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Experiences with
Amyotrophic lateral sclerosis (ALS)
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Halfway Through Docetaxel
Hi All, thought I'd give a random update on my progress now that I'm in the third week of my third cycle of Docetaxel. So far I'm tolerating the chemo quite well. After the usual storm of side effects in the first week of a cycle, pretty much all I'm dealing with is thinning hair (but still have quite
Hi All, thought I'd give a random update on my progress now that I'm in the third week of my third cycle of Docetaxel. So far I'm tolerating the chemo quite well. After the usual storm of side effects in the first week of a cycle, pretty much all I'm dealing with is thinning hair (but still have quite
tom67inMA
in
Advanced Prostate Cancer
5 years ago
Cataract, Liver/Pancreas issues, Elevated M2 AMA, NAFLD and now Dupuytren's, I am only 45!
Was diagnosed with Liver issues/poss PBC in 2009 after elevated alk phos for 10+ years and Elevated M2 AMA (negative in 2003 but positive in 2009, rechecked multiple times by multiple specialists, all positive), and NAFLD, then in 2012 diagnosed with posterior subcapsular cataract in right eye. Spent
Was diagnosed with Liver issues/poss PBC in 2009 after elevated alk phos for 10+ years and Elevated M2 AMA (negative in 2003 but positive in 2009, rechecked multiple times by multiple specialists, all positive), and NAFLD, then in 2012 diagnosed with posterior subcapsular cataract in right eye. Spent
Cooper6
in
PBC Foundation
5 years ago
High b12 struggle goes on
Hi - thank you for all your helpful replies in the past. I have had a ct scan of liver which was normal & further liver blood tests following above range reading of alanine aminotransferase level & they have also come back within range, which is a great relief. This still leaves the fact that my b12
Hi - thank you for all your helpful replies in the past. I have had a ct scan of liver which was normal & further liver blood tests following above range reading of alanine aminotransferase level & they have also come back within range, which is a great relief. This still leaves the fact that my b12
Irismay
in
Pernicious Anaemia Society
5 years ago
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unusual thyroid results posted as requested. Most of these make no sense to me.
Results form my surgery are as follows: Clinician viewed11 Jan 2019 Result typePathology TestsThyroid function test ResultAbnormal What you need to doMake an appointment to see doctor Specimen Specimen Type: Blood Specimen Reference#: 1 Collected: 11 Jan 2019 Received: 11 Jan 2019 Provider
Results form my surgery are as follows: Clinician viewed11 Jan 2019 Result typePathology TestsThyroid function test ResultAbnormal What you need to doMake an appointment to see doctor Specimen Specimen Type: Blood Specimen Reference#: 1 Collected: 11 Jan 2019 Received: 11 Jan 2019 Provider
lco1
in
Thyroid UK
5 years ago
Radium-223 + Abiraterone & prednisone/prednisolone
New study below. "The addition of radium-223 to abiraterone acetate plus prednisone or prednisolone did not improve symptomatic skeletal event-free survival in patients with castration-resistant prostate cancer and bone metastases, and was associated with an increased frequency of bone fractures compared
New study below. "The addition of radium-223 to abiraterone acetate plus prednisone or prednisolone did not improve symptomatic skeletal event-free survival in patients with castration-resistant prostate cancer and bone metastases, and was associated with an increased frequency of bone fractures compared
pjoshea13
in
Advanced Prostate Cancer
5 years ago
Health Anxiety and med side effects
I’ve convinced myself of having 5 different terminal illnesses including colon cancer, lung cancer, bone cancer and
als
. With I took small symptoms and made them into huge but real to me symptoms and eventually cleared by tests.
I’ve convinced myself of having 5 different terminal illnesses including colon cancer, lung cancer, bone cancer and
als
. With I took small symptoms and made them into huge but real to me symptoms and eventually cleared by tests.
Titus83
in
Anxiety and Depression Support
5 years ago
Graves, hypo symptoms, no longer functioning, please help!
I'm reaching out to this community some time after initially joining to see if you can help me help my mother. I initially joined as I was having miscarriages and after 5years of fighting to get help my normal tsh finally slumped enough (from 1.2 to 3.4) to get some t4, and hey presto, we conceived and
I'm reaching out to this community some time after initially joining to see if you can help me help my mother. I initially joined as I was having miscarriages and after 5years of fighting to get help my normal tsh finally slumped enough (from 1.2 to 3.4) to get some t4, and hey presto, we conceived and
arcticsun
in
Thyroid UK
5 years ago
Help with "normal" blood test results but feeling terrible
Can anyone help with these test results I have been struggling for over a month feeling tired, going hot and cold, tired/achey, headache feeling like my brain was in fog, poor memory, subtle off balance feeling. She sent me for blood tests but has said "No action required" even though some results are
Can anyone help with these test results I have been struggling for over a month feeling tired, going hot and cold, tired/achey, headache feeling like my brain was in fog, poor memory, subtle off balance feeling. She sent me for blood tests but has said "No action required" even though some results are
carer999
in
Thyroid UK
5 years ago
High SGPT and SGOT values
My SGPT values are very high - 247 , where upper limit is 50. PFA report and suggest. Having MF 500 MG 3 times a day. And Veniz 37.5 mg 1 capsule at night I am non drinker and non smoker last 6 Hba1c are below 6
My SGPT values are very high - 247 , where upper limit is 50. PFA report and suggest. Having MF 500 MG 3 times a day. And Veniz 37.5 mg 1 capsule at night I am non drinker and non smoker last 6 Hba1c are below 6
Indian1990
Star
in
Diabetes India
5 years ago
High SGPT Values
My SGPT values are very high - 247 , where upper limit is 50. PFA report and suggest. Having MF 500 MG 3 times a day. And Veniz 37.5 mg 1 capsule at night I am non drinker and non smoker
My SGPT values are very high - 247 , where upper limit is 50. PFA report and suggest. Having MF 500 MG 3 times a day. And Veniz 37.5 mg 1 capsule at night I am non drinker and non smoker
Indian1990
in
British Liver Trust
5 years ago
PSP Awareness... long winded
The Ice Bucket Challenge for
ALS
, which is in the same family of Parkinsonism as PSP, CBD and MSA, was hugely successful. At the very least, I hoped it would be widely shared on social media. It takes nothing to click on the Share Button.
The Ice Bucket Challenge for
ALS
, which is in the same family of Parkinsonism as PSP, CBD and MSA, was hugely successful. At the very least, I hoped it would be widely shared on social media. It takes nothing to click on the Share Button.
daddyt
in
PSP Association
5 years ago
App version 2 is coming!!
And it is going to be awesome!!!!!! Beyond awesome!!! So, how do you get it? Make sure you are registered with the PBC Foundation. Both registering with us and using the app are absolutely free. I encourage you in the strongest terms to get ready to make sure you have this. It will have a huge
And it is going to be awesome!!!!!! Beyond awesome!!! So, how do you get it? Make sure you are registered with the PBC Foundation. Both registering with us and using the app are absolutely free. I encourage you in the strongest terms to get ready to make sure you have this. It will have a huge
PBCRobert
Administrator
in
PBC Foundation
5 years ago
Urso not working?
Hi all, I'm newly diagnosed with PBC just a little over 2 months ago. I've had elevated liver enzymes (alk phos) for several months. I started Urso November 7, and just had first labs to check. The alk. phos. level went up by over 25 points!! Has anyone else had this happen? Thanks, Lilygrower
Hi all, I'm newly diagnosed with PBC just a little over 2 months ago. I've had elevated liver enzymes (alk phos) for several months. I started Urso November 7, and just had first labs to check. The alk. phos. level went up by over 25 points!! Has anyone else had this happen? Thanks, Lilygrower
lilygrower
in
PBC Foundation
5 years ago
Advice
My 80 yr.old husband was diagnosed 1/2016 with apc with numerous Mets to bones. PSA 4.5 alk phos 4,000. Treated with Casodex,eligard, and zometa. After a year PSA remained <.1 but alk phos elevated. Active Mets in back we’re radiated and switched to xtandi in July 2017. Also switched to xgeva Spring
My 80 yr.old husband was diagnosed 1/2016 with apc with numerous Mets to bones. PSA 4.5 alk phos 4,000. Treated with Casodex,eligard, and zometa. After a year PSA remained <.1 but alk phos elevated. Active Mets in back we’re radiated and switched to xtandi in July 2017. Also switched to xgeva Spring
Bball
in
Advanced Prostate Cancer
5 years ago
Tachycardia
Hello, Since my completion thyroidectomy last week I’ve been suffering with tachycardia heart rate up to 140 at times so dr’s ran blood test. Full blood count Total white blood count 9.0 10*9/L [4.0 - 10.0] Red blood cell count 4.34 10*12/L [3.8 - 4.8] Haemoglobin concentration 131 g/L [120.0 - 150.0
Hello, Since my completion thyroidectomy last week I’ve been suffering with tachycardia heart rate up to 140 at times so dr’s ran blood test. Full blood count Total white blood count 9.0 10*9/L [4.0 - 10.0] Red blood cell count 4.34 10*12/L [3.8 - 4.8] Haemoglobin concentration 131 g/L [120.0 - 150.0
Girl6789
in
Thyroid UK
5 years ago
latest bloods
Liver function tests Serum albumin level 40 g/L [35.0 - 50.0] Serum alkaline phosphatase level 38 u/L [30.0 - 105.0] Serum alanine aminotransferase level 17 u/L [5.0 - 45.0] Serum total bilirubin level 9 umol/L [1.0 - 21.0] Serum total protein level 75 g/L [60.0 - 80.0] Bone profile Serum calcium level
Liver function tests Serum albumin level 40 g/L [35.0 - 50.0] Serum alkaline phosphatase level 38 u/L [30.0 - 105.0] Serum alanine aminotransferase level 17 u/L [5.0 - 45.0] Serum total bilirubin level 9 umol/L [1.0 - 21.0] Serum total protein level 75 g/L [60.0 - 80.0] Bone profile Serum calcium level
mandy72
in
Thyroid UK
5 years ago
Worried
Hi! It's me again. I hope everyone is well. My father has a stage 3A lung cancer and under went lobectomy followed by 6 cycles of chemo therapy, the last session was June 2018. After the chemo he had a episode of exacerbation in July and was confine from Dec 1 to 8 due to Pneumonia and PTB. He is currently
Hi! It's me again. I hope everyone is well. My father has a stage 3A lung cancer and under went lobectomy followed by 6 cycles of chemo therapy, the last session was June 2018. After the chemo he had a episode of exacerbation in July and was confine from Dec 1 to 8 due to Pneumonia and PTB. He is currently
PerfectBlue
in
Lung Conditions Community Forum
5 years ago
Sourcing and storage of Saline solutions of Methylcobalamin
Recently, it has been reported that high-dose treatment with methylcobalamin may delay the progression of
ALS
. We have manufactured high-dose injections of methylcobalamin as a hospital formulation; however, the stability of the injection was unclear.
Recently, it has been reported that high-dose treatment with methylcobalamin may delay the progression of
ALS
. We have manufactured high-dose injections of methylcobalamin as a hospital formulation; however, the stability of the injection was unclear.
Achesandpains75
in
Pernicious Anaemia Society
6 years ago
Good lab results
Good lab results for me this week. Diagnosed in August with psa 352 Gleason 9 multiple bone Mets, alk phos >1000. This weeks labs revealed all values within normal limits and psa is <0.1. On zytiga, Telstar and prednisone. I sure hope it lasts for a while! Merry Christmas everyone!!!
Good lab results for me this week. Diagnosed in August with psa 352 Gleason 9 multiple bone Mets, alk phos >1000. This weeks labs revealed all values within normal limits and psa is <0.1. On zytiga, Telstar and prednisone. I sure hope it lasts for a while! Merry Christmas everyone!!!
Peterd110
in
Advanced Prostate Cancer
6 years ago
Anxiety issues
I did some reasearch and found out I must have
als
! I went to my family doctor I'm getting sent for an EMG at a neurologist specialist. I'm very scared, my doctor said she does not believe it is
als
, but I have to get it checked.
I did some reasearch and found out I must have
als
! I went to my family doctor I'm getting sent for an EMG at a neurologist specialist. I'm very scared, my doctor said she does not believe it is
als
, but I have to get it checked.
Jammiesonhay
in
Anxiety Support
6 years ago
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