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Could it be scleroderma
Hi all just wanted to share my recent symptoms and hopefully someone will be able to relate to them. I was diagnosed in 2014 with Raynauds phenomenon, and been under a rheumatologist since 2015. Blood results were always ANA negative until 2016 1/160 titer with a nucleolar staining pattern. I have many
Hi all just wanted to share my recent symptoms and hopefully someone will be able to relate to them. I was diagnosed in 2014 with Raynauds phenomenon, and been under a rheumatologist since 2015. Blood results were always ANA negative until 2016 1/160 titer with a nucleolar staining pattern. I have many
Queencara78
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
Waiting for results
Hi there! I've been to the rheumatologist and had blood work done. I have received some results and not others. I am curious can you still have lupus with a normal esr, c3 and c4 level. I had a positive Ana ( not a high titer) and still awaiting for the rest of the results. Thank you
Hi there! I've been to the rheumatologist and had blood work done. I have received some results and not others. I am curious can you still have lupus with a normal esr, c3 and c4 level. I had a positive Ana ( not a high titer) and still awaiting for the rest of the results. Thank you
Sana78
in
LUPUS UK
7 years ago
Diagnosed me/cfs 20 yrs ago now think it’s autoimmune after symptoms and positive ana I had done myself. Anyone on here misdiagnosed?
Hi everyone I’m new on here. Have really been ill since my teens after having glandular fever. I’m now in my 50s. Would have longs periods of what I can only describe as something attacking my whole body, and then long periods of normality. Tick a lot of boxes for autoimmune lupus ect and have always
Hi everyone I’m new on here. Have really been ill since my teens after having glandular fever. I’m now in my 50s. Would have longs periods of what I can only describe as something attacking my whole body, and then long periods of normality. Tick a lot of boxes for autoimmune lupus ect and have always
Beau66
in
LUPUS UK
7 years ago
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Just diagnosed
I've just been diagnosed with pbc, after a positive Ana blood test and liver biopsy and I collect the Ursodeoxycholic acid tomorrow, i just wondered if there was any advice you can give me, doctor was less helpful and I won't now see for 3 months Many thanks ann
I've just been diagnosed with pbc, after a positive Ana blood test and liver biopsy and I collect the Ursodeoxycholic acid tomorrow, i just wondered if there was any advice you can give me, doctor was less helpful and I won't now see for 3 months Many thanks ann
Pinkcrush
in
PBC Foundation
7 years ago
HOW MANY SYMPTOMS DO I NEED FOR DIAGNOSIS??
Hi all, I am yet to be diagnosed but feel totally confused and upset with the length of time it is taking and how slow the consultant is in dealing with me. I had been feeling poorly for about 6 months, exhausted but had difficulty sleeping, flu like symptoms but kept dragging myself to work and trying
Hi all, I am yet to be diagnosed but feel totally confused and upset with the length of time it is taking and how slow the consultant is in dealing with me. I had been feeling poorly for about 6 months, exhausted but had difficulty sleeping, flu like symptoms but kept dragging myself to work and trying
Bee1011
in
The Australian Sjögren's Syndrome Association
7 years ago
Ama results
Hi everyone. So my ANA test was negative, now im able to see my results online from the AMA and it says <1:20. Very anxious for the doctor to explain this to me, but anyone know what this means? Still taking urso, and antihistamine for the itching, and its slowly getting better...i gave birth 3 moths
Hi everyone. So my ANA test was negative, now im able to see my results online from the AMA and it says <1:20. Very anxious for the doctor to explain this to me, but anyone know what this means? Still taking urso, and antihistamine for the itching, and its slowly getting better...i gave birth 3 moths
Hidden
in
PBC Foundation
7 years ago
Help
I'm hoping someone can help I'm 30 and suffer widespread pain in every single part of my body the doctor has said I have fibromyalgia but no medication seems to be working and I've had positive dsdna test and positive Ana test, my blood tests are always up and down lack of vit d and calcium please can
I'm hoping someone can help I'm 30 and suffer widespread pain in every single part of my body the doctor has said I have fibromyalgia but no medication seems to be working and I've had positive dsdna test and positive Ana test, my blood tests are always up and down lack of vit d and calcium please can
Lljb
in
LUPUS UK
7 years ago
Feeling flush
I haven't been on for quite some time. Has anyone ever felt flush ears, throat and get hoarse? I have positive Ana but not yet diagnosed. Have many symptoms but the flush feeling happens in late afternoon.
I haven't been on for quite some time. Has anyone ever felt flush ears, throat and get hoarse? I have positive Ana but not yet diagnosed. Have many symptoms but the flush feeling happens in late afternoon.
Dalollies
in
LUPUS UK
7 years ago
please advise
Hello lovely people, I wonder if I can ask for your opinions about my situation as the doctors seems to be confused.However, it doesn't help as I haven't been feeling well for 9 months so far. My problem began in March this year, I started to feel generally unwell and symptoms was a sharp pain in my
Hello lovely people, I wonder if I can ask for your opinions about my situation as the doctors seems to be confused.However, it doesn't help as I haven't been feeling well for 9 months so far. My problem began in March this year, I started to feel generally unwell and symptoms was a sharp pain in my
Svete
in
LUPUS UK
7 years ago
iloprost for scleroderma
Hi! I was diagnosed with systemic scleraderma just over a year ago following a stomach ulcer and a positive ana blood test. Have been on losartan with fluoxitine, omeprazole and azathioprine but am going in tomorrow for 5 days of iloprost. Bit nervous and somewhat dubious after reading some posts but
Hi! I was diagnosed with systemic scleraderma just over a year ago following a stomach ulcer and a positive ana blood test. Have been on losartan with fluoxitine, omeprazole and azathioprine but am going in tomorrow for 5 days of iloprost. Bit nervous and somewhat dubious after reading some posts but
babycatcherem
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
First UK Guidelines for Adults with Lupus
Mariah Zebrowski Leach, JD, MS Tuesday, November 7, 2017
Lupus
The first UK guidelines on the care of adults with systemic lupus erythematosus (SLE) were published recently by the British Society for Rheumatology. Because general recommendations for the management of SLE have not been
Mariah Zebrowski Leach, JD, MS Tuesday, November 7, 2017
Lupus
The first UK guidelines on the care of adults with systemic lupus erythematosus (SLE) were published recently by the British Society for Rheumatology. Because general recommendations for the management of SLE have not been
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
7 years ago
Positive ANA and clots
I just turned 25 years old and let me tell you I feel way older than that. I just gave birth to my third child. I got several extensive and severe blood clots. My iliac and femoral was completely clotted (no blood flow at all) from groin to ankle. It's now been 10 months on blood thinners and I still
I just turned 25 years old and let me tell you I feel way older than that. I just gave birth to my third child. I got several extensive and severe blood clots. My iliac and femoral was completely clotted (no blood flow at all) from groin to ankle. It's now been 10 months on blood thinners and I still
Sherrym24
in
LUPUS UK
7 years ago
IM BACK AFTER ALMOST A YEAR---Still no answer
AROUND this time last year i was put in the hospital with elevated AST, ALT and Phos and ANA positive.. along with super bad pains and nausea. 3 different hospitals, and a bunch of liver speicialists and no one was able to come up with why or what.... sooo time has passed, I only had 3 flair ups throughout
AROUND this time last year i was put in the hospital with elevated AST, ALT and Phos and ANA positive.. along with super bad pains and nausea. 3 different hospitals, and a bunch of liver speicialists and no one was able to come up with why or what.... sooo time has passed, I only had 3 flair ups throughout
breeski
in
PBC Foundation
7 years ago
Do I Need to be referred back to a Rheumatologist?
I'm 46 and have been having spells of unwellness throughout my life. At 18 I was in hospital for weeks with HSP & ongoing kidney issues (iga nephritis) which got better in time. I was told that it was quite rare to get HSP as an adult & I would never get it again. I've had many bouts throughout my adulthood
I'm 46 and have been having spells of unwellness throughout my life. At 18 I was in hospital for weeks with HSP & ongoing kidney issues (iga nephritis) which got better in time. I was told that it was quite rare to get HSP as an adult & I would never get it again. I've had many bouts throughout my adulthood
MariaK71
in
Vasculitis UK
7 years ago
The British Society for Rheumatology guideline for the management of systemic lupus erythematosus in adults
The British Society for Rheumatology guideline for the management of systemic lupus erythematosus in adults:
Executive Summary
Caroline Gordon Maame-Boatemaa Amissah-Arthur Mary Gayed Sue Brown Ian N. Bruce David D’Cruz Benjamin Empson Bridget Griffiths David Jayne Munther Khamashta
The British Society for Rheumatology guideline for the management of systemic lupus erythematosus in adults:
Executive Summary
Caroline Gordon Maame-Boatemaa Amissah-Arthur Mary Gayed Sue Brown Ian N. Bruce David D’Cruz Benjamin Empson Bridget Griffiths David Jayne Munther Khamashta
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
7 years ago
Blood tests
Can anyone tell me what the anti dsna ranges are I can't get my head round blood tests im positive ANA and my rheumatologist is sending me conective tissue specialist for second opinion but im not sure what for .. What blood test show you could have lupus ?
Can anyone tell me what the anti dsna ranges are I can't get my head round blood tests im positive ANA and my rheumatologist is sending me conective tissue specialist for second opinion but im not sure what for .. What blood test show you could have lupus ?
Miacats
in
LUPUS UK
7 years ago
Positive ANA test
Homogeneous Pattern1:320 NOTE:Comment Homogeneous DNA(ds,ss), SLE - High titers Nucleosomes, Histones Drug-induced SLE ----------- ---------------- ----------------------------- Speckled Sm, RNP, SCL-70, SLE,MCTD,PSS (diffuse form), SS-A/SS-B Sjogrens ----------- ---------------- ------------
Homogeneous Pattern1:320 NOTE:Comment Homogeneous DNA(ds,ss), SLE - High titers Nucleosomes, Histones Drug-induced SLE ----------- ---------------- ----------------------------- Speckled Sm, RNP, SCL-70, SLE,MCTD,PSS (diffuse form), SS-A/SS-B Sjogrens ----------- ---------------- ------------
Iambremaec
in
LUpus Patients Understanding and Support
7 years ago
ANA test
Hello. I looked at my lab work and noticed that my anti-nuclear antibody pattern is positive but my anti-nuclear antibody (hep2) is negative. How can that be? My AMA is positive but it's the two ANAs that are different that puzzles me. Does anyone know the difference?
Hello. I looked at my lab work and noticed that my anti-nuclear antibody pattern is positive but my anti-nuclear antibody (hep2) is negative. How can that be? My AMA is positive but it's the two ANAs that are different that puzzles me. Does anyone know the difference?
Vera70
in
PBC Foundation
7 years ago
Auto-Immune Disease
Hi, I am trying to find the root autoimmune disease causing so many symptoms. TSH (3.38), T4 110 in range (59.00-154.00), with TPO Negative and [u]Thyroglobulin Antibody *329 (0-115). Low vitamin D 25 OH (37)[/u] which I am now supplementing. [u]Smooth muscle antibody positive and Gastric Perietal
Hi, I am trying to find the root autoimmune disease causing so many symptoms. TSH (3.38), T4 110 in range (59.00-154.00), with TPO Negative and [u]Thyroglobulin Antibody *329 (0-115). Low vitamin D 25 OH (37)[/u] which I am now supplementing. [u]Smooth muscle antibody positive and Gastric Perietal
whatis
in
Thyroid UK
7 years ago
Confused by Rheumy appointment and everything else. Please advise? At my wits end 😓
Hi everyone. It's been a while since I posted last. Alot has went on so I'll recap quickly: - Positive Ana, Ena, C reactive protein, Ro and elevated platelets in Dec 16. Referral to Rheumatology. 33 weeks wait until appointment. - Overactive thyroid discovered in June 17 when I got viral meningitis.
Hi everyone. It's been a while since I posted last. Alot has went on so I'll recap quickly: - Positive Ana, Ena, C reactive protein, Ro and elevated platelets in Dec 16. Referral to Rheumatology. 33 weeks wait until appointment. - Overactive thyroid discovered in June 17 when I got viral meningitis.
Nat1291
in
LUPUS UK
7 years ago
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