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Meaning of SBBG
After visiting my oncologist yesterday for my 3 monthly checkup, my Testosterone level was shown to be <0.5 L and my SHBG was 48. After almost 7 years since metastatic diagnosis and treatments of radiation, chemotherapy and ADT (6 monthly Eligard) since 2016, I have not had my testosterone levels tested
After visiting my oncologist yesterday for my 3 monthly checkup, my Testosterone level was shown to be <0.5 L and my SHBG was 48. After almost 7 years since metastatic diagnosis and treatments of radiation, chemotherapy and ADT (6 monthly Eligard) since 2016, I have not had my testosterone levels tested
Brightman
in
Advanced Prostate Cancer
2 years ago
Hormone Therapies
When I couldn't pass urine anymore due to enlarged prostate, I was given Duodart by my Urologist and told that I will be taking it rest of my life. It caused severe blood clot (DVT) and both at the ER and a cardiologist I consulted, I was told that it is very high risk condition, because if a
When I couldn't pass urine anymore due to enlarged prostate, I was given Duodart by my Urologist and told that I will be taking it rest of my life. It caused severe blood clot (DVT) and both at the ER and a cardiologist I consulted, I was told that it is very high risk condition, because if a
bt221
in
Advanced Prostate Cancer
2 years ago
Update (Almost 8 years on)
I seem to only post yearly on the diagnosis anniversary but read daily and always hope that we can give others hope My husband was diagnosed early October 2014 PSA over 700 , widespread bone mets We’ve still only done Hormone Treatment, Zolodex and Enza have been kind to us and has allowed good quality
I seem to only post yearly on the diagnosis anniversary but read daily and always hope that we can give others hope My husband was diagnosed early October 2014 PSA over 700 , widespread bone mets We’ve still only done Hormone Treatment, Zolodex and Enza have been kind to us and has allowed good quality
LB100
in
Advanced Prostate Cancer
2 years ago
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knee replacement during ADT
I have been on ADT for 8 months. I have a small farm and usually do constant physical labor. I find that I now have major fatigue and can now only do small things that leave me exhausted. I fell and wrenched my knee. I got a steroid injection and have a brace, my knee is bone o bone. I need a knee replacement
I have been on ADT for 8 months. I have a small farm and usually do constant physical labor. I find that I now have major fatigue and can now only do small things that leave me exhausted. I fell and wrenched my knee. I got a steroid injection and have a brace, my knee is bone o bone. I need a knee replacement
M1150
in
Advanced Prostate Cancer
2 years ago
Next round of treatment underway
Profile is up to date, but to summarize - 2nd recurrence with two mets discovered via PSMA scan (T3 and a rib). Treatment: 5 SBRT treatments to each met and 2 years of ADT plus Xtandi. All have started this week. There was some discussion about adding Taxotere to the plan as well but the consensus
Profile is up to date, but to summarize - 2nd recurrence with two mets discovered via PSMA scan (T3 and a rib). Treatment: 5 SBRT treatments to each met and 2 years of ADT plus Xtandi. All have started this week. There was some discussion about adding Taxotere to the plan as well but the consensus
shueswim
in
Advanced Prostate Cancer
2 years ago
Gleason 9 CRPC any thoughts out there
64 yr old very active with no other health issues other than Gleason 9 PC RP Jan/2016 followed by Salvage radiation 32 sessions. PSA has bounced around since that time on. Started ADT Zoxidex with Bicalutamide. Bicalutamide failed Jan 2021 switched to Zolidex and Darolutamide still on, but has also
64 yr old very active with no other health issues other than Gleason 9 PC RP Jan/2016 followed by Salvage radiation 32 sessions. PSA has bounced around since that time on. Started ADT Zoxidex with Bicalutamide. Bicalutamide failed Jan 2021 switched to Zolidex and Darolutamide still on, but has also
Bfhahn
in
Advanced Prostate Cancer
2 years ago
Angina and breast cancer
hi I was diagnosed with Angina in Sept 2020 I had 1 stent placed and have 3 other narrowing..In May 2022 i was diagnosedwith stage 3 advanced breast cancer .. I have been told by consultants that my option is a mastectomy and hormone treatment which i've already started.. My question is that there is
hi I was diagnosed with Angina in Sept 2020 I had 1 stent placed and have 3 other narrowing..In May 2022 i was diagnosedwith stage 3 advanced breast cancer .. I have been told by consultants that my option is a mastectomy and hormone treatment which i've already started.. My question is that there is
Benji2020
in
British Heart Foundation
2 years ago
Low sugar diet and fruits
I have been on low/no sugar since starting ADT a year ago. After reading a recent post that prunes helped nighttime urination, I tried it and, at least night, it seems to work. Reading the box this AM, I see prunes a pretty high in sugar, as are several other fruits. Now what ???
I have been on low/no sugar since starting ADT a year ago. After reading a recent post that prunes helped nighttime urination, I tried it and, at least night, it seems to work. Reading the box this AM, I see prunes a pretty high in sugar, as are several other fruits. Now what ???
alperk
in
Advanced Prostate Cancer
2 years ago
? Experience w/ taking Hydroxychloroquine & ADT simultaneously? If so, issues w/ your heart or other side effects? Clinical Trial or Nubeqa?
I've been considering doing a clinical trial or just starting on Nubeqa. The trial includes a pretty high dosage of hydroxychloroquine (HCQ), along with Metformin and Sirolimus. I'm trying to figure out if the trial/HCQ has a significant chance of causing heart disruptions/issues. I am cautious because
I've been considering doing a clinical trial or just starting on Nubeqa. The trial includes a pretty high dosage of hydroxychloroquine (HCQ), along with Metformin and Sirolimus. I'm trying to figure out if the trial/HCQ has a significant chance of causing heart disruptions/issues. I am cautious because
GeorgeGlass
in
Advanced Prostate Cancer
2 years ago
Latest PSA
My latest PSA test was 0.25 down from 0.30 i had 3 months ago. My Oncologist does not want me to start ADT yet. He wants me to continue monitoring my PSA so I'll have another test in 3 months. My PSMA pet scan 3 months ago was negative and now this decrease in PSA leads to believe that I may have
My latest PSA test was 0.25 down from 0.30 i had 3 months ago. My Oncologist does not want me to start ADT yet. He wants me to continue monitoring my PSA so I'll have another test in 3 months. My PSMA pet scan 3 months ago was negative and now this decrease in PSA leads to believe that I may have
old64horn
in
Advanced Prostate Cancer
2 years ago
Catch 22 - Hormone sensitive but can't tolerate hormone therapy
This is related to my posts about Lupron giving me intolerable and treatment resistant depression. The Lupron did work so far as bringing my PSA down to essentially zero which should mean it is suppressing the cancer. It is the front line SOC (Standard of Care) - FDA approved, proven in practice, etc
This is related to my posts about Lupron giving me intolerable and treatment resistant depression. The Lupron did work so far as bringing my PSA down to essentially zero which should mean it is suppressing the cancer. It is the front line SOC (Standard of Care) - FDA approved, proven in practice, etc
maggiedrum
in
Advanced Prostate Cancer
2 years ago
On Lupron/Zytiga/Prednisone for nearly 1 YR - Stage 4 w/Bone Met
I was diagnosed with Stage 4 (Gleason 8-9) last August and was immediately put on Lupron, then Zytig/Pred after 3 months. PSA was only 1.2 but actually more like 2.4 since I was on Finestride. Testosterone was 650. Now after 1 year, I'm at 0.02 PSA and <5 Testosterone, both immeasurable. Prior PET
I was diagnosed with Stage 4 (Gleason 8-9) last August and was immediately put on Lupron, then Zytig/Pred after 3 months. PSA was only 1.2 but actually more like 2.4 since I was on Finestride. Testosterone was 650. Now after 1 year, I'm at 0.02 PSA and <5 Testosterone, both immeasurable. Prior PET
groth12345
in
Advanced Prostate Cancer
2 years ago
FDG uptake to cervical nodes
Diagnosed last October, stage 4A with spread to regional lymph nodes. Gleason 9 but with low PSA score. Being treated at MSK in NYC. RP is scheduled for the end of this month, and have been on Firmagon and Zytiga for 6 months. The plan is to have radiation treatment in another 6 months, after recovery
Diagnosed last October, stage 4A with spread to regional lymph nodes. Gleason 9 but with low PSA score. Being treated at MSK in NYC. RP is scheduled for the end of this month, and have been on Firmagon and Zytiga for 6 months. The plan is to have radiation treatment in another 6 months, after recovery
mysticmini
in
Advanced Prostate Cancer
2 years ago
Chemotherapy or Zytiga or both? Metastatic or Locally Advanced Prostate Cancer?
Husband Diagnosed 7/22 at age 50. Gleason 10, PSA 146, all 14 cores positive at 90-100%. PSMA PET scan shows seminal vesicle invasion, 1 pelvic lymph node, perineal invasion, large tumor is affixed to rectum and pelvic floor (no bone mets found). Stage 4, T4bN1M0. Started on ADT/Orgovyx and Abiraterone
Husband Diagnosed 7/22 at age 50. Gleason 10, PSA 146, all 14 cores positive at 90-100%. PSMA PET scan shows seminal vesicle invasion, 1 pelvic lymph node, perineal invasion, large tumor is affixed to rectum and pelvic floor (no bone mets found). Stage 4, T4bN1M0. Started on ADT/Orgovyx and Abiraterone
StephH72
in
Advanced Prostate Cancer
2 years ago
Maybe One of You Can Benefit From This: Radiation Again After 10 Years of ADT.
Basically, I have been on Lupron and Zytiga for 10 years, except for 3 vacations from both during my first 5 years. I also had my prostate removed 6 months after dx, which was "experimental" and had the largest tumor in my left acetabulum (hip) radiated 2 yrs after dx. I started to see a rise in my
Basically, I have been on Lupron and Zytiga for 10 years, except for 3 vacations from both during my first 5 years. I also had my prostate removed 6 months after dx, which was "experimental" and had the largest tumor in my left acetabulum (hip) radiated 2 yrs after dx. I started to see a rise in my
jfoesq
in
Advanced Prostate Cancer
2 years ago
healthy and fit 55 year old with advanced local PC
Greetings gents. They are, of course, offering me a choice between radical prostatectomy and radical radiation + hormone therapy. I am aware of all of the likely and possible side effects of both treatments. I would love to hear
from someone my age and health level - I am extremely fit
- about
Greetings gents. They are, of course, offering me a choice between radical prostatectomy and radical radiation + hormone therapy. I am aware of all of the likely and possible side effects of both treatments. I would love to hear
from someone my age and health level - I am extremely fit
- about
HU-man
in
Advanced Prostate Cancer
2 years ago
Gleason 5 + 5 (10)
Dx Oct 2021 Gleason 5 + 5 (10)PSMA clear of Mets. Completed 39 sessions Rad late Feb. Am told I any in very small number of men who have felt major pain in prostate from day one, unfortunately having this pain ment Urologist was convinced I had prostatitis and treated this for 6 months, I have had
Dx Oct 2021 Gleason 5 + 5 (10)PSMA clear of Mets. Completed 39 sessions Rad late Feb. Am told I any in very small number of men who have felt major pain in prostate from day one, unfortunately having this pain ment Urologist was convinced I had prostatitis and treated this for 6 months, I have had
Pop1959
in
Advanced Prostate Cancer
2 years ago
Gleason 5 + 5 (10)
Dx Oct 2021 Gleason 5 + 5 (10)PSMA clear of Mets. Completed 39 sessions Rad late Feb. Am told I any in very small number of men who have felt major pain in prostate from day one, unfortunately having this pain ment Urologist was convinced I had prostatitis and treated this for 6 months, I have had prostatitis
Dx Oct 2021 Gleason 5 + 5 (10)PSMA clear of Mets. Completed 39 sessions Rad late Feb. Am told I any in very small number of men who have felt major pain in prostate from day one, unfortunately having this pain ment Urologist was convinced I had prostatitis and treated this for 6 months, I have had prostatitis
Pop1959
in
Prostate Cancer Network
2 years ago
PSA Rise
Hello distinguished gentlemen. Diagnosed Dec. 2020. 4+3 Did SBRT + 4 mo ADT. Oct 2021. My PSA is acting strange. Could you please give me advise as what this rise could be attributed to? Thinking of PSMA Scan and MRI.
Hello distinguished gentlemen. Diagnosed Dec. 2020. 4+3 Did SBRT + 4 mo ADT. Oct 2021. My PSA is acting strange. Could you please give me advise as what this rise could be attributed to? Thinking of PSMA Scan and MRI.
caysary
in
Advanced Prostate Cancer
2 years ago
Is anyone taking Erleada?
Hello, I received my first Eligard injection on June 6th. PSA dropped from 9 to 0.7 in 3 months. For my second ADT treatment my doctor wants to switch to Trelstar. From what I read it sounds like Eligard and Trelstar are very similar, same side effects. Doctor also wants to add Erleada. After checking
Hello, I received my first Eligard injection on June 6th. PSA dropped from 9 to 0.7 in 3 months. For my second ADT treatment my doctor wants to switch to Trelstar. From what I read it sounds like Eligard and Trelstar are very similar, same side effects. Doctor also wants to add Erleada. After checking
MydogisTed
in
Advanced Prostate Cancer
2 years ago
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