Getting rid of EBV?: Hi, I have Hashimoto’s. The... - Thyroid UK

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Getting rid of EBV?

Yppah
Yppah
106 Replies

Hi,

I have Hashimoto’s. The endocrinologist I see tested for past EBV infection as suspected something else contributing to my symptoms. And the test results say I have a past infection. He says there’s not much I can do other than to rest, and believes 8 weeks off work would help. I’m not averse to this if it would help.

I have read a couple of books with suggestions for getting rid of / diminishing the effects of the virus. Isabella Wentz’s Hashimoto’s Protocol recommends Valganciclovir, Lomatium, Cordyceps and Olive Leaf Extract. Aviva Romm’s Adrenal Thyroid Revolution suggests Echinacea, Lemon Balm, Licorice and St. John’s Wort.

Does anyone have any experience of this and any recommendations?

Thanks

106 Replies
oldestnewest
Lalatoot

Please be careful and research well before you take anything. St. John's wort and lemon balm are both documented as affecting thyroid hormones in a bad way. The leaflet that comes with St John's wort says not to take if you are on levothyroxine. You could do yourself more harm than good.

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Serendipitious

Lalatoot,

Do you have a reference to this please as I’ve been given a herbal tonic consisting of Licorice, St Johns Wort and Lemon Balm for EBV?

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Angel_of_the_North

Lemon balm is used for an overactive thyroid. This a a veterinary article but is still relevant. Lemon Balm is Melissa Officinalis. It's interesting that the article seem contradictory but there are sources for both effects. See also liebertpub.com/doi/abs/10.1... This talks about its anti-viral properties: ncbi.nlm.nih.gov/pmc/articl...

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Lalatoot

images.hollandandbarrettima...

This is the leaflet that goes with the St Johns Wort capsules sold by Holland and Barret which says that it should not be taken if you are on thyroxine.

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humanbean
humanbean
in reply to Lalatoot

Lalatoot

How did you find that picture of the PIL for St Johns Wort? Do H&B have all their PILs online? And can they be searched for? I didn't even know that H&B supplied PILs and I've never seen a link that allows me to read them!

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Lalatoot
Lalatoot
in reply to humanbean

Yes you can see them on line. Just search on the h and b website for the product and there is a product leaflet you can click on.

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humanbean
humanbean
in reply to Lalatoot

Thanks. I found it for St Johns Wort, but it doesn't have one for 5-HTP which was what I was hoping to find. :(

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Lalatoot

pdfs.semanticscholar.org/70...

This article states that lemon balm affects thyroxine absorption "Lemon balm is an herbal remedy often used as antianxiety, sedative and calming effects. It is used as herbal tea and oil. It has anti TSH effect and also prevents intestinal thyroxine absorption."

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Lalatoot

"Licorice can reduce thyroid gland activity and lower the basal metabolic rate."

peoplespharmacy.com/article...

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Yppah
Yppah
in reply to Lalatoot

Dr Romm’s not coming off too well here with 3 out of 4 suggestions not sounding so great, and one with a caveat around length of use. Hhmmm.

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Lalatoot

Licorice root is documented as hampering thyroid activity.

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humanbean
humanbean
in reply to Lalatoot

Licorice root also raises blood pressure in some people. It has quite a dramatic effect on mine.

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Yppah
Yppah
in reply to humanbean

I was wary of this one anyway as being tested for adrenal insufficiency, and know there is some licorice interaction here. Think I have read good and bad things, I struggle to remember. Will steer clear for now.

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wellness1
wellness1
in reply to Yppah

Actually, it increases bioavailable cortisol, so it shouldn't be taken by anyone with high cortisol levels. I agree with humanbean, it should be used very cautiously and is definitely contraindicated for anyone with hypertension.

examine.com/supplements/lic...

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Yppah
Yppah
in reply to wellness1

Thank you, I only know mine is low in the morning. I’m likely to avoid for now.

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Serendipitious

humanbean,

Interesting to know. My blood pressure has always been on the low side. I think I’ll still avoid it despite being given a combination of all these herbs. Thank you.

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Peanut31

Hi

My private endo tested for EBV and I was positive, he gave me antibiotics to help, not sure it did anything, as I also have Hashimotos.

He wasn’t much use and eventually I was diagnosed with an underactive thyroid and put on medication by my GP after the endo ignoring my symptoms.

Best wishes

Peanut31

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Yppah
Yppah
in reply to Peanut31

Ah I didn’t think antibiotics helped a virus. What were they called out of interest? Mine is a reactivated infection. I was unaware of the infection at the time, but since late teens have had loads of throat infections, so likely one of the many!

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LisaHill468

Can you find a naturopathic physician? They will get to the cause and not just address the symptoms. They can treat your ebv. There is a more complete lab draw for the ebv. It might possibly be a reactivated infection.

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flo72003
flo72003
in reply to Peanut31

What is EBV?

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Yppah
Yppah
in reply to flo72003

Hi, it’s the Epstein Barr Virus. Just heard of it myself.

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flo72003
flo72003
in reply to Yppah

Thank you. I was puzzled, never heard of it before,

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vocalEK
vocalEK
in reply to flo72003

Is this what they used to call "Mononucleosis" or "Mono" back in the 60s?

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Yppah
Yppah
in reply to vocalEK

Yes it is, or glandular fever I have been told also. Not sure if same thing!

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robert1957
robert1957
in reply to Peanut31

Antibiotics for a virus

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Gambit62
Gambit62
in reply to robert1957

antibiotics don't - as far as I am aware - work for viruses. They were for bacterial agents whereas viruses are much smaller than this.

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robert1957

No

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dtate2016

I’m not sure that I’ve ever had EBV but I have treated other viruses with olive leaf extract and goldenseal. I continue to use turmeric with black pepper and Una De Gato. (Cats Claw) to help with short term viral loads. I do have Hashimoto’s and I have seen more and more research out there that says EBV might be one of the causes of Hashimoto’s. Of course we keep looking for the cause and there are many other viruses that could likewise be the trigger.

Again olive leaf extract and goldenseal works for me - I usually don’t take it for more than 10 days. Likewise with the Una De Gato. I take turmeric with black pepper every day.

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Yppah
Yppah
in reply to dtate2016

I have some turmeric with black pepper that is on my list of things to add in to help in general. Never heard of Una De Gato. Will take a look, thank you.

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dtate2016
dtate2016
in reply to Yppah

The English name is “cats claw” - One of your other replies say they use cats claw too

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Yppah
Yppah
in reply to dtate2016

Thanks dtate2016, got it from the español too. Defo looking in to it... are you able to recommend a brand?

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dtate2016
dtate2016
in reply to Yppah

I am not generally brand loyal what I look at is the strength and the price and I buy from reputable people here in the US usually I go online. Having said that, Jarrows is always a good brand name I don’t know that he has an Una De Gato product. NOW is a good brand - I have used their Cats Claw in the past. I shop Swanson as well. I have ordered Isabella Wentz products before but she’s usually way expensive! She does offer a moneyback guarantee if you’re not happy.

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dtate2016
dtate2016
in reply to Yppah

See “Equi-crazy” reply: they use cats claw as well.

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HLAB35
HLAB35
in reply to dtate2016

Turmeric in golden paste with coconut milk is fab.

Goldenseal is good at fighting Candida.

I think NAC is also useful (a powerful precursor to glutathione) as it cleans the liver and does a lot to prevent secondary infections of the mucous membranes.

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dtate2016
dtate2016
in reply to HLAB35

Yes - but goldenseal is antiviral as well as anti-fungal. I have actually experienced and others in my family have likewise experienced Goldenseal’s amazing antiviral properties - for instance when it comes to warts (caused by viruses) totally removed planters warts in several people - and I didn’t even take very long like maybe three or four days. But I use it with the common cold and other virus kind of maladies it works wonders! And many times it will come in a proprietary blend mixed with echinacea it’s great stuff!

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SSE106
SSE106
in reply to dtate2016

Thanks for sharing this, can I ask where did you buy those herbals? Herbal shop or online?

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dtate2016
dtate2016
in reply to SSE106

Yes - online. Many great places. Be sure and shop prices. It is a middle of the road type herbal - not cheap but not super expensive. Recommend buying the liquid form. It has an intense astringent taste - kind of like the hull of a walnut or pecan (the green part) - somehow when you are sick, it almost tastes good!

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robert1957

Please research celery juice and lemon juice

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Ad78

I didn't know that there could be a link between EBV and the thyroid! I tested positive for past EBV earlier this year. I also read echinacea helps

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Yppah
Yppah
in reply to Ad78

I had read about it originally in Izabella Wentz’s book and it was in one of the late chapters along the lines of “if nothing else has worked then check out these more random things”, but it sounds like it maybe isn’t all that uncommon but the strong link just not formally made. Interesting! But endo went straight to that. Not sure whether I am lucky or just know something there’s not really much I can do about. 🤔

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Simba145
Simba145
in reply to Yppah

Hello, I’ve literally only become aware of ebv as of yesterday since listening to medical medium thyroid healing book. I had no idea that there was so much evidence pointing to this for the cause of Hashimoto and other autoimmune disorders. Is it believed you can heal yourself by eliminating the virus out of your system? I’m quite early in the book

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Catseyes235
Catseyes235
in reply to Ad78

Apparently echinacea is not recommended for those with auto immune disease.

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unlocky
unlocky
in reply to Catseyes235

Hi Catseyes, I think that it might depend on our philosophy. If we believe that the body being ramped up (for a while) is a healthy response to infection or parasites then it goes hand in hand with belief in our bodies. Otherwise its the doom and gloom Conventional med attitude that our bodies are incapable and need to be overloaded with pharmaceuticals! Or that there's nothing we can do … which is also horribly defeating. So I've opted for working with my body to try to achieve a sweat, other longer-term strategies and to believing I will overcome this.

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Catseyes235
Catseyes235
in reply to unlocky

Not at all sure what you are inferring but this is not some conventional medicine response to alternatives that I am talking about but what I have read many years ago on echinacea info. I don’t know why it may interact negatively with whatever but just saying. Maybe like grapefruit interacts with meds? Maybe check it out?

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robert1957
robert1957
in reply to Ad78

Yes there is

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Howard39

Hi

Yes I’ve had EBV really badly.

I was tested 3 years ago. I badgered my specialist into testing the 4 markers.

Mine showed i had it in the past. I am sure I remember when it was as I had an infection for 2 months.

You need to know the levels of your antibodies as this makes all the difference.

Antibodies at say 200 are ok mine were 700. That is not good. EBV can cause cancer, ME and thyroid issues or all of them if the antibodies are so raised. My sister ( a cancer research scientist )told me EBV is the main reason people in Africa get cancer.

Valacyclavir is a good drug for EBV. Sadly it’s been discontinued. I am on it and having to reduce my dose.

Some companies have stopped making aciclovir ( used for shingles which converts into valacyclavir).

I had shingles for two years so another reason to take it.

The gmc dislike the use of it.

Yes EBV can cause ME cancer and Hashimotos to name a few conditions.

It’s worth checking those levels. Yours is now dormant?

That leaves aciclovir or natural remedies. High vit c plus cats claw and elderberry are what I take too.

Echinacea you can only use 3/4 months of the year

The others you can take continually.

If I can help more please do ask.

Oh antibiotics won’t work as it’s a viral infection. If you had a chest infection say then that’s different.

I was always taught look after your gut health. Probiotics, ensure stomach acid is ok( there is a comprehensive stool analysis test) no Candida or paracites etc. Also please be careful not to overdo things at work.( if you had it 5 years ago say then nice as it would be time off now won’t help).

Good luck

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Yppah
Yppah
in reply to Howard39

Oh my, it sounds like a massive area for research.

Just fished out the results:

EBNA IgG antibody 457 U/ml (<5 U/ml negative)

VCA IgG 336 U/ml (<5 U/ml negative)

EBV VCA ab. (IgM) 17 U/ml (<20 U/ml negative)

Are these first two high? I didn’t think it mattered...

I actually have no real idea of when I had the infection. I have had loads of throat issues since my late teens, so likely some point then. (I’m 37 now.) More recently I had lingering infections for a couple of years or so - a chest infection that was not far off the lungs, sinusitis, tonsillitis. But have been totally free of all these things since May when I found out about Hashimoto’s and ditched gluten, dairy and soy, and now take lots of vitamins. At the time of the test being done I actually felt the best I have felt in 5 years (not great though!) so would be interested to hear of any knowledge you have re the test result levels.

Also which gut health test would you recommend? I take probiotics, pre-biotics, digestive enzymes if I think somewhere has snuck in some gluten / dairy / soy. But can always do more!

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Hillwoman
Hillwoman
in reply to Howard39

I had no idea that valacyclovir had been discontinued! Very bad news. In 2016 I had acyclovir prescribed as an experiment, because my health fell off a cliff after catching chicken pox as a young adult. Good results in the first few months, but I had to reduce the dose too soon - creatinine went too high during hot weather. I never got back to where I was when I resumed the full dose, but the long term plan was to try again with an Elispot test for EBV etc, and take valacyclovir.

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Yppah
Yppah
in reply to Hillwoman

So do you take that long term sort of thing? I hope you can get it if you need it. 🤞

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Hillwoman
Hillwoman
in reply to Yppah

I think it was about 15-18 months in all, but most of that was at too low a dose.

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Hillwoman
Hillwoman
in reply to Hillwoman

Just to add, patients often have to spend several years on a low 'maintenance' dose.

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pamelashep
pamelashep
in reply to Howard39

Hi Howard39 reading your reply to Yppah very interesting. Where do you suggest you get the comprehensive stool test from out of interest, if you don't mind saying. Thanks

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Howard39
Howard39
in reply to pamelashep

Hi I went through Genova but you need a Doctor to sign it off. You can approach thyroid uk( apparently) to help you.

Also regenerus do it. It’s not as detailed but ok I understand.

There are a few more on line but I’ve never heard of anyone comment on them.

Circa £200 as I recall.

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Simba145
Simba145
in reply to Howard39

Hi Howard thanks for the info. I’ve just started reading a book called medical medium thyroid healing and it’s the first I’ve heard of Ebv and it preaches that it’s the cause of underactive thyroid along with other things so I’m surprised to see it substantiated here as I’ve had my doubts! Obviously new to info and what are your recommendations? Checked for ebv and then take the natural supplements you’re suggesting or is there much more

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robert1957
robert1957
in reply to Howard39

E BV may be dormant but it’s hiding in your liver or some other internal organ ready to get to it’s ultimate goal your nerves system

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Howard39
Howard39
in reply to robert1957

Hi no that’s not true.

The EBV conceals itself in human cells.The main culprit for bad visibility is is the vital protein LMP2A.

The PLOS Pathogens, a scientific journal quoted that this protein helps the infected cells hide from the T cells. This camouflage may play a major role on the causation of cancer by EBV.

As quoted by German scientists including Dr Moosmemam in Munich.

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robert1957

Please research L-lysine

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Polly91
Polly91
in reply to robert1957

I’ve been using L-Lysine too and I think it’s helping with recurrent sore throats.

It’s meant to stop viral replication.

Takuna drops are also good for boosting the immune system.

Good luck.

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robert1957
robert1957
in reply to Polly91

Hello polly if you research celery juice drinking it first thing in the morning it will be good

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Polly91
Polly91
in reply to robert1957

Thanks very much Robert

I will do that. I don’t have a great juicer mind you. Does nutribullet work as well?

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robert1957
robert1957
in reply to Polly91

You are drinking the fibre along with the juice it’s hard

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Polly91
Polly91
in reply to robert1957

So what does that mean exactly?

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robert1957
robert1957
in reply to Polly91

It’s difficult to drink the celery juice and the fibre it’s easier to drink the juice on it’s own

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Polly91
Polly91
in reply to robert1957

Thanks. So I presume it’s ok to eat the whole celery stick as you get both?

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robert1957
robert1957
in reply to Polly91

No it’s not the same you have to drink the juice to get the full benefits

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Yppah
Yppah
in reply to robert1957

Thank you, will do, so many suggestions here, most grateful.

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Equi-crazy

Hi, if you read up you will find it is a massive area for research. I speak as virologist. I am afraid you will not manage to eliminate the virus, you would be wasting your money on supplements if someone is claiming this is possible. It is carried with your DNA. Read up on EBV replication cycle. It is like (and very related to) the cold sore virus. It stays with you forever. There has never been a single reported case of a person reverting fromEBV positive to negative by blood test. When stressed or other things going on it can reactivate (which may be your case), in those cases acyclovir etc can stop what they call the lytic cycle, which is like a cold sore outbreak. 90%of people in the west carry this virus. If you get it early in life (main transmission mother -child from licking spoon) you generally have no issues. When you have it as a teen you get glandular fever. Either way you are now a carrier. Yes it can trigger autoummune issues like hashimotos and in very rare cases cancer but there are epidemeologocal reasons for the high prevalence in Africa. Equally be mindful of cause and effect. If you have a massive hashimotos immune reaction going on with cell death releasing all sorts of chemicals it is likely the virus will reactivate (same as sun exposure "gives" you a cold sore). So testing for EBV can be a way of demonstrating that. Billions have been pumped into EBV research because virologists, cell biologists and cancer scientists have dedicated their lives to understanding EBV and Herpesviriuses as a whole, biologically there are thousands of ways to use them (as gene therapy, to prevent and even stop cancers) if we understood them more. I have hashimotos myself and sadly everyone needs to find their way in this. I find high dose vit C, and lots of other supporting supplements like selenium, adrenal cortex etc help me personally (there is lots on this forum on this). I do not post often but I feel I can give you an honest answer on this topic. Managing the immune response (supplements, rest, stress reduction) is sadly the only way to deal with hashimotos.

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Jnetti
Jnetti
in reply to Equi-crazy

Fascinating!

"...lots of other supporting supplements like selenium, adrenal cortex etc"

Does a supplement of adrenal cortex mean an actual adrenal gland extract? I am beginning to suspect that some of my apparent Hashi's symptoms maybe adrenal related. I've avoided telling the doctor about them because they (strange kind of hot flushes, not like the normal ones I have, rather a high heart rate, usually in the 80s, and sometimes feel strange when I wake up) might give the impression of being overmedicated with thyroxine (TSH under range but I still "Feel hypo").

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Yppah
Yppah
in reply to Equi-crazy

Wow. This really is so fascinating. Thanks for all the info. Everything I read seems to point to slowing down and reevaluating life in general. Definitely on the right track with the diet so far, and so many other opportunities to investigate thanks to all on here.

You’ve made my day in alleviating the guilt I was feeling around potential of passing it to my 4 yr old.

Heading off to google the lytic cycle.

If you happened to have any suggestions re stuff I could read at all that would be appreciated if it is something you had to hand.

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dtate2016

Thank you for the very informative and honest reply. We really do, each one of us, have to find our own way. Is that the reason, perhaps, that Drs (the paint by numbers type) don’t really want to help / treat Hashimotos? Wonderful information on EBV - thanks again.

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Equi-crazy

And btw, yes your antibody titres can go down, but they the numbers vary between individuals. Often antibody titres just say: yes I have an immune reaction to virus x. Here on EBV:

The presence of VCA IgG antibodies indicates that an EBV infection has occurred at some time recently or in the past. The presence of VCA IgM antibodies and the absence of antibodies to EBNA mean that the infection has occurred recently. The presence of antibodies to EBNA means that the infection occurred in the past.

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unlocky
unlocky
in reply to Equi-crazy

Thank you so much.

I have been considering asking for Ig testing.

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Jnetti

Hi, I looked at a few of the ingredients in Isabella Wentz’s list

Cordyceps seems OK, even though it is a fungus (so is penicillium that they originally got penicillin from!) webmd.com/vitamins/ai/ingre...

valganciclovir seems to have a lot of possible side effects: drugs.com/cdi/valganciclovi...

Couldn't find much on Lomatium except it is antiviral

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unlocky
unlocky
in reply to Jnetti

Thanks so much for your research Jnetti.

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Jnetti
Jnetti
in reply to unlocky

I like looking things up! If I was a dog I would be a terrier digging after interesting smells :-D

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janeb15

Hi, I'm sorry to hear of your problems. Are you aware that a combination of Hashimotos and chronic EBV are very often also connected with Lyme Disease? Unfortunately there is no test in the UK that is reliable enough to indicate Lyme, and you may have to have tests from Germany and/or the USA to help with such a diagnosis, although finding a Lyme Literate Doctor is the best way to get a diagnosis. There are many people in the UK who have done this and are receiving treatment from doctors abroad. My daughter is one of these following years of chasing down blind alleys including the thyroid/adrenal route and vitamin/mineral regimes.

The best contact for Lyme Disease in the UK is lymediseaseuk.com/ It might be worth you checking them out, as unfortunately the medical profession in the UK is woefully uninformed about it. Good luck. Jane x x

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Yppah
Yppah
in reply to janeb15

Ah. Just been tested for that and await results. I had a strange patch of what I assumed was dry skin and then saw a BBC article about the ring associated, so asked for test. It’s with The Doctors Laboratory - should I be concerned about the accuracy of results then? Sorry your daughter has this and has had to jump through hoops.

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janeb15
janeb15
in reply to Yppah

Hi, I'm afraid I'm not familiar with the Doctors Laboratory as my daughter was tested In the USA, and although there is NO completely reliable test for Lyme there are specialists there who can interpret tests and symptoms. Please let me know when you get the test results and perhaps I can make some suggestions for you. Jane x

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robert1957

Keep looking yppah you are on the right track

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Otto11

Following your post as interested if anything can help after EBV. Firstly sorry to hear you have this as it can be a particularly nasty virus.

Both myself & my daughter had an unknown virus in 2010. We were both really ill & in bed for several months. Neither of us recovered well & were both diagnosed with ME sometime later. I was already retired with RA but my daughter was still working but was never well enough to return to work. Hers is pretty severe & spends most of her days in bed certainly rarely leaving her room. She is 41 years old.

Not long after my husband was rushed into hospital seriously ill in acute liver failure thought to be bone marrow cancer. However after several weeks in hospital it was all put down to EBV! Luckily he recovered but has only managed work part time since. I was then tested & found to have high levels of antibodies so most likely had been the virus I had previously.

In the past 9 years we have tried several different remedies but not found anything that helps. I have very bad memory issues since so much so that I was tested for early onset altzheimers which luckily it’s not but still leaves me with huge gaps here & there.

Anyway I hope you find something that can help & would be interested to know if you do find something useful x

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Yppah
Yppah
in reply to Otto11

Hi, I am so sorry to hear your family has suffered so badly from this. Are there any new ideas on this post from others that you might try? It must be so frustrating for you all.

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Otto11
Otto11
in reply to Yppah

Thank you. It’s a dreadful virus that’s affected our lives so badly x

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klr31
klr31
in reply to Otto11

Memory problems can occur if not optimally medicated for thyroid problems. Do you have hypothyroidism? I have M.E and Hashimoto's and the symptoms are very similar.

Karen

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Otto11
Otto11
in reply to klr31

Yes I do have Hypothyroidism on Thyroxine for past 23 years. Lately been unstable due to a virus in Feb which threw levels out. We have come to the conclusion that memory problems are result of ME but they are very specific with regard to directions to places & events. Quite bizarre tbh. I would love to see an Endocrinologist but don’t have any locally either NHS or private.

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klr31

What dose of thyroxine do you take and what are your blood test results? Are you optimally medicated?

Karen

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Yppah
Yppah
in reply to klr31

Only started thyroxine a few months ago so suspect not at correct dose yet, 75mcg. Results not optimal, this would have been on 50mcg.

TSH 1.4 (0.27- 4.2)

FT4 15.8 (12.0 - 22.0)

FT3 4.4 (3.1 - 6.8)

D3 106 (50 - 200) was below range before, still working on it

Active B12 172 (25 - 162) was low in range before

Felt a bit better with dose increase at start, now feel worse again, which is what happened when I started on the 50mcg. Assuming an increase needed...

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klr31
klr31
in reply to Yppah

It can take time and does take 6 weeks for bloods to show the altered dose.

Karen

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klr31
klr31
in reply to Yppah

Helping to address your low D and B12 will help with absorption.

Karen

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abama

Read Anthony Williams book Thyroid Healing . Uses Celery juice and all sorts of detoxing diets to get rid of EBV

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Yppah
Yppah
in reply to abama

Thanks for your comment. I looked at Amazon reviews on the book and there are loads of endorsements. But I can’t get over the whole medium thing. Do I need to get over myself?! I don’t care how I get well, I just want to get well. It’s interesting.

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Framboise

Can I suggest that if you want to go a herbal route you find a really good Western Medical Herbalist to prescribe and dispense for you. I had more help from one of those than from anyone else! But it must be the sort who is fully qualified and who dispenses from their own pharmacy and tailors the herbs and their proportions to your exact needs, not the sort who suggests what you can go out and buy.

I had EBV very badly in my early 20s, but recovered and went on to have a very active career, but then got chicken pox in my late 30s and gradually after that my energy disappeared and I began feeling awful. I was finally diagnosed with a thyroid problem 14 years later - it took that long because my blood tests were 'normal'. NDT helped but I still had little energy and felt awful. Somewhat clutching at straws I went to see a herbalist after reading an article in a newspaper and he was convinced the EBV was to blame for how I was feeing.

A virus can't be eliminated but its effects can definitely be lessened with herbal treatment. I regained my energy and started feeling almost ok after about 6 months of treatment, and it also helped my adrenals which had suffered over the years. But it isn't a quick fix. I continued with it for about 4 years but so far, 7 years later, I haven't gone to back to where I was at that time. I have lists of the herbs dispensed at each appointment but many are the sort only a practitioner can acquire. Good luck if you go this route :)

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Yppah
Yppah
in reply to Framboise

It’s fascinating. And inconvenient! How would I find a Western Medical Herbalist? If you don’t mind me asking, what herbs did you take? Thank you.

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Framboise
Framboise
in reply to Yppah

I contacted the herbalist in the article which I'd read and asked if she could recommend someone in my area, which she did. I'll link below. As with any medical practitioner you need to find a good one, there are lots of indifferent ones and probably plenty who are dreadful ;)

The herbalist I saw went through how I was at each appointment, worked out what I needed and the proportions and made the mixtures up from three shelves full of bottles of tinctures and extracts. Those I took included Goldenseal, Ginseng, Angelica, Dandelion root, Cayenne, Lobelia, Alpine Lousewort, Cohosh, Peach Leaves, Coleus, Horseradish, Guaiacom, White Willow, Crampbark, Bacopa, Hops, Water Hyssop, Gotu Kola among others... I've got this list from the notebook I kept at the time and the sheer variety of them is why I think it's best to see someone who knows what they're doing. Also some herbs, in the wrong concentration, are poisonous.

Here's the article I read which made me consider herbalism in the first place: telegraph.co.uk/lifestyle/w...

And here's that herbalist's website and contact details: willowherbalcentre.co.uk/ho... I didn't ever meet her because she lived too far away, but just wanted a recommendation, because there are several different associations which list different herbalists and I found it too confusing to decide by myself.

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Yppah
Yppah
in reply to Framboise

Thanks very much! If I go down this route I will also ask her for a recommendation. Would definitely want some specialist help I think. Glad it has given you some relief.

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Redlester

I would echo amaba's comment above - he puts almost all thyroid disease down to EBV.

I have had ME and FM for 18 years, although a lot of the reading I have been doing lately causes me to question what precisely is ME??? I am sure a lot of others would also share that thought. Regarding EBV, a holistic health professional I saw recommended a product to me which I have ordered but still haven't started to take for EBV [as EBV is implicated in ME]. He had bought this for someone else with ME and their response to it was remarkable. It is called 2LEBV and is made by a Belgian company called Labolife. I bought it online from a dutch online pharmacy called Viata. It is 30 capsules which you break open and place under the tongue on an empty stomach, one capsule per day. It was quite pricey but based on his recommendation I decided to order it, but just haven't taken it yet because there has been one reason or another for not wanting to risk compromising blood tests etc. I will start it in November and will give feedback to anyone who is interested. The same company also sells a similar product for Cytomegalovirus. I'm not expecting miracles, but any improvement in functioning would be better than I currently have at the moment.

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Yppah
Yppah
in reply to Redlester

I’ll look in to the book, thanks. I replied on the other post - I have such apprehension about reading that book due to the lack of science, but then if it works, it works...

Also the Belgian company products. Sorry you are suffering from it. Thanks

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unlocky
unlocky
in reply to Redlester

Excited for you! Hey why not anticipate a miracle. Then there's a greater chance you might get one and you deserve it!! xx

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Redlester
Redlester
in reply to unlocky

Good point - I was just trying to be realistic and not get my hopes up too much - but maybe it should be the other way around and the positive mind might make the body work at dealing with the EBV [along with the capsule contents LOL!].

Thanks unlocky!

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unlocky
unlocky
in reply to Redlester

Great attitude! When will you be starting the capsules? Have you already tried L.Lysine?

I look forward to hearing more about your progress especially now in view of your questioning! What's in a name.... !! Quite. Just a label for the convenience (and benefit) of others!! So now you've got that realisation behind you (can be disappointing) you'll be exploring all of the great strategies out there. Eg Getting away from grains, increasing vits and minerals in a targeted approach. Got to find out your own personal, and unique deficiencies, and your way forward xxxxxxxxxxxxx

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MissFG

Have you looked into LDN? I have EBV and had glandular fever in my early twenties which I believe was one of the triggers for my hashimotos. I decided against it as I found what worked for me but it could be an option for you.

ldnresearchtrust.org/what-i...

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MissFG
MissFG
in reply to MissFG

Btw I’m on acyclovir which is used to treat the virus but had to be prescribed by a specialist to treat EBV following diagnosis.

As far as I know once you’ve got it you always have it. But acyclovir can lessen the symptoms there is no cure unfortunately

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Yppah
Yppah
in reply to MissFG

Thank you, had never heard of LDN. I am seeing an endocrinologist about all of this, and feel well cared for, so will see first what they say, but also have a list of all the other things to suggest trying. So tricky. Sorry you are suffering from it / Hasmimoto’s / whatever the heck it all is!!!

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MissFG
MissFG
in reply to Yppah

Tbh I was unwell for a long time with fatigue before I got hit big time with hashimotos. But 4 years on I’m doing well. Your never 100% I don’t think but it doesn’t get a lot better. Especially when your immune system stops attacking your thyroid. Took me 2 1/2 years but once it stopped I was able to manage my systems a lot better. It’s just the damage it does to your body until then.

It’s such a shame it goes unrecognised as such a serious disease with limited options on the NHS for treatment. Use this forum they will help you so much. You take care and ask away if you need any help x

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JaneyJaney

I would not take time off work. It will start at two months and you will then need more and it will go on and on. I think after taking time off it’s hard to get back into it. Our bodies when not well, like routine. I know it’s hard but better to try and stay at work and given up gluten and take supplements and see if that helps.

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Yppah
Yppah
in reply to JaneyJaney

Thanks, JaneyJaney, I hadn’t really thought of it like that, so useful to consider. It’s a really good point as routine is something I am trying really hard to work on - doesn’t come naturally to me.

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JaneyJaney
JaneyJaney
in reply to Yppah

Honestly I would beg you not to stop working. You will end up with no job! Work will be rubbish with you too, even if they say they won’t. Doctors don’t think in practical terms. Even if you go to work and take two weeks’ holiday and the other days go home to bed after. I’d try to stay in work.

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