daily injections and two injections once a week. I'm positive for intrinsic factor blocking antibody, and we're confirming whether I have PA with an endoscopy in the next weeks. My question: What should my diet be at this point? Balanced
CocoSimon
in
Pernicious Anaemia Society
5 years ago
Success — Short-lived
Drs appointment today following 2 weeks of every other day injections... said he’s stopping them due to neuro symptoms and won’t have another for 2 months!! I explained that in the BNF book states until no further improvement... did not listen at all !! I said I felt really worried and anxious about
Drs appointment today following 2 weeks of every other day injections... said he’s stopping them due to neuro symptoms and won’t have another for 2 months!! I explained that in the BNF book states until no further improvement... did not listen at all !! I said I felt really worried and anxious about
SMXX
in
Pernicious Anaemia Society
5 years ago
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Discontinuing B12 injections.
My mother had PA. According to parietal cell and intrinsic factor tests, I don't. My B12 was low but at the time I was taking omeprazole. If I had a blood test now, how long would I need to wait before having another one to determine whether I need injections for life or not? Can high B12 cause paraesthesia
My mother had PA. According to parietal cell and intrinsic factor tests, I don't. My B12 was low but at the time I was taking omeprazole. If I had a blood test now, how long would I need to wait before having another one to determine whether I need injections for life or not? Can high B12 cause paraesthesia
ABC852031
in
Pernicious Anaemia Society
5 years ago
Hairloss - very worried 😧
Hello All, I am regular poster on the thyroid forum but this is my first post here! My question is has anyone experienced hairloss due to very low B12 and folate levels? I’ve had hairloss for five months now and have lost a lot of hair. I’m waiting for the intrinsic factor (?) blood test before I start
Hello All, I am regular poster on the thyroid forum but this is my first post here! My question is has anyone experienced hairloss due to very low B12 and folate levels? I’ve had hairloss for five months now and have lost a lot of hair. I’m waiting for the intrinsic factor (?) blood test before I start
Sarahlouise1980
in
Pernicious Anaemia Society
5 years ago
Consultant letter
It has arrived and says small inflammation but I do not have significant Rheumatoid factor protein but it confirms I have elevated level of CCP so therefore I have RA. So now methx and ulta sound next. 2nd & 8th Oct. I think he did not believe me when I was in there so glad in one way it shows something
It has arrived and says small inflammation but I do not have significant Rheumatoid factor protein but it confirms I have elevated level of CCP so therefore I have RA. So now methx and ulta sound next. 2nd & 8th Oct. I think he did not believe me when I was in there so glad in one way it shows something
Hidden
in
NRAS
5 years ago
What were your symptoms just prior to treatment?
What a great site, so glad I stumbled on to it. A big thank you for all the testimonies on my previous post. I have another question here, but first: My case seems quite unique in that I virtually have to symptoms other than an occasional dull ache in some lymph nodes (groin area) but no swelling. BTW
What a great site, so glad I stumbled on to it. A big thank you for all the testimonies on my previous post. I have another question here, but first: My case seems quite unique in that I virtually have to symptoms other than an occasional dull ache in some lymph nodes (groin area) but no swelling. BTW
12Caine12
in
CLL Support
5 years ago
Biopsy Results
Hi all, You may remember a few months ago I posted about protein in my urine as well as slightly echogenic kidneys. Well I have had my biopsy results and I am finding the results a little confusing. The official results were “immune complex-mediated glomerulonephritis with segmental glomerular scarring
Hi all, You may remember a few months ago I posted about protein in my urine as well as slightly echogenic kidneys. Well I have had my biopsy results and I am finding the results a little confusing. The official results were “immune complex-mediated glomerulonephritis with segmental glomerular scarring
Lihyu
in
Early CKD Support
5 years ago
Intrinsic Factor Reference Ranges
Hi, I wonder if anyone can shed some light on these reference ranges for intrinsic factor. The first one was done 2013, when I was convinced I had PA. The second one was done in June this year by Medichecks. The third one was done by my GP on the 29th of August. I have no idea why she ordered it as
Hi, I wonder if anyone can shed some light on these reference ranges for intrinsic factor. The first one was done 2013, when I was convinced I had PA. The second one was done in June this year by Medichecks. The third one was done by my GP on the 29th of August. I have no idea why she ordered it as
miravet
in
Pernicious Anaemia Society
5 years ago
Ra affecting the cervical spine
Hello all! This seems like such a nice, supportive community I've stumbled upon here in my search for answers. I'm really looking for anyone with experience dealing with cervical spine issues. I'm 4 months into the 6 month wait for my appt. with a rheumatologist. Been dealing primarily with constant
Hello all! This seems like such a nice, supportive community I've stumbled upon here in my search for answers. I'm really looking for anyone with experience dealing with cervical spine issues. I'm 4 months into the 6 month wait for my appt. with a rheumatologist. Been dealing primarily with constant
uponthesun
in
NRAS
5 years ago
False Positive PA Test
Hey guys, I took a PA test recently (Intrinsic Factor Antibody) and it came back positive. I'm always a little skeptical so I did some more research. I ended up finding the information below from Quest who is the lab that did my test. I had been getting 3 b12 injections per week when I got the tests
Hey guys, I took a PA test recently (Intrinsic Factor Antibody) and it came back positive. I'm always a little skeptical so I did some more research. I ended up finding the information below from Quest who is the lab that did my test. I had been getting 3 b12 injections per week when I got the tests
lownskater52
in
Pernicious Anaemia Society
5 years ago
Anyone had any joy reducing or eliminating presence of parietal cell antibodies?
Has anyone had any help from visiting a gastroenterologist? Interventions (surgical or drugs?) by, or Advice from, a gastroentereologist? Can dietary adjustments help? Or are there known or suspected triggers (foods, toxins, stress etc), for the antibodies, that I can look to remove? (Similar to
Has anyone had any help from visiting a gastroenterologist? Interventions (surgical or drugs?) by, or Advice from, a gastroentereologist? Can dietary adjustments help? Or are there known or suspected triggers (foods, toxins, stress etc), for the antibodies, that I can look to remove? (Similar to
HowCome
in
Pernicious Anaemia Society
5 years ago
Does this sound right? Really confused
In May this year my routine B12 blood test was 240 (range 170 - 800) with the lab commenting that less than 250 can be considered a deficiency in a symptomatic patient, especially the elderly. Because I have been very fatigued for a very long time (the reason for my clinic visit), my GP started me on
In May this year my routine B12 blood test was 240 (range 170 - 800) with the lab commenting that less than 250 can be considered a deficiency in a symptomatic patient, especially the elderly. Because I have been very fatigued for a very long time (the reason for my clinic visit), my GP started me on
chicolini
in
Pernicious Anaemia Society
5 years ago
How to use castor oil packs
Hi Someone mentioned caster oil packs recently. I'd heard of using them before but I sort of forgot about them. Does anyone have experience of using them? (and just on abdomen or liver as well?) I understand how you use them just not sure when I should start and when to stop? I've just been given the
Hi Someone mentioned caster oil packs recently. I'd heard of using them before but I sort of forgot about them. Does anyone have experience of using them? (and just on abdomen or liver as well?) I understand how you use them just not sure when I should start and when to stop? I've just been given the
SharlyWarly
in
Fertility Network UK
5 years ago
Please advise on B12
Having had chronic fatigue and fibromyalgia as well as Hashimotos for several years. My symptoms have increased since being treated for h pylori. I am beginning to wonder if I am deficient in B12. My blood tests are always high in range or massively above. I am thinking of getting private blood test
Having had chronic fatigue and fibromyalgia as well as Hashimotos for several years. My symptoms have increased since being treated for h pylori. I am beginning to wonder if I am deficient in B12. My blood tests are always high in range or massively above. I am thinking of getting private blood test
Everdean
in
Andover Fibromyalgia & ME Community Group
5 years ago
Colonoscopy side effects
Hello, since I had digestive issuess, such as bloating, belly pain and sometimes diarrhea, my doctor suggested I should do a colonoscopy. The preparation was the worst part. I think that laxative totally irritated my bowels and there were loads of orange mucus coming out of my bowels. The doctor said
Hello, since I had digestive issuess, such as bloating, belly pain and sometimes diarrhea, my doctor suggested I should do a colonoscopy. The preparation was the worst part. I think that laxative totally irritated my bowels and there were loads of orange mucus coming out of my bowels. The doctor said
Seaa
in
IBS Network
5 years ago
Colonoscopy side effects
Hello, since I had digestive issuess, such as bloating, belly pain and sometimes diarrhea, my doctor suggested I should do a colonoscopy. The preparation was the worst part. I think that laxative totally irritated my bowels and there were loads of orange mucus coming out of my bowels. The doctor said
Hello, since I had digestive issuess, such as bloating, belly pain and sometimes diarrhea, my doctor suggested I should do a colonoscopy. The preparation was the worst part. I think that laxative totally irritated my bowels and there were loads of orange mucus coming out of my bowels. The doctor said
Seaa
in
Endometriosis UK
5 years ago
CLL, Spleen Recovery+recommendations
Hi All, I was hoping to draw on your knowledge, wisdom and experience in dealing with CLL. I was diagnosed in 7/2008 and for almost 11 years was doing quite well but 3 months ago my spleen started to get enlarged, wbc were 76K and swollen lymph nodes to say the least. I had my first dose of Gazyva or
Hi All, I was hoping to draw on your knowledge, wisdom and experience in dealing with CLL. I was diagnosed in 7/2008 and for almost 11 years was doing quite well but 3 months ago my spleen started to get enlarged, wbc were 76K and swollen lymph nodes to say the least. I had my first dose of Gazyva or
SCE2AUX
in
CLL Support
5 years ago
PBC and rheumatoid arthritis
Hi all, hope u are well . Today I got my second fibroscan with a CAP score of 212 and scan 28.1. This has went down from 39.5 a few months ago. Ultrasound, spleen and platelets are normal and LFTs now going in right direction thanks to responding to Urso however Iv now been referred to rheumatology due
Hi all, hope u are well . Today I got my second fibroscan with a CAP score of 212 and scan 28.1. This has went down from 39.5 a few months ago. Ultrasound, spleen and platelets are normal and LFTs now going in right direction thanks to responding to Urso however Iv now been referred to rheumatology due
Cody23
in
PBC Foundation
5 years ago
Feeling very lost and alone.
Hi, Diagnosed Lupus Jan 2018. Positive ANA, dsDNA, Rheumatoid Factor, Ro52, Mi2b, anti cardiolipin numerous tests over the past 20 months) I was given an urgent referral to neurology (6 weeks ago now - doesn't seem very urgent) after worsening muscle weakness. My physio did muscle strength test, wasn't
Hi, Diagnosed Lupus Jan 2018. Positive ANA, dsDNA, Rheumatoid Factor, Ro52, Mi2b, anti cardiolipin numerous tests over the past 20 months) I was given an urgent referral to neurology (6 weeks ago now - doesn't seem very urgent) after worsening muscle weakness. My physio did muscle strength test, wasn't
eescvc
in
LUPUS UK
5 years ago
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