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Awaiting diagnosis
I went to the doctors following a range of different symptoms, bloods came back showing positive ANA. Got referred to a musculoskeletal Doctor, who did some tests and suspects Lupus, and has referred me for an MRI on my spine. Had some pains in my hand and various aches across my body, but no pain in
I went to the doctors following a range of different symptoms, bloods came back showing positive ANA. Got referred to a musculoskeletal Doctor, who did some tests and suspects Lupus, and has referred me for an MRI on my spine. Had some pains in my hand and various aches across my body, but no pain in
tubblecakes
in
LUPUS UK
4 years ago
Symptoms with platelet count ~500?
Hi, everyone....I'm new here and this is my first post. My platelets have climbed from 450 in September to 540 recently. I hadn't had a CBC done for a couple of years prior to September. In the fall of 2017, they were apparently at 330, so on the higher end of "normal". I didn't really have any symptoms
Hi, everyone....I'm new here and this is my first post. My platelets have climbed from 450 in September to 540 recently. I hadn't had a CBC done for a couple of years prior to September. In the fall of 2017, they were apparently at 330, so on the higher end of "normal". I didn't really have any symptoms
blue_reader
in
MPN Voice
4 years ago
Positive RF test but negative CRP?
Hello everyone! Ice just had my blood tests back. The doctor says this is 100% RA. RF came back 163 and ANA positive. Everything else came back negative such as CRP. Anyone in a similar situation? Thank you!
Hello everyone! Ice just had my blood tests back. The doctor says this is 100% RA. RF came back 163 and ANA positive. Everything else came back negative such as CRP. Anyone in a similar situation? Thank you!
Happyface82
in
NRAS
4 years ago
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Could this still be Lupus?
Hello, I hope it's ok that I have joined without a diagnosis? I've been unwell (gradually getting worse) for a few years with a looooong, tedious list of symptoms. GP seems to have lost interest and thinks I'm an anxious hypochondriac. I have received a positive ANA test result, but normal dsDNA and
Hello, I hope it's ok that I have joined without a diagnosis? I've been unwell (gradually getting worse) for a few years with a looooong, tedious list of symptoms. GP seems to have lost interest and thinks I'm an anxious hypochondriac. I have received a positive ANA test result, but normal dsDNA and
BlackInk
in
LUPUS UK
4 years ago
Negative ANA - but lots of lupus symptoms and rash?
Hi there, I’m a 23 year old, healthy weight female. I’ve been struggling with my health for the last 5 to 6 years now. I have a big long list of symptoms but most challenging are: extreme fatigue, joint pain (boney nodules on fingers, hot burning knees), Right Upper Quadrant Pain, brain fog, cold
Hi there, I’m a 23 year old, healthy weight female. I’ve been struggling with my health for the last 5 to 6 years now. I have a big long list of symptoms but most challenging are: extreme fatigue, joint pain (boney nodules on fingers, hot burning knees), Right Upper Quadrant Pain, brain fog, cold
M0lly
in
LUPUS UK
4 years ago
I just want to get back to living!!
Almost 3 years ago, when I was 32, I suddenly started losing weight at an excessive rate with no explanation. I dropped from 130 lbs to around 90 lbs in a matter of just under a month and continued to loose weight over the next 6 months with my lowest weight hitting 72 lbs. I was sent from one doctor
Almost 3 years ago, when I was 32, I suddenly started losing weight at an excessive rate with no explanation. I dropped from 130 lbs to around 90 lbs in a matter of just under a month and continued to loose weight over the next 6 months with my lowest weight hitting 72 lbs. I was sent from one doctor
Kcal
in
LUPUS UK
4 years ago
Can NHS GP's order an ENA Panel?
Hi, I have an, as yet, undiagnosed autoimmune issue (I believe). I am waiting for a rheumatology appointment (been waiting since September last year) and have suspected psoriatic arthritis then dermatomyositis. But recently I've been wondering if I don't just have plain old Sjogren's Syndrome. Because
Hi, I have an, as yet, undiagnosed autoimmune issue (I believe). I am waiting for a rheumatology appointment (been waiting since September last year) and have suspected psoriatic arthritis then dermatomyositis. But recently I've been wondering if I don't just have plain old Sjogren's Syndrome. Because
Chancery
in
Sjogren's Support
4 years ago
Ana test Help!!
Confused! Can someone please help me understand? I have had three Ana test done. One was antinuclear antibodies, ifa. It came back positive. Homogeneous pattern 1:160. The suggested diseases they found were S.L.E. high Titers drug induced S.L.E. (lupus) Speckled Sjögrens diffused form, Nucleolar scleroderma
Confused! Can someone please help me understand? I have had three Ana test done. One was antinuclear antibodies, ifa. It came back positive. Homogeneous pattern 1:160. The suggested diseases they found were S.L.E. high Titers drug induced S.L.E. (lupus) Speckled Sjögrens diffused form, Nucleolar scleroderma
Hidden
in
British Liver Trust
4 years ago
Raynauds Disease, Positive ANA, normal complement levels, I'm lost.
Hello :) I was just diagnosed with Raynauds and tested positive for elevated ANA titer. I don't know by how much because I was not given the results. My doctor emailed me and told me to get more blood drawn. All of my CBC bloodwork came back normal. Glucose, magnesium, sodium, all normal range. ESR perfect
Hello :) I was just diagnosed with Raynauds and tested positive for elevated ANA titer. I don't know by how much because I was not given the results. My doctor emailed me and told me to get more blood drawn. All of my CBC bloodwork came back normal. Glucose, magnesium, sodium, all normal range. ESR perfect
MissSavvy
in
LUPUS UK
4 years ago
More blood tests before being referred to rheumatologist?
Hi all The reason I'm mentioning this is because I had a whole lot of tests late November - one of which was a positive ANA and was asked to speak to the GP in a non-urgent way. For one reason and another (Xmas and appointments being booked up several weeks in advance), I finally got to see GP last week
Hi all The reason I'm mentioning this is because I had a whole lot of tests late November - one of which was a positive ANA and was asked to speak to the GP in a non-urgent way. For one reason and another (Xmas and appointments being booked up several weeks in advance), I finally got to see GP last week
FoggyMoggy
in
LUPUS UK
4 years ago
Possible causes of Ataxia
🙂 This is a ‘long read’ and may be difficult to interpret, but never the less it’s interesting. What processes can cause ataxia? The pathophysiology of cerebellar ataxias is as diverse as the various neurological and systemic diseases affecting the cerebellum. Broadly classifying ataxias into genetic
🙂 This is a ‘long read’ and may be difficult to interpret, but never the less it’s interesting. What processes can cause ataxia? The pathophysiology of cerebellar ataxias is as diverse as the various neurological and systemic diseases affecting the cerebellum. Broadly classifying ataxias into genetic
wobblybee
in
Ataxia UK
4 years ago
Symptoms of lupus???
Hi everyone, I’m new here and wonder if someone could offer advice pls. I’m female, 48 years old and have always been in good health. In December 2018 I suffered with, what I can only describe as a “chronic mental health” episode - 4 separate “life changing” things happened within 3 months and I got
Hi everyone, I’m new here and wonder if someone could offer advice pls. I’m female, 48 years old and have always been in good health. In December 2018 I suffered with, what I can only describe as a “chronic mental health” episode - 4 separate “life changing” things happened within 3 months and I got
Croft123
in
LUPUS UK
4 years ago
Autoimmune caused by metal implant in body?
Newbie here, hello! Does anyone know much about autoimmune conditions being triggered by medical implant, namely titanium nickel cardiac device ICD? My health has gradually gone downhill since I had one fitted in 2017, and I am suffering with fatigue, joint pain, chest pains, flare ups of malaise and
Newbie here, hello! Does anyone know much about autoimmune conditions being triggered by medical implant, namely titanium nickel cardiac device ICD? My health has gradually gone downhill since I had one fitted in 2017, and I am suffering with fatigue, joint pain, chest pains, flare ups of malaise and
PawPad
in
LUPUS UK
4 years ago
How long for ANA test results?
hi all, went to GP with a persistent rash on my face and she's done an ANA as is concerned about possibility of Lupus (as she says I'm "rather autoimmuney" - I've got coeliac and hashimotos). I have achey joints and recurrent mouth sores and thrush but really nothing major, I feel like I'm just not ill
hi all, went to GP with a persistent rash on my face and she's done an ANA as is concerned about possibility of Lupus (as she says I'm "rather autoimmuney" - I've got coeliac and hashimotos). I have achey joints and recurrent mouth sores and thrush but really nothing major, I feel like I'm just not ill
Hidden
in
LUPUS UK
4 years ago
Do I accept this is only Primary Raynauds?
Struggling to accept diagnosis is only ‘likely raynauds’. My feet don’t bother me however my arms legs and hands look and feel dead.. they ache and they burn around my elbows knees and knuckles with a visible bright red patchy rashes. My knees click crunch and creak every time I bend as do most of my
Struggling to accept diagnosis is only ‘likely raynauds’. My feet don’t bother me however my arms legs and hands look and feel dead.. they ache and they burn around my elbows knees and knuckles with a visible bright red patchy rashes. My knees click crunch and creak every time I bend as do most of my
Abrobo69
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
Excessive Sweating/Hyperhidrosis
Hi all. I'm from the UK. Can excessive sweating be a symptom of SS? I have heard it can be a part of the Autonomic Nervous System becoming dysfunctional. My thyroids and other hormones seem fine. I'm not diagnosed with SS but had ANA positive a few weeks ago and waiting to see GP but fear he will dismiss
Hi all. I'm from the UK. Can excessive sweating be a symptom of SS? I have heard it can be a part of the Autonomic Nervous System becoming dysfunctional. My thyroids and other hormones seem fine. I'm not diagnosed with SS but had ANA positive a few weeks ago and waiting to see GP but fear he will dismiss
FoggyMoggy
in
The Australian Sjögren's Syndrome Association
4 years ago
Cns symptoms.
I am diagnosed officially as uctd, with positive ana (1:1280) and anti ro. They call it lupus mainly, the last few years I've been getting progressive Cns type symptoms. I was diagnosed with dystonic tremor in my left hand, but the tremor is progressing. I also have muscle weakness, early muscle failure
I am diagnosed officially as uctd, with positive ana (1:1280) and anti ro. They call it lupus mainly, the last few years I've been getting progressive Cns type symptoms. I was diagnosed with dystonic tremor in my left hand, but the tremor is progressing. I also have muscle weakness, early muscle failure
happyp
in
LUPUS UK
5 years ago
Been told probably false positive ANA
Hi I had a positive result for ANA and the ANA pattern was described as pattern 1 - normal - no action needed. I asked my GP to explain in an email and to give me values. I just phoned my GP reception as hadn't received the email so she read it out and said there is a high degree of false positive for
Hi I had a positive result for ANA and the ANA pattern was described as pattern 1 - normal - no action needed. I asked my GP to explain in an email and to give me values. I just phoned my GP reception as hadn't received the email so she read it out and said there is a high degree of false positive for
FoggyMoggy
in
LUPUS UK
5 years ago
Still searching for answers
Hi, I posted here a few years ago about my symptoms and that I'd seen a rheumatologist who diagnosed me with hypermobility syndrome. I remain convinced I have another underlying condition in the autoimmune family. I have recently been diagnosed with erythema nodosum (painful lumps on my left leg) by
Hi, I posted here a few years ago about my symptoms and that I'd seen a rheumatologist who diagnosed me with hypermobility syndrome. I remain convinced I have another underlying condition in the autoimmune family. I have recently been diagnosed with erythema nodosum (painful lumps on my left leg) by
scscsc
in
LUPUS UK
5 years ago
What is the treatment for central hypothyroidism?
Hi, I posted yesterday asking about a possible link between POTS and hypothyroidism as I was seeing the Endocrinologist. He hadn't heard of POTS before. But when he looked at my recent results, see below (currently on 45mg Erfa & 25mg Levo) he said that it seems more likely now that I have central hypothyroidism
Hi, I posted yesterday asking about a possible link between POTS and hypothyroidism as I was seeing the Endocrinologist. He hadn't heard of POTS before. But when he looked at my recent results, see below (currently on 45mg Erfa & 25mg Levo) he said that it seems more likely now that I have central hypothyroidism
ShonaGreen
in
Thyroid UK
5 years ago
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