Search
Search
About
Log in
Join
Experiences with
Alna
Posts
Communities
945 public posts
Filter results
rheumatology
morning all. I have a few things over lapping.im due to see a rheumatologist mid august for my severe back pain and neck pain. I know I have multiple herniated disks on MRI but I think my back pain and hip pain is related to possible endometriosis (lap booked in on sep 8th after a yr of waiting
morning all. I have a few things over lapping.im due to see a rheumatologist mid august for my severe back pain and neck pain. I know I have multiple herniated disks on MRI but I think my back pain and hip pain is related to possible endometriosis (lap booked in on sep 8th after a yr of waiting
Peppermints
in
Endometriosis UK
2 years ago
diagnosis doubts
I was diagnosed with limited systemic scleroderma 4 years ago with the usual positive ANA blood tests. But I still have difficulty believing the diagnosis – there is nothing visible! (apart from Raynauds which I've had for 30 years). My main symptom is non-absorbance of nutrition – I have lost a stone
I was diagnosed with limited systemic scleroderma 4 years ago with the usual positive ANA blood tests. But I still have difficulty believing the diagnosis – there is nothing visible! (apart from Raynauds which I've had for 30 years). My main symptom is non-absorbance of nutrition – I have lost a stone
volvox45
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
Has anyone had a similar journey?
Hello everyone, My name is Mac and I’ve been struggling with various health complaints for a couple of years. In December 2021 they got particularly bad, and I’ve basically had a consistent low to middle grade fever for 7 months straight. My muscles and joints are all quite sore and after a day of work
Hello everyone, My name is Mac and I’ve been struggling with various health complaints for a couple of years. In December 2021 they got particularly bad, and I’ve basically had a consistent low to middle grade fever for 7 months straight. My muscles and joints are all quite sore and after a day of work
Tinylittlemac
in
LUPUS UK
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
FDA Clears New Antibody Test to Help in SLE Diagnosis
Marta Figueiredo, PhD | June 16, 2022 Thermo Fisher Scientific has received regulatory authorization in the U.S. to market its EliA Rib-P blood test, designed to improve the diagnosis of systemic lupus erythematosus (SLE), particularly in patients without hallmark antinuclear antibodies (ANAs). The
Marta Figueiredo, PhD | June 16, 2022 Thermo Fisher Scientific has received regulatory authorization in the U.S. to market its EliA Rib-P blood test, designed to improve the diagnosis of systemic lupus erythematosus (SLE), particularly in patients without hallmark antinuclear antibodies (ANAs). The
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
AMA negative but ANA positive
Hi there, I was diagnosed with PBC just over two years ago, which was such a shock to me me as I had no idea about this condition (only visited doctor for a routine check-up 😧!!) Have been on Urso ( 2 years) but my ALP and GGT are still high!! Had biopsy and fibroscan 10.1 Specialist says I am
Hi there, I was diagnosed with PBC just over two years ago, which was such a shock to me me as I had no idea about this condition (only visited doctor for a routine check-up 😧!!) Have been on Urso ( 2 years) but my ALP and GGT are still high!! Had biopsy and fibroscan 10.1 Specialist says I am
Liz_K
in
PBC Foundation
2 years ago
Feel lost
Hi all just looking for some advice if possible please. Has anyone had lupus diagnosed without a positive ana ? I have all the symptoms aside from swelling but the rheumatologist has now diagnosed fibromyalgia due to no positive ana. My liver enzymes have been raised since 2014 and I've been having symptoms
Hi all just looking for some advice if possible please. Has anyone had lupus diagnosed without a positive ana ? I have all the symptoms aside from swelling but the rheumatologist has now diagnosed fibromyalgia due to no positive ana. My liver enzymes have been raised since 2014 and I've been having symptoms
Haylz2109
in
LUPUS UK
2 years ago
Negative ANA Test
My ANA was negative but asking biopsy was positive for interface dermatitis ???? the skin doctor said possibly cutaneous lupus. Is it possible to have it on skin only and not in the blood?
My ANA was negative but asking biopsy was positive for interface dermatitis ???? the skin doctor said possibly cutaneous lupus. Is it possible to have it on skin only and not in the blood?
nicole3828
in
LUPUS UK
2 years ago
What medication do people find most helps their lupus ? Can no longer take HCQ
I've given it a good try with the HCQ, no doubt it works as well, but for me with lupus brain damage, traumatic brain injury and a previous brain haemorrhage setting off seizures last year, as many of you know, the HCQ is unfortunately causing too many seizures by reducing my seizure threshold. After
I've given it a good try with the HCQ, no doubt it works as well, but for me with lupus brain damage, traumatic brain injury and a previous brain haemorrhage setting off seizures last year, as many of you know, the HCQ is unfortunately causing too many seizures by reducing my seizure threshold. After
LottieLou96
in
LUPUS UK
2 years ago
Malar rash diagnosis/confirmation
I am ANA positive plus Ds DNA (May be spelled wrong !) also pretty severe Raynauds. I also have what appears to be a Malar Rash.My Rheumy has referred me to dermatology but the wait time is incredibly long/ Have any of you sought a private Dermatologist ? I feel my treatment/care plan is at a standstill
I am ANA positive plus Ds DNA (May be spelled wrong !) also pretty severe Raynauds. I also have what appears to be a Malar Rash.My Rheumy has referred me to dermatology but the wait time is incredibly long/ Have any of you sought a private Dermatologist ? I feel my treatment/care plan is at a standstill
DottyLotty999
in
LUPUS UK
2 years ago
Lost in Autoimmune Land: If my labs are so good, why do I still feel so bad?
Hello, All! Yesterday had my first in-person visit with my rheumatologist in a year and a half. I handed him a 3- page synopsis of all my joint and related issues (only because I would kick myself later for having forgotten certain points!), and had an alarming number of vials of blood drawn. Most
Hello, All! Yesterday had my first in-person visit with my rheumatologist in a year and a half. I handed him a 3- page synopsis of all my joint and related issues (only because I would kick myself later for having forgotten certain points!), and had an alarming number of vials of blood drawn. Most
RxMe
in
Sjogren's Support
2 years ago
Cost of Interferon Alfa 2a
Does Interferon Alfa 2a (Pegasus) cost $1000 for 180mcg/ml ?? Without insurance?
Does Interferon Alfa 2a (Pegasus) cost $1000 for 180mcg/ml ?? Without insurance?
MrThara
in
MPN Voice
2 years ago
Peg injections - two in one day
Hi all, I’m on peginterferon Alfa-2a for ET and a few weeks ago my dose was increased to 180mg. The hospital pharmacy deliver my medication and I can only assume they’ve ran out of 180mg syringes as I’ve been sent about 8 boxes of 90mg pre filled syringes meaning I’m expected to do 2 injections after
Hi all, I’m on peginterferon Alfa-2a for ET and a few weeks ago my dose was increased to 180mg. The hospital pharmacy deliver my medication and I can only assume they’ve ran out of 180mg syringes as I’ve been sent about 8 boxes of 90mg pre filled syringes meaning I’m expected to do 2 injections after
FashionLover
in
MPN Voice
2 years ago
Weakly positive ANA
Hi, i have had fibromyalgia for 6 years now however i have now started to experience swelling of toes and hands and suffering pain in arm, shoulder and collar bone with pins and needles in my right arm consistently now since Christmas day. I have had Rheumatoid tests run which have come back clear however
Hi, i have had fibromyalgia for 6 years now however i have now started to experience swelling of toes and hands and suffering pain in arm, shoulder and collar bone with pins and needles in my right arm consistently now since Christmas day. I have had Rheumatoid tests run which have come back clear however
Smithy180
in
My Fibro Community
3 years ago
anyone's thyroid affected by the astrazeneca ?
I had the Astrazeneca in March, & have has a scary time with serious adverse reactions. I'm now seeing a brilliant homeopath & my energy levles were so low he gave me a thyroid remedy, it improved them, he stopped it as levels were good, then they slumped again...So I'm back on his thyroid remedies &
I had the Astrazeneca in March, & have has a scary time with serious adverse reactions. I'm now seeing a brilliant homeopath & my energy levles were so low he gave me a thyroid remedy, it improved them, he stopped it as levels were good, then they slumped again...So I'm back on his thyroid remedies &
Avidreader
in
Thyroid UK
3 years ago
New member with strange neuro issues
Hi There, Hoping there may be someone in this group that may unfortunately be in a similar situation and can shed some light on what’s going on I’m a 26yo female, I have been experiencing a combination of strange neurological and pain symptoms for the last few years which I have never had previously
Hi There, Hoping there may be someone in this group that may unfortunately be in a similar situation and can shed some light on what’s going on I’m a 26yo female, I have been experiencing a combination of strange neurological and pain symptoms for the last few years which I have never had previously
Diagnosistbc
in
Neuro Support
3 years ago
Help! Hair loss and burning scalp
Hi 👋 Just putting this out there to see if my anyone can relate to my symptoms. I’ve had various symptoms over the last 2 years, I won’t bore you with all of them but….digestive/stomach issues, fatigue, swollen lymph nodes in my neck, severe headaches/migraines, achy jaw/cheek bones, facial flushing
Hi 👋 Just putting this out there to see if my anyone can relate to my symptoms. I’ve had various symptoms over the last 2 years, I won’t bore you with all of them but….digestive/stomach issues, fatigue, swollen lymph nodes in my neck, severe headaches/migraines, achy jaw/cheek bones, facial flushing
Cornwall91
in
LUPUS UK
3 years ago
Antinuclear antibodies - help understanding the result
Hi Can anyone help explain what the result below means? And how do you address a positive antinuclear antibody result when having IVF? - is it blood thinners or steroids or something else? Antinuclear antibodies - Positive - Titre 1:80, Nuclear dots Thank you xx
Hi Can anyone help explain what the result below means? And how do you address a positive antinuclear antibody result when having IVF? - is it blood thinners or steroids or something else? Antinuclear antibodies - Positive - Titre 1:80, Nuclear dots Thank you xx
Skittles11
in
Fertility Network UK
3 years ago
Recommended Lupus Specialist in the UK?
Hello, I’m at my wits end now with my diagnosis journey. I am sick of doctors looking at me like Im some kind of hypochondriac and dismissing all of my symptoms, telling me there is nothing wrong with me when quite clearly there is. My only assumption is that I just haven’t found the right consultant
Hello, I’m at my wits end now with my diagnosis journey. I am sick of doctors looking at me like Im some kind of hypochondriac and dismissing all of my symptoms, telling me there is nothing wrong with me when quite clearly there is. My only assumption is that I just haven’t found the right consultant
SadGirlRaceClub
in
LUPUS UK
3 years ago
Symptoms are back with a vengeance!
I’ve been months without any symptoms of PBC. No fatigue or joint pain. No brain fog at all! Back to normal before this ever came up. Then this past week after my son had the stomach flu and I had several sleepless nights and BAM!!My symptoms are back. I haven’t been diagnosed Bc I declined the liver
I’ve been months without any symptoms of PBC. No fatigue or joint pain. No brain fog at all! Back to normal before this ever came up. Then this past week after my son had the stomach flu and I had several sleepless nights and BAM!!My symptoms are back. I haven’t been diagnosed Bc I declined the liver
JessiG19
in
PBCers Organization
3 years ago
Rheumatologist tel consultation
Hi everyone, I spoke to my rheumatologist yesterday and had a very odd conversation with him, although he’s quite pleased with my progress re GCA he now wants me to start on a treatment used for lupus, apparently I have very high levels of antibodies, ANA positive, I thought high levels was a good thing
Hi everyone, I spoke to my rheumatologist yesterday and had a very odd conversation with him, although he’s quite pleased with my progress re GCA he now wants me to start on a treatment used for lupus, apparently I have very high levels of antibodies, ANA positive, I thought high levels was a good thing
2013mayo
in
PMRGCAuk
3 years ago
1
...
5
6
7
...
48
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
LUPUS UK
499 results
Thyroid UK
77 results
Scleroderma & Raynaud's UK (SRUK)
47 results
View top 10 communities
Sort by
Most Relevant
Newest