Today I had my six monthly review. A very nice man who very apologetically said "I don't think you have Lupus as a primary".
Now just a quick background.(sorry for those who have heard this). Seen by a local Proffessor in 2000 with initial joint issues and shaking fever. Diagnosis: RA.
2005 I didn't think it was RA as no progression and now had other problems, intense migraine, rash, food allergies. heart problems, continual cystitis, IBS, dry mouth, ulcers. etc asked to be tested for SLE. Result ANA positive. Referred to London Bridge. Rheumy, after looking at history, family and full medical, confirmed SLE with Sjorgrens.
Now;2017, add seizures ,hypothyroidism, soft tissue involvement, cataracts, photosensitivity, blood in urine, haemolytic anaemia, positive ANA and DNA markers.
I asked why he thought I didn't have SLE and said that would be wonderful if I didn't feel like I did and he said I did hit enough of the criteria.
Now I don't mind what name my condition is given as I still feel the same, however, its chicken and egg. Lupus, Sjorgrens, or Sjorgrens Lupus, what does it matter.