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Any experience of spinal cord stimulation?
Pain mmgt specialist suggests I try but it sounds like a torture! I can't face going to the gp for a referral to discuss because that's an ordeal and I always work myself up and end up sobbing so they think I'm a nut and I usually walk out with a prescription for anti Ds which I don't think work and
Pain mmgt specialist suggests I try but it sounds like a torture! I can't face going to the gp for a referral to discuss because that's an ordeal and I always work myself up and end up sobbing so they think I'm a nut and I usually walk out with a prescription for anti Ds which I don't think work and
Boozybird
in
Pain Concern
11 years ago
2nd opinion from different rheumy, translation of letter required plzzzz
hi all i took the advise from other lupys on here and asked to see a different rheumy id done my research and wanted a certain rheumy so i waited 3 months 2 see him the appointment was a dissapointment and now im really confused with this outcome i have antinuclear antibodies being made by my immune
hi all i took the advise from other lupys on here and asked to see a different rheumy id done my research and wanted a certain rheumy so i waited 3 months 2 see him the appointment was a dissapointment and now im really confused with this outcome i have antinuclear antibodies being made by my immune
kittykat68
in
LUPUS UK
11 years ago
First blog, recently diagnosed with sle, Hughes and pots syndrome this year.
Hi there, just thought I'd introduce myself this seems like a good forum to be part of! I've had an awful start to the year and on 15th Feb I was diagnosed with SLE with Antiphospholipid Syndrome after developing a DVT in each calf.... With no risk factors since I'm only 19! The diagnosis came about
Hi there, just thought I'd introduce myself this seems like a good forum to be part of! I've had an awful start to the year and on 15th Feb I was diagnosed with SLE with Antiphospholipid Syndrome after developing a DVT in each calf.... With no risk factors since I'm only 19! The diagnosis came about
Scoofiecoo
in
LUPUS UK
11 years ago
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Has anyonelse had ana positive, dna positive, then equivocal and now negative????????
Is it me or does this really happen? Been rheumy today to see the nurse and been told that my bloods are negative yet been positive before, Im so confussed my crp is normal, esr normal but yet in in sooooo much pain with my joints????? Why does this happen? Anybody know???? Im under my local hospital
Is it me or does this really happen? Been rheumy today to see the nurse and been told that my bloods are negative yet been positive before, Im so confussed my crp is normal, esr normal but yet in in sooooo much pain with my joints????? Why does this happen? Anybody know???? Im under my local hospital
beckybooboo
in
LUPUS UK
11 years ago
back to square 1..
Hi all my lovely friends,me again with my phobia of taking meds...went to my dr and she told me to try st johns wort for a month,if that isin't helping she will put me on low dose a/d...that was 4 days ago and i'm sitting here taking nothing, knowing I need something.my head is muddled ,have nausea ,
Hi all my lovely friends,me again with my phobia of taking meds...went to my dr and she told me to try st johns wort for a month,if that isin't helping she will put me on low dose a/d...that was 4 days ago and i'm sitting here taking nothing, knowing I need something.my head is muddled ,have nausea ,
miarose
in
Anxiety Support
11 years ago
Help re low mood medication/vitamins?
Hi there Does anybody know of any treatment vitamins that do not affect thyroid meds.... as I know St Johns wort has a major effect... help... just one of my side effects of underactive.. :-(
Hi there Does anybody know of any treatment vitamins that do not affect thyroid meds.... as I know St Johns wort has a major effect... help... just one of my side effects of underactive.. :-(
sandrab1969
in
Thyroid UK
11 years ago
Side effects
Hi, new to the forums, so hello everyone. I am taking Seretide 250 and have been since 2010 has anyone else had problems with joint pain or arthralgia? I had a nasty bout of flu in September 2010 and my gp changed me over to seretide as becotide was not as effective. In December of 2010 I began to
Hi, new to the forums, so hello everyone. I am taking Seretide 250 and have been since 2010 has anyone else had problems with joint pain or arthralgia? I had a nasty bout of flu in September 2010 and my gp changed me over to seretide as becotide was not as effective. In December of 2010 I began to
Hidden
in
Asthma Community Forum
11 years ago
Hi there. I am looking for some advice. I was diagnosed with thyroid problem last year and was put on thyroxine also was told that I had a
Autoimmune disorder but nothing specific.My rheumatologist done bloods last July and as I am due to see my pain specialist tomorrow I dug out previous letters and notice that she states 'weakly positive rheumatoid factor and weakly positive ANA antibodies with positive lupus screen' Does this mean that
Autoimmune disorder but nothing specific.My rheumatologist done bloods last July and as I am due to see my pain specialist tomorrow I dug out previous letters and notice that she states 'weakly positive rheumatoid factor and weakly positive ANA antibodies with positive lupus screen' Does this mean that
dawsden
in
LUPUS UK
11 years ago
What is a 'low grade connective tissue disorder'?
Sorry, me again ;) Prof K said I have borderline bloods like a low positive ANA and symptoms that show I've got a low grade/mild connective tissue disorder, rather than full blown lupus. What does he mean by that? Does this mean I could develop lupus or is it something else? Susie x
Sorry, me again ;) Prof K said I have borderline bloods like a low positive ANA and symptoms that show I've got a low grade/mild connective tissue disorder, rather than full blown lupus. What does he mean by that? Does this mean I could develop lupus or is it something else? Susie x
Paleosooze
in
Hughes Syndrome APS Forum
11 years ago
Does everyone struggle with trying to get diagnosed?
I am struggling to get a confirmed diagnosis for SLE. My consultant agreed with my dermatologist on the evidence provided ie: 2 positive ANA blood results and nearly all the 11 primary symptoms of SLE. He then wanted me to see his dermatologist who looked at my butterfly rash on my face and said straight
I am struggling to get a confirmed diagnosis for SLE. My consultant agreed with my dermatologist on the evidence provided ie: 2 positive ANA blood results and nearly all the 11 primary symptoms of SLE. He then wanted me to see his dermatologist who looked at my butterfly rash on my face and said straight
gingerjanine
in
LUPUS UK
11 years ago
Results !?
Hello all ! I recieved a copy of the letter for my gp . All bloods came out normal exept slightly positive ANA ( 7 th positive ) low vitamin d and calcium, and my eye test was ... bone dry. I am going back to st Thomas in march to discuss these results with dr sanna but i am doubtful that i will
Hello all ! I recieved a copy of the letter for my gp . All bloods came out normal exept slightly positive ANA ( 7 th positive ) low vitamin d and calcium, and my eye test was ... bone dry. I am going back to st Thomas in march to discuss these results with dr sanna but i am doubtful that i will
larissa
in
LUPUS UK
11 years ago
My blood results
These are the blood results from my GP, she says everything is normal, so why do I feel the way I do? Retrofitted sedimentation rate 4 mm/h. (2-12) FBC R haemoglobin. 138 g/l. (115-165) RBCs. 4.30. 10+13/L (3.8-5.8) Haematocrit
These are the blood results from my GP, she says everything is normal, so why do I feel the way I do? Retrofitted sedimentation rate 4 mm/h. (2-12) FBC R haemoglobin. 138 g/l. (115-165) RBCs. 4.30. 10+13/L (3.8-5.8) Haematocrit
donna95
in
Thyroid UK
11 years ago
Could these images be Livedo? (Sneddons, Antiphospholipid Syndrome (APS) & Livedo help!)
Hi there. Basically my question is, do the images below look like something that could be related to Sneddons, Antiphospholipid Syndrome or Livedo? Sorry to ask but I'm very confused with my symptoms! Pictures: *Hopefully link now working* https://plus.google.com/photos/110776790922857768864
Hi there. Basically my question is, do the images below look like something that could be related to Sneddons, Antiphospholipid Syndrome or Livedo? Sorry to ask but I'm very confused with my symptoms! Pictures: *Hopefully link now working* https://plus.google.com/photos/110776790922857768864
medsoph
in
LUPUS UK
12 years ago
What now I ask? - politics and medicine
I am dying in disbelief at the lack of patient care due in part by the awful politics that exists in this countries health system. (NHS and Private alike) I was admitted to my local hospital with acute jaundice and diagnosed with Autoimmune hepatitis 4 years ago, and recently half heartily diagnosed
I am dying in disbelief at the lack of patient care due in part by the awful politics that exists in this countries health system. (NHS and Private alike) I was admitted to my local hospital with acute jaundice and diagnosed with Autoimmune hepatitis 4 years ago, and recently half heartily diagnosed
Jarrod
in
LUPUS UK
12 years ago
More tests....
I saw my rheumatolgist today, she's scheduled a urgent MRI scan, really worried about my headaches and vision problems. Glad something is getting Done! Also turns out my idiot doctors at my local gp have royaly screwed me for 3 months by ignoring the adalat tablets my rheumy gave me and giving me a different
I saw my rheumatolgist today, she's scheduled a urgent MRI scan, really worried about my headaches and vision problems. Glad something is getting Done! Also turns out my idiot doctors at my local gp have royaly screwed me for 3 months by ignoring the adalat tablets my rheumy gave me and giving me a different
Hidden
in
LUPUS UK
11 years ago
ANA Results
I recently had blood tests for Lupus, specifically Antinuclear Antibodies, which came out negative, but I still have symptoms which resemble Lupus. Is it possible to have negative ANA blood tests, yet still have Lupus? Many thanks.
I recently had blood tests for Lupus, specifically Antinuclear Antibodies, which came out negative, but I still have symptoms which resemble Lupus. Is it possible to have negative ANA blood tests, yet still have Lupus? Many thanks.
lupienproud
in
LUPUS UK
12 years ago
Feeling Blue .... anyone else?
Has anyone else experienced such frustration between different clinicians? I have been under rheumatology, dermatology and my GP for 10 years now with vasculitis and sub-cutaneous lupus. My "flare ups" have been getting more and more frequent and my symptoms much worse, hydroxycloroquine no longer works
Has anyone else experienced such frustration between different clinicians? I have been under rheumatology, dermatology and my GP for 10 years now with vasculitis and sub-cutaneous lupus. My "flare ups" have been getting more and more frequent and my symptoms much worse, hydroxycloroquine no longer works
Rachy24
in
LUPUS UK
12 years ago
Thyroxine and natural antidepressants
Hello, i'm on quite a high dosage of thyroxine (200mg) so I can't take St John's Wort or 5TTP I don't think. I have a good diet and exercise every day but due to some recent events I've been very down and can't snap out of it. Can anyone recommend a herbal antidepressant that won't interfere with my
Hello, i'm on quite a high dosage of thyroxine (200mg) so I can't take St John's Wort or 5TTP I don't think. I have a good diet and exercise every day but due to some recent events I've been very down and can't snap out of it. Can anyone recommend a herbal antidepressant that won't interfere with my
sazzles206
in
Mental Health Support
12 years ago
Positive ANA Not referred
Hi, I have been suffering with a myriad of symptoms, the most consistent is joint pain in elbow, wrist and fingers. My hand will claw and lock. My GP recently ran some bloods and I had a positive ANA and anemia show up. Other symptoms are shortness of breath, fatigue, face sensitivity to heat which lead
Hi, I have been suffering with a myriad of symptoms, the most consistent is joint pain in elbow, wrist and fingers. My hand will claw and lock. My GP recently ran some bloods and I had a positive ANA and anemia show up. Other symptoms are shortness of breath, fatigue, face sensitivity to heat which lead
Dawnage
in
LUPUS UK
12 years ago
Wheres the best pain clinic for internal spinal cord stimulator?
I have been all over the country going to pain clinics and neuro surgeons. I have syringomyelia which has caused lots of pain down my left leg and round the left side of my chest. I have been to top hospitals in Liverpool, Preston and London. Ideally I would want to go to a hospital in the north
I have been all over the country going to pain clinics and neuro surgeons. I have syringomyelia which has caused lots of pain down my left leg and round the left side of my chest. I have been to top hospitals in Liverpool, Preston and London. Ideally I would want to go to a hospital in the north
badbackjonny
in
Pain Concern
12 years ago
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