Search
Search
About
Log in
Join
Experiences with
Amyotrophic lateral sclerosis (ALS)
Posts
Communities
890 public posts
Filter results
TUDCA for PD
These practices persist even though TUDCA can be chemically synthesized TUDCA (which has the trade name Tudcabil) is currently classified as a ‘supplement’ for certain liver disorders but has shown to be useful in treating amyotrophic lateral sclerosis (
ALS
), Alzheimer’s disease, Parkinson’s disease,
These practices persist even though TUDCA can be chemically synthesized TUDCA (which has the trade name Tudcabil) is currently classified as a ‘supplement’ for certain liver disorders but has shown to be useful in treating amyotrophic lateral sclerosis (
ALS
), Alzheimer’s disease, Parkinson’s disease,
Farooqji
in
Cure Parkinson's
5 years ago
Tips on derealization and easing the feeling i get that i cant control my body
also ways to cope with irrational thoughts because i feel crazy sometimes Like i can't believe i actually think i might suddenly lose my ability to move .. like thats just impossible but sense i feel numb i started thinking what if something is wrong..other than my health anxiety that made me go its
ALS
also ways to cope with irrational thoughts because i feel crazy sometimes Like i can't believe i actually think i might suddenly lose my ability to move .. like thats just impossible but sense i feel numb i started thinking what if something is wrong..other than my health anxiety that made me go its
ALS
Kevin160
in
Anxiety and Depression Support
5 years ago
May Is PSP Awareness Month
It is part of a family of Parkinsonisms (Parkinson-like), the more well known being
ALS
. The humming bird has become the recognized symbol for PSP. To help raise PSP awareness this amazing little bird named Harley, is going to fly around the world.
It is part of a family of Parkinsonisms (Parkinson-like), the more well known being
ALS
. The humming bird has become the recognized symbol for PSP. To help raise PSP awareness this amazing little bird named Harley, is going to fly around the world.
daddyt
in
PSP Association
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Addisons disease
I was basically told i had Addisons after i got these results back from a blood test and was put on steroid tablets, but after a subsequent synacthen test 2.5 month later i was told i hadn't got it as my results were borderline so taken back off the medication , i have posted my first set of results
I was basically told i had Addisons after i got these results back from a blood test and was put on steroid tablets, but after a subsequent synacthen test 2.5 month later i was told i hadn't got it as my results were borderline so taken back off the medication , i have posted my first set of results
Freddy1000
in
Thyroid UK
5 years ago
Update: 9 months into my hypo journey - starting to take control, advice please.
Apologies for the long post!! After an initial post when I joined this forum I’ve just been taking in info and learning about others journeys and now feel able to start to control my own as not really getting anywhere, and think my understanding from being on here has improved my knowledge to enable
Apologies for the long post!! After an initial post when I joined this forum I’ve just been taking in info and learning about others journeys and now feel able to start to control my own as not really getting anywhere, and think my understanding from being on here has improved my knowledge to enable
Michelin
in
Thyroid UK
5 years ago
<0.1 to 0.1
I use the same place every time to do lab work. (Quest) December February and April showed psa <0.1. This month shows 0.1. Also alk phos up from 74 to 89 Hard not to worry.
I use the same place every time to do lab work. (Quest) December February and April showed psa <0.1. This month shows 0.1. Also alk phos up from 74 to 89 Hard not to worry.
Peterd110
in
Advanced Prostate Cancer
5 years ago
PK protocol
Medical applications Kane believes her protocol can offer clinical benefit in a range of neurological disorders including
ALS
, Parkinson's Disease, Multiple Sclerosis, Alzheimer's, Autism, pervasive developmental delay, seizure disorders, Post Stroke, traumatic brain injury, metabolic and genetic abnormalities
Medical applications Kane believes her protocol can offer clinical benefit in a range of neurological disorders including
ALS
, Parkinson's Disease, Multiple Sclerosis, Alzheimer's, Autism, pervasive developmental delay, seizure disorders, Post Stroke, traumatic brain injury, metabolic and genetic abnormalities
akgirlsrock
in
Cure Parkinson's
5 years ago
How do you deal with the dismissive ‘encouraging comments’ from friends and family like “people don’t die of Parkinson’s, you know”?
I just want to stop the incessant “you’re lucky it’s Parkinson’s and not” :
ALS
, cancer, MS, Alzheimer’s, etc comments. Or do I have to be the bigger person? People don’t know what to say; they are trying to give me hope and encouragement. Unfortunately, to me, these comments feel dismissive.
I just want to stop the incessant “you’re lucky it’s Parkinson’s and not” :
ALS
, cancer, MS, Alzheimer’s, etc comments. Or do I have to be the bigger person? People don’t know what to say; they are trying to give me hope and encouragement. Unfortunately, to me, these comments feel dismissive.
PalmSprings
in
Cure Parkinson's
5 years ago
Elevated LFTs
Tomorrow is my last day of IMRT, with high-dose Brachytherapy scheduled to follow starting next week. But on pre-op labs my LFTs hav risen dramatically over the past 3 months, up 4-7x from normal baseline. I did not have visceral mets on any of several staging scan types. I am asymptomatic as far as
Tomorrow is my last day of IMRT, with high-dose Brachytherapy scheduled to follow starting next week. But on pre-op labs my LFTs hav risen dramatically over the past 3 months, up 4-7x from normal baseline. I did not have visceral mets on any of several staging scan types. I am asymptomatic as far as
Milkweed
in
Advanced Prostate Cancer
5 years ago
ALS Anxiety
Hi, So I have had neck, leg and arm pain for a few months now on my right side and now suddenly I have random twitching in my eyelid and chin I also alway feel parched and have recently found it hard to swallow all which are early signs of
ALS
am quietly fearing I have
ALS
and don’t know what to do
Hi, So I have had neck, leg and arm pain for a few months now on my right side and now suddenly I have random twitching in my eyelid and chin I also alway feel parched and have recently found it hard to swallow all which are early signs of
ALS
am quietly fearing I have
ALS
and don’t know what to do
Bostonj
in
Anxiety Support
5 years ago
Liver Reports updated
Hello All Hope so all are fine Just updates about my results and seen anyone has same conditions which i suffer; - Uric Acid 7.8 mg/dl - Triglyceriders 156mg/dl - Serum Cholesterol 205 mg/dl - SGPT 95 U/L - SGOT 48 U/L - Gamma GT 62
Hello All Hope so all are fine Just updates about my results and seen anyone has same conditions which i suffer; - Uric Acid 7.8 mg/dl - Triglyceriders 156mg/dl - Serum Cholesterol 205 mg/dl - SGPT 95 U/L - SGOT 48 U/L - Gamma GT 62
muneerbarry
in
British Liver Trust
5 years ago
Rheumatoid arthritis and muscle atrophy
It may be stupid, but I started thinking about
ALS
and if the atrophy in my leg could relate to
ALS
. But I have no other symptoms. The difference between right and left leg is 3,5 cm. What do you think?
It may be stupid, but I started thinking about
ALS
and if the atrophy in my leg could relate to
ALS
. But I have no other symptoms. The difference between right and left leg is 3,5 cm. What do you think?
Hildestj
in
NRAS
5 years ago
Fatty liver (I'm new here)
Hello All Hope you all are fine and well, as like good members, I also want to discuss about my health Last two weeks I did Ultrasound in which fatty liver becomes minimal to moderate, minimal is about one year ago. My sonologist recommends me to do fibroscan. After that, my fibroscan result is as CAP
Hello All Hope you all are fine and well, as like good members, I also want to discuss about my health Last two weeks I did Ultrasound in which fatty liver becomes minimal to moderate, minimal is about one year ago. My sonologist recommends me to do fibroscan. After that, my fibroscan result is as CAP
muneerbarry
in
British Liver Trust
5 years ago
2 MONTHS On Ocaliva
(FEB. 8). (MAR 11) (April 15) Ast...18. Ast.... 14. Ast... 13 Alt.... 28. Alt..... 21. Alt... 15 Bili.... 0.35. Bili.... 0.39. Bili.. 0.3 AlkP... 159. AlkP... 169. AlkP.. 174 Albu... 3.5. Albu... 3.5. Albu... 3..7 Above is my baseline
(FEB. 8). (MAR 11) (April 15) Ast...18. Ast.... 14. Ast... 13 Alt.... 28. Alt..... 21. Alt... 15 Bili.... 0.35. Bili.... 0.39. Bili.. 0.3 AlkP... 159. AlkP... 169. AlkP.. 174 Albu... 3.5. Albu... 3.5. Albu... 3..7 Above is my baseline
Ktltel
in
PBC Foundation
5 years ago
latest bloods
blood results NO T3 or B12🤬🤬🤬 im taking 6am 1/2 ndt 6.25 t3 2pm 12.5 t3 6pm 1/2 ndt 6.25 t3 been slowly increasing over 6 weeks 3 months ago on 150 eltroxin TSH level 7.67 U/mL [0.38 - 5.33] Liver function tests Serum albumin level 40 g/L [35.0 - 50.0] Serum alkaline phosphatase level 42 u/L [30.0
blood results NO T3 or B12🤬🤬🤬 im taking 6am 1/2 ndt 6.25 t3 2pm 12.5 t3 6pm 1/2 ndt 6.25 t3 been slowly increasing over 6 weeks 3 months ago on 150 eltroxin TSH level 7.67 U/mL [0.38 - 5.33] Liver function tests Serum albumin level 40 g/L [35.0 - 50.0] Serum alkaline phosphatase level 42 u/L [30.0
mandy72
in
Thyroid UK
5 years ago
There is hope
I thought for the longest time that I had cancer or some sort of neurological disease(MS
ALS
etc) and the thought of not being able to take care of my family put me down a dark path of anxiety.
I thought for the longest time that I had cancer or some sort of neurological disease(MS
ALS
etc) and the thought of not being able to take care of my family put me down a dark path of anxiety.
androgste
in
Anxiety Support
5 years ago
Rising lfts
Hi I’m 25 year old female 6 weeks post Partum. Lfts have been rising since I have birth. AST and alt have decreased to near normal again but Ggt has increased to 500 and alk phos over 800. Ultrasound and mri of liver are normal. Unsure what’s causing it, recent diagnosed with colitis so may be condition
Hi I’m 25 year old female 6 weeks post Partum. Lfts have been rising since I have birth. AST and alt have decreased to near normal again but Ggt has increased to 500 and alk phos over 800. Ultrasound and mri of liver are normal. Unsure what’s causing it, recent diagnosed with colitis so may be condition
Lou70215
in
British Liver Trust
5 years ago
Lab Tests / what to order and why?
I’d be curious on what lab tests (and why) men are getting frequently beyond the standard ones PSA T Alk Phos CBC Appreciate your input
I’d be curious on what lab tests (and why) men are getting frequently beyond the standard ones PSA T Alk Phos CBC Appreciate your input
Longterm101
in
Advanced Prostate Cancer
5 years ago
Having a really hard time with acceptance and perspective
I had a bad
ALS
scare, culminating in an MRI, CT, EEG, EMG, NCS, the list goes on. All were normal (i haven't gotten results from the EEG so I assume normal.) Now, my gallbladder is seriously on the fritz and it's sort of robbing me of what I love to do most - exercise.
I had a bad
ALS
scare, culminating in an MRI, CT, EEG, EMG, NCS, the list goes on. All were normal (i haven't gotten results from the EEG so I assume normal.) Now, my gallbladder is seriously on the fritz and it's sort of robbing me of what I love to do most - exercise.
evie15
in
Anxiety Support
5 years ago
Normal TSH result. Where to go from here?
Been suffering with extreme tiredness and fatigue of late, along with various other hypothyroidism symptoms. Got bloods done at GP, only thyroid testing was TSH, and results were normal. But I still feel awful. Where do I go from here? Is it worth getting other thyroid tests when my TSH isn't even slightly
Been suffering with extreme tiredness and fatigue of late, along with various other hypothyroidism symptoms. Got bloods done at GP, only thyroid testing was TSH, and results were normal. But I still feel awful. Where do I go from here? Is it worth getting other thyroid tests when my TSH isn't even slightly
RebsterRoo
in
Thyroid UK
5 years ago
1
...
21
22
23
...
45
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
Thyroid UK
172 results
Cure Parkinson's
115 results
Advanced Prostate Cancer
103 results
View top 10 communities
Sort by
Most Relevant
Newest