Inflammatory mystery

So Ive been having horrible muscular aches and joint pain for months since last September and saw a dermatologist for a skin rash I had who told me it was a sun allergy (Solar urticaria). I was still continuing to get pain and fatigue, headaches and tingling in my toes and hands. I then as referred to a rhuematologist who said it is definitely in the inflammatory/autoimmune field but would not tell me any specifics!!!! YET they keep telling me take the steroids (Prednisolone) without telling me what the hell it is that I have!!!

They then said if that doesn't work take plaquenil (Antu Rheumatic drug) which causes SENSITIVITY TO SUNLIGHT! which I already am and the rheumatologist doesn't quite have the time (always running late) and I feel like I'm always rushed out the door. Could this still be a lupus thing?

I've had every test under the moon including an ANA test which was negative the first time and positive (Weak and Speckled) at 1:80 and I was told it was insignificant and to just take the steroids..... HELP ME PLEASE I NEED TO KNOW WHAT THE HELL THIS IS!!

3 Replies

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  • Please check Dermatomysitis which is an autoimmune disorder impacts the skins and muscles. I can relate some your syndromes

  • Hi Lizd121,

    I am sorry to hear you have been feeling poorly and are not satisfied with your rheumatologist, have you considered requesting a referral for a second opinion?

    Joint aches and pains and extreme fatigue are the two most common symptoms of lupus however, no two people have the same exact symptoms. Skin rashes and headaches are also among the symptoms discussed in our ‘LUPUS: The Symptoms and Diagnosis’ factsheet which you can read here: lupusuk.org.uk/wp-content/u...

    Predinsolone and Plaquenil (hydroxychloroquine) are drugs that are used in the treatment of lupus. We published a factsheet on ‘LUPUS: and Medication’ which I hope will be of help to you: lupusuk.org.uk/wp-content/u...

    ANA tests give an indication of whether a person may or may not have an autoimmune condition. It does not provide sufficient evidence to confirm a diagnosis of lupus however; further test results would be required to accurately identify the cause of your symptoms.

    Wishing you the best of luck, let us know how you get on.

  • Please check autoimmune disorder of myositis that may be you have

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