Search
Search
About
Log in
Join
Experiences with
Alna
Posts
Communities
941 public posts
Filter results
Feeling a bit lost and confused...
Hi everyone, this is my first post here. As the title says I’m feeling a bit confused at the moment, and I’m hoping someone can shed some light on my situation or share their stories too. I’m 29 and I live in Essex. After quite a few viral infections and long investigations, I was diagnosed with Fibromyalgia
Hi everyone, this is my first post here. As the title says I’m feeling a bit confused at the moment, and I’m hoping someone can shed some light on my situation or share their stories too. I’m 29 and I live in Essex. After quite a few viral infections and long investigations, I was diagnosed with Fibromyalgia
Makimon
in
LUPUS UK
7 years ago
Would All Autoimmune Diseases Have a Positive ANA? Low White Blood Cell Count
Hi, everyone. I'm not quite sure if this belongs in this group, but I know it's very active and worth asking. Admins, please let me know if you'd like me to remove it. So about a year ago (maybe a year and a half now), I noticed I was having unexplained weight loss (now about 30% of my total BW!!).
Hi, everyone. I'm not quite sure if this belongs in this group, but I know it's very active and worth asking. Admins, please let me know if you'd like me to remove it. So about a year ago (maybe a year and a half now), I noticed I was having unexplained weight loss (now about 30% of my total BW!!).
megan691
in
Thyroid UK
7 years ago
Waiting for ANA results
I'm 46 and have been having spells of unwellness throughout my life. At 18 I was in hospital for weeks with HSP & ongoing kidney issues which got better in time. I was told that it was quite rare to get HSP as an adult & I would never get it again. I've had many bouts throughout my adulthood some more
I'm 46 and have been having spells of unwellness throughout my life. At 18 I was in hospital for weeks with HSP & ongoing kidney issues which got better in time. I was told that it was quite rare to get HSP as an adult & I would never get it again. I've had many bouts throughout my adulthood some more
MariaK71
in
LUPUS UK
7 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
So they want to change my diagnosis again!
Today I had my six monthly review. A very nice man who very apologetically said "I don't think you have Lupus as a primary". Now just a quick background.(sorry for those who have heard this). Seen by a local Proffessor in 2000 with initial joint issues and shaking fever. Diagnosis: RA. 2005 I didn't
Today I had my six monthly review. A very nice man who very apologetically said "I don't think you have Lupus as a primary". Now just a quick background.(sorry for those who have heard this). Seen by a local Proffessor in 2000 with initial joint issues and shaking fever. Diagnosis: RA. 2005 I didn't
johare
in
NRAS
7 years ago
DRUG INTERACTIONS?
Hi. Steff here. I'm a 68 year old female who has been fairly healthy all my life apart from problems with depression. I now have a range of awful symptoms which have come on suddenly around March of this year. My rheumatologist says I have 'lupus like symptoms' and suspects this could have been caused
Hi. Steff here. I'm a 68 year old female who has been fairly healthy all my life apart from problems with depression. I now have a range of awful symptoms which have come on suddenly around March of this year. My rheumatologist says I have 'lupus like symptoms' and suspects this could have been caused
Orchard1
in
LUPUS UK
7 years ago
Lab results
My latest labs are : IgG= 671, ALT= 79, AST= 71, M2=69. 9 and Alkaline phosphate is 138. I often have a positive ANA but was normal this time. Liver enzymes fluctuate. Maybe I will hear from liver scan this week. 😩
My latest labs are : IgG= 671, ALT= 79, AST= 71, M2=69. 9 and Alkaline phosphate is 138. I often have a positive ANA but was normal this time. Liver enzymes fluctuate. Maybe I will hear from liver scan this week. 😩
Krichards1971
in
PBC Foundation
7 years ago
Positive ANA result 8+
Hi I am new here I feel alone with my symptoms and want to talk to people with similar issues. I have had raynauds for 5 years but I have never had it diagnosed I just tried to keep me hands and feet as warm as possible. I visited my gp recently as I have started to experience other health issues. I
Hi I am new here I feel alone with my symptoms and want to talk to people with similar issues. I have had raynauds for 5 years but I have never had it diagnosed I just tried to keep me hands and feet as warm as possible. I visited my gp recently as I have started to experience other health issues. I
Bee1011
in
LUPUS UK
7 years ago
New looking for advice pls
Hi I'm new on here but on Thyroid UK for Hashimotos & Lupus UK as I'm under Rheumatology for a positive ANA and connective tissue disease. After a recent MRI at my appt today it has shown muscle inflammation in my thighs as I suspected due to struggling getting up stairs etc. In addition to hydroxy
Hi I'm new on here but on Thyroid UK for Hashimotos & Lupus UK as I'm under Rheumatology for a positive ANA and connective tissue disease. After a recent MRI at my appt today it has shown muscle inflammation in my thighs as I suspected due to struggling getting up stairs etc. In addition to hydroxy
MissFG
in
Myositis UK
7 years ago
ANA test results
Hi all, I am a 52 year old woman who has recently had a growing number of joint problems diagnosed. Tennis Elbow, Plantar Fasciitis, Achilles Tendonitis...I also have pain in my fingers and occasionally my jaw. My gp arranged x rays of my hands and blood tests. I have been told that the ANA result was
Hi all, I am a 52 year old woman who has recently had a growing number of joint problems diagnosed. Tennis Elbow, Plantar Fasciitis, Achilles Tendonitis...I also have pain in my fingers and occasionally my jaw. My gp arranged x rays of my hands and blood tests. I have been told that the ANA result was
jrrees81
in
LUPUS UK
7 years ago
Should I take Plaquenil
I am a 53 year old female who has tested positive to all 3 of the APS antibodies (very ¬high levels). Although I’ve never been pregnant or had any events I have been under the care of a rhemutologist for the last 10 years. My main symptoms had been fatigue, shoulder and neck pain, headaches and memory
I am a 53 year old female who has tested positive to all 3 of the APS antibodies (very ¬high levels). Although I’ve never been pregnant or had any events I have been under the care of a rhemutologist for the last 10 years. My main symptoms had been fatigue, shoulder and neck pain, headaches and memory
Lulutay
in
Hughes Syndrome APS Forum
7 years ago
Knight five
Myself and a wee Baroness posing with Sir Alka Seltzer Cheesemonger This particular knight was a thrice married man who once went into battle wearing nothing but a smile. He stoutly refused to use a sword and when that tactic finally caught up with him, his replacement was severed. Forever more he was
Myself and a wee Baroness posing with Sir Alka Seltzer Cheesemonger This particular knight was a thrice married man who once went into battle wearing nothing but a smile. He stoutly refused to use a sword and when that tactic finally caught up with him, his replacement was severed. Forever more he was
BaronC
in
Headway
7 years ago
Positive ANA for anybody here?
Hi Just wondering if anybody here with RA has a positive ANA. I have positive ANA, highest 360 homogenous. That automatically gave me a Lupus diagnosis on top of my already seropositive RA ( CCP 92). I'm wondering if my positive ANA cash just be the wicked RA. Thanks😊
Hi Just wondering if anybody here with RA has a positive ANA. I have positive ANA, highest 360 homogenous. That automatically gave me a Lupus diagnosis on top of my already seropositive RA ( CCP 92). I'm wondering if my positive ANA cash just be the wicked RA. Thanks😊
Gorettispeghetti
in
NRAS
7 years ago
Just recently diagnosed with PBC
Hi! I have been recently diagnosed with PBC. Definately not what I was expecting since Dr thought it was Lupus or Rheumatoid Arthritis. I am 45 and started having these different symptoms 7 years ago like fatigue, shortness of breath, itchy rash sometimes, irritated eyes, dry mouth/throat,severe
Hi! I have been recently diagnosed with PBC. Definately not what I was expecting since Dr thought it was Lupus or Rheumatoid Arthritis. I am 45 and started having these different symptoms 7 years ago like fatigue, shortness of breath, itchy rash sometimes, irritated eyes, dry mouth/throat,severe
Krichards1971
in
PBC Foundation
7 years ago
Positive ANA
Hi, so my story..... A few years a ago I started having symptoms which started with.... White spots on my tongue with mild pain, severe hair loss, rash along my for head with crusting at times, scalp flare ups with bumps and burning feeling, rash across my nose and cheeks, joint, muscle pain, cold sensitivity
Hi, so my story..... A few years a ago I started having symptoms which started with.... White spots on my tongue with mild pain, severe hair loss, rash along my for head with crusting at times, scalp flare ups with bumps and burning feeling, rash across my nose and cheeks, joint, muscle pain, cold sensitivity
Srculley
in
LUPUS UK
7 years ago
ANA Positive
Hi all, can someone please tell me if having a positive ANA result after many negatives over the last three years, and if anyone else has had anti-dsDNA autoantibodies show in blood tests?
Hi all, can someone please tell me if having a positive ANA result after many negatives over the last three years, and if anyone else has had anti-dsDNA autoantibodies show in blood tests?
Clm1978
in
LUPUS UK
7 years ago
Confused...
Hi, this is my first post so please bear with me! I have had various blood tests done as in February this year I started with severe roaming joint pain, I have had an ANA of 1:160 over the past 4 years (this was detected due to a severe skin condition) so I have always known lupus might rear it's head
Hi, this is my first post so please bear with me! I have had various blood tests done as in February this year I started with severe roaming joint pain, I have had an ANA of 1:160 over the past 4 years (this was detected due to a severe skin condition) so I have always known lupus might rear it's head
pollydolly45
in
LUPUS UK
7 years ago
Private ANA test for kids?
My 4yr old is being tested for lupus. His symptoms are:- pinkish coloured urine which has shown up not to be blood. It's now gone, but sample has been sent off for further testing. We have an aunt who passed away who had lupus and unfortunately several members of the family who have autoimmune diseases
My 4yr old is being tested for lupus. His symptoms are:- pinkish coloured urine which has shown up not to be blood. It's now gone, but sample has been sent off for further testing. We have an aunt who passed away who had lupus and unfortunately several members of the family who have autoimmune diseases
Helena877
in
LUPUS UK
7 years ago
Hi I am Rebecca with RA
Hi My name is Rebecca, I have RA with an anti CCP 92, positive ANA of 360 homogenous and my inflammation markers and other bloodwork oddly normal. Does anybody else have a positive ANA? My back and hips are ravaged with pain. Oddly, finger and toes are fine😇 my ankles are always swollen and owie.
Hi My name is Rebecca, I have RA with an anti CCP 92, positive ANA of 360 homogenous and my inflammation markers and other bloodwork oddly normal. Does anybody else have a positive ANA? My back and hips are ravaged with pain. Oddly, finger and toes are fine😇 my ankles are always swollen and owie.
Gorettispeghetti
in
NRAS
7 years ago
Bloated constipation due to ibs
So I've had ibs for a year and have found its triggered by pork and stress. I've cut out the pork apart from the odd accident but stress is a different matter. I recently flew to majorca . The stress caused diarrhoea so took an imodium and u haven't on since. The pain is excruciating but u don't want
So I've had ibs for a year and have found its triggered by pork and stress. I've cut out the pork apart from the odd accident but stress is a different matter. I recently flew to majorca . The stress caused diarrhoea so took an imodium and u haven't on since. The pain is excruciating but u don't want
Deb131
in
IBS Network
7 years ago
Hello folks, first rheumy appointment soon so no diagnosis/ plan just yet.
Long post - sorry! Hello all, I've been lurking for a while absorbing all of the great information and support available in this community. I'm 46 but have experienced many diffuse symptoms over a number of years, including fatigue, fever, joint pain, abnormal periods, miscarriages etc.etc.. Just got
Long post - sorry! Hello all, I've been lurking for a while absorbing all of the great information and support available in this community. I'm 46 but have experienced many diffuse symptoms over a number of years, including fatigue, fever, joint pain, abnormal periods, miscarriages etc.etc.. Just got
flap7
in
LUPUS UK
7 years ago
1
...
25
26
27
...
48
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
LUPUS UK
498 results
Thyroid UK
77 results
Scleroderma & Raynaud's UK (SRUK)
46 results
View top 10 communities
Sort by
Most Relevant
Newest