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Need some help – terrible symptoms baffling everybody.
I am new here and looking for help and answers. Thanks in advance for any help you can give. I’ve not been diagnosed with Lupus but I do wonder if it's the cause of all my issues. I have myriad life altering symptoms and I'm desperately trying to get to my root cause. I’ve been really quite sick since
I am new here and looking for help and answers. Thanks in advance for any help you can give. I’ve not been diagnosed with Lupus but I do wonder if it's the cause of all my issues. I have myriad life altering symptoms and I'm desperately trying to get to my root cause. I’ve been really quite sick since
Nunezhall
in
LUPUS UK
7 years ago
Struggling to get diagnosed!
Hi, everyone! I'm new here, to the lupus community. Like many before me, I've been struggling to get an accurate diagnosis. It's been a long process so far. My symptoms started back in October, with random swelling of my right forearm. I went to the ER, where the doctors agree it was probably tendinitis
Hi, everyone! I'm new here, to the lupus community. Like many before me, I've been struggling to get an accurate diagnosis. It's been a long process so far. My symptoms started back in October, with random swelling of my right forearm. I went to the ER, where the doctors agree it was probably tendinitis
wanderingunicorn
in
LUPUS UK
7 years ago
I'm confused
I'm still not sure if I have lupus or not because I still haven't gotten results back. I only have a positive ANA of 1:40... my hair has been falling since July 2015, now I'm noticing eye brow loss too. But when my hair started falling in July up until now I had ZER0 other symptoms... just now I started
I'm still not sure if I have lupus or not because I still haven't gotten results back. I only have a positive ANA of 1:40... my hair has been falling since July 2015, now I'm noticing eye brow loss too. But when my hair started falling in July up until now I had ZER0 other symptoms... just now I started
Hidden
in
LUPUS UK
7 years ago
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Rheumatologist Update
I've been trying to catch up IRL with everything that happened during my appointment and I wanted to thank all of you for your help and guidance. Dr. Collins has started me on Hydroxychloroquine 200mg twice a day and written a recommendation as well as reasoning for my hematologist to raise my target
I've been trying to catch up IRL with everything that happened during my appointment and I wanted to thank all of you for your help and guidance. Dr. Collins has started me on Hydroxychloroquine 200mg twice a day and written a recommendation as well as reasoning for my hematologist to raise my target
Morganslone
in
Hughes Syndrome APS Forum
7 years ago
A long death update .the results are in guys. Any advice greatly appreciated.
I waited a bit longer for the results so I could have the doctors input. I'm a bit apprehensive about returning to the Gp as he has dismissed every request. He's done the run of the mill tests and over the space of 6 months of infections I have come back with Vit d deficient , low folate , crp raised
I waited a bit longer for the results so I could have the doctors input. I'm a bit apprehensive about returning to the Gp as he has dismissed every request. He's done the run of the mill tests and over the space of 6 months of infections I have come back with Vit d deficient , low folate , crp raised
Littlewitch
in
Thyroid UK
7 years ago
Letter from Respiratory clinic & some test results.
Would appreciate opinions on the following. Last summer GP referred me to Respiratory clinic ( due to shortness of breath that was obviously part of the B12 def he ignored) Waited 8 months for an appointment by which time no breathlessness, walking 2 miles with no problems thanks to S.i . Letter arrived
Would appreciate opinions on the following. Last summer GP referred me to Respiratory clinic ( due to shortness of breath that was obviously part of the B12 def he ignored) Waited 8 months for an appointment by which time no breathlessness, walking 2 miles with no problems thanks to S.i . Letter arrived
Hidden
in
Pernicious Anaemia Society
7 years ago
Please help me with questions for the Rheumatologist
Hello I was referred urgently by my GP to a Rheumatologist following persistent joint problems, a previously diagnosed hip bursitis, high white blood cell count, Negative Rheumatoid Factor, raised CRP and a 'weakly positive' ANA test (homogenous and speckled). Rheumatologist ordered various x rays
Hello I was referred urgently by my GP to a Rheumatologist following persistent joint problems, a previously diagnosed hip bursitis, high white blood cell count, Negative Rheumatoid Factor, raised CRP and a 'weakly positive' ANA test (homogenous and speckled). Rheumatologist ordered various x rays
Avocados
in
NRAS
7 years ago
Boarderline positive on ANA test. 1:40... does this mean I have lupus?? My doc said he is 100% I don't.
I can't help but wonder if that positive is going to turn into something... the only symptoms I have are hair shed and some fatigue... I'm confused. I read somewhere that if you have a positive, regardless of no symptoms, then there is definitely something wrong with your immune system:(
I can't help but wonder if that positive is going to turn into something... the only symptoms I have are hair shed and some fatigue... I'm confused. I read somewhere that if you have a positive, regardless of no symptoms, then there is definitely something wrong with your immune system:(
Hidden
in
LUPUS UK
7 years ago
Neg ANA, positive TgAb, negative TPO
Hi guys, Just got the ANA results which was negative. I haven't had a comment from my dr about it. She stated previously she would be apprehensive to diagnose an autoimmune disease with a negative ANA... I have read somewhere that it is only about half the people with Hashimoto's that has positive ANA
Hi guys, Just got the ANA results which was negative. I haven't had a comment from my dr about it. She stated previously she would be apprehensive to diagnose an autoimmune disease with a negative ANA... I have read somewhere that it is only about half the people with Hashimoto's that has positive ANA
Ninatz
in
Thyroid UK
7 years ago
RA or Lupus
I have had RA for 3 years with Negative ANA. last weeks blood work came back Positive ANA and Anti Dsdna was high (mine was 10 with reference range of 0-9) Should I worry about lupus?
I have had RA for 3 years with Negative ANA. last weeks blood work came back Positive ANA and Anti Dsdna was high (mine was 10 with reference range of 0-9) Should I worry about lupus?
Momm05
in
LUPUS UK
7 years ago
The Vanishing Diagnosis - UCTD?
Not sure what the diagnosis is. Haven't felt "good" in years, and finally got a PCP who listened to me. After hearing about all my issues (dry eyes/dry mouth, stiffness, general malaise, muscle pain, tendonitis/bursitis, joint pain, hx of palpitations, mitral valve prolapse, LER, previous diagnosis
Not sure what the diagnosis is. Haven't felt "good" in years, and finally got a PCP who listened to me. After hearing about all my issues (dry eyes/dry mouth, stiffness, general malaise, muscle pain, tendonitis/bursitis, joint pain, hx of palpitations, mitral valve prolapse, LER, previous diagnosis
RxMe
in
LUPUS UK
7 years ago
Strongly Suspected Vasculitis Awaiting Specialist Appointment With rheumatology and hematology... Which form that is the question..
Hi everyone, Jeez where do I start... hmm I've never joined a group before & I am at my wits end.. I have felt so unwell & even that doesn't give justice to how I really feel. I have always suffered with different infections kidney, respiratory, chest infection bladder Inflammatory & UTI & horrendous
Hi everyone, Jeez where do I start... hmm I've never joined a group before & I am at my wits end.. I have felt so unwell & even that doesn't give justice to how I really feel. I have always suffered with different infections kidney, respiratory, chest infection bladder Inflammatory & UTI & horrendous
LauraMk30
in
Vasculitis UK
7 years ago
Positive AMA and ANA
Hi all, I was wondering if there is any information regarding the PBC prognosis of having a positive ANA as well as AMA. So far I have only been diagnosed with PBC and no other autoimmune conditions. I read one study meant that it may mean the disease could have a worsened prognosis if you also were
Hi all, I was wondering if there is any information regarding the PBC prognosis of having a positive ANA as well as AMA. So far I have only been diagnosed with PBC and no other autoimmune conditions. I read one study meant that it may mean the disease could have a worsened prognosis if you also were
youaremysunshine
in
PBC Foundation
7 years ago
Any help would be appreciated
I am new to this site although have been reading some of your posts over the last week or so and would be very grateful for some advice as I don't really know what fibromyalgia is...I will try to make this as short as possible. A couple of years ago I was diagnosed with hashimoto's and sent to a rheumy
I am new to this site although have been reading some of your posts over the last week or so and would be very grateful for some advice as I don't really know what fibromyalgia is...I will try to make this as short as possible. A couple of years ago I was diagnosed with hashimoto's and sent to a rheumy
puffyface
in
Fibromyalgia Action UK
7 years ago
Positive ANA. Getting Rheumatologist referral.
Hi everyone :) I haven't been on for a while- last post I was waiting for the results of blood tests. Got tested for - C Reactive Protein - Connective tissue ANA screen - Rheumatoid factor - Coeliac (Tissue transglutaminase IgA) GP called and said that my ANA came back positive and I've to go down to
Hi everyone :) I haven't been on for a while- last post I was waiting for the results of blood tests. Got tested for - C Reactive Protein - Connective tissue ANA screen - Rheumatoid factor - Coeliac (Tissue transglutaminase IgA) GP called and said that my ANA came back positive and I've to go down to
Nat1291
in
LUPUS UK
7 years ago
Letter with Diagnosis - Unsure what Tests mean?
So I had my letter from the Lupus Clinic today with a Diagnosis of Hughes Syndrome/Sjogrens and Lupus although some of my antibody tests were negative. What does a ANA Positive 1:320 Speckled and Diffused mean? Strange as in the biggest flare of my life but CRP and ESR were normal but WBC/Neutrophils
So I had my letter from the Lupus Clinic today with a Diagnosis of Hughes Syndrome/Sjogrens and Lupus although some of my antibody tests were negative. What does a ANA Positive 1:320 Speckled and Diffused mean? Strange as in the biggest flare of my life but CRP and ESR were normal but WBC/Neutrophils
riannabri
in
LUPUS UK
7 years ago
First GP Appt at New GP Practice
I found the GP Practice I had been with for nearly 25yrs becoming more amd more disorganised, so I registered with another in January. I had my first appt today - not an emergency, just a hello and can you enlighten me to what is going on with the Rheumy who has appeared to dump me? A delightful GP
I found the GP Practice I had been with for nearly 25yrs becoming more amd more disorganised, so I registered with another in January. I had my first appt today - not an emergency, just a hello and can you enlighten me to what is going on with the Rheumy who has appeared to dump me? A delightful GP
Lupiknits
in
LUPUS UK
7 years ago
Update from my last post... 1 slightly positive Ana and 2 negative ones, no symptoms... NO Lupus!
I am finally been tested third time for the ANA, and the results were negative. From the past 2 months since I saw my last rheumatologist, I haven't had any new symptoms, and I actually feel way better than before. Doctor told me that I don't need to worry about it anymore because he assured me I don't
I am finally been tested third time for the ANA, and the results were negative. From the past 2 months since I saw my last rheumatologist, I haven't had any new symptoms, and I actually feel way better than before. Doctor told me that I don't need to worry about it anymore because he assured me I don't
guis
in
LUPUS UK
7 years ago
Wrong diagnosis??
I'm normally quite positive..and normally feel much better than I have done for the last few weeks. I definitely don't suffer as much as some of the poor people on this site...but today I'm feeling let down (again) by my NHS GP, aching all over, exhausted...and a bit teary. I went to see him a couple
I'm normally quite positive..and normally feel much better than I have done for the last few weeks. I definitely don't suffer as much as some of the poor people on this site...but today I'm feeling let down (again) by my NHS GP, aching all over, exhausted...and a bit teary. I went to see him a couple
puffyface
in
LUPUS UK
7 years ago
Should I go to A&E ?
Hello , I would be very grateful for people's thoughts on this. I have just been referred to rheumatology following a positive ANA test and symptoms that to me , point towards lupus. These include joint pain , eyebrow hairloss loss and burning rash which comes and goes over my face. Last week I suddenly
Hello , I would be very grateful for people's thoughts on this. I have just been referred to rheumatology following a positive ANA test and symptoms that to me , point towards lupus. These include joint pain , eyebrow hairloss loss and burning rash which comes and goes over my face. Last week I suddenly
aries67
in
LUPUS UK
7 years ago
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