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MYSTERY and MISERY
Hello, I'm new to this and just wanted to share my story to see if anyone suffers with any similar symptoms? :) I'm currently waiting to see the rheumatologist for my first appointment which is next week. All my childhood I've always been my mother's 'sickly' child. I would always feel achey, 'fluey
Hello, I'm new to this and just wanted to share my story to see if anyone suffers with any similar symptoms? :) I'm currently waiting to see the rheumatologist for my first appointment which is next week. All my childhood I've always been my mother's 'sickly' child. I would always feel achey, 'fluey
Lauralulu
in
LUPUS UK
8 years ago
ANA POSITIVE
My ANA was positive. C-Reactive Protein and Sed rate are high. Hemoglobin is low. I've felt like I have the flu for 3 weeks straight now with no relief. I don't see a Rheumatologist until January and my Doctor is not wanting to give any meds. I'm so miserable I cannot function during the day. The exhaustion
My ANA was positive. C-Reactive Protein and Sed rate are high. Hemoglobin is low. I've felt like I have the flu for 3 weeks straight now with no relief. I don't see a Rheumatologist until January and my Doctor is not wanting to give any meds. I'm so miserable I cannot function during the day. The exhaustion
jamiesue423
in
LUPUS UK
8 years ago
Seems to be Lupus
Positive ANA speckled somethingorother waiting to see rheumy. Hope they know what they are doing?
Positive ANA speckled somethingorother waiting to see rheumy. Hope they know what they are doing?
MelanieMahjenta
in
LUPUS UK
8 years ago
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Good news not so great...and I'm really angry.
Hey.... So, if you didn't see me last post, I was excited to share with you all that the rehumy said that I didn't have lupus, (after a year of going back and forth) and that it was probably my APS mimicking the symptoms of lupus. Naturally, I told all my family and friends the good news, only to receive
Hey.... So, if you didn't see me last post, I was excited to share with you all that the rehumy said that I didn't have lupus, (after a year of going back and forth) and that it was probably my APS mimicking the symptoms of lupus. Naturally, I told all my family and friends the good news, only to receive
stacieann1989
in
LUPUS UK
8 years ago
ANA blood test results
Hi all I am just wondering if an ANA test sis a definite test for lupus. I have been having the odd aches and pains along with the odd headache, fatigue, weird fizzing sensation inside my body among other things and have had raised crp and esr levels for around 3 months now. Yesterday I had a ANA blood
Hi all I am just wondering if an ANA test sis a definite test for lupus. I have been having the odd aches and pains along with the odd headache, fatigue, weird fizzing sensation inside my body among other things and have had raised crp and esr levels for around 3 months now. Yesterday I had a ANA blood
chelsealouise33x
in
LUPUS UK
8 years ago
Dead-end at haematologist appointment-what next?
I'm feeling slightly cornered and not sure what to do. I'm became very unwell in March with an array of symptoms including extreme weakness, lightheadedness, joint pain, motor weakness, stomach problems. I'm so weak I can hardly walk. An FBC showed macrocytosis (I also learnt today that I've had a
I'm feeling slightly cornered and not sure what to do. I'm became very unwell in March with an array of symptoms including extreme weakness, lightheadedness, joint pain, motor weakness, stomach problems. I'm so weak I can hardly walk. An FBC showed macrocytosis (I also learnt today that I've had a
Booksellercate
in
Pernicious Anaemia Society
8 years ago
Hi - New and Undiagnosed
Hi - I'm new here, have been reading a few of your posts and thought I should come out of lurking...It is a bit of a long rambly one i'm afraid because I don't know which symptoms might relate to a broader condition or whether it is just getting older/separate conditions (i'm 39). I also feel like I
Hi - I'm new here, have been reading a few of your posts and thought I should come out of lurking...It is a bit of a long rambly one i'm afraid because I don't know which symptoms might relate to a broader condition or whether it is just getting older/separate conditions (i'm 39). I also feel like I
scscsc
in
LUPUS UK
8 years ago
Sedementation Rate
No diagnosis & no meds other than pred a few times in last 18 months. Also frequent Naproxyn. Labs have been all over the place. No Positive ANA but it has been borderline. Anyway Sed Rate has been consistently 65, other than 125 a couple of times in the last 18 months. Never drops below 65. Is this
No diagnosis & no meds other than pred a few times in last 18 months. Also frequent Naproxyn. Labs have been all over the place. No Positive ANA but it has been borderline. Anyway Sed Rate has been consistently 65, other than 125 a couple of times in the last 18 months. Never drops below 65. Is this
Sheole
in
LUPUS UK
8 years ago
Why didn't I join LUPUS UK years ago ?!
Hi everyone, I'm new here & have just been browsing the posts for the last hour. Not glad that you've all got this illness too, but happy that I'm not the only one & there are folk who understandEXACTLY how it feels. I was diagnosed with systemic lupus (& Sjogren's) syndrome 17 years ago. I had been
Hi everyone, I'm new here & have just been browsing the posts for the last hour. Not glad that you've all got this illness too, but happy that I'm not the only one & there are folk who understandEXACTLY how it feels. I was diagnosed with systemic lupus (& Sjogren's) syndrome 17 years ago. I had been
Carolyn1063
in
LUPUS UK
8 years ago
Hints and tips please from my "Scleroderma family"? (new on this website)
Dear "family", It's been only a few days that I came across this forum and I've already found some of the posts invaluable. I was diagnosed with limited sSc in late August and the Internet has been my only advisor...It's good to know that on this forum there is a person on the other side, one that I
Dear "family", It's been only a few days that I came across this forum and I've already found some of the posts invaluable. I was diagnosed with limited sSc in late August and the Internet has been my only advisor...It's good to know that on this forum there is a person on the other side, one that I
tanya1981
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
Blood results - mean anything?
Hello, I just got hold of some recent bloods, and wondered if they mean anything re thyroid or adrenal function? Bloods taken at 4.30pm TSH 2.84 (range 0.30 - 4.40) Cortisol 126 nmol/l (expected values 9am 138-635, midnight <318) FT4 16.1 (9.0 - 19.1) Positive ANA (titre 1:1280) and nucleolar pattern
Hello, I just got hold of some recent bloods, and wondered if they mean anything re thyroid or adrenal function? Bloods taken at 4.30pm TSH 2.84 (range 0.30 - 4.40) Cortisol 126 nmol/l (expected values 9am 138-635, midnight <318) FT4 16.1 (9.0 - 19.1) Positive ANA (titre 1:1280) and nucleolar pattern
whisperit
in
Thyroid UK
8 years ago
Needing advice?
Hi I am new here and I was just curious I have been diagnosed with raynaud's for 2yrs now and I didn't really do anything about it until these past 2months or so because my symptoms were getting worse I was getting more sensitive to the weather changing and sometimes it came on for no reason. I did get
Hi I am new here and I was just curious I have been diagnosed with raynaud's for 2yrs now and I didn't really do anything about it until these past 2months or so because my symptoms were getting worse I was getting more sensitive to the weather changing and sometimes it came on for no reason. I did get
Shari_bags
in
LUPUS UK
8 years ago
Still feeling rubbish, will I ever feel well? Sorry for a pitiful post.
Sorry for the woah me post. You all know my background. It took me such a long time to get diagnosed and I felt even then I had to bully my GP into giving me thyroxine. I went through a trauma 4 years ago, I was attacked by my brother. As a result I had horrific anxiety and agoraphobia. The stress
Sorry for the woah me post. You all know my background. It took me such a long time to get diagnosed and I felt even then I had to bully my GP into giving me thyroxine. I went through a trauma 4 years ago, I was attacked by my brother. As a result I had horrific anxiety and agoraphobia. The stress
Hidden
in
Thyroid UK
8 years ago
Help feeling very lost
Hi I'm new to the website and to the illness. I have been having problem for 4 years. I have just got my bloods back and it show a positive ANA it's 1/640 I also have abnormal centromere the blood test says 'associated with limited cutaneous systemic sclerosis' I have problems with my chest for a while
Hi I'm new to the website and to the illness. I have been having problem for 4 years. I have just got my bloods back and it show a positive ANA it's 1/640 I also have abnormal centromere the blood test says 'associated with limited cutaneous systemic sclerosis' I have problems with my chest for a while
Sami13
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
Skin redness after shower getting worse
Hi I am not sure what is going on with my skin but it is getting worse. I do have mild seborrheic dermatitis centrally on my nose and chin probably triggered by cold weather and insufficient moisturizing. But this redness is different. I thought it might be rosacea but it is all over my body in patches
Hi I am not sure what is going on with my skin but it is getting worse. I do have mild seborrheic dermatitis centrally on my nose and chin probably triggered by cold weather and insufficient moisturizing. But this redness is different. I thought it might be rosacea but it is all over my body in patches
Jar1973
in
LUPUS UK
8 years ago
Is it worth going private?
Im feeling a bit overwhelmed today, sick of feeling sick and tired and sore. So far my own GP has been good but all my results show up as normal, last one being the ANA test. Its hard to explain to him my joints hurt, they ache, my bones ache, my legs are heavy, my neck hurts, its as if my heads too
Im feeling a bit overwhelmed today, sick of feeling sick and tired and sore. So far my own GP has been good but all my results show up as normal, last one being the ANA test. Its hard to explain to him my joints hurt, they ache, my bones ache, my legs are heavy, my neck hurts, its as if my heads too
Loulouella
in
LUPUS UK
8 years ago
Stuttering
I will be seeing the Rhematologist in October for the first time since my positive ANA result. I have began to stutter a little and sometimes have a hard time getting my words out. Is there anyone who has experience the stuttering with lupus
I will be seeing the Rhematologist in October for the first time since my positive ANA result. I have began to stutter a little and sometimes have a hard time getting my words out. Is there anyone who has experience the stuttering with lupus
faithnhm333
in
LUPUS UK
8 years ago
Trying to understand blood work
I have hypo have been taking 75 levo. Last blood work tsh 3.25 (.3-4). Tpo .7 (.0-9). Thyroglobulin antibody <0.9 (.0-4). I believe dr was checking if I had hashimotos. I don't understand tests. He never addressed these because he was more concerned about positive ana 1:320 speckled. And I possible
I have hypo have been taking 75 levo. Last blood work tsh 3.25 (.3-4). Tpo .7 (.0-9). Thyroglobulin antibody <0.9 (.0-4). I believe dr was checking if I had hashimotos. I don't understand tests. He never addressed these because he was more concerned about positive ana 1:320 speckled. And I possible
missyc73
in
Thyroid UK
8 years ago
Redeemed skin all over
Hi I am new here. I have been referred to a rheumatologist based on a positive ANA and signs n symptoms, and just the other day Lichen Sclerosus confirmed by biopsy which I suspect I had from age 8 or 9. Since a recent symptom flare I have developed red skin pretty much all over, like i have too much
Hi I am new here. I have been referred to a rheumatologist based on a positive ANA and signs n symptoms, and just the other day Lichen Sclerosus confirmed by biopsy which I suspect I had from age 8 or 9. Since a recent symptom flare I have developed red skin pretty much all over, like i have too much
Jar1973
in
LUPUS UK
8 years ago
Ranitidine (Zantec): Warning in Immune (autoimmune?) Conditions. Anybody had any problems or have anymore information about this?
Hello All. My GP recently prescribed a course of Ranitidine (histamine H2 receptor antagonist) for multiple duodenal ulcers / gastritis / duodenitis. Prior to taking the tablets I read the patient information leaflet and it said to check with a pharmacist if there were problems with the immune system
Hello All. My GP recently prescribed a course of Ranitidine (histamine H2 receptor antagonist) for multiple duodenal ulcers / gastritis / duodenitis. Prior to taking the tablets I read the patient information leaflet and it said to check with a pharmacist if there were problems with the immune system
Foggyme
Administrator
in
Pernicious Anaemia Society
8 years ago
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