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Side effects of B12 injections
Hi. I had loading doses of B12 about 10 years ago after several years of fatigue and neuro symptoms. I felt amazing afterwards and when I went onto 3 monthly injections I found that my symptoms would come back long before my next injection was due so I started self injecting. I found I needed it once
Hi. I had loading doses of B12 about 10 years ago after several years of fatigue and neuro symptoms. I felt amazing afterwards and when I went onto 3 monthly injections I found that my symptoms would come back long before my next injection was due so I started self injecting. I found I needed it once
Hayley31
in
Pernicious Anaemia Society
1 year ago
Living with bone marrow problems/ aplastic anaemia?- free course to manage stress
If you're living with aplastic
anaemia
, whether you have aplastic
anaemia
yourself or you're supporting a close family member, you will likely be dealing with a lot of stress and uncertainty.
If you're living with aplastic
anaemia
, whether you have aplastic
anaemia
yourself or you're supporting a close family member, you will likely be dealing with a lot of stress and uncertainty.
DC_motheranddaughter
Partner
in
DC Action
2 years ago
USA Iron Infusion billing code E83.1
I finally got an iron infusion approved for tomorrow. The doc put request in for anemia but I got the correct billing code from the RLS Foundation:E83.1 Disorder of iron metabolism, unspecified. Excludes1: iron deficiency anemia/ sideroblastic anemia E83 Excludes1: dietary mineral deficiency/ parathyroid
I finally got an iron infusion approved for tomorrow. The doc put request in for anemia but I got the correct billing code from the RLS Foundation:E83.1 Disorder of iron metabolism, unspecified. Excludes1: iron deficiency anemia/ sideroblastic anemia E83 Excludes1: dietary mineral deficiency/ parathyroid
SkyCop
in
Restless Legs Syndrome
1 year ago
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Need to offload for my mental health and thought you nice lot would understand.
After stupid cycle becoming stupider, yo yoing between 26 days to 36 days with delightful mid cycle bleeding and increased heaviness leading to
anaemia
, well as a continued inability to get lower than a BMI of 35, was diagnosed with probable PCOS by GP.
After stupid cycle becoming stupider, yo yoing between 26 days to 36 days with delightful mid cycle bleeding and increased heaviness leading to
anaemia
, well as a continued inability to get lower than a BMI of 35, was diagnosed with probable PCOS by GP.
ADHDPCOS
in
Fertility Network UK
1 year ago
Expiration date
After reading about the (supposed?) shortage of B12 in UK, I, too, am wondering if PanPharma’s shortened expiration date from 2 years to one year has contributed to this perceived shortage. Have we gotten the final answer on why PanPharma shortened their expiry date? Does anyone know if the inactive
After reading about the (supposed?) shortage of B12 in UK, I, too, am wondering if PanPharma’s shortened expiration date from 2 years to one year has contributed to this perceived shortage. Have we gotten the final answer on why PanPharma shortened their expiry date? Does anyone know if the inactive
EiCa
in
Pernicious Anaemia Society
1 year ago
Latest appointment update…..ET investigation
I must admit I always thought you had to be actually Anaemic to affect your platelets but apparently in some cases Iron deficiency without
anaemia
alone can do this….
I must admit I always thought you had to be actually Anaemic to affect your platelets but apparently in some cases Iron deficiency without
anaemia
alone can do this….
Purdy13
in
MPN Voice
1 year ago
Pernicious Anemia and Endicrine
I was diagnosed with B12 deficiency in the spring of 2021. I was initially placed on a regimen of B12 injections appropriate for patients with blood symptoms. Eventually I read enough to discover the difference in treatment for patients with blood symptoms vs nerve symptoms, and since August of 2021
I was diagnosed with B12 deficiency in the spring of 2021. I was initially placed on a regimen of B12 injections appropriate for patients with blood symptoms. Eventually I read enough to discover the difference in treatment for patients with blood symptoms vs nerve symptoms, and since August of 2021
WiscGuy
in
Pernicious Anaemia Society
1 year ago
Ferritin
Hi everyone,Firstly thank you for all the fantastic advice on this forum. I've got a Serum Ferritin level of 308ng/ml (my GP was concerned that this was a bit too high), Transferrin Saturation of 31% but a Serum Transferrin level of 2.3g/L. Please can you give me your thoughts on this & am I looking
Hi everyone,Firstly thank you for all the fantastic advice on this forum. I've got a Serum Ferritin level of 308ng/ml (my GP was concerned that this was a bit too high), Transferrin Saturation of 31% but a Serum Transferrin level of 2.3g/L. Please can you give me your thoughts on this & am I looking
blades10
in
Restless Legs Syndrome
1 year ago
Neuropsychiatric lupus?
Hi there **If the following doesn't make sense, please let me know** Feeling poorly for a while. I posted a while ago about a muscle spasm within my hand, which turned out to be a swan-neck deformity but have experienced subsequent hand spasms, weakness, tremors, eye to hand coordination is off,
Hi there **If the following doesn't make sense, please let me know** Feeling poorly for a while. I posted a while ago about a muscle spasm within my hand, which turned out to be a swan-neck deformity but have experienced subsequent hand spasms, weakness, tremors, eye to hand coordination is off,
Amakura
in
LUPUS UK
1 year ago
Recent test results related to current Covid-19
If anyone is interested, posting recent experience Had 3 Pfizer and two Moderna Vaccines, made zero antibodies. Was on ibrutinib during all vaccines Had full dose Evusheld March 1st, seven weeks later had 740 antibodies Infected with covid July 21, got Bebtelovimab July 22nd. Took 80 days to rapid
If anyone is interested, posting recent experience Had 3 Pfizer and two Moderna Vaccines, made zero antibodies. Was on ibrutinib during all vaccines Had full dose Evusheld March 1st, seven weeks later had 740 antibodies Infected with covid July 21, got Bebtelovimab July 22nd. Took 80 days to rapid
Davidcara
in
CLL Support
2 years ago
WHEN ORDERING FROM AMAZON ,PLEASE USE www.smile.amazon.co.uk AND CHOOSE THE PERNICIOUS ANAEMIA SOCIETY AS YOUR CHARITY .
The Society has benefitted by over £1,000 already “ Every littje helps “ . Thank you .
The Society has benefitted by over £1,000 already “ Every littje helps “ . Thank you .
wedgewood
in
Pernicious Anaemia Society
1 year ago
High Vitamin B12 level
In the last year, the level of vitamin B12 in my blood has risen to 651.0 pg/ml; (ref. 183.3 - 505.0 pg/ml). Other parameters are basically fine FT-3 4.15 pmol/l; (ref. 3.5-6.5) Ferritin 6.96 μg/l; (ref <300) Folic acid 5.02 ng/ml; (ref. 2.0-20.0) Vitamin D3 18.76 ng/ml. (ref. 10-75) Iron 4 µmol
In the last year, the level of vitamin B12 in my blood has risen to 651.0 pg/ml; (ref. 183.3 - 505.0 pg/ml). Other parameters are basically fine FT-3 4.15 pmol/l; (ref. 3.5-6.5) Ferritin 6.96 μg/l; (ref <300) Folic acid 5.02 ng/ml; (ref. 2.0-20.0) Vitamin D3 18.76 ng/ml. (ref. 10-75) Iron 4 µmol
megim71
in
Thyroid UK
2 years ago
Which Covid booster should I be given? (Ended up being rushed into hospital 2 1/2 hours after last Pfizer one as I couldn't walk)
I am diabetic type 2, asthmatic, suffer Uti's , and a distended stomach and been in hospital 4 times in the last year with suspected heart problems and had heart monitor implanted, so most concerned about Covid booster. Have written to surgery but no reply as yet. Is there more than 1 booster
I am diabetic type 2, asthmatic, suffer Uti's , and a distended stomach and been in hospital 4 times in the last year with suspected heart problems and had heart monitor implanted, so most concerned about Covid booster. Have written to surgery but no reply as yet. Is there more than 1 booster
DancingBonny
in
PMRGCAuk
2 years ago
test interpretation
I have a rather long summary page from my flow cytrometry test and I understand none of it. Can someone here please help? translate to common language I can understand? I apologize if this is not the right thing to post. I had to push to get the test done as within this past year my lymphocytes and white
I have a rather long summary page from my flow cytrometry test and I understand none of it. Can someone here please help? translate to common language I can understand? I apologize if this is not the right thing to post. I had to push to get the test done as within this past year my lymphocytes and white
DianeSH
in
CLL Support
2 years ago
Milk thistle - anything to be aware of?
A recent blood panel came back with slightly raised liver enzymes (marginally above the range), for reasons I am looking into. I have read about the benefits of milk thistle supplementation with respect to helping with both liver and thyroid matters. On the whole, the consensus seems to be that it
A recent blood panel came back with slightly raised liver enzymes (marginally above the range), for reasons I am looking into. I have read about the benefits of milk thistle supplementation with respect to helping with both liver and thyroid matters. On the whole, the consensus seems to be that it
JonnyA
in
Thyroid UK
1 year ago
Anemia and thyroid function
TUK posters know well the influence of
anaemia
on thyroid function. Here is a paper examining this.
TUK posters know well the influence of
anaemia
on thyroid function. Here is a paper examining this.
diogenes
in
Thyroid UK
2 years ago
Can anyone recommend a good private pernicious anemia doctor anywhere in Scotland? Two NHS GPs ignored my symptoms they don't listen
Hello, I am desperately looking for a doctor who is competent about vitamin B12 deficiency and/or pernicious anemia. I am positive to gastric parietal cell antibodies, my B12 levels are 444 (should be between 200-883) so nobody takes me seriously because it's not low. GPs won't even consider injections
Hello, I am desperately looking for a doctor who is competent about vitamin B12 deficiency and/or pernicious anemia. I am positive to gastric parietal cell antibodies, my B12 levels are 444 (should be between 200-883) so nobody takes me seriously because it's not low. GPs won't even consider injections
Patient300
in
Pernicious Anaemia Society
1 year ago
Can Divine Intervention Change Your Genotype?
Reports of sickle cell cures/genotype change by divine intervention have become too many to ignore. _SICKLE CELL NEWS_ ventured to investigate: and it turned out easier to pass a camel through the eye of a needle than find anyone cured of sickle cell by Faith! https://selar.co/lor8 We interviewed
Reports of sickle cell cures/genotype change by divine intervention have become too many to ignore. _SICKLE CELL NEWS_ ventured to investigate: and it turned out easier to pass a camel through the eye of a needle than find anyone cured of sickle cell by Faith! https://selar.co/lor8 We interviewed
sicklecellnews
in
Sickle Cell Society
1 year ago
Iron results-any advice?
Hi! V grateful for all the wisdom from this forum. Just did a full iron panel on Medichecks as ferritin has been consistently low, and I've been on and off ferrous fumarate for years. GP only tests ferritin; advice on here seemed to be to get the full picture. Results below... Ferritin much better
Hi! V grateful for all the wisdom from this forum. Just did a full iron panel on Medichecks as ferritin has been consistently low, and I've been on and off ferrous fumarate for years. GP only tests ferritin; advice on here seemed to be to get the full picture. Results below... Ferritin much better
Penicookie
in
Thyroid UK
1 year ago
Low MCHC
Hello all. I have a new aspect of my cbc report that has just become Low. It is MCHC. Normal is 31.0 gm/dL to 36.5. I am now 30.7. I would love comments from any others who have had low MCHC. Did you eventually need oxygen. Did they start treatment due to this? How low can it go before you physically
Hello all. I have a new aspect of my cbc report that has just become Low. It is MCHC. Normal is 31.0 gm/dL to 36.5. I am now 30.7. I would love comments from any others who have had low MCHC. Did you eventually need oxygen. Did they start treatment due to this? How low can it go before you physically
davidgrush
in
CLL Support
1 year ago
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