Search
Search
About
Log in
Join
Experiences with
Alna
Posts
Communities
945 public posts
Filter results
Got a diagnosis now stumped?
Thanks to all who replied to my question about getting diagnosed it's been a great help! As I have now been to see rheumy I am now more confused, after chatting to her about all my symptoms etc. she has said I have fibromyalgia and discharged me. I'm not sure to be relieved to get a diagnosis or not
Thanks to all who replied to my question about getting diagnosed it's been a great help! As I have now been to see rheumy I am now more confused, after chatting to her about all my symptoms etc. she has said I have fibromyalgia and discharged me. I'm not sure to be relieved to get a diagnosis or not
hunnybuns79
in
LUPUS UK
8 years ago
Hashimoto's in the USA
So I am not from that side of the pond as most of you are. I happened upon this site by happenstance & have found it very, very informative. So thank all of you up front for sharing your stories, experiences, ups & downs. It has made me feel normal in a very not normal world. I have been considered
So I am not from that side of the pond as most of you are. I happened upon this site by happenstance & have found it very, very informative. So thank all of you up front for sharing your stories, experiences, ups & downs. It has made me feel normal in a very not normal world. I have been considered
gzc721
in
Thyroid UK
8 years ago
Gluton free
Hi don't remember if I posted or no ,π But would like to share gluton free diet. Didn't have hashi diagnosed, had TT for cancer. However, as an experiment I tried gluton free and lost a uncomfortable feeling I used to get after eating ππ every day, had in the past positive ANA blood test but got nowhere
Hi don't remember if I posted or no ,π But would like to share gluton free diet. Didn't have hashi diagnosed, had TT for cancer. However, as an experiment I tried gluton free and lost a uncomfortable feeling I used to get after eating ππ every day, had in the past positive ANA blood test but got nowhere
Gcart
in
Thyroid UK
8 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Lupus diagnosis help...
So I've been unwell for 3 years and I'm still not fully diagnosed, originally diagnosed with fibromyalgia but specialist say I have something else. Have had positive ANA result but not during recent testing. Smooth muscle test positive to. GP is certain I have lupus but can't do anything until rhuemo
So I've been unwell for 3 years and I'm still not fully diagnosed, originally diagnosed with fibromyalgia but specialist say I have something else. Have had positive ANA result but not during recent testing. Smooth muscle test positive to. GP is certain I have lupus but can't do anything until rhuemo
Dwarman
in
LUPUS UK
8 years ago
Getting Diagnosed
Hello everyone! I'm new here and wanted to ask how long it took you folks to get a diagnosis or are some still not? I have a rheumatologist appointment next week so don't know what to expect for a first appointment? The doctor had referred me as I had been back and fourth for over a year to see her with
Hello everyone! I'm new here and wanted to ask how long it took you folks to get a diagnosis or are some still not? I have a rheumatologist appointment next week so don't know what to expect for a first appointment? The doctor had referred me as I had been back and fourth for over a year to see her with
hunnybuns79
in
LUPUS UK
8 years ago
Positive ANA
Does anybody else here have a positive ANA and a diagnosis of just RA? I have a positive ANA, 1:320 homogenous pattern and I have only been diagnosed with RA. My rheumatologist told me a positive ANA can happen with RA, but I can't find much on that anywhere on the internet. Everything says mixed connective
Does anybody else here have a positive ANA and a diagnosis of just RA? I have a positive ANA, 1:320 homogenous pattern and I have only been diagnosed with RA. My rheumatologist told me a positive ANA can happen with RA, but I can't find much on that anywhere on the internet. Everything says mixed connective
karilynn85
in
NRAS
8 years ago
Test for lupus
Hi I am just in the process of having test done for lupus. I have been suffering from joint pain and pain pressure points. One of my GP s has sent me to a vascular surgeon to which they are operating on me in February for varicose veins. I have had both my hands operated on for carpal tunnel syndrome
Hi I am just in the process of having test done for lupus. I have been suffering from joint pain and pain pressure points. One of my GP s has sent me to a vascular surgeon to which they are operating on me in February for varicose veins. I have had both my hands operated on for carpal tunnel syndrome
Angiejill
in
LUPUS UK
8 years ago
Rash on face
I haven't been diagnosed with Lupus yet bit my bloodwork says yes. ANA positive, Titer is homogeneous. Inflammatory marker were really high and had just come off steriods the day before they done blood work. Anyways, I developed a rash on my face and was wondering if others have experienced the same?
I haven't been diagnosed with Lupus yet bit my bloodwork says yes. ANA positive, Titer is homogeneous. Inflammatory marker were really high and had just come off steriods the day before they done blood work. Anyways, I developed a rash on my face and was wondering if others have experienced the same?
jamiesue423
in
LUpus Patients Understanding and Support
8 years ago
Waiting for diagnosis
I'm 39 and just had my first appointment with a rheumatologist yesterday. She did x rays and ultrasound on my joints and says she does not think it's RA and now doing more blood tests which may indicate lupus I have had a positive ANA along with pretty much every symptom of RA except swollen, red joints
I'm 39 and just had my first appointment with a rheumatologist yesterday. She did x rays and ultrasound on my joints and says she does not think it's RA and now doing more blood tests which may indicate lupus I have had a positive ANA along with pretty much every symptom of RA except swollen, red joints
DenverKUK
in
LUPUS UK
8 years ago
More blood test results for interpretation
Hello thyroid fans! I have been to a new haematologist who has carried out a swathe of tests to get a baseline, including some thyroid related ones that I hadn't been able to convince the previous 8 doctors to do! She said she would get I touch if there were any problems - she hasn't but has referred
Hello thyroid fans! I have been to a new haematologist who has carried out a swathe of tests to get a baseline, including some thyroid related ones that I hadn't been able to convince the previous 8 doctors to do! She said she would get I touch if there were any problems - she hasn't but has referred
Kiwidel
in
Thyroid UK
8 years ago
Positive dsdna, then negative and my rheumatologist says I don't have lupus...
I would like to hear some opinion from people who might went through the same thing as me because my diagnosis has been very confusing. Back in July I had knee and wrist pain for a couple of weeks and I visited my GP, she run blood work and I was Ana positive and dsdna positive also, it was very low
I would like to hear some opinion from people who might went through the same thing as me because my diagnosis has been very confusing. Back in July I had knee and wrist pain for a couple of weeks and I visited my GP, she run blood work and I was Ana positive and dsdna positive also, it was very low
guis
in
LUPUS UK
8 years ago
Update: B12 Toxicity (Ha)...B12 Not Working...Diagnostic Busses Rolling In...Treatment Has Commenced...and a Big Thank You.
Hi All. A quick recap on where I was when I first joined...severely ill with gastric problems, 2 stone weight loss, unable to eat at all for 4 weeks, symptoms of B12 deficiency returning with a vengeance (including neuro symptoms), asked for more frequent B12 injections (which I should have been on in
Hi All. A quick recap on where I was when I first joined...severely ill with gastric problems, 2 stone weight loss, unable to eat at all for 4 weeks, symptoms of B12 deficiency returning with a vengeance (including neuro symptoms), asked for more frequent B12 injections (which I should have been on in
Foggyme
Administrator
in
Pernicious Anaemia Society
8 years ago
GP210 positive- scared
hello everyone! i am so worried. I'm 44 and in a routine test done 20 days ago, i had positive ANA and positive GP210. I am so worried as from all the readings i have done, it seems PBC has a poor prognosis with the GP210 positive. I am italian, but working in Tunisia for the moment. I am repeating all
hello everyone! i am so worried. I'm 44 and in a routine test done 20 days ago, i had positive ANA and positive GP210. I am so worried as from all the readings i have done, it seems PBC has a poor prognosis with the GP210 positive. I am italian, but working in Tunisia for the moment. I am repeating all
adaf
in
PBC Foundation
8 years ago
Tpo anti bodies are 0 Ana test is 0....TSH is climbing....forgot to mention that!
Thats good right? Anyway:) Im dooking my feet in a bombay curry foot bath....smells funky, bombay, madrassy and Christmasy:) with a herb called bastard teak added to the mix! http://straightbamboo.com/how-to-stay-healthy-in-winter/ here u go guys:) Look after your kidneys:)
Thats good right? Anyway:) Im dooking my feet in a bombay curry foot bath....smells funky, bombay, madrassy and Christmasy:) with a herb called bastard teak added to the mix! http://straightbamboo.com/how-to-stay-healthy-in-winter/ here u go guys:) Look after your kidneys:)
flashinthepan
in
Thyroid UK
8 years ago
MYSTERY and MISERY
Hello, I'm new to this and just wanted to share my story to see if anyone suffers with any similar symptoms? :) I'm currently waiting to see the rheumatologist for my first appointment which is next week. All my childhood I've always been my mother's 'sickly' child. I would always feel achey, 'fluey
Hello, I'm new to this and just wanted to share my story to see if anyone suffers with any similar symptoms? :) I'm currently waiting to see the rheumatologist for my first appointment which is next week. All my childhood I've always been my mother's 'sickly' child. I would always feel achey, 'fluey
Lauralulu
in
LUPUS UK
8 years ago
ANA POSITIVE
My ANA was positive. C-Reactive Protein and Sed rate are high. Hemoglobin is low. I've felt like I have the flu for 3 weeks straight now with no relief. I don't see a Rheumatologist until January and my Doctor is not wanting to give any meds. I'm so miserable I cannot function during the day. The exhaustion
My ANA was positive. C-Reactive Protein and Sed rate are high. Hemoglobin is low. I've felt like I have the flu for 3 weeks straight now with no relief. I don't see a Rheumatologist until January and my Doctor is not wanting to give any meds. I'm so miserable I cannot function during the day. The exhaustion
jamiesue423
in
LUPUS UK
8 years ago
Seems to be Lupus
Positive ANA speckled somethingorother waiting to see rheumy. Hope they know what they are doing?
Positive ANA speckled somethingorother waiting to see rheumy. Hope they know what they are doing?
MelanieMahjenta
in
LUPUS UK
8 years ago
Good news not so great...and I'm really angry.
Hey.... So, if you didn't see me last post, I was excited to share with you all that the rehumy said that I didn't have lupus, (after a year of going back and forth) and that it was probably my APS mimicking the symptoms of lupus. Naturally, I told all my family and friends the good news, only to receive
Hey.... So, if you didn't see me last post, I was excited to share with you all that the rehumy said that I didn't have lupus, (after a year of going back and forth) and that it was probably my APS mimicking the symptoms of lupus. Naturally, I told all my family and friends the good news, only to receive
stacieann1989
in
LUPUS UK
8 years ago
ANA blood test results
Hi all I am just wondering if an ANA test sis a definite test for lupus. I have been having the odd aches and pains along with the odd headache, fatigue, weird fizzing sensation inside my body among other things and have had raised crp and esr levels for around 3 months now. Yesterday I had a ANA blood
Hi all I am just wondering if an ANA test sis a definite test for lupus. I have been having the odd aches and pains along with the odd headache, fatigue, weird fizzing sensation inside my body among other things and have had raised crp and esr levels for around 3 months now. Yesterday I had a ANA blood
chelsealouise33x
in
LUPUS UK
8 years ago
Dead-end at haematologist appointment-what next?
I'm feeling slightly cornered and not sure what to do. I'm became very unwell in March with an array of symptoms including extreme weakness, lightheadedness, joint pain, motor weakness, stomach problems. I'm so weak I can hardly walk. An FBC showed macrocytosis (I also learnt today that I've had a
I'm feeling slightly cornered and not sure what to do. I'm became very unwell in March with an array of symptoms including extreme weakness, lightheadedness, joint pain, motor weakness, stomach problems. I'm so weak I can hardly walk. An FBC showed macrocytosis (I also learnt today that I've had a
Booksellercate
in
Pernicious Anaemia Society
8 years ago
1
...
30
31
32
...
48
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
LUPUS UK
499 results
Thyroid UK
77 results
Scleroderma & Raynaud's UK (SRUK)
47 results
View top 10 communities
Sort by
Most Relevant
Newest