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So annoyed!!
Recieved a copy of a letter sent to my gp today from my old rheumie. Apparently I missed my appointment with him (which I cancelled as I am under a new rheumie now). Anyhow the letter said my recent blood tests results (taken in August!) show that I am ANA positive 1:80 (nucleolar) but everything else
Recieved a copy of a letter sent to my gp today from my old rheumie. Apparently I missed my appointment with him (which I cancelled as I am under a new rheumie now). Anyhow the letter said my recent blood tests results (taken in August!) show that I am ANA positive 1:80 (nucleolar) but everything else
megs_tom
in
LUPUS UK
12 years ago
Could this be Hashis?
From time to time my throat and neck glands are mega sore ...I don't have cold or flu symptoms but I do feel very cold and can't seem to generate any heat. Are there any Hashis people here who have similar? My muscles really ache as well. Last year I asked the GP for an antibody test and afterwards was
From time to time my throat and neck glands are mega sore ...I don't have cold or flu symptoms but I do feel very cold and can't seem to generate any heat. Are there any Hashis people here who have similar? My muscles really ache as well. Last year I asked the GP for an antibody test and afterwards was
dogtired
in
Thyroid UK
12 years ago
Has any female with AMN had kidney problems? I was diagnosed with end stage renal failure early this year. Came out of nowhere.
I am 65 and started having AMN symptoms in my early 40's. I was diagnosed in 1998 after my second one week visit to the Mayo, first visit was in 1991 with no diagnosis. Then the very long chain fatty acid link with AMN was discovered and that is how they finally discovered what I have when I went back
I am 65 and started having AMN symptoms in my early 40's. I was diagnosed in 1998 after my second one week visit to the Mayo, first visit was in 1991 with no diagnosis. Then the very long chain fatty acid link with AMN was discovered and that is how they finally discovered what I have when I went back
MissSheryl
in
AMN EASIER
12 years ago
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Good News ? Bad News ?
Hi everyone, I went for Rheumi appointment yesterday, and today I don't feel any wiser even though he said he would like to end my confusion. In June 2011, with first Rheumi, I began treatment for what were 'Lupus Like' symptoms and ANA 1:320, no official diagnosis. With traveling since then (I follow
Hi everyone, I went for Rheumi appointment yesterday, and today I don't feel any wiser even though he said he would like to end my confusion. In June 2011, with first Rheumi, I began treatment for what were 'Lupus Like' symptoms and ANA 1:320, no official diagnosis. With traveling since then (I follow
Chapter
in
LUPUS UK
12 years ago
Confusion with blood results...
Just got a letter from my consultant with blood results. ANA positive 1:400.Is that high? Also, dsDNA <20 kU/L. What does that mean? Is that positive dna results? I'm so confused. My local rheumatologist told me I had lupus. The rheumatologist in Birmingham said fibromyalgia. I've just read his letter
Just got a letter from my consultant with blood results. ANA positive 1:400.Is that high? Also, dsDNA <20 kU/L. What does that mean? Is that positive dna results? I'm so confused. My local rheumatologist told me I had lupus. The rheumatologist in Birmingham said fibromyalgia. I've just read his letter
purple-lou
in
LUPUS UK
12 years ago
St Johns Wort
I have very bad health anxiety and used to take citalopram which i stopped taking last year as i felt ok. I felt so unwell when i first started the anti depressants that it has put me off going back on it again. Has anyone tried st johns wort?
I have very bad health anxiety and used to take citalopram which i stopped taking last year as i felt ok. I felt so unwell when i first started the anti depressants that it has put me off going back on it again. Has anyone tried st johns wort?
calsie
in
Anxiety Support
12 years ago
Please help me!
Hello. My name is Zaw Zaw and I'm from Myanmar.I have one younger sister.Last year,in August, my mother was diagnosed PBC.My mother is 47 years old.I and my younger sister worry too much for my mother.My mother takes UDIHEP Forte 3 times per day and also questran powder.I would like to share my mother
Hello. My name is Zaw Zaw and I'm from Myanmar.I have one younger sister.Last year,in August, my mother was diagnosed PBC.My mother is 47 years old.I and my younger sister worry too much for my mother.My mother takes UDIHEP Forte 3 times per day and also questran powder.I would like to share my mother
theboyzaw
in
PBC Foundation
12 years ago
St. John's Wort
I started taking St John's Wort tablets five days ago and I'm thinking about upping the dose and taking two tablets a day instead of one because it hasn't improved anything, in fact my mood has dipped further as far as me going to bed thinking about how I don't have a future and there's no point caring
I started taking St John's Wort tablets five days ago and I'm thinking about upping the dose and taking two tablets a day instead of one because it hasn't improved anything, in fact my mood has dipped further as far as me going to bed thinking about how I don't have a future and there's no point caring
Jessicajayx
in
Mental Health Support
12 years ago
Hunger
i am always hungry is this a sympton of an underactive thyroid, I can't seem to satisfy my hunger and i hate it surely it shouldnt be like this. Also lately I have started to get a hoarse voice again and my whole body aches and my skin is dry and I also have "IBS" which was diagnosed a few years ago
i am always hungry is this a sympton of an underactive thyroid, I can't seem to satisfy my hunger and i hate it surely it shouldnt be like this. Also lately I have started to get a hoarse voice again and my whole body aches and my skin is dry and I also have "IBS" which was diagnosed a few years ago
mummytina
in
Thyroid UK
12 years ago
It had to be the 12 days of Turkey
On the first day of Christmas my true love said to me, I'm glad we bough a turkey and a proper Christmas tree. On the second day of Christmas much laughter could be heard As we tucked in to our turkey-a most delicious bird On the thid day of Christmas we'd friends in from next door, The turkey
On the first day of Christmas my true love said to me, I'm glad we bough a turkey and a proper Christmas tree. On the second day of Christmas much laughter could be heard As we tucked in to our turkey-a most delicious bird On the thid day of Christmas we'd friends in from next door, The turkey
KingoftheCocktails
in
Lung Conditions Community Forum
12 years ago
So confused
I've just come out of an appointment with a lupus specialist. I'm more confused than before. He said that even though I have a diagnosis for lupus, he believes I might have fibromyalgia. He said that my steroid injections wouldn't work with fibromyalgia, after I had told him that I'm significantly better
I've just come out of an appointment with a lupus specialist. I'm more confused than before. He said that even though I have a diagnosis for lupus, he believes I might have fibromyalgia. He said that my steroid injections wouldn't work with fibromyalgia, after I had told him that I'm significantly better
purple-lou
in
LUPUS UK
12 years ago
AMA and ANA
Is anyone else both AMA and ANA positive?
Is anyone else both AMA and ANA positive?
Hidden
in
PBC Foundation
12 years ago
Is it possible to get over anxiety without medication or with herbal medicine such as St John's Wort?
I am suffering from anxiety after changing jobs abou 7 months ago. I had been in my old job 9 years and although I was bored was very settled. This is quite different although it's tme same field and I use the same skills. I got stressed because my boss went through a stressful period herself and was
I am suffering from anxiety after changing jobs abou 7 months ago. I had been in my old job 9 years and although I was bored was very settled. This is quite different although it's tme same field and I use the same skills. I got stressed because my boss went through a stressful period herself and was
mikl
in
Anxiety Support
12 years ago
Confused after first Haematology Consultant Appointment, please Help
Hi, I just wanted to ask if anyone has had the same experience at their first consultant appointment? Yesterday morning met my haematologist consultant for the first time (Warwick Hospital), and came out after my 20 min consult more confused than when I went in. So far I have had 2 positive
Hi, I just wanted to ask if anyone has had the same experience at their first consultant appointment? Yesterday morning met my haematologist consultant for the first time (Warwick Hospital), and came out after my 20 min consult more confused than when I went in. So far I have had 2 positive
dragtalav
in
Hughes Syndrome APS Forum
12 years ago
You guys could diagnose me but the consultant won't!
Well I got a letter yesterday from the consultant telling me that despite the ANA being 'weakly' positive for the third time running (1st time 1:320 2nd time not sure 3rd time 1:160) he was passing me back to my GP as I didn't show any of the symptoms of lupus! He also said that 5-10% of the population
Well I got a letter yesterday from the consultant telling me that despite the ANA being 'weakly' positive for the third time running (1st time 1:320 2nd time not sure 3rd time 1:160) he was passing me back to my GP as I didn't show any of the symptoms of lupus! He also said that 5-10% of the population
Angelcake
in
LUPUS UK
12 years ago
I wonder why Lupus takes a while to show up!? if ever ? views please !?
To recap .... 5 positive ANA s symptoms and red faced over cheeks and nose, but one blood test has come back negative ! My question is ..... how long until diagnosis did Lupus show itself in a blood test ? I know it may never but am curious ! x I didnt ask gp to refer me to st thomas s , i dont know
To recap .... 5 positive ANA s symptoms and red faced over cheeks and nose, but one blood test has come back negative ! My question is ..... how long until diagnosis did Lupus show itself in a blood test ? I know it may never but am curious ! x I didnt ask gp to refer me to st thomas s , i dont know
larissa
in
LUPUS UK
12 years ago
Amlodipine
Hi - I saw the Rheumatologist today and he has put me on Amlodipine 5mg tablets as I got constant headaches with the Adalat LA and the Nifedipine. Anyone else on the Amlodipine? If so, do you get on ok with them? Thanks Carol
Hi - I saw the Rheumatologist today and he has put me on Amlodipine 5mg tablets as I got constant headaches with the Adalat LA and the Nifedipine. Anyone else on the Amlodipine? If so, do you get on ok with them? Thanks Carol
Carol-C
in
Scleroderma & Raynaud's UK (SRUK)
12 years ago
ANA positive. ENA positive showing PCNA, dsDNA, SM, Scl 70, Jo 1 + couple of others... Lupus? I also have IIH and psuedopappiladaema
browneyes2012
in
LUPUS UK
12 years ago
Advice please - I dont understand diagnosis or lack of ....
Hi everyone I was diagnosed with Graves disease 2 1/2years ago and around the same time started with joint pain. After a long battle I was finally referred to a rhuematologist and was first told the joint pain was caused because of the graves disease. I had a thyroidectomy last year and the thyroid
Hi everyone I was diagnosed with Graves disease 2 1/2years ago and around the same time started with joint pain. After a long battle I was finally referred to a rhuematologist and was first told the joint pain was caused because of the graves disease. I had a thyroidectomy last year and the thyroid
LULU85
in
LUPUS UK
12 years ago
rhuemy app !!!
Well just got back from app . I showed him photos of my red face and across my nose .,had my 4th positive ANA and symptoms. He said he can diagnose Connective Tissue Disease but one difinitative bloods for lupus has always been negative and he is waiting for the results of my recent one . Dont think
Well just got back from app . I showed him photos of my red face and across my nose .,had my 4th positive ANA and symptoms. He said he can diagnose Connective Tissue Disease but one difinitative bloods for lupus has always been negative and he is waiting for the results of my recent one . Dont think
larissa
in
LUPUS UK
12 years ago
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