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Experiences with
Amyotrophic lateral sclerosis (ALS)
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ALS Anxiety
Hi, So I have had neck, leg and arm pain for a few months now on my right side and now suddenly I have random twitching in my eyelid and chin I also alway feel parched and have recently found it hard to swallow all which are early signs of
ALS
am quietly fearing I have
ALS
and don’t know what to do
Hi, So I have had neck, leg and arm pain for a few months now on my right side and now suddenly I have random twitching in my eyelid and chin I also alway feel parched and have recently found it hard to swallow all which are early signs of
ALS
am quietly fearing I have
ALS
and don’t know what to do
Bostonj
in
Anxiety Support
5 years ago
Rheumatoid arthritis and muscle atrophy
It may be stupid, but I started thinking about
ALS
and if the atrophy in my leg could relate to
ALS
. But I have no other symptoms. The difference between right and left leg is 3,5 cm. What do you think?
It may be stupid, but I started thinking about
ALS
and if the atrophy in my leg could relate to
ALS
. But I have no other symptoms. The difference between right and left leg is 3,5 cm. What do you think?
Hildestj
in
NRAS
5 years ago
Fatty liver (I'm new here)
Hello All Hope you all are fine and well, as like good members, I also want to discuss about my health Last two weeks I did Ultrasound in which fatty liver becomes minimal to moderate, minimal is about one year ago. My sonologist recommends me to do fibroscan. After that, my fibroscan result is as CAP
Hello All Hope you all are fine and well, as like good members, I also want to discuss about my health Last two weeks I did Ultrasound in which fatty liver becomes minimal to moderate, minimal is about one year ago. My sonologist recommends me to do fibroscan. After that, my fibroscan result is as CAP
muneerbarry
in
British Liver Trust
5 years ago
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2 MONTHS On Ocaliva
(FEB. 8). (MAR 11) (April 15) Ast...18. Ast.... 14. Ast... 13 Alt.... 28. Alt..... 21. Alt... 15 Bili.... 0.35. Bili.... 0.39. Bili.. 0.3 AlkP... 159. AlkP... 169. AlkP.. 174 Albu... 3.5. Albu... 3.5. Albu... 3..7 Above is my baseline
(FEB. 8). (MAR 11) (April 15) Ast...18. Ast.... 14. Ast... 13 Alt.... 28. Alt..... 21. Alt... 15 Bili.... 0.35. Bili.... 0.39. Bili.. 0.3 AlkP... 159. AlkP... 169. AlkP.. 174 Albu... 3.5. Albu... 3.5. Albu... 3..7 Above is my baseline
Ktltel
in
PBC Foundation
5 years ago
latest bloods
blood results NO T3 or B12🤬🤬🤬 im taking 6am 1/2 ndt 6.25 t3 2pm 12.5 t3 6pm 1/2 ndt 6.25 t3 been slowly increasing over 6 weeks 3 months ago on 150 eltroxin TSH level 7.67 U/mL [0.38 - 5.33] Liver function tests Serum albumin level 40 g/L [35.0 - 50.0] Serum alkaline phosphatase level 42 u/L [30.0
blood results NO T3 or B12🤬🤬🤬 im taking 6am 1/2 ndt 6.25 t3 2pm 12.5 t3 6pm 1/2 ndt 6.25 t3 been slowly increasing over 6 weeks 3 months ago on 150 eltroxin TSH level 7.67 U/mL [0.38 - 5.33] Liver function tests Serum albumin level 40 g/L [35.0 - 50.0] Serum alkaline phosphatase level 42 u/L [30.0
mandy72
in
Thyroid UK
5 years ago
There is hope
I thought for the longest time that I had cancer or some sort of neurological disease(MS
ALS
etc) and the thought of not being able to take care of my family put me down a dark path of anxiety.
I thought for the longest time that I had cancer or some sort of neurological disease(MS
ALS
etc) and the thought of not being able to take care of my family put me down a dark path of anxiety.
androgste
in
Anxiety Support
5 years ago
Rising lfts
Hi I’m 25 year old female 6 weeks post Partum. Lfts have been rising since I have birth. AST and alt have decreased to near normal again but Ggt has increased to 500 and alk phos over 800. Ultrasound and mri of liver are normal. Unsure what’s causing it, recent diagnosed with colitis so may be condition
Hi I’m 25 year old female 6 weeks post Partum. Lfts have been rising since I have birth. AST and alt have decreased to near normal again but Ggt has increased to 500 and alk phos over 800. Ultrasound and mri of liver are normal. Unsure what’s causing it, recent diagnosed with colitis so may be condition
Lou70215
in
British Liver Trust
5 years ago
Lab Tests / what to order and why?
I’d be curious on what lab tests (and why) men are getting frequently beyond the standard ones PSA T Alk Phos CBC Appreciate your input
I’d be curious on what lab tests (and why) men are getting frequently beyond the standard ones PSA T Alk Phos CBC Appreciate your input
Longterm101
in
Advanced Prostate Cancer
5 years ago
Having a really hard time with acceptance and perspective
I had a bad
ALS
scare, culminating in an MRI, CT, EEG, EMG, NCS, the list goes on. All were normal (i haven't gotten results from the EEG so I assume normal.) Now, my gallbladder is seriously on the fritz and it's sort of robbing me of what I love to do most - exercise.
I had a bad
ALS
scare, culminating in an MRI, CT, EEG, EMG, NCS, the list goes on. All were normal (i haven't gotten results from the EEG so I assume normal.) Now, my gallbladder is seriously on the fritz and it's sort of robbing me of what I love to do most - exercise.
evie15
in
Anxiety Support
5 years ago
Normal TSH result. Where to go from here?
Been suffering with extreme tiredness and fatigue of late, along with various other hypothyroidism symptoms. Got bloods done at GP, only thyroid testing was TSH, and results were normal. But I still feel awful. Where do I go from here? Is it worth getting other thyroid tests when my TSH isn't even slightly
Been suffering with extreme tiredness and fatigue of late, along with various other hypothyroidism symptoms. Got bloods done at GP, only thyroid testing was TSH, and results were normal. But I still feel awful. Where do I go from here? Is it worth getting other thyroid tests when my TSH isn't even slightly
RebsterRoo
in
Thyroid UK
5 years ago
Rls and shaky hands and legs after movement? Only during the day...it feels like muscle shortening? Please hel p with any info...
Doctors said:No cancer-Ms-
Als
-Parkinson-cancer-no Lyme-cortisol all ok...so what do I have? Neurologist said RLS but does that make your hands shake? (only after movement) Also I do have venous insufficiency and all of these problems started after EVLT-operation. I have no rest tremor.
Doctors said:No cancer-Ms-
Als
-Parkinson-cancer-no Lyme-cortisol all ok...so what do I have? Neurologist said RLS but does that make your hands shake? (only after movement) Also I do have venous insufficiency and all of these problems started after EVLT-operation. I have no rest tremor.
Sandee007
in
Restless Legs Syndrome
5 years ago
Hyperthyroidism or is it RLS or bad liver? Please help?
Doctors said:No cancer-Ms-
Als
-Parkinson-cancer-no Lyme-cortisol all ok...so what do I have? Neurologist said RLS but does that make your hands shake? (only after movement) Also I do have venous insufficiency and all of these problems started after EVLT-operation. I have no rest tremor.
Doctors said:No cancer-Ms-
Als
-Parkinson-cancer-no Lyme-cortisol all ok...so what do I have? Neurologist said RLS but does that make your hands shake? (only after movement) Also I do have venous insufficiency and all of these problems started after EVLT-operation. I have no rest tremor.
Sandee007
in
Restless Legs Syndrome
5 years ago
Question about elastograph ultrasound result
Good morning everyone. I was diagnosed last October after elevated Alk Phos for almost a year and positive AMA. I had my first elastograph ultrasound in November 2018 after I refused a liver biopsy (sample from 1 spot, not as wide a look at the liver, etc). The kPA value from the elastograph was 1.92
Good morning everyone. I was diagnosed last October after elevated Alk Phos for almost a year and positive AMA. I had my first elastograph ultrasound in November 2018 after I refused a liver biopsy (sample from 1 spot, not as wide a look at the liver, etc). The kPA value from the elastograph was 1.92
lilygrower
in
PBC Foundation
5 years ago
Is this RLS or...stenosis? I have difficulty walking and a little bit of shaky hands after movement.
Doctors said:No cancer-Ms-
Als
-Parkinson-cancer-no Lyme-cortisol all ok...so what do I have? Neurologist said RLS but does that make your hands shake? (only after movement) Also I do have venous insufficiency and all of these problems started after EVLT-operation. I have no rest tremor.
Doctors said:No cancer-Ms-
Als
-Parkinson-cancer-no Lyme-cortisol all ok...so what do I have? Neurologist said RLS but does that make your hands shake? (only after movement) Also I do have venous insufficiency and all of these problems started after EVLT-operation. I have no rest tremor.
Sandee007
in
Restless Legs Syndrome
5 years ago
Fibroscan abnormal
I was recovered from hepatitis A in last October 2018.. got affected in last july 27 2018. get a titenus vaccine due to a nail puncture on feet on 10th dec. got diarrhea after 2 days later 30 times. and recover from it within 30 hours. got sgpt check again in 14 dec was vaule 54. normal is below 40.
I was recovered from hepatitis A in last October 2018.. got affected in last july 27 2018. get a titenus vaccine due to a nail puncture on feet on 10th dec. got diarrhea after 2 days later 30 times. and recover from it within 30 hours. got sgpt check again in 14 dec was vaule 54. normal is below 40.
riz99
in
British Liver Trust
5 years ago
Doctors order a new blood test.
Hi all does any one have any I’d. The doctor order a full blood work up. Due to a lot of problems. They cut my medication in January from 175 to 150 and now down to 125 at the end of March. There trying to raise my T3 from 0.1 last blood test was in March before cut down to 125. Was T3 still at 0.1 but
Hi all does any one have any I’d. The doctor order a full blood work up. Due to a lot of problems. They cut my medication in January from 175 to 150 and now down to 125 at the end of March. There trying to raise my T3 from 0.1 last blood test was in March before cut down to 125. Was T3 still at 0.1 but
Haze1975
in
Thyroid UK
5 years ago
First timer here
I was wondering at my last visit to the neruology
ALS
clinic why I couldn't focus back and forth from my computer screen to the computer keyboard. I was told that in addition to PLS I had PSP.
I was wondering at my last visit to the neruology
ALS
clinic why I couldn't focus back and forth from my computer screen to the computer keyboard. I was told that in addition to PLS I had PSP.
OleJoel
in
PSP Association
5 years ago
Well....... Now what?
Pre\OCA. ON OCA FEB. 8. MAR 11 Ast...18. Ast.... 14 Alt.... 28. Alt..... 21 Bili.... 0.35. Bili.... 0.39 AlkP... 159. AlkP... 169 Albu... 3.5. Albu... 3.5 After 30 days on 5mg Ocaliva & URSO My numbers aren't bad but
Pre\OCA. ON OCA FEB. 8. MAR 11 Ast...18. Ast.... 14 Alt.... 28. Alt..... 21 Bili.... 0.35. Bili.... 0.39 AlkP... 159. AlkP... 169 Albu... 3.5. Albu... 3.5 After 30 days on 5mg Ocaliva & URSO My numbers aren't bad but
Ktltel
in
PBC Foundation
5 years ago
New. To this group
Then my brain takes me to places like
ALS
and other horrible diseases. I google too much and think the worst. Any words of wisdom would be great or even someone who can relate to this might help a little . Thanks for reading
Then my brain takes me to places like
ALS
and other horrible diseases. I google too much and think the worst. Any words of wisdom would be great or even someone who can relate to this might help a little . Thanks for reading
Wjohnjack
in
My OCD Community
5 years ago
Stem Cell Treatment
Stephen Hawkins (Astrophysicist) who had
ALS
said this and I’ve always liked this. Thanks, Nikki 🌼
Stephen Hawkins (Astrophysicist) who had
ALS
said this and I’ve always liked this. Thanks, Nikki 🌼
nicoly3467
in
My MSAA Community
5 years ago
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