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Getting a diagnosis
Hello everyone, I am new here and would like some opinions from you all if that’s alright. I have Raynaud’s syndrome and vitiligo, it just started suddenly a few years ago. However recently I have become pretty tired most times and my joints and feet started aching badly. I called the GP and she arranged
Hello everyone, I am new here and would like some opinions from you all if that’s alright. I have Raynaud’s syndrome and vitiligo, it just started suddenly a few years ago. However recently I have become pretty tired most times and my joints and feet started aching badly. I called the GP and she arranged
fgade
in
LUPUS UK
4 years ago
Diagnosis
I was wondering if I have Lupus and hoping some of you kind people might be able to help me. I'm going to do a really brief summary of my health life, that might be relevant. Late 20's Both knees suddenly stopped bending, clear up on its own. Pain in groin area, continued for 20 years. Weird headaches
I was wondering if I have Lupus and hoping some of you kind people might be able to help me. I'm going to do a really brief summary of my health life, that might be relevant. Late 20's Both knees suddenly stopped bending, clear up on its own. Pain in groin area, continued for 20 years. Weird headaches
Treesl
in
LUPUS UK
4 years ago
Feel like im moaning
Since my last visit to scleroderma clinic I as a female have been taken off viagra 3td to a 38 hr sustained release tidilafil (viagra) but lost a lot of weight achy but due to covid I’ve not been able to question it also I’m ana positive uctd servere raynauds ichemic finger but feel my disease is invisible
Since my last visit to scleroderma clinic I as a female have been taken off viagra 3td to a 38 hr sustained release tidilafil (viagra) but lost a lot of weight achy but due to covid I’ve not been able to question it also I’m ana positive uctd servere raynauds ichemic finger but feel my disease is invisible
leighlfc
in
LUPUS UK
4 years ago
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Update on diagnosis with ANA + symptoms only!
hi guys, i posted a week ago on here about how i was confused about my lupus diagnosis since my doctor diagnosed me on symptoms and positive ANA alone and started me on treatment right away. She did give me more blood tests, MRI, and ultrasound but she said even if those come back normal shed still
hi guys, i posted a week ago on here about how i was confused about my lupus diagnosis since my doctor diagnosed me on symptoms and positive ANA alone and started me on treatment right away. She did give me more blood tests, MRI, and ultrasound but she said even if those come back normal shed still
aimenkhattak27
in
LUPUS UK
4 years ago
Lupus diagnosis
Hello I've been suffering with a long and multiplying list of seemingly random symptoms for a good few years now, and I'm desperate to find out what's going on so that I can feel better. GPs have been pretty dismissive although I've had some tests/treatments. GP yesterday mentioned Lupus but then said
Hello I've been suffering with a long and multiplying list of seemingly random symptoms for a good few years now, and I'm desperate to find out what's going on so that I can feel better. GPs have been pretty dismissive although I've had some tests/treatments. GP yesterday mentioned Lupus but then said
BlackInk
in
LUPUS UK
4 years ago
Diagnosis based on ANA and symptoms only?
hi everyone, I was just recently diagnosed with what as of rn my doctor is calling lupus since i seem to have a lupus-like disease. Im just a bit worried and confused about my diagnosis bc many people seem to have such extensive blood results however my doctor diagnosed me based on clinical symptoms
hi everyone, I was just recently diagnosed with what as of rn my doctor is calling lupus since i seem to have a lupus-like disease. Im just a bit worried and confused about my diagnosis bc many people seem to have such extensive blood results however my doctor diagnosed me based on clinical symptoms
aimenkhattak27
in
LUPUS UK
4 years ago
Question regarding ANA
Does anyone know why TPO antibodies are on the ANA test if Graves disease and Hashimoto’s are not systemic autoimmune diseases?
Does anyone know why TPO antibodies are on the ANA test if Graves disease and Hashimoto’s are not systemic autoimmune diseases?
JennaShi
in
LUPUS UK
4 years ago
Newly diagnosed
HI there! I was recently diagnosed with sclerderma. I had some blood tests done twice to double check and I have high autoantibodies for scl-70, systemic sclerderma. We were trying to figure out what was wrong because since 2008 I have had numbness,tingling, positive ana, loss of mobility, fluid build
HI there! I was recently diagnosed with sclerderma. I had some blood tests done twice to double check and I have high autoantibodies for scl-70, systemic sclerderma. We were trying to figure out what was wrong because since 2008 I have had numbness,tingling, positive ana, loss of mobility, fluid build
Edwards02
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
Arm/wrist
I've got an apt 8the june with a rheumatologist. I've got a positive ana, raised esr, high rheumatoid factor and positive ccp. I'm petrified this pain is something like cancer. My right wrist started hurting and then left 2 lumps. Now I don't know if it's the lumps that are hurting or my actual wrist
I've got an apt 8the june with a rheumatologist. I've got a positive ana, raised esr, high rheumatoid factor and positive ccp. I'm petrified this pain is something like cancer. My right wrist started hurting and then left 2 lumps. Now I don't know if it's the lumps that are hurting or my actual wrist
Zipster369
in
NRAS
4 years ago
All Lupus Symptoms with negative CTD scan
Hey, sorry if this comes across as insensitive as I can imagine this is an intense and stressful time for everyone. I wanted to know if you think that I might have Lupus. Or atleast could compare you first symptoms with it. See I have never ever felt like this before. I have always been extremely healthy
Hey, sorry if this comes across as insensitive as I can imagine this is an intense and stressful time for everyone. I wanted to know if you think that I might have Lupus. Or atleast could compare you first symptoms with it. See I have never ever felt like this before. I have always been extremely healthy
danny101
in
LUPUS UK
4 years ago
Follow up to positive ANA test
After posting yesterday I had a couple of lovely responses from some people with psoriatic arthritis and I thank them. I was wondering though, if anyone with RA had also tested positive or not. As many of you know I am changing meds, they are being given a month to work - if not then biologics have
After posting yesterday I had a couple of lovely responses from some people with psoriatic arthritis and I thank them. I was wondering though, if anyone with RA had also tested positive or not. As many of you know I am changing meds, they are being given a month to work - if not then biologics have
RosieA
in
NRAS
4 years ago
ANA Test
I'm sure that lots of you will tell me that you have tested positive for this too! I'm also RF and CCP negative. Wondered if anyone else had this profile or not! Just wondering as it was suggested by hospital that I don't take Sulfasalazine. I suspect I know what it means but hope I might be wrong!
I'm sure that lots of you will tell me that you have tested positive for this too! I'm also RF and CCP negative. Wondered if anyone else had this profile or not! Just wondering as it was suggested by hospital that I don't take Sulfasalazine. I suspect I know what it means but hope I might be wrong!
RosieA
in
NRAS
4 years ago
Concern about my B12 levels
I was diagnosed with low b12 in January and received an injection then. I felt better for about a month but then started having symptoms again so I went to a doctor. She did more blood tests and my b12 came back really high so she decided I didn’t need another dose and that the previous low test was
I was diagnosed with low b12 in January and received an injection then. I felt better for about a month but then started having symptoms again so I went to a doctor. She did more blood tests and my b12 came back really high so she decided I didn’t need another dose and that the previous low test was
merpit349
in
Pernicious Anaemia Society
4 years ago
DFS Pattern
Anybody have any experience with DFS pattern and what it means. I got a second ana test done and it came back as 1:640 densely fine speckled, are their any autoimmune diseases that it could point to? I was tested for lupus but these test came back negative but it showed inhad a extended dvrrt levels
Anybody have any experience with DFS pattern and what it means. I got a second ana test done and it came back as 1:640 densely fine speckled, are their any autoimmune diseases that it could point to? I was tested for lupus but these test came back negative but it showed inhad a extended dvrrt levels
SethHov
in
LUPUS UK
4 years ago
Ana and sma test
What does ana test postive (h) 1:80 homgeneous mean and anti smooth musle is negative unit 7 . Please guide me thanks
What does ana test postive (h) 1:80 homgeneous mean and anti smooth musle is negative unit 7 . Please guide me thanks
Arian2
in
Living with Fatty Liver and NASH
4 years ago
Risk or not
I suffer from uctd ana positive and.servere secondary Raynaud s am I at risk should I stay in
I suffer from uctd ana positive and.servere secondary Raynaud s am I at risk should I stay in
leighlfc
in
LUPUS UK
4 years ago
any help would be kindly appreciated x
hiya! okay so this is like a little update since my last post, honestly thank you so much for the responses, you guys are all so clever and helpful! i made a google photos folder for the pictures since i couldn’t figure out how to add more than one to this post! *https://photos.app.goo.gl/t4w33bBKzzQvHyiM7
hiya! okay so this is like a little update since my last post, honestly thank you so much for the responses, you guys are all so clever and helpful! i made a google photos folder for the pictures since i couldn’t figure out how to add more than one to this post! *https://photos.app.goo.gl/t4w33bBKzzQvHyiM7
miiiy
in
LUPUS UK
4 years ago
Need advice!
In February my right hand (specifically just fingers) suddenly swelled up two times randomly. There wasn’t any sharp pain, just discomfort from decreased range of motion and it went away in about 3 days. I never had anything like this, 29 yo M, no PMH. I’m convinced it might be an allergic response but
In February my right hand (specifically just fingers) suddenly swelled up two times randomly. There wasn’t any sharp pain, just discomfort from decreased range of motion and it went away in about 3 days. I never had anything like this, 29 yo M, no PMH. I’m convinced it might be an allergic response but
Kb24
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
Looking for answers 10 yr ild
We are looking for answers our 10-year-old daughter has been having facial breakouts for about a year and a half her face gets super beat red and when that subsides she has areas of her face that literally break out into open sores we have an appointment set up at a second specialist in 2 weeks and we're
We are looking for answers our 10-year-old daughter has been having facial breakouts for about a year and a half her face gets super beat red and when that subsides she has areas of her face that literally break out into open sores we have an appointment set up at a second specialist in 2 weeks and we're
Mariet75
in
LUPUS UK
4 years ago
Burning Skin
Hi all, I am presently going through a possible SLE diagnosis! Initial symptons being rash on underside of upper arms and stomach At present my skin is burning all the time! Have had two positive Ana + Dsdna ....my problem started last year after being in the sun.....,spent a summer feeling chronically
Hi all, I am presently going through a possible SLE diagnosis! Initial symptons being rash on underside of upper arms and stomach At present my skin is burning all the time! Have had two positive Ana + Dsdna ....my problem started last year after being in the sun.....,spent a summer feeling chronically
Maloo19
in
LUPUS UK
4 years ago
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