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Anybody has testicle pain ?
I am on ADT and Apalutamide for 1 year and lately I have some discomfort in my testicles. It is not a sharp pain, feels more like they are full .Since there is hardly any testosterone they should not be full right ? Pre cancer days I would masturbate for a relief but since I lost all my libido I
I am on ADT and Apalutamide for 1 year and lately I have some discomfort in my testicles. It is not a sharp pain, feels more like they are full .Since there is hardly any testosterone they should not be full right ? Pre cancer days I would masturbate for a relief but since I lost all my libido I
mynacho
in
Advanced Prostate Cancer
2 years ago
Evidence that the Medical Community is Failing Prostate Cancer Patients !!
Greetings FPC'ers, So I saw this on Advanced Practice Update and just had to share. When the K9 Caped Crusader and I say, "Get thee to a Center of Excellence (Not a nunnery)", well we mean business. Below is an article from this week's edition of Practice Update-Advanced Prostate Cancer, and it speaks
Greetings FPC'ers, So I saw this on Advanced Practice Update and just had to share. When the K9 Caped Crusader and I say, "Get thee to a Center of Excellence (Not a nunnery)", well we mean business. Below is an article from this week's edition of Practice Update-Advanced Prostate Cancer, and it speaks
NPfisherman
in
Fight Prostate Cancer
2 years ago
Potential Ophthalmological Side Effects Induced by Anti-Neoplastic Regimens for the Treatment of Genitourinary Cancers: A Review - 07/26/22
Are you on ADT? Then read on and let your dry eyes weep - as dry eyes tend to do. Several more SEs that we can add to the list of those from PCa treatments. This is not the only ocular issue you should be aware of, as the following report indicates. The report profiles the potential eye conditions that
Are you on ADT? Then read on and let your dry eyes weep - as dry eyes tend to do. Several more SEs that we can add to the list of those from PCa treatments. This is not the only ocular issue you should be aware of, as the following report indicates. The report profiles the potential eye conditions that
cujoe
in
Fight Prostate Cancer
2 years ago
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AMPLITUDE clinical trial
Having been diagnosed with stage 4 PCa in May this year (see my profile for more details), my CO has suggested it could be worth me participating in the AMPLITUDE trial. This is currently at the stage of taking newly diagnosed metastatic cases like mine who have particular DNA repair defects. I don't
Having been diagnosed with stage 4 PCa in May this year (see my profile for more details), my CO has suggested it could be worth me participating in the AMPLITUDE trial. This is currently at the stage of taking newly diagnosed metastatic cases like mine who have particular DNA repair defects. I don't
Benkaymel
in
Advanced Prostate Cancer
2 years ago
Input on Treatment
After my MRI showed a PIRADS 5 lesion, my biopsy came back with a Gleason 4+3 in 5/13 cores. PSA measures 7.5, but would be 15 without my daily Finasteride. ECE was suspected, but my PSMA PET confirmed no spread outside the prostate. That’s a relief. Graded as unfavorable intermediate. I‘ve decided
After my MRI showed a PIRADS 5 lesion, my biopsy came back with a Gleason 4+3 in 5/13 cores. PSA measures 7.5, but would be 15 without my daily Finasteride. ECE was suspected, but my PSMA PET confirmed no spread outside the prostate. That’s a relief. Graded as unfavorable intermediate. I‘ve decided
Mike404
in
Prostate Cancer Network
2 years ago
Depression from 2nd-generation hormone therapy is worse
I found a JAMA paper on the NIH website titled: Association of Second-generation Antiandrogens With Depression Among Patients With Prostate Cancer It noted that hormone therapy (like first gen Lupron) has a higher incidence of depression as a side effect but that the 2nd-generation meds for castration-resistant
I found a JAMA paper on the NIH website titled: Association of Second-generation Antiandrogens With Depression Among Patients With Prostate Cancer It noted that hormone therapy (like first gen Lupron) has a higher incidence of depression as a side effect but that the 2nd-generation meds for castration-resistant
maggiedrum
in
Advanced Prostate Cancer
2 years ago
Weight Gain after thyroidectomy
A useful, but still with incomplete understanding review of thyroid hormone treatment after thyroidectomy and weight gain. There are some useful points about FT3 and the effect of lower FT3 on propensity for weight gain. Open paper. Folia Medica 63(6):834-8DOI: 10.3897/folmed.63.e59851834 Weight
A useful, but still with incomplete understanding review of thyroid hormone treatment after thyroidectomy and weight gain. There are some useful points about FT3 and the effect of lower FT3 on propensity for weight gain. Open paper. Folia Medica 63(6):834-8DOI: 10.3897/folmed.63.e59851834 Weight
diogenes
in
Thyroid UK
2 years ago
Paclitaxel, Herceptin & Perjeta have quit working . Tips please for Kadcyla , what have you experienced ?
Has anyone made this switch after Paclitaxel, herceptin & perjeta ? How did you find side effects in comparison ? When switching treatment what hormone treatment did you take ? thank you for sharing your wisdom . It is sunflower season in Ontario Canada such a happy , strong flower. Luann
Has anyone made this switch after Paclitaxel, herceptin & perjeta ? How did you find side effects in comparison ? When switching treatment what hormone treatment did you take ? thank you for sharing your wisdom . It is sunflower season in Ontario Canada such a happy , strong flower. Luann
Hidden
in
SHARE Metastatic Breast Cancer
2 years ago
breast pain
I have been off of ADT (Lupron/Zytiga) for about a year and a half - my PSA remains at about 0.2 since my testosterone came back about a year ago (currently at 250 ng/dl). a couple of months ago, both breasts started to hurt. They did swell under ADT but have remained constant since I went off. the
I have been off of ADT (Lupron/Zytiga) for about a year and a half - my PSA remains at about 0.2 since my testosterone came back about a year ago (currently at 250 ng/dl). a couple of months ago, both breasts started to hurt. They did swell under ADT but have remained constant since I went off. the
PabloK
in
Advanced Prostate Cancer
2 years ago
Article: ADT May Increase Risk of Death From Cardiovascular Disease in Prostate Cancer
Conclusion: ADT recipients had a significantly increased risk of death from stroke and ischemic heart disease. My thought: Maybe low dose aspirin isn't a bad idea when on ADT. https://www.cancertherapyadvisor.com/home/cancer-topics/prostate-cancer/prostate-cancer-androgen-deprivation-therapy-cardiovascular-disease-death-risk
Conclusion: ADT recipients had a significantly increased risk of death from stroke and ischemic heart disease. My thought: Maybe low dose aspirin isn't a bad idea when on ADT. https://www.cancertherapyadvisor.com/home/cancer-topics/prostate-cancer/prostate-cancer-androgen-deprivation-therapy-cardiovascular-disease-death-risk
rsgdmd
in
Advanced Prostate Cancer
2 years ago
New to the club of Advanced Stage 4
It was just recently discovered that my PCa has metastasized and spread to my spine. Originally diagnosed (at age 54) in 2015 with Gleason 3+4 and contained to the prostate we opted for focal laser ablation. All went well with that but, a 3T MRI in 2017 showed small recurrence so, another FLA was done
It was just recently discovered that my PCa has metastasized and spread to my spine. Originally diagnosed (at age 54) in 2015 with Gleason 3+4 and contained to the prostate we opted for focal laser ablation. All went well with that but, a 3T MRI in 2017 showed small recurrence so, another FLA was done
OldGuysRule
in
Advanced Prostate Cancer
2 years ago
my humble opinion
Personally, I am dealing with advanced stage 4 with bone involvement so, with that as a back drop, here is my humble opinion. If nothing is showing up on scans or mri’s I would chose active surveillance. ADT is a heavy hammer for something that may not even be there. PSA is an indicator only. Quality
Personally, I am dealing with advanced stage 4 with bone involvement so, with that as a back drop, here is my humble opinion. If nothing is showing up on scans or mri’s I would chose active surveillance. ADT is a heavy hammer for something that may not even be there. PSA is an indicator only. Quality
OldGuysRule
in
Advanced Prostate Cancer
2 years ago
Milestone Day
Today is the 1st day of the rest of my life! I had my final TreStar injection in April and my Last Zytiga/Prednisone yesterday. 2 years of treatment (also had proton therapy) following the Stampede protocol. Now it is time to watch and wait! Prayers up that the testosterone returns, and the PSA does
Today is the 1st day of the rest of my life! I had my final TreStar injection in April and my Last Zytiga/Prednisone yesterday. 2 years of treatment (also had proton therapy) following the Stampede protocol. Now it is time to watch and wait! Prayers up that the testosterone returns, and the PSA does
TrashPanda72
in
Advanced Prostate Cancer
2 years ago
Side Effects of Docetaxel vs Cabazitaxel
Been at this for over 6 years now, diagnosed at stage 4 and ever since on ADT, plus 6 cycles of Docetaxel, Abiraterone and Enzalutamide. Looks like its time for Cabazitaxel. My doctor is recommending that as the next treatment. I'd like to know from those who have had both, how do the side effects compare
Been at this for over 6 years now, diagnosed at stage 4 and ever since on ADT, plus 6 cycles of Docetaxel, Abiraterone and Enzalutamide. Looks like its time for Cabazitaxel. My doctor is recommending that as the next treatment. I'd like to know from those who have had both, how do the side effects compare
EdBacon
in
Advanced Prostate Cancer
2 years ago
Free triiodothyronine/free thyroxine ratio in children with congenital hypothyroidism
This paper appears to be of significance to anyone who has congenital hypothyroidism (CH) - and those involved with them. Although this paper is specifically about children, it would appear as well worth reading for adults. We have seen levothyroxine monotherapy used for CH questioned here several
This paper appears to be of significance to anyone who has congenital hypothyroidism (CH) - and those involved with them. Although this paper is specifically about children, it would appear as well worth reading for adults. We have seen levothyroxine monotherapy used for CH questioned here several
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Advanced recurrent PCa, rising PSA, 2 negative PSMA PET Scans
Here's my story. In the summer of 2014 I was diagnosed with PCa, PSA 10.1, 4 cores of 12 Gleason of 3+4. My chosen treatment was Brachytherapy which I had done in Sept of 2014. Fast forward to the summer of 2018 with a rising PSA (approx 3.0), it never went below 1.1, I was diagnosed with recurrent
Here's my story. In the summer of 2014 I was diagnosed with PCa, PSA 10.1, 4 cores of 12 Gleason of 3+4. My chosen treatment was Brachytherapy which I had done in Sept of 2014. Fast forward to the summer of 2018 with a rising PSA (approx 3.0), it never went below 1.1, I was diagnosed with recurrent
Ddl123161
in
Advanced Prostate Cancer
2 years ago
is Xtandi the only drug that increases PSMA expression?
we hear quite a bit about taking Xtandi before Lu177 treatment because it increases PMSA expression. Do we know if any of the other 2nd or 3rd line ADT drugs have the same affect? I’m wonder specifically about Nubeqa ( Darolutamide)
we hear quite a bit about taking Xtandi before Lu177 treatment because it increases PMSA expression. Do we know if any of the other 2nd or 3rd line ADT drugs have the same affect? I’m wonder specifically about Nubeqa ( Darolutamide)
joeguy
in
Advanced Prostate Cancer
2 years ago
"Emmanuel Antonarakis at University of Minnesota
My husband has CDK12 mutation. We are at 5 years post RP. He has had two rounds of Lupron… with 18 months of nondectable in between the two ADT rounds. PSA has now climbed to 1.2 It appears Lupron has stopped working. We have been told Dr. Antonarakis at University of Minnesota is highly regarded
My husband has CDK12 mutation. We are at 5 years post RP. He has had two rounds of Lupron… with 18 months of nondectable in between the two ADT rounds. PSA has now climbed to 1.2 It appears Lupron has stopped working. We have been told Dr. Antonarakis at University of Minnesota is highly regarded
JolleySprings
in
Advanced Prostate Cancer
2 years ago
Why not start therapy the moment you know you have PC?
I've often wondering why know hormone therapy was given until I blew my PSA out of the water 14 weeks after the Radical Prostatectomy. 1) I found out I had cancer in later Feb 2020 2) I met with a urologist/surgeon on March 13, he recommended Robotic 3) I meet with the Robotic Surgeon on March
I've often wondering why know hormone therapy was given until I blew my PSA out of the water 14 weeks after the Radical Prostatectomy. 1) I found out I had cancer in later Feb 2020 2) I met with a urologist/surgeon on March 13, he recommended Robotic 3) I meet with the Robotic Surgeon on March
bglendi53
in
Advanced Prostate Cancer
2 years ago
PSMA Results...and decisions ahead
Quick summary: - G9 PCa Dx in 2016: RP and adjuvant radiation and ADT therapy. - 2018 biochemical recurrence with 6 week PSA doubling time. - Participated in Condor Trial. PSMA scan located recurrence in a handful of LNs. Treated with RT and 20 months of ADT/abiraterone/prednisone. - Undetectable
Quick summary: - G9 PCa Dx in 2016: RP and adjuvant radiation and ADT therapy. - 2018 biochemical recurrence with 6 week PSA doubling time. - Participated in Condor Trial. PSMA scan located recurrence in a handful of LNs. Treated with RT and 20 months of ADT/abiraterone/prednisone. - Undetectable
shueswim
in
Advanced Prostate Cancer
2 years ago
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